4 Years of Peyronies Disease with photos

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Coral33

Hi everyone, I've been dealing with peyronies disease since 2016 when I injured my penis while trying to do penis enlargement. I went into a depression for almost a year but after extensive researching and experimenting on different treatments I've managed to stabilize my condition using the basic treatments recommended by this forum. I've went to three different urologists in the Boston area specializing in peyronies disease and pretty much there was nothing they can do but give me pentox and boner pills. One urologist even told me that my penis was fine and there was nothing wrong with it, even though he had never seen my penis before my injury. Just know to get second or even third opinions because nobody cares for your penis more than you, so you can tell these doctors to f--- off and fix it by yourself using the resources provided by the guys on this website.

Anyway my "treatment plan" is:

Traction - daily for 5+ hrs, take a day off when you need it (I know my limit is when my frenulum is sore) Penimaster Pro or Restorex depending on the location of your scar tissue and how you need to stretch it. I have both because I think they're good investments if you don't want your dick to eventually become a useless lump of scar tissue.
VED - once or twice a week, follow the protocol, don't pump too hard, get a cylinder that fits (I had a issue where my scrotum kept getting sucked in because the cylinder was too big and ended up getting a lot of fluid in my balls. My dick shrank too and I had inflammation in the veins in my scrotum so I keep it as light as possible when it comes to pumping)
Cialis 5mg every night for nocturnal erections/morning wood,

My type of "peyronies disease" is not the same as everyone else, but I do see some people with similar injuries like mine (scar tissue deep in the tunica) which cause hourglassing, erectile dysfunction, and overall size loss rather than curvature or bending.

I've become active again in the forums because this battle against scar tissue is never over, as you can see from my photos I did an experiment where I stopped all treatment + masturbation for a month in hopes that my penis will heal by itself because of my young age and unfortunately the conclusion was that stopping or not getting treatment is probably the worst possible thing you can do. In my 2nd photo attached it showed the progression of scar tissue, in 30 days I lost even more length and girth. I managed to recover from that with the last 2 years of active treatment, as well as experimenting with new things. I'm hoping my post can help enlighten some people and let you guys know that it is possible to overcome this. Feel free to message me if you have any questions or if you have any advice for me.  

hope794

Thanks for sharing bro. Sorry for asking, but how did you get back from more than 1 inch lost to nearly original size?
26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
ED for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

desmondthethird

What kind of penis enlargement did you try, ending up with injuries?
Also, do you use any drugs or supplements?
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popopo

I developed peyronies symptoms from "Jelqing" as well. Seems there are more people that get hurt doing this stuff. Some guys claim it gave them permanent size gains, but for me it did nothing except ruin my penis for good. Now years later I still get worse over time and I don't think there's anything I can do to reverse the damage. If I where you I'd be very carefull even with traction and VED as even therapeutic use of those following the instructions you can find on this forum made me even worse. I don't know why traction and VED makes me worse.. maybe because jelqing innuries are different from "true" peyronies? I really don't know, but all I can say is be very carefull. Also look into pelvic floor theraphy as that can help you out as well. I wish there was a safe effective way to increase penis size, but jelqing and other penis enlargement exercises are not safe, at least not for all of us and for now I would focus on functionality, proper healing and getting rid of any pain symptoms before doing more traction and VED which could end up making you worse. Just my 2 cents.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

popopoo, you've been in pain for way too long for the most talked about solutions to help you.
I told you to look into penoplasty, which is a surgery more common that breast enlargement in 2020, and you told me a novel about your struggles instead of addressing my suggestion.
It would help you with all your problems and would most definitely put your mind at ease.
The only reason breast enlargement is more accepted, is because it's for girls, their confidence-issues and their looks.
Penoplasty is exactly the same, but is considered more controversial because it's for men and their confidence-issues.
Penoplasty is something I will do if nothing else works.
The concept is not even filled with blue here on the website, when it's more common than any other pathetic Peyronie's treatment that is recommended on here.
Not saying all treatments are pathetic and useless, but definitely the majority.  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

popopo

Cutting ligaments and injecting fat or pmma in my penis isn't going to get rid of my scar tissue and erectile issues. If anything I would go to dr Egydio for the MOST technique as that can be combined with an implant and fix my erection problems as well. I imagine cutting ligaments and injecting substances in the penis can only.make getting a natural erection more difficult. I looked into penoplasty and it's just not for me. Even for the MOST technique I want to at least see SOME positive feedback from others before taking the risk and so far all I see is bad experiences and I honestly can't find many people that did the procedure anyway even on the penis enlargement forums. For now I focus on my TRT and that can help erections too. I have been diagnosed with "venous leak" and testosterone could possibly help with that. I don't expect much, but it only makes sense to try this first. Also, I plan on quitting smoking and that can have a significant impact on penile health. I would also like to hear your experience with HGH And sorry that my "novel about my struggles" bored you.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

I just think it's terrible to let this disease keep you depressed for such a long time, but ofc it's great to finally take action.
I've taken Pentox for approximately 4 month and I still have pain, which really f*cks with my brain.
I'm thinking about switching Pentox with Grape Extract and Cialis, or should I maybe wait for some more time? I also use DMSO + Aloe Vera, daily.
HGH is definitely on my agenda, but i decided to wait a bit longer before I start a cycle.
When you say smoking, do you mean cigarettes?
If smoking weed, you should stay with pure green marijuana (not mixed with tobacco); since weed itself is a vasodilator, while cigarettes act as the opposite.
Your novel doesn't get you anywhere, man. Just switch up your life and chase the goals you've always wanted to reach.  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

popopo

I wasn't trying to complain or aything when I wrote my "novel", just trying to share my ideas. Pentox didn't help me either and I doubt that it's a very effective treatment for peyronies. There are a lot more guys who didn't notice anything when taking it. And with smoking I mean both nicotine and weed. I don't think pure weed is very bad for your health, but it does give me ups and downs in my mood and I become dependant on weed to make me feel relaxed and that doesn't feel right. I hope that within the next year I can learn to enjoy stuff again without being high. Does the DMSOdo anything for you yet? And when it comes to HGH, I think its worth a shot but it's very expensive and hard to get "the real deal". Testosterone is easy to get, but with HGH there are a lot of fakes. And I agree, I have been dealing with this for far too long, but I don't really trust those penis enlargement doctors and would rather be the way I am now than spend money I don't even have right now to possibly end up worse.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

You cannot end up worse with penoplasty; like I mentioned earlier, it's more common than breast implants which is fkn insane lol, but its's a fact.
Mixing weed with a fit lifestyle is the best. Ofc you become lazy as well as marijuana-dependent if you use it too often and let it take over your life; if it's looked upon as a medication rather than a drug used in a recreational way, that's when marijuana wins and is great for you.
I still believe in stem cells more than anyone else in the forum, and that's not because I'm an optimist; stem cells are already widely regarded as the future's own penicillin, conceptually speaking. It's already used in a lot of areas, which is something I think you know.
DMSO + Aloe Vera has done very little for me so far, I've only used it for 2 weeks tho.
The only thing (drugwise) I'm gonna try before having a penoplasty surgery or similar, is tadalafil mixed with Pentox or without Pentox, we will see how it plays out.
Almost forgot about HGH. You're right in the fact that it's hard to get your hands on good sh*t, it's also very expensive; but I will definitely give it a shot when God tells me it's time.
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

Inkognito

For me it looks like you are not fully hard in picture you posted ( one month resting ) because of glans...
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postrocker

Any news on your progression, Coral33?  
37yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

Asphyxia

Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder

Pfract

Asphixya, what is this even supposed to mean? Why spend time posting that what is everything but a valid contribution?  

Asphyxia

Are you kidding me? He mentioned he became dependant on marijuana use, and he smokes it, aswell as cigarettes i suppose.
How is a recommendation of a way to avoid combustion of marijuana and/or possibly tobacco and therefore be healthier not a valid contribution or advice.

Obviously if he mentioned he wants to stop completely then more power to him, but incase he cant stop, why not make it healthier, i really dont get why you even responded to my comment.
Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder