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Author Topic: Sw01 Revision Journal  (Read 442 times)

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SW01

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Sw01 Revision Journal
« on: February 26, 2020, 08:16:41 PM »

3 weeks till my revision. Lgx to replace titan.

I went for my pre surgery testing and will chat with my urologist surgeon on Friday for one last time before the surgery.

My history. March 2019, after dealing with Erectile Dysfunction, peyronies, hourglassing, plaque, and venous leaks for almost 3 years before having a titan implant put in. I had an 18 cm plus 1 rte put in for 19 cm total. Right after surgery I was about 5.5 inches and I was straight. My surgical notes stated after implant was put in and cycled I still had a curvature of 30 degrees. Modeling was done and notes said implant straightened it out.

I have a journal for that journey. I will say I was totally happy with the titan and the implant. My viewpoint was if this thing breaks I will get it fixed. Straight and got most of my length back.

Summer 2019 I developed a hernia in my groin. It was very close to my reservoir location. I dealt with the pain till dec. Decided to get the hernia fixed and scheduled for jan. Met with the hernia surgeon twice. Asked if he would want a ct scan to make sure where tubes and reservoir is. Said it was not needed. Hernia surgery would not affect the implant.

Night before implant pumped up and was a solid 6.5 inches. 5.5 flaccid with my titan. As I said totally happy.

One week after hernia surgery tried to pump up. 10 pumps and bulb collapsed. No hard penis. Deflated tried again. Same thing happened. Immediately scheduled meeting with original implant surgeon as well as hernia surgeon.

Hernia surgeon said it was a coincidence. Not related.

Original implant surgeon said, it was probably a pump issue and hernia surgery should not affect implant. He would recommend just fixing the pump as that was probably the issue. Tugging in the groin could have affected tube connections. It really was not a real issue. He inspected me thoroughly. While there I asked about a prominent ridge on my left side of the penis at the groin. It is a dog ear. No problem. Will see about a repair.

Decided to see my general doc as I was not happy with either viewpoint.  He referred me to a new urologist in town. Made an appt. He does implants regularly but only 2 to 3 a month. First thing he ordered was a ct scan. Reservoir is empty. Saline is actually visible around reservoir on the ct. He also did not like the protrusion of some the tubes in my groin as well as a very hard dog ear projection the left side of my penis.

He recommended a removal and replacement. The tubes from pump to reservoir, as well as reservoir needs to be changed. Pump should also be changed since tubes are being replaced.  Should just change it all and start fresh.

We discussed my history with Erectile Dysfunction and peyronies. The titan fixed it and have not had any issues in the past year. Love my titan. I would have no problem keeping it.

He discussed taking the titan out and putting an lgx in. I told him I had no interest in a cx at all. I also have one tip shorter than the other. He said the tips could be evened out and should get another cm added to the length. This should be the 18 cm lgx with a 2 cm rte. He did not think I am ready for a 21 cm lgx but would see. I was concerned about the lgx and peyronies. He said since titan was in for the past year it would be good and the lgx would give me some relief from the hard ridges protruding from my penis and limit possibility of any erosion.

At this point nervous as hell. Not about the implant. Getting that fixed. Just wondering about the lgx and the new surgeon. I am a bit stuck as I am going to need both a general surgeon and my urologist surgeon in the or. Hernia mesh will need to be redone at same time reservoir and tubing is placed as it looks like the reservoir may be tied to the mesh.

Insurance approvals are done. At this point just waiting till the 18th. I am going local this time for several personal reasons. I guess I will see how it all goes. Whatever happens it will be interesting to compare the new lgx to the titan. One bright spot hopefully is i already have 19 cm total cylinders and rtes now so i am hopeful i should not get shortened and might get another 1 or 2 cm for 20 or 21 total length cylinders.

I will keep you all posted on how things go. I will say the new doc has already given me antibiotics and gabapentin to start 5 days before surgery to get a start on the infection risk with the revision surgery.

I do wonder how recovery will be. Last time was pretty easy for the most part.


 

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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

Hawk

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Re: Sw01 Revision Journal
« Reply #1 on: February 26, 2020, 11:48:08 PM »

How did the issues with the warranty on the Titan shake out?   Is your insurance just footing the bill?  Is Coloplast paying for the LGX??

Wonder why they don't just disconnect tubes, leave the deflated reservoir in and put the new reservoir on the other side from the mesh unless.  My understanding is that it is typical to leave the old deflated reservoir.  That way they would not have to redo the mesh.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

SW01

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Re: Sw01 Revision Journal
« Reply #2 on: February 27, 2020, 10:02:25 AM »

I got all the approvals on tuesday for insurance coverage for the removal and replacement including paying for new implant. My circumstances are probably unusual. The reservoir and and tubing need to be taken out of my groin and not left in. Since they are going to be tugging and pulling a lot in the area it was thought a whole revision would be best. They did not want to take a chance and prefer to make sure everything works when I leave the or and my only issues would be the normal ones.

Those are bad enough as it is. Well 3 weeks till my next adventure.

No worries, no concerns, no anxiety. Just wish it was sooner but my wife is recovering from her surgery for next few weeks. So that is as soon as I could do it.

One observation is, i have had a straight, hard penis from march 7 2019 until January 6 2020. Then soft or as soft as deflated titans get, which is a semi. It is not hard enough to do anything with though. I look down and it is looking down like a chastised dog. I want it looking up at me all excited and looking for our next adventure.

Getting this fixed asap. Why go through life with a soft one when I can have a hard one. It is just a little pain to get through to get to the reward. Hell both my knees hurt worse than the pain from my first implant surgery. And they hurt all the time. Implant surgery pain goes away eventually.

3 very long weeks. At least I am still over 5.5 inches flaccid with the titan cylinders deflated keeping me some length.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

Stepone

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Re: Sw01 Revision Journal
« Reply #3 on: February 27, 2020, 10:07:20 AM »

Good luck and prayers for you Sw01.

Let us know the date when you get close, so we can all be thinking of you.

Thanks for sharing.

StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

tomas1

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Re: Sw01 Revision Journal
« Reply #4 on: February 27, 2020, 02:56:17 PM »

I also wish you well on your new implant.
I wonder if they will tell you if the tubing had been nicked in the hernia surgery,
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81 years old.
Implanted 01/22/19 by Dr Avila.
18cm AMS 700 CX, 3.5cm RTE 100cc reservoir
Diagnosed with Gleason  prostate cancer.
Monitoring it for now.

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Re: Sw01 Revision Journal
« Reply #5 on: February 27, 2020, 09:18:20 PM »

Hey SW! Time to test out a VED on your penis just for the sake of it?

SW01

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Re: Sw01 Revision Journal
« Reply #6 on: February 27, 2020, 10:13:09 PM »

I definitely have nothing to lose with using the ved. I still only get about .5 inch growth. So I am pretty stuck on the 6.5 length I was when fully pumped.

I figure I am going to have pretty detailed op notes from the surgeons involved in the follow up. In this day and age they can gloss over a routine surgery but are normally required to note any abnormal situations. My hernia surgery op notes said everything went fine and nothing out of the ordinary was noted.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

SW01

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Re: Sw01 Revision Journal
« Reply #7 on: March 08, 2020, 11:33:30 PM »

Well about 9 days till my revision. I visited my new surgeons. I am first up for the day at 6 am. Insurance has all been approved. Tubing issue is actually getting worse in my groin.

My granddaughter jumped in my lap and I thought I was going to have to go to er. I saw stars for sure. Not sure what is going on with tubing but it is protruding more from my groin and noticeably hard.

Nervous as can be. Mainly just about the lgx. Went back to see urologist again and he assured me I should have no worries. I have a flaccid 6 inch penis. No hourglass any more. No curve. No plaque he or I could find. Not sure where it went.

I have a prominent fold at the base of my penis on one side from the titan cylinders which the urologist is concerned about for potential erosion. One main reason he wants to replace the entire implant with the lgx. After cycling for a year one tip is lower in the glans than it was, and the other tip is now even lower.

So now I have bad reservoir, tubing, and a potential erosion issue, along with uneven tips.

So, food for thought. Get the best doc you can for whatever surgery you are having done. DO NOT GET A HERNIA FIXED WITHOUT YOUR DOC DOING A CT AND KNOWING WHERE THE F YOUR IMPLANT PARTS ARE. IF HE WONT DO IT WALK AWAY.

I am going local for a few reasons. 1. I am needing a team to fix this who have worked together. 2. My wife cannot travel very far for a while due to her health issues which are not good. 3. I want this fixed and actually feel comfortable with my local urologist and surgeon.

Just nervous about the lgx. I loved what the titan did for my curve, hourglass, and plaque. Hopefully the lgx is plenty hard when pumped I will not be having sex with a semi and reinjured my penis.

Worst case scenario is revision 3 back to titan. You have to stay positive and laugh somewhat at this stuff or we would all go crazy. As my wife says. It's perspective. 3 surgeries for her and she still has an opening from her brain straight into her ear canal. Still discussing the next one for her in a few months.

I and she though still like my hard pumped up male appendage when the stars all line up and she is into having sex. It might not happen as often as either her or I wish. But by god I am getting my implant fixed so if she has the energy I am ready.

One thing I can do is compare the 2 devices as far as non peyronies issue goes. For peyronies I do not think anything beats a titan.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

pfract

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Re: Sw01 Revision Journal
« Reply #8 on: March 09, 2020, 01:12:07 AM »

Hey man... that is a lot on your plate right now... try to stay strong through all this! Hopefully you will be better off this time around. A lot of folks around say the Lgx also gets "super hard" and they don't need the titan, so i am curious to see what your thoughts will be!

SW01

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Re: Sw01 Revision Journal
« Reply #9 on: March 18, 2020, 06:44:55 AM »

Well sitting in preop. Just got stuck with the biggest iv needle they have. Running several different kinds of antibiotics in me for the next hour or so.

I ws also given 5 days worth of antibiotics and gabapentin which I took the 5 days before surgery to help with any risk of infection.

Nervous as hell. Not for implant though. I want that back in and operating ASAP. Mainly just for the issues with the hernia mesh and reservoir. I was already informed I may end up with a couple incisions in my groin area in order to get to it and keep hernia fixed.

Nervous about lgx and what size cylinders doc uses. I have no control over that and hate it. Right now I have 19 cm cylinders. Hoping for at least 20 cm total. It would be nice if he could get the 21 cm lgx in without potential tip erosion issues.

 I will be happy after all is said and done to have my last erect size with the titan of 6.5 inches long and 5.5 girth. I hope the LGX gets me back there. The doc said he would put the longest cylinder he could with the fewest rtes.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

Stepone

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Re: Sw01 Revision Journal
« Reply #10 on: March 18, 2020, 07:49:07 AM »

Good luck bud, we are hoping for a successful surgery for you.
Bear hugs and prayers
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Sw01 Revision Journal
« Reply #11 on: March 18, 2020, 12:09:15 PM »

Good luck SW01. You’re maybe out the other side now. I hope everything went well.
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Aged 48 congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019
Dr. Mike Fraser - Glasgow

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Re: Sw01 Revision Journal
« Reply #12 on: March 18, 2020, 12:53:54 PM »

Good luck SW01! Though times to be under the knife now... Hopefully everything will go well.

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Re: Sw01 Revision Journal
« Reply #13 on: March 18, 2020, 09:25:49 PM »

Hope your recovery is going well!  I’ve found the revision recovery much smoother than the original install.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

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Re: Sw01 Revision Journal
« Reply #14 on: March 19, 2020, 12:19:04 PM »

Best wishes!  Anxious to hear back from you.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

SW01

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Re: Sw01 Revision Journal
« Reply #15 on: March 20, 2020, 01:54:09 PM »

2 days after surgery. I was lucky to get surgery. One of the last ones before they were stopped at my hospital due to the virus.

I have to say, I woke up and saw the doc. He was smiling and told me I would probably want to know first that he did upsize me to 18 cm cylinders plus 2 rtes for a total length of 20 cm. He was also able to remove all of the old pieces of the titan and hoped that would take care the pain in my groin.

Surgery went a bit long at over 3 hours. He did spend some time looking for the reason for the reservoir leak but found no obvious cuts or tears. He then installed the new lgx.

Last year I spent the night in the hospital on an iv and pain meds as needed. I went home the next afternoon after being discharged from the hospital with my catheter and drain removed at the hospital after them being in only the one day.

After this surgery, I woke up in the mummy wrap with a catheter and jp drain left in to go home in until doc follow up in 2 days. Was given a 5 mg oxy before I left the hospital. It was nice to only have a 20 minute car ride home.

No real discomfort at all. The biggest irritation was the catheter and the drain. I did lay down for a bit when I got home but woke up around 7 the same day of surgery and spent some time walking around the house with no issues. I was walking slow but no real pain just some ache. First pain pill at home was about 10 pm and went to sleep. I did stay laying flat except for a couple of walks around the house. Surgery was wed.

Spent thursday laying flat and tapered pain pills off to 1 pill every 12 hours. No real pain, just an ache. I did look forward to my first follow up appt friday morning to get the mummy wrap off, as well as the catheter and drain out.

Took my last pain pill at 5 am friday morning and saw the doc, later that morning. he removed the mummy wrap, catheter and drain. He had me pumped up a bit after surgery while I was in the mummy wrap. He deflated me at this visit. At this point I was given my post instructions. I have to stay out of the tub for 2 weeks. His scrotal incision is glued but I have a pretty long groin incision as well.

Looking over my package, I have to say while it looks a bit beat up, but no bruising either on my penis or sac yet. I do have some swelling on my fat pad but that is where the incision was made to remove the old reservoir and tubing. No bruising yet though there either.

I am walking around fine with no issues. I would have absolutely no issues walking anywhere I think at day 2. I am getting up and down easy. While I thought my initial install went well. For me, i can say i am up and walking a lot easier at day 2 this time.

As to pain, while i am probably on some residual pain pill from early this morning. I have no ache at all. Absolutely very comfortable laying down. No problem at all getting up to go to the bathroom. Being deflated this time makes urinating in the toilet a lot easier. Have not even taken any tylenol which I could take if needed. I am taking antibiotics and gabapentin for the next week to help with potential infection risk.

I am pleased and happy with how things are going. My goal was to get my implant back and have no more issues with the hernia. I will say I am pleased also with the urologist who did this removal and install. He was extremely cognizant of all my concerns. While I did not look forward to this surgery. I wanted my implant back along with my hernia issues taken care of. Time will tell. I will see how things go over the next few weeks and how the lgx compares to the titan. The lgx pump looks huge sitting next to my titan one. Since I have both key chain models I will add a picture of them side by side.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

pfract

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Re: Sw01 Revision Journal
« Reply #16 on: March 20, 2020, 05:55:40 PM »

So glad to know it went well for you SW01! Hopefully you will not have any issues with Covid, as that would be the last thing you need. You had both devices now and i am eager to know how you will find the LGX. Fingers crossed for you!  8)

Stepone

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Re: Sw01 Revision Journal
« Reply #17 on: March 21, 2020, 08:21:52 AM »

SWO1
Thanks for the detailed report. It will offer hope for others if the face the same situation.
Very curious about your new model vs. the Titan.
I also look forward to seeing the difference in pump size.
How you will compare the two in actual intercourse will be interesting too.
If you are brave enough to include some pics, that would be great too.
Congratulations on your size increase.
Best wishes,
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Sw01 Revision Journal
« Reply #18 on: March 21, 2020, 12:57:15 PM »

Delighted to hear this has gone very smoothly for you, SW01. By the sounds of your report you’re doing great and long may that continue. You sound as tho your recovery from replacement surgery is so much easier than the original surgery last year. Delighted for you. Keep us posted.
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Aged 48 congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019
Dr. Mike Fraser - Glasgow

SW01

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Re: Sw01 Revision Journal
« Reply #19 on: March 23, 2020, 08:02:41 PM »

Day 5.

All I can say is WOW. The revision has been smooth sailing so far it scares me. I just keep thinking this cannot be it and there has to be something more.

I have not had a pain pill since last friday. 6 o clock the day after surgery. I have one more day of antibiotics along with about another week of gabapentin to help with potential infection risk.

Swelling has gone down enough to get a bone press measure with no issues. My flaccid with the lgx is 5.5 inches. This is the same measurement with my titan the night before revision surgery. The doc on day 2 deflated me as good as he could so I am recuperating soft rather than pumped up 60 percent.

I am moving around just fine. I can get up out of bed fine, up and out of a chair fine, and walking up and down my driveway with no issues period. No walking funny, or slow, nothing. Just normal. My only sore spot is where the jp drain was inserted although it has closed over.

Going to the bathroom is a lot different this year. I have no problem using a toilet. I can do it standing up if I wanted. Last year I was inflated about 60 percent though, which really affected urination then. Now i am just flaccid so urinating is fine.

Today i also noticed i was not standing straight out and was actually angled down. I can only think that is strictly due to swelling inside my penis is pretty much gone. Today my penis looks about like it did the night before revision surgery.

The only bruising I have is along my incisions. I have bruising along the scrotal as well as my groin lower stomache incisions.

My sac does not have anywhere near the fluid it had in it last year. I can easily feel my left testicle, the pump, and when carefully massaging around, the deflate button on that huge feeling block of the ams pump. My right testicle has not though shown up yet. It took a couple months last year before I found it as well. I am sure it will show up soon.

I am looking forward to pumping up and seeing what this one does. The cylinders on the lgx are softer than the titan for sure. I can definitely feel the lgx cylinders inside my penis though. If I push on the sides there is very little give in them.

My tips are even now and at this time while flaccid are both well into the glans. I really am anxious about starting to pump this up and make sure I am still straight. I will add some pictures to show the comparison between the titan flaccid and lgx flaccid. I just want to make sure all swelling is gone for sure. I want to be fair to both units.



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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

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Re: Sw01 Revision Journal
« Reply #20 on: March 23, 2020, 08:51:36 PM »

Wow, it sounds like you got a great replacement.
My experience was almost identical to yours.
I do wish my surgeon would have used the LGX, but he is under the misguided impression that cylinders 18cm or larger need the CX.
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81 years old.
Implanted 01/22/19 by Dr Avila.
18cm AMS 700 CX, 3.5cm RTE 100cc reservoir
Diagnosed with Gleason  prostate cancer.
Monitoring it for now.

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Re: Sw01 Revision Journal
« Reply #21 on: March 24, 2020, 07:57:20 AM »

Congrats, and cheers to an ongoing smooth recovery!
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Stepone

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Re: Sw01 Revision Journal
« Reply #22 on: March 24, 2020, 10:14:52 AM »

Wow, congrats to all the great results.

Please send pics of the two pumps side by side.

Thanks,
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Sw01 Revision Journal
« Reply #23 on: March 25, 2020, 12:07:16 AM »

SW01: just for the simple fact that your flaccid is the same size as presurgery you have already own. Great reassurance on it's own right there!    8)

SW01

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Re: Sw01 Revision Journal
« Reply #24 on: March 26, 2020, 10:57:07 PM »

One week.

Still going well after 1 week. I still cannot believe how easy this one is going. So good that I was out in the barn prepping equipment for spring. Starting mowers, tractors, etc. My wife missed me and rushed out to make sure I was still not lifting anything over 10 pounds.

I do still have a little ache but not taking anything. My scrotal incision is still a little tender and bruised just on the cut. My groin incision is also healing. I am really looking forward to a bath then the hot tub before it gets to hot.

I will say right this pump still feels huge. I cannot believe at week 1 I can feel all around it and actually tell where the deflate button. No swelling in my scrotum. It is also pretty loos although I can feel a little tissue on the right side. It does feel like I am stuck to the pump in one spot. It took me over 3 months last year to get the titan pump free floating. All I can do is keep working on this one.

I could easily pump up and deflate but my doc told me to wait a few weeks. Flaccid size is still constant at about 5.5 inches.

Girth still looks a bit narrower but hard to tell until I pump up and measure. I am getting my glans growth back and doing kegels does cause my head to flex. I am also getting my morning wood back. Nothing real hard but I will stick out at 3 o clock until the morning urination. Then back to a 4.30 down.

If I am sitting or laying down I am wearing my penis back against my stomache. When walking around I wear some tight boxer briefs and a jock over that. I look funny wearing it outside the undies but it works.

Looking pretty good so far. Time will tell if this 20 cm total ams 700 lgx will do what the titan did. The cylinders are noticeably softer. This is even after just one week.

One thing I can say is the jumble of tubes I could feel in my lower right groin are gone and I no longer see stars if I move wrong.

I cannot to wait to pump this up and see how this thing does and try it out.
Logged
I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.
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