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Author Topic: List of US docs who use ultrasound guidance for xiaflex?  (Read 783 times)

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samsung

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List of US docs who use ultrasound guidance for xiaflex?
« on: February 22, 2020, 10:04:24 AM »

Anyone know of any (preferably on the East Coast)?
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Buccaneers1

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #1 on: February 22, 2020, 11:31:49 AM »

Does dr levine in Chicago do shots with ultrasound?
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BadLuck

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #2 on: February 22, 2020, 06:24:24 PM »

Levine does not do the shots, his PA Gina does.  For the Verapamil shots no ultrasound is used.  I can't imagine it would be any different for the Xiaflex injections.


Does dr levine in Chicago do shots with ultrasound?
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TonySa

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #3 on: February 22, 2020, 07:15:11 PM »

Dr Lue indices an erection, palpates and marks the plaque. When erection is gone he injects per the marks,
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #4 on: February 28, 2020, 06:55:57 AM »

Does anyone know of any US docs that use ultrasound for xiaflex?
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #5 on: February 29, 2020, 08:33:10 AM »

17K members. Someone must know. Will bump this thread everyday and annoy everyone. On tight schedule with insurance.

Does anyone know of any docs that use ultrasound-guided injections?
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

BadLuck

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #6 on: February 29, 2020, 10:56:04 AM »

I'd be interested to know this also. 
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samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #7 on: February 29, 2020, 11:30:57 AM »

If I started a thread about iodine supplements this would go on for 4 pages.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #8 on: February 29, 2020, 01:25:12 PM »

And?  Add to any threads you’d like...it’s how forums work...criticizing others doesn’t do anything than discourage folks from participating...
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #9 on: February 29, 2020, 06:06:13 PM »

With my insurance I only have about a week to find a doctor that does this or be stuck with what I have. This makes me feel desperate. I am frustrated because I know someone knows a doctor that does this method. And people only post here about stupid supplements that don't work or asinine dietary methods. Not about real answers to actual things that actually do something. For implants or surgery, this board is great. For anything else, it is practically useless. Who cares about bee pollen supplements, etc. My point is that I could post about ketogenic diet stuff and get a million responses and I ask a simple question here that I REALLY quickly need an answer to and I get crickets and it pisses me off.

Sorry for the rant, I'm not having a good day or a good time with the xiaflex. 4 rounds and squat results. I don't want an implant but nothing else is going to straighten it out. So when I hear about ultrasound guidance I hope. Even though I know how this ends.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #10 on: February 29, 2020, 06:20:03 PM »

Sorry for being a bitch. I'm just freaked out by this and by the bruising on this last shot. I'm in a lot of fear that the discoloration is permanent this time because it was a lot worse and the color is just way off and is not healing or clearing and it is making me very anxious.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

BadLuck

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #11 on: February 29, 2020, 07:01:51 PM »

Have you tried contacting the drug manufacturer?  Just a thought.
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samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #12 on: February 29, 2020, 07:17:21 PM »

Yes. Thank you. I will call them on Monday. Also, I asked Dr. Eid too. He said people don't use this method because it is too difficult to hold the ultrasound and palpate the plaque and inject the plaque at the same time.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #13 on: February 29, 2020, 11:22:18 PM »

Yea, Dr Liu doesn’t use ultrasound either.  Instead he induced an injection and marks the plaque.  When it goes down he then knows precisely where to inject.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jan.schaller1958

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #14 on: March 03, 2020, 10:47:07 PM »

I saw Dr Lue on 2/28 and he recommended Xiaflex. 4 years ago I saw him and he said he couldn’t use it- the plaques were too wide spread out. But, now he says I can use it and referred me back to Kaiser for the injections.

It’s possible things might have improved on their own. The hourglass deformity disappeared in its own. Things seemed to have stabilized on their own. Used Pentox for the first year and thought it was just a joke and gave up on it, but maybe it helped. Who knows?

So, know I don’t need surgery (40% risk of Erectile Dysfunction for men in my age group, 61) and Xiaflex is his recommendation. I told him “I heard Xiaflex wasn’t that great and only worked in 30% of cases.” He asked, “Where’d you hear that?” I said, “Off the Interessent.” He asked, “And who on the Internet said that?” I said, “I don’t know. Some guy.” Then he said, “why do you believe everything you read on the internet?”

Well, he has a point. So, I’ll give Xiaflex a try and the traction he recommended and see what happens.
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TonySa

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #15 on: March 04, 2020, 04:21:12 PM »

One factor is having a doc w experience in administering xiaflex-dr lue does.  You’re in good hands.  Be prepared as he likes to joke around as well.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #16 on: March 04, 2020, 08:03:53 PM »

Talked to the pharma company today. Nobody there knows anything about doctors that provide this. Unbelievable. So frustrating. Someone here knows. Doesn't matter. Xiaflex is useless anyway. 4 rounds. Nothing. Waste of time and 20K for me.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #17 on: March 04, 2020, 08:56:28 PM »

Ultrasound is not necessary, can induce erection and clearly mark plaque.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jfest

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Re: List of US docs who use ultrasound guidance for xiaflex?
« Reply #18 on: March 12, 2020, 06:16:43 PM »

My doctor's PA did all of my shots. It kind of scared me at first, but he was good. There was no ultrasound done during the shot, nor did they induce an erection. My plaque was palpable.
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49 years old. Diagnosed with Peyronies in September 2018. Prior to Xiaflex and traction: 45 degree curvature. Today after Xiaflex: 31 degree curve. Continuing traction to regain lost length.
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