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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: me  (Read 936 times)

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memnoch

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me
« on: February 17, 2020, 07:51:04 AM »

I'm 48 years old and am in the chronic phase with a bend about 45 degrees at the base of circumcision scar.
Urologist prescribed 400 mg Pentoxifylline Er 1x day.
Urologist prescribed VED that I have to wait forever for insurance to likely not cover so I bought this: https://www.amazon.com/gp/product/B07WV9VK71/
I haven't started yet - how does one find 10 minutes 2x a day with a small house with thin walls and full of kids???
This is a bummer.
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50 years old
2018 symptoms started - painful bend
65 angle just below circum.
Pentox, Cialis, Ubiquinol
RestoreX started 8/2021
Heated rice sock when it isn't too hot out
https://tinyurl.com/Forum-Intro

TonySa

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Re: me
« Reply #1 on: February 17, 2020, 10:44:18 AM »

Fortunately VED is quiet.  For privacy if lock the door and let the kids know you need some alone time and you’ll come find them in 15 minutes.  Of course, if someone can keep them busy (or go before/after their bed time) would make it easier.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

memnoch

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Re: me
« Reply #2 on: September 23, 2021, 06:27:21 PM »

Dr diagnosed today. Says I have 2cm plaque.  Where is that size in the Peyronies Disease realm?
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50 years old
2018 symptoms started - painful bend
65 angle just below circum.
Pentox, Cialis, Ubiquinol
RestoreX started 8/2021
Heated rice sock when it isn't too hot out
https://tinyurl.com/Forum-Intro

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
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Re: me
« Reply #3 on: September 23, 2021, 09:53:07 PM »

I'm not sure what the average size or number of plaques are and I am not sure how important that is anyway.  What is important is the degree of deformity or size loss.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Lostandsad

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Re: me
« Reply #4 on: September 26, 2021, 02:07:39 AM »

Hmm, after over a year and a half, has your bend improved at all with VED usage?
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MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible Erectile Dysfunction), get implant, or pray

memnoch

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Re: me
« Reply #5 on: September 26, 2021, 08:36:25 AM »

I got very little VED in.
Meanwhile I went from 30 degrees to 65 degrees so decided RestoreX would fit my lifestyle better.
I'm on week 6 now with RestoreX.
No decrease in bend yet.
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50 years old
2018 symptoms started - painful bend
65 angle just below circum.
Pentox, Cialis, Ubiquinol
RestoreX started 8/2021
Heated rice sock when it isn't too hot out
https://tinyurl.com/Forum-Intro

BrettC

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Re: me
« Reply #6 on: September 26, 2021, 12:51:14 PM »

In my first year I found I went from 40-45 degrees to a 60-65 degrees... sort of the progression of the acute phase.  After one round of Xiaflex treatments and a long year and a half or two with Restorex I am back to 40-45 degrees. 

Hang in there. 
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50 years old
Diagnosed just over a year and a half with 40-45 degree upward bend after starting with 60-65 degrees.
Completed one full round of treatments with Xiaflex (8 injections) 
Using Restorex and oral medications as well (Pentox, Cialis)

Monty

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Re: me
« Reply #7 on: September 27, 2021, 05:59:21 AM »

@ ME, hi i do my sessions last thing at night and first thing in the morning, in bed when all asleep.
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71 UK, Erectile Dysfunction from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life
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