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Author Topic: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....  (Read 626 times)

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pfract

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Hey guys. After so many years in this board i realized i never sort of hard a diary here, per se. I did vent out a couple of times, but never opened up a thread where i could post continuous updates about my condition/progress and what treatments and doctors i pursue with photos and documents to back up my statements; i think that in a forum like this, where people are in despair with their condition and fall prey to quack treatments and easy fixes, with scammers roaming around and guys making false and outrageous claims it is the way to go.

8th of august 2014
I had sex with a girl, and during intercourse i felt a sting on the penis. Went to sleep, didn't make much about. Had a slight discomfort sensation in the penis, but no pain. 12h later i woke up with a small hematoma, but no bruising on the right side of the penis. Went to the ER and i was told it was nothing. Ended up having a flaccid ultrasound that showed nothing, and then was sent home. Tried having intercourse 1 week later, and thats when my erection difficulties started.

29th of August 2014
Finally went to a urologist that diagnosed me with a small penile fracture, but said that it was too late for a repair. I had to let it heal now, and the damage was done. I ended up going to a lot of doctors in that time period for second opinions and they all agreed on the same thing. I was given Pentox to help with the treatment. My erections were super painful, but eventually stopped hurting. I was left with moderate E.D. I could not sustain my erection, but i could achieve one. Erection substantially improved with pills.

May 2015

I tried to have intercourse with a girl, and i was able to achieve and maintain an erection but it felt much weaker than previous ones. I did not take viagra, and ended up feeling my penis bending inside of her again since my erection was not rigid enough. That further worsened my Erectile Dysfunction, and my erections where not as solid as before.

Sometime around this month, i saw another Urologist in Portugal that listened to me and provided some support and guidance, but wasn't able to offer much help other than the usual. (injections, pills and or vacuum pump).

I also spoke on the phone with Dr. Irwin Goldstein (San Diego Sexual Medicine), who used to (and maybe still does today?) a surgery  that might help restore natural erections, in cases of penile trauma, or trauma in the perineum area. I promised to myself that i would make everything possible to go and see him when i had the money to.

June 2015
I was fed up with the Portuguese public health system, and given that i had family in Canada, i emigrated here. I worked non stop till February 2016 and i finally had the money to go and see Dr. Goldstein.

March 2016
I travelled from Toronto to San Diego, to see Dr. Goldstein and diagnose properly my condition. I spoke with her sexual therapist, and then had my consultation with him in the Office. I still remember to this day how amazing it feels to be properly listened to. Just wow.... I did not want to, but i ended up having an ultrasound diagnostic in his office. 950$ CAD out of my pocket for my consultation and ultrasound... Plus plane tickets.

Unfortunately his surgery wasn't for me, since i already had fibrosis in my penis. He recommended i tried injections or pills. I did asked for an implant there, but i was not too pleased with the answers i got, since it was from his assistant i got the answers and she said i would loose length and might have other issues and i was also too young.

January <-> September 2017
I saw two urologists in Canada. Dr. Greenspan in Hamilton. and Ethan Grober in Toronto. Both where a waste of time. At least Greenspan offered me a prescription for Cialis daily, which i take. Ethan grober didn't even wanted to listen to me properly and dismissed me almost instantly. Literally asked me "what did i want him to do for me....

August 2018
I was missing intimacy a lot after being alone with no sex since 2015, and after turning down a lof of girls i eventually caved in and went out for a couple of dates with a girl from my home town. During one of those dates and while we where making out... i had my penis erect in my pants, bent out to the left. She was moving a lot and i felt another slight sting in me penis. My Erectile Dysfunction further worsened, and i lost a little bit more length and gained slight curvature to the left. I totally avoided her, and other girls that approached me after that in anger in frustration.

September 2018
I managed to get an appointment with Dr. Gerald Brock, in London Ontario. He does implants as well, and is one of the few Canadian doctors in the area doing so. He did not want to do the implant on me, but he said i was very knowledgeable and he was impressed that i knew about restorex. He offered to give me a sample and also wanted to do a Ultrasound on me for further exploration, as well as he was going to email Dr. Irwin Goldstein to get all my documention from the 2016 visit as well as the exam report.

February 2019
I went back to St. Josephs hospital in London for an ultraosound but it did not go according to plan. I was there on time, at the correct location and floor but the assitant did not told me i needed to register so i was there for 1.5 hours waiting, seing patients go in and out till eventually there was no one there. She eventually called upstairs to the 4th Floor, and Dr. Gerald Brock was furious that i made him come down and gave me a huge reprimand. IU had a flaccid ultrasound which, surprise surpise, did not show anything. I did manage to get my Restorex sample that day finally. Sadly, i haven't had the courage to use it still due to concerns with my girth and clamping the device on the penile glans too much.
https://www.peyroniesforum.net/index.php/topic,11963.msg110947.html#msg110947

January 2019
I went back home to Portugal for vacation, after these 4.5 years of staying in Canada. There i ended up seeing a Urologist that also does Penile implants and is the closest thing there is there compared to the US in terms of treatment for Erectile Dysfunction. A private practice you can go to and get yourself a penile implant. It was a positive consultation and i got to know that it costs around 13.000 euros to do it out of pocket.
https://www.peyroniesforum.net/index.php/topic,13002.msg119280.html#msg119280

February 2020
I am currently back in Canada. Looking for another job, within my industry that pays more and allows me to travel and see Dr. Eid or Dr. Kramer. I am currently unsure of how to proceed, because i wanted Dr. Kramer to do my implant but from what i understood he does not do appointments before the procedure and trusts his patients to know about their condition and to have done all the tests before. Dr. Eid does have you do an ultrasound and cistoscopy before the procedure to check your urethra has no damage and that is something i would like to do, as i currently have my doubts about my condition. If all goes well, i will be able to see one of them this year and hopefully kick start my implant surgery plan phase.

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #1 on: February 13, 2020, 01:59:17 PM »

I figured i started with the diary... after plenty times thinking about it, but with no thoughts coming out... it's clear to see Erectile Dysfunction is taking it's toll on me mentally and i really need to reach out for help. thanks to the ones that read this, even tho i expect no answer in particular. Just venting out and putting my thoughts out there. I guess it felt somewhat good....

TDix

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #2 on: February 13, 2020, 03:05:17 PM »

Thanks for the journal.  Mine are more like “chapters” in my life, so that’s how I label them.  Seems you have seen a lot of doctors and done a bunch of traveling.  I hope you finally get the help you want and need.  If you ever find yourself in SoCal again, I would suggest Dr Yafi.  Wouldn’t hurt to get yet another opinion and he is my go to andrologist.  Wish you luck man
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Bananadude

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #3 on: March 23, 2020, 08:34:33 PM »

Damn my story shares a lot of similarities...

Young and sexually/emotionally depraved... it sucks.

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25 y old. Injury during sex 2014 and since then, an upwards bend, 20-35 degrees. Haven't tried more than occasional manual traction. Losing my mind.

hope794

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #4 on: March 23, 2020, 08:45:17 PM »

You are a good man, pfract. You'll overcome this. I am really sorry and, since i'm not english mothertongue, i just can't find the right words to describe what i felt by reading this post. And probably i don't find the right words to tell you something really helpful; or maybe, i just can't.
Please keep us updated.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #5 on: March 24, 2020, 06:13:55 PM »

Thank you for the reply guys. I have to update this diary...  Got some, somewhat uplifting news....

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #6 on: March 26, 2020, 05:33:38 PM »

So.... after what was almost 1.5 months without saying anything.. i have some updates.. Since February 21st of this year, i have been talking with a girl that  i matched with on Tinder. A lot of video calls already and we met in person. Ended up spending the whole afternoon on the park in Toronto. Right before the quarentine started. I have been discussing with her a lot that i have something that might prevent intimacy between us, and if it does come to happen i am not sure how will it go or if it will be a deal breaker for her.

Meanwhile, she also has some secrets to share and she said she also spent a lot of time without intimacy and on a long distance relationship. She said she doesn't know what it is that i may have but she says she doesn't think it will be a problem.

So.... i don't know what to do here. Quarantine is in full force and i don't know how long i will be able to keep the steam going....But, if it works out i may have something with a new partner. She is not exactly the type of girl i normally look for, but she has some very nice things as a person and she is pretty too, so i am kind of tempted to give this a try.

TonySa

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #7 on: March 26, 2020, 09:27:50 PM »

Hope you give it a try!
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Stepone

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #8 on: March 31, 2020, 03:18:19 PM »

Pfract,

I think you are so brave to share your concerns with your new friend. We all have wounds, we all have scars, whether they are physical or emotional. The fact that you shared with her and she shared with you, seems to me to be a creation of a bond. I think it's a part of life when one person is able to share with others their own wounds, it will enable another person to share theirs and the bonding begins.
I think none of us ever truly finds what we think we are looking for....and I think some of us that are always looking for that perfect person, we will never find them.
I have friends in their 60's that never bonded with anyone. They bonded, but it was always with money or cars or drugs.
I think it's wonderful, if it works great, if not, you still have impacted someone in a very positive and caring way.
I say go for it and see where it goes. I admire your openness.
You have nothing to lose.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

samsung

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #9 on: March 31, 2020, 06:11:19 PM »

Good luck pfract. I hope it works out for you.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

jj21

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #10 on: April 01, 2020, 12:31:37 AM »

Thanks for sharing Pfract. Good luck to you in your journey and remember to not give up!

I'm seeing improvement and results and I wish the same for you.

The combination of Pentox + Cialis daily (5mg per day) made a significant improvement to my Erectile Dysfunction, have you tried that? I also add 100mg Viagra in there before sex and I am able to have sex despite the curvature.

VED plus traction has been showing slow improvement for me too- have you tried it? Just have to go very slow and stay consistent.

Please give the girl a shot, she seems very genuine and understanding and I think it could be very good for your mental health if you are able to share a connection with her.

Keep us updated!

JJ

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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

hope794

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #11 on: April 01, 2020, 02:17:19 PM »

Dearest pfract,
i don't want to seem unpolite, but in Italy people say: "No man is over until he has a finger and a tongue! ;)"
That means that there's intimacy without penetration, if she's willing to have.

I know, it sucks and shouldn't be like that for youngsters like us, but that's it: better this kind of intimacy than nothing.

Cheers, a big hug.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

cdub

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #12 on: April 05, 2020, 02:14:52 AM »

Pfract,

Hope you are doing well man and that you gave this girl a shot. 
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pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #13 on: April 06, 2020, 04:11:39 PM »

Hey guys. Thanks for reaching back.... So... Another update on this. I still can't believe it... I spent the whole afternoon with her in Toronto yesterday. Conversation lead to caressing.... Then it lead to a few kisses on the cheek and then... We were making out for most of the afternoon till early evening... Things got pretty steamy in the car.... Hands all over the place.

I was trying not to freak out,everytime she came close to me. I asked her not to grind on me nor bump into my groin area. She kept pressing to know more and I eventually caved in as we were going back to her house. She ended up reassuring me that she was here for me and we spoke about my issue a little bit. She wasn't concerned but my paranoid mind tells me otherwise... Felt super exposed revealing for the first time to a girl in Canada about my situation. Like she can use that against me in the future....  Time will tell I'd say.

popopo

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #14 on: April 06, 2020, 10:44:56 PM »

I'm glad for you, but also a little worried. I really hope she's worth it and won't hurt you. I personally chose to remain single and keep my secret to myself. I learned to accept not getting laid and not having a woman in my life as this situation would only hurt me more if I had to share it with a woman. I'm also, like you very afraid she will ridicule me or tell people about it or in any way use it against me. I would also be too scared to fall in love as I don't want to experience the highs and lows a lovelife gives me. But I'm a little odd anyway. I know myself and in a relationsship I get jealous, easily hurt and just plain vulberable. In an ideal world I would deal with this by being single and F^@$!ng many different women and not fall for one girl, but because of my penile problems I do not have this option so I protect myself by avoiding it altogether. I hope this all works out for you as I,'d hate to see someone else experience the thing I fear most.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Stepone

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #15 on: April 07, 2020, 10:15:43 AM »

Pfract,
My advice is don't change what you are doing.
This may turn into a wonderful relationship and become even brighter once you are able to get an implant.
Honesty is always best in any relationship, hiding only leads to more hiding. I admire your openness.
As I hope it certainly works out for you, she must think there is something in you besides sex, or she would have not been interested at all.
Please stop trying to second guess and use what she says as being truthful.
You could end up having the best relationship ever, because it will be based on truth, rather than lies.
I mean how many movies have you seen, how many relationships have you heard of, where people ended relationships based on lies, rather than the truth.
I wish you well, but even if it doesn't work out, be strong as you are a good man, and you were honest.
Best wishes,
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #16 on: April 08, 2020, 01:46:57 PM »

Quote
I'm glad for you, but also a little worried. I really hope she's worth it and won't hurt you. I personally chose to remain single and keep my secret to myself. I learned to accept not getting laid and not having a woman in my life as this situation would only hurt me more if I had to share it with a woman. I'm also, like you very afraid she will ridicule me or tell people about it or in any way use it against me. I would also be too scared to fall in love as I don't want to experience the highs and lows a lovelife gives me. But I'm a little odd anyway. I know myself and in a relationsship I get jealous, easily hurt and just plain vulberable. In an ideal world I would deal with this by being single and F^@$!ng many different women and not fall for one girl, but because of my penile problems I do not have this option so I protect myself by avoiding it altogether. I hope this all works out for you as I,'d hate to see someone else experience the thing I fear most.
@popopo:
Man.. There are several things there which I understand but even as somebody that has been in love before, I'd say I have to write a long post to properly address some of the things you say there which I think are not true. I remember back in 2014 when I fractured my penis I went crazy thinking there was nothing else I could do and I fell into a huge depression pit. Even if you don't have sex, you can still kiss girls, you can still go out to the club and enjoy yourself, you can still talk and not isolate and meet new women. Yes, it will hurt thinking you couldn't properly have sex ''like before'' but trust me when I say you can do stuff. I've been there.


Quote
My advice is don't change what you are doing.
This may turn into a wonderful relationship and become even brighter once you are able to get an implant.
Honesty is always best in any relationship, hiding only leads to more hiding. I admire your openness.
As I hope it certainly works out for you, she must think there is something in you besides sex, or she would have not been interested at all.
Please stop trying to second guess and use what she says as being truthful.
You could end up having the best relationship ever, because it will be based on truth, rather than lies.
I mean how many movies have you seen, how many relationships have you heard of, where people ended relationships based on lies, rather than the truth.
I wish you well, but even if it doesn't work out, be strong as you are a good man, and you were honest.
Best wishes,
StepOne

@stepone:
Thank you for the kind words and support. I decided to try and do different since my mom basically told me I was complaining girls wouldn't accept my situation, but that I never actually tried to say that. It will be hard, but not impossible to have this turn into a relationship per se. A friends with benefits type of thing sounds super reasonable and respectful to me. I told her I didn't wanted to hurt her by promising the world and not being able to deliver, due to my predicament. That there was plenty that I could do even if penetrative sex will be different from what she is used to.

I also couldn't agree more with the honesty and sincerity part. That has been a mainstay in our interactions so far and it has been amazing. Not to mention I so missed the intimacy and just hugging and kissing for a couple of hours.

It felt bad because we are supposed to be staying home with all the covid virus, but both of us have no symptoms so we went for it.  8)

popopo

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #17 on: April 08, 2020, 05:43:17 PM »

Look Pfract, I’m really happy for you and truly hope it all works out for you and you can have nice relationsships again, but to me it’s just not something I want anymore. I may have a very different viewpoint than most of you, but to me personally there’s no fun in kissing, dating and all of that. Unless I can actually have the easy no strings attached many different women kind of sexlife I’d like there’s no point in trying. All the other stuff will just be like a “tease” to me, but I’m pretty sure I can’t find the satisfaction I want anymore. Maybe in some utopian future where my dick gets fixed and I relive my youth as an old man making up for lost years, but the way I’m now I’m glad to be alone. I miss sex, period. All the other stuff I really don’t miss at all. I can hardly take care of myself let alone provide for a woman and possibly a kid in the future. I don’t want all that and I realize deep down that truly isn’t for me even if some of my instincts tell me otherwise. Lately I even sometimes look at young dad’s and realize they have to deal with a nagging wife, screaming children, a mediocre sexlife and sometimes even a wife that kinda “uses” the male as a provider puts a grin on my face and makes me realize being alone isn’t so bad. Maybe all of this is just a cope, but I really feel that way. I’m happy for you and hope it all works out, but I have a different view on life and being single for so long made me realize that I’m kind of an einzelganger/lone wolf and the only real reason this bothers me is cause I miss sex and also that I’m afraid of what other people might think about me not having sex/relationships. But none of these things really matter and in the end I really don’t need it to life a good life. I deal with my sexual needs on my own with masturbation, I try to develop socially in other ways than trough dating and If I can just put the shame/insecurity towards other people aside I’m actually fine with that. Would I rather have a good sexlife? Yes. But that’s really not an option in my case so at this point I just accept it and enjoy other area’s of life.
TL;DR: I enjoy being single, I miss sex but it’s difficult so I’d rather be alone and for now I’m fine with it.
Logged
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #18 on: April 20, 2020, 01:05:29 PM »

Quote
Look Pfract, I’m really happy for you and truly hope it all works out for you and you can have nice relationsships again, but to me it’s just not something I want anymore. I may have a very different viewpoint than most of you, but to me personally there’s no fun in kissing, dating and all of that. Unless I can actually have the easy no strings attached many different women kind of sexlife I’d like there’s no point in trying. All the other stuff will just be like a “tease” to me, but I’m pretty sure I can’t find the satisfaction I want anymore. Maybe in some utopian future where my dick gets fixed and I relive my youth as an old man making up for lost years, but the way I’m now I’m glad to be alone. I miss sex, period. All the other stuff I really don’t miss at all. I can hardly take care of myself let alone provide for a woman and possibly a kid in the future. I don’t want all that and I realize deep down that truly isn’t for me even if some of my instincts tell me otherwise. Lately I even sometimes look at young dad’s and realize they have to deal with a nagging wife, screaming children, a mediocre sexlife and sometimes even a wife that kinda “uses” the male as a provider puts a grin on my face and makes me realize being alone isn’t so bad. Maybe all of this is just a cope, but I really feel that way. I’m happy for you and hope it all works out, but I have a different view on life and being single for so long made me realize that I’m kind of an einzelganger/lone wolf and the only real reason this bothers me is cause I miss sex and also that I’m afraid of what other people might think about me not having sex/relationships. But none of these things really matter and in the end I really don’t need it to life a good life. I deal with my sexual needs on my own with masturbation, I try to develop socially in other ways than trough dating and If I can just put the shame/insecurity towards other people aside I’m actually fine with that. Would I rather have a good sexlife? Yes. But that’s really not an option in my case so at this point I just accept it and enjoy other area’s of life.
TL;DR: I enjoy being single, I miss sex but it’s difficult so I’d rather be alone and for now I’m fine with it.

You are doing exactly what i did after my fracture. You might say it's BS, but it's not. You can still have no strings attached even though sex might be different. That's exactly the predicament i am right now with this girl. What you are not realizing is the emotional toll the lack of intimacy and female contact is/will have on you as times goes by.

Also, how can you possibly know how somebody else's sex life is without being in their bedroom? senseless preconceived notion. Unless you read up on this, on places like reddit, on the appropriate subs, then it isn't more than you being delusional on these things. Kind of what it feels comfortable for you to think about so you cope with it.

You know what you may benefit from? Psychotherapy. It would be great for you when this corona virus thing ends.. And no, don't get all offended because i am not attacking you. Just really trying to tell you, that your point of view doesn't make sense in the greater scheme of things. I went from being in a serious long term relationship for 6 years.... 17 till 23... Became a big player, had several friends with benefits going on at the same time. till disgrace struck me and i broke my penis, and was left with Erectile Dysfunction and been doing everything to battle it.

listen to me.

popopo

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #19 on: April 21, 2020, 07:12:43 AM »

Theraphy is a joke. Been there done that. Still in the withdrawal process of getting off the toxins these "specialists" gave me. They knew I had sexual problems yet both these drugs cause sexual problems. I also had elevated liver enzymes in the past. Both these drugs cause liver damage. Plus they made me fat. I also found out I have low testosterone, but got refused to get treatment for it and they kept telling me to just accept it. I did not now here I am fixing these issues on my own feeling better for the last months then I ever dit working with the therapists. Funny, right? And no, I'm not gonna act offended. I'd rather just ignore the fact you call me delusional and tell me I need theraphy like I'm some crazy person. But I'm sure you mean well, it's just not helpfull at all. You do you, my friend. Let me do me, ok? And if I sound negative I don't mean it that way. I'm just being real. I feel like I'm less delusional than you actually, but let's just agree to disagree. And honestly my tone on this forum is a bit dimmer than in real life because in real life I don't talk about this anymore. No use anyway.. here I vent my frustration, because it annoys me that there's no change/development in treatment at all yet many of you act like there SO MUCH you can do about it and so far none of it is helping. I only come here now for the occasional rant and maybe some information about future treatments, but I'm slowly giving up on that as well. So like I said, I'll just accept being alone for now while I do everything I can to fix this.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

pfract

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Re: My Erectile Dysfunction diary... Thoughts, treatments, ramblings....
« Reply #20 on: April 21, 2020, 01:03:39 PM »

Quote
Theraphy is a joke. Been there done that. Still in the withdrawal process of getting off the toxins these "specialists" gave me. They knew I had sexual problems yet both these drugs cause sexual problems. I also had elevated liver enzymes in the past. Both these drugs cause liver damage. Plus they made me fat. I also found out I have low testosterone, but got refused to get treatment for it and they kept telling me to just accept it. I did not now here I am fixing these issues on my own feeling better for the last months then I ever dit working with the therapists. Funny, right?

therapy is not a joke. Nobody said you needed to be on benzo's. Talking to a psychologist for a few sessions, to vent out, to debate your traumas and fears can be something very good and allow you to see that you are wrong in certain subjects. Also, if you are prescribed those medications, it's because the therapist believed the risk benefit was worth it. All drugs have side effects. Even cialis and pentox recommended here, as you may have read?
As for making you fat, yes, they don't help at all. But what doesn't help at all is that most people that go on those drugs have zero knowledge of nutrition and just eat away like normally, let alone exercise. Did you take that into consideration while on them?
     Also, tell me which urologist refused helping you out because you were low on testosterone? on what basis? did you had blood work done? When? Did you went for a second opinion since you where so sure you had low t?

Quote
And no, I'm not gonna act offended. I'd rather just ignore the fact you call me delusional and tell me I need theraphy like I'm some crazy person. But I'm sure you mean well, it's just not helpfull at all. You do you, my friend. Let me do me, ok? And if I sound negative I don't mean it that way. I'm just being real. I feel like I'm less delusional than you actually, but let's just agree to disagree.

I did not say you are delusional. Let alone crazy. What you are doing? not listening and in denial. You are believing so strongly in your ideas that you are not even listening to anyone. You give me zero credit for what i am trying to tell you. And listen, i totally understand if it was somebody in his 60's or 70's trying to tell you to just relax and open up with somebody that you barely knew, because that person has been married for age's and trusts his partner.
     Except it's not the case. I am not much older than you, AND I HAD EXACTLY the lifestyle you say you wanted to have if your penis wasn't damaged. Clubbing.... different girls every weekend.. no strings attached sex. I told you i shared your views when i joined the board years ago and i slowly changed throughout time. But it wasn't overnight. Initially i didn't wanted to hear others as well, and it definitely helped when more young people started joining the boards with Erectile Dysfunction.  You really have to stop being stubborn and ask yourself "am i so right here? isn't there really another way? have i really tried to know for sure? there are people saying otherwise..... i think it's BS... but have i actually tried to do what they are saying, so i could validate or not their ideas?"


Quote
And honestly my tone on this forum is a bit dimmer than in real life because in real life I don't talk about this anymore. No use anyway.. here I vent my frustration, because it annoys me that there's no change/development in treatment at all yet many of you act like there SO MUCH you can do about it and so far none of it is helping. I only come here now for the occasional rant and maybe some information about future treatments, but I'm slowly giving up on that as well. So like I said, I'll just accept being alone for now while I do everything I can to fix this.

If there is no treatment that can help you, then why bother? just enjoy life playing cards at home, and browsing netflix totally forgetting about your issue.

Just as a curiosity, have you read the guidelines from the two major urological associations on Peyronies disease? (AUA and EUA?) https://www.auanet.org/guidelines/ https://uroweb.org/guidelines/ ?
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