33yo peyronie "newbie"

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303

Hello everyone,

I'm a 33yo and found out some bending about a year ago. its still getting worse everytime I check. From that day on my life has never been the same. first few months I did nothing else as denying it whas there. To be honest I've always been quite a ladysman and build up "some reputation". So people started asking questions since I stopped hitting on girls. :) I tried talking about it with my best friend but eventually never did since I'm too ashamed to talk about this "thing"
At last I found a girl who I am crazy about and to be honest she could be "the one". At one time it was time to talk to her about it. You couldnt imagine the shame I felt, I'm just not ready to talk about it with someone. she whas super understanding and promessed to me she'd stand by me trough the proces.

Any other people walking around with this feeling of having a "shamefull secret"?  It seems inpossible to me to give this a place and move on from there.

Been to a professor urologie, worst feeling of my life. Worst conversation of my life.

If I understand him correctly according to him the only effective solution is operation, this made my world colapse. I don't want anyone slicing up my wiwi!! Since that day I feel like I have lost everyting! No more selfconfidence,  nothing seems easy anymore, simpel things seem so hard. I'm even affraid to talk to girls since that could lead to love and eventually sex. 2 weeks ago I even broke up with my gf! The only reason for me doing this is me not wanting to talk about peyronie, with no one! Hurts kind of double...

Easy to say my life is kind of sh*t right now, thinking about peyronie 24/7, no positive toughts, never.

I hope I can clear up some things browsing this forum...

have a good one!
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TonySa

Welcome, you're in the right place to begin discussing this.  Start w reading the survival guide and bring any questions or concerns you have here: https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

beentheredonethat

Pick up the bottle. I had that at 17/18 it ruined/has ruined my life as i used to know it. It comes in waves and when it does i tend to drift back to this forum only to realise theres no fukn cure yet

MountainArrow

If your condition is worsening, I would recommend Pentoxifylline 400 mg 3-times/day to stabilize it as you get up to speed on the various treatment options. Whatever you do, don't smoke.
54-year-old actively self-treating at home.

jan.schaller1958

Quote from: MountainArrow on February 05, 2020, 11:28:34 AM
If your condition is worsening, I would recommend Pentoxifylline 400 mg 3-times/day to stabilize it as you get up to speed on the various treatment options. Whatever you do, don't smoke.

They say you can try Pentoxide but it never did a thing for me. Alloderm surgery with cutting the plaque seems to sound like the only option with a Peyroines specialist. Mine is Tom Lue of University of California , San Francisco. Haven't discussed it yet with him but might be an option. Only Xiaflex might help, but it's no cure.  
THIS USER HAS BEEN BANNED FROM FORUM FOR RULE VIOLATIONS

Whyisthishappening

you should not be ashamed man  
alc ,vitamin e, propolis,pde5,NAC,nsaids,olive oil massage,nsaids,aspirin,essential oils cockteils,keto,IF,green tea,coffee

Inkognito

Father left before 9 years and never called again , i watched all family members die to my 22 birthay then i got this. life sucks , Being 22 years old with conogental curvature and Peyronies Disease is hell. I stretch every day , take all posible suppliments but it seems that doctors who said live it alone are right. I do not see any improvment even no 1%. Im in active phase and streching junk every day for 4-8 hours and thinking maiby this even worsening my cobdidion is hell... Like you put effort but maiby that effort just hurts you. And train every day. This desease have no mercy. Like my desteni. F~@< THIS F^@$!ng LIFE.  
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Benjamin62

Shame is a powerful emotion.  In my younger days, I often felt shame about many things.  As a 57 year old man, I've learned not to be shameful and talk to the ones that care about us about our "secrets"... and what a relief.  Peyronies hit me at 56, I armed myself with a lot of information... spoke to the best urologists in the US... yes they will call you back!  They really care... this elite group.  My surgery is schedule for next week... I will fly 1000 miles to the surgeon of my choice.

So that said. I need you to watch the attached video by NeoMan in YouTube... he's my personal hero in my journey thru this.  After watching this... I have told two different woman I had dated over the past year... and surprise!  Both ended in intimacy!

https://youtu.be/-0rx_fNw5g0

Stay strong... you have nothing to be ashamed of.
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Stratt_mat1

Honestly dude you are going to be 100 percent okay. You caught this early and are already on treatments so your chance of recovery is a lot higher. Also worst case last resort scenario the surgeries might seem daunting but it will effectively cure the peyronies on the spot. Dont let this illness break down your relationships or life. Treat it like you are just having a temporary injury that you are in the process of healing.
30 yrs old, peyronies diagnosis Aug 2019. Daily pentox, cialis, arginine, traction therapies. Started with dent and pain, top half penis thinned. Upward curve from pre peyronies natural left curve.  2 inch loss of length. 8 in to 6 inches. Nightmare.