Iceberg Llama's Erectile Dysfunction/Hourglassing journal

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IcebergLlama

 I have had Erectile Dysfunction for years with hourglassing and found this forum. I am 28.

Last week I had a morning wood that was the best quality I've had in literally years. Before realizing that my problem was potentially very serious and taking initiative last month, I couldn't remember the last time I woke up with morning wood. I was even able to stand up and maintain it for several seconds after taking only 50mg Pycnogenol, 1200mg L-Citruline, and 200mg CoQ10 the night before. I have been taking the Pycnogenol and L-arginine (Recently swapped to L-Cit) for over a month now.

This would have been the morning of last Thursday the 16th, and the last time I took Cialis to achieve NTE's was 5mg the night of the 12th (Sunday Night). Seeing as how it was a moderate dose taken beyond the 36 hour half-life, I would have to say that something, between the supplements and perhaps the diet have made an impact.

I have started to introduce 120,000 Serrapeptase into the nighttime cocktail.

Last week I was also eating a heavy Nitric Oxide focused diet primarily consisting of beets, spinach, arugula, nuts, fish...basically trying to go into Ketosis after seeing Neoman's YouTube channel. Neoman has also touched on what effect carbs and SUGAR has on your penis. Although I have always been healthy, I have always had a severe affinity for sugar and carbohydrates. I can't help but think this hasn't helped things.

This morning I had wood and lastnight I skipped all supplements. I haven't taken Cialis in over a week.

I have been doing traction and using the VED sparingly. I have no palpable lumps or plaques and am not trying to give myself any hence the lightness on the physical therapy.

I feel things are trending in the right direction, though I am not yet able to have intercourse without PDE5's.

The point of this post is that I believe reading people's experiences on here have helped and there are more things I would like to try (Melting's DSMO potion + VED, JS1991's dry fasting philosophy).

Best,

- IL
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

Hawk

Congratulations on the great progress.

If you need a boost for NTEs I suggest you ask your family doctor for a prescription for 1/2 of a 50 mg Trazadone for sleep.  It is cheap as dirt but a side effect is nte's.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

IcebergLlama

Not so great update:  

I am still sticking with my nightly cocktail of CoQ10, L-Cit, Pycnogenol and Serrapeptase and getting wood/activity most mornings now.

However...

In certain states I am starting to see my penis curving slightly to the right, mostly when it gets cold and contracts. This is a NEW development from my hourglass. Like, this-week new. I have also noticed a visible scar or lump under where the curve is.

The erections I've had so far have been completely straight from what I can tell, but I'm starting to worry the clock is ticking until I start developing curved erections. Still no pain.

I started traction and the VED to start to work on my hourglass. Perhaps the left side has been re-oxygenated leaving the densest part on the right side to create the curve.

Going out of town with my girlfriend this weekend and will be taking Cialis. Will keep you all posted.

- IL
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

Hawk

For starters, don't stress and assume that things are going to get worse.  

No woman cares if a guy's penis is perfectly straight.  Ask any woman which way even her husband's dick curves and she will have to stop and think and will hesitate to say.  Mention a past lover and your guess is as good as hers.  So even a small bed or curve is just not an issue to stress about.

Take the objective measurements explained in the Survival Guide so you will know if there is progression.  It will eliminate guessing.

Finally, you mention one side is reoxygenated.  If you get erections, your entire penis is reoxygenated so I am not sure if that was just poor wording or if there is some misunderstanding on your part.

Be conservative with the VED and traction until you adapt and you can tell your body is benefitting.

Enjoy your weekend.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

IcebergLlama

Salute, Hawk.

I guess what I mean by "re-oxygenated" is that after a month or so of taking my NTE cocktail, blood is starting to remodel the tissues on the left side of the penis to be healthy again when the fibrous tissue is on the right side.

I was using my VED (Vacurect) the other night which is when I swear the curve to the right started to appear. I'm not saying I'm attributing my curve to that, because I'm extremely cautious with it. Hell, I don't like it near as much as just traction (just because putting my penis in that thing scares the sh*t out of me), but I know I need to do it.

This new curve could be one step in the remodeling process, considering my case is an hourglass. Just started Serrapeptase, but am open to Iodoral and DMSO if I start to see profound curvature.

Thanks.  
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

IcebergLlama

So...

It was a two night trip; I took 20mg Cialis the first night and it started working within 20 minutes of taking it. My penis was definitely ready for sex at the time assuming I would be good the whole weekend.

However...

The first night my girl and I had a fight (Ran out of gas 30 miles from the nearest gas station. 100% my fault) so neither of us were really in the mood.

Despite not having sex the first night, I thought things would be fine for the next night considering the 36 hour half-life of Cialis.

The next night...

We had a nice dinner, came back to our cabin and got cozy. She wanted a massage. I took off her shirt, then panties.

Except...

Nothing. My penis didn't react at all so I took another 10mg of Cialis.

Still nothing.

Then we had a long conversation, she starts crying and it was overall just a crappy  experience.

On the bright side, I didn't notice any curving to the right when I was hard like I had mentioned I was scared of before.

Because of this whole scenario I am also struggling with a lot of depression. Not only that, but she has Hodgkin's Lymphoma (In remission for those who are concerned), and honestly there are some issues between us that go beyond things talked about on this forum that probably factored in.

Bottom line, no sex. But probably could have the first night had I just stopped for gas.    
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

TonySa

I'd try taking the nightly cialis, that way you're ready to go when the opportunity arises.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Stratt_mat1

Quote from: IcebergLlama on January 23, 2020, 05:48:25 PM
Not so great update:  

I am still sticking with my nightly cocktail of CoQ10, L-Cit, Pycnogenol and Serrapeptase and getting wood/activity most mornings now.

However...

In certain states I am starting to see my penis curving slightly to the right, mostly when it gets cold and contracts. This is a NEW development from my hourglass. Like, this-week new. I have also noticed a visible scar or lump under where the curve is.

The erections I've had so far have been completely straight from what I can tell, but I'm starting to worry the clock is ticking until I start developing curved erections. Still no pain.

I started traction and the VED to start to work on my hourglass. Perhaps the left side has been re-oxygenated leaving the densest part on the right side to create the curve.

Going out of town with my girlfriend this weekend and will be taking Cialis. Will keep you all posted.

- IL

Do you have hour glassing with erections or just flaccid? Because hour glassing when not erect has nothing to do with plaque, scar tissue, or peyronie's to my knowledge. It's only related when you are erect and those changes are visible with a solid erection because of a ring of scar tissue preventing expansion in the example of hour glassing. You could be dealing with erectile dysfunction with other causes like a venous leak too, or hard flaccid.  
30 yrs old, peyronies diagnosis Aug 2019. Daily pentox, cialis, arginine, traction therapies. Started with dent and pain, top half penis thinned. Upward curve from pre peyronies natural left curve.  2 inch loss of length. 8 in to 6 inches. Nightmare.

IcebergLlama

Stratt_mat1...

When I am erect, my hourglass fills out. The problem is getting there.

I have noticed a slight ridge on the right side of my penis and it seems to be the smoking gun because it's in the trough of my hourglass.

TonySa. Right, but I am trying to cure myself of what I'm dealing with. Uncharted territory.  
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

TonySa

Nightly cialis would also help w the healthy remodeling of the plaque, but I would also add VED.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

IcebergLlama

Well, with everything I've been doing from Pycnogenol and LCitruline nightly, VED, diet changes and exercising (walking, stretching my PF), I had morning wood 4 of the past 5 nights without taking Cialis lying on my back (One morning I got it having took 10mg of Cialis at 9AM the day before).

Hands down the best streak of MW as far back as I can remember.

Still no curvature, which has never been a problem thus far. However, my erections still seem to be very position dependent as I'm only getting them lying on my back.

28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

IcebergLlama

I am hesitant to post this as I don't want to get too far ahead of myself and while I'm not spiritual or religious I do believe I can jinx myself if I'm too optimistic...

But man, I can get nighttime erections again after YEARS OF ZERO. In addition to that, my erection quality has improved immensely. I'm harder and can sustain them especially in the morning on my back or even lying to the side.

I first determined that my issues were potentially very serious in early December 2019 when I heard first came across the term "kael suonev" backwards (forbid myself from using the actual name) and went all out trying everything I could find. Due to this I don't have the luxury of being able to isolate the variables to see what worked and what didn't and I will not go as far as to say that my ED could not potentially return/get worse. Even though my issue is primarily an ED-related one and not so much related to  curvature/deformation, I do have hourglassing, which led me to this forum and NeoV's YouTube channel. I figured the two could be related, so I started implementing daily remedies for both.

Little profile on me:

28 years old, 6'1", 155-160 pounds. Daily weed smoker for 3 years and heavy user for about 7. Diet consisted of high sugar and carbohydrate consumption, alcohol, etc. no red (mammal) meat. Testosterone and blood pressure checked out. No diabetic or heart issues on record. Not able to get erect for intercourse as far back as 2016. Hourglassing.

But in mid January I had great morning wood that restored my sanity after 6 weeks of being on this regimen. Here are all the things I've done.

- Doing my best to stick to a Keto-based diet to reduce inflammation caused by sugar/carbohydrates. Lots of meat. Also implementing foods that facilitate Nitrous Oxide production in your body (Beets, Arugula, Dark Chocolate, etc.). I haven't been super-strict about sticking to Keto, but compared to where I was a year ago, my diet looks completely different. I've also had a reckless sweet tooth my whole life which may have caused me to be pre-diabetic. I read a book called Sugar Crush and I read how sugar can damage nerves and inhibit your body's ability to produce Nitric Oxide.

- Supplements starting with 50mg of Pycnogenol and 1500mg of L-Citruline before bedtime (Basically PreLox). Also A-LCarnitine, CoQ10, Horse Chestnut, Ruten on and off, and Serrapeptase which I figured would help break down unwanted proteins. The only thing I tried to make sure I did nightly was the Pycnogenol and the LCitruline together.

- Penile physical therapy techniques like reverse kegels, traction, and the VED in the shower. Per NeoMan, heat helps to keep the tissue loose which makes it convenient to do the VED in the shower.

- Exercising to get my cardio up and loosen up my pelvic floor. A slow walk on the treadmill on a steep incline, yoga, running, etc.

- Another theory that I have is elevating my feet at night helps me to get night time erections, so I keep pillows at the end of my bed. The NTE I got last month that told me something was working was on my girlfriend's couch with my feet elevated higher than my pelvic area.

-CBD ointment on my shaft (especially in the hourglassing area) and under my balls to reach my cavernous nerve.

And... while I have taken Cialis a few times during this time, this for the most part has been done WITHOUT nightly PDE5i's.

While it all helps move me in the right direction, what I believe has made the most impact is improving my diet to be as anti-inflammatory as possible, as cliche as it sounds.

I brought up the idea of using these techniques and diet to my urologist and he just shook his head and prescribed me Cialis. His reaction as a urologist/surgeon who graduated from Duke and specializes in male sexual health makes me very skeptical of the medical community's view of erectile dysfunction. Other men's personal experiences and anecdotes have done so much more for me than medical journals and anything I've heard from a doctor.

Trust me when I tell you that this improvement is NOT MENTAL. Other than the trauma of realizing that my condition could potentially be very serious, anxiety wasn't a factor.

I am not "cured" nor am I certain that I won't have the same problem again. But whether that's 30 years from now, 10 years from now, next year, or tomorrow, today, I am in good spirits.

I can't guarantee these things will work for anyone who tries it, but take it from me, it's worth a shot. I guess I say all this to say that without testimonies that I've found on this forum and other resources, I would still be in a very, very dark place. It's important that you all keep doing the best you can and telling your stories along the way to help not only yourselves but others.

-IL

 
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

Hawk

That's great news Iceberg!  I edited the title of your topic so others asking if ED ever improves can find this topic more easily.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

IcebergLlama

Thanks Hawk!

Also didn't point out that I stopped smoking weed and haven't in 7 months. That's not to say if someone bakes that means they can't get better, but this was my experience.  
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html

Hawk

All those things factor into ED to some degree not to mention your general health is much better off and what you save on tobacco covers the cost of other stuff you are taking.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

IcebergLlama

Update: I seem to have given myself hard flaccid.

I went on a run two days ago for cardio and to loosen my pelvic floor, after which I noticed I was almost involuntarily at 10-20% erection because blood was pumping at a high rate and the hourglass was there. Then, I had a bowel movement and my hourglass was extra pronounced.

I've been doing VED and traction almost daily in the shower..now there is some weird tension with my pelvic floor and penis resulting in HF.

I read a couple of things about how penis stretching exercises can cause HF, but I haven't had any pain when doing either VED or traction.

I hope this is my body just trying to recover from the physical cardio, traction and VED. Not doing any penis physical therapy until this resolves.

Edit: It seems to have gone away. Still going to give myself some time to recover.  
28. ED with hourglass.

After no nighttime/morning erections for years, the treatments in my post brought back NTE's after 6 weeks.

Not cured by any means. One day at a time.*

https://www.peyroniesforum.net/index.php/topic,12972.0.html