Is there anyone else out there with the same set of circumstances?

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samsung

I feel as though I am being singled out and live in no man's land. This isn't a self pity post. Just using logic.

It appears from this forum that every single person here is in Camp A or Camp B:

A=Situation is so bad it requires implant.
B=They get some form of improvement.

I have tried VED, traction, xiaflex, diet, arginine, lipoic acid, serrapeptase, vitamin K2, cialis

With no improvement and the plaque just keeps getting bigger. And it has been over 1.5 years now.

Am I wrong in thinking everyone here has an improvement or is unimprovable and gets an implant (or surgery or whatever, but has a solution)?

In other words, Hawk always says there is a solution for everyone.

But where is mine?

Is there anyone who has tried all reasonable things and nothing happens? If so, is Hawk not a liar? And I'm not saying to disparage him. Far from it. I respect him a lot. I just truly want a logical response. In my case, I am not seeing a solution. And if there is no solution, isn't that statement therefore false? And therefore I have to conclude I am different from all other men on the forum and probably the planet and am therefore being singled out to suffer?
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Hawk

Samsung, just to be clear, I never even suggested that everyone can have a perfectly straight, perfectly functioning penis.  If I recall, you could likely have intercourse with your penis.  I could be wrong sine I know you mentioned you are not interested in intercourse but I don't recall you ever saying intercourses would be impossible.  Most of your

What I say for those that fret and lament that their sex life is over is, that is not true.  There is a solution for almost everyone that can assure they can have intercourse and be able to maintain an intimate relationship.  I still maintain that there is a way to get a penis straight enough and erect enough for intercourse.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

samsung

I might be able to have sex, I don't know. But erections are still very painful. And it wouldn't be "sex" as far as I consider. Sex does not involve only being able to do it missionary and being terrified of causing more injury. Sex is doing whatever I want and being proud of my dick. Anything else is slavery. And I am not a slave.

What I am saying is, where is my reward? It seems every single person on here has some sort of improvement. Heck, Melting claims if you pull hard enough for long enough you can straighten it out and dissolve the plaque. Says everyone can with enough time.

But I have not experienced any treatment to be effective. At all. I feel like an alien. That I am not doing the traction properly. Or that I have been selected to suffer uniquely. It seems you all either get an implant and that is totally psychologically cool with you (how this is possible totally eludes me) or you do the treatments and gain enough improvement to be happy. I do not fit into either of those camps and it greatly distresses me.

I have put a ton of time and effort and money into this. For what? I want my dick to just fall off. Or improve. Pick one.

45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Inkognito

Samsung i feel for you. I have conogental curvature , this crap of desease and im onely 22 years old. Couple weeks ago i started to be sure that my upward curve increses. I Take all supliments for mounths now  , started streching couple day ago but it seems that it is getting worse no matter what. I started to think that streching while having this desease just makes you worse because of trapped inflammination. But i can say one good think to you that may make you feel better. I have left curve 20 - 25 degrees and now upward curve about 45-50. My shortest side od dick is 18,5 cm and longest probably 19.5 -20 ( bone pressed on skin pubic bone ) ... Lucky for me i have girlfriend and i can say that sex is possible even with that curves in different possitions... Cant do reverse cowgirl... But most are possible. Sex is not just penetration. I have worse curves then you and even double curve and believe me sex is posssible. Having upward curve is better then having straight dick because of g- spot and more trusting. But of corse if curve Is 20- 30,35,40... Not Like me. THIS crap SUCKS NO MATTER WHAT. but believe me you can have good sex and erotic moments. maybe i'm wrong but trust me, I would change places with you if I could. I don't want to start a debate, I just said my opinion. Hope you didn't get angry or find yourself offended... And yes i dont have money for operation , injections and and things you probably have because i live in Croatia and i am poor. Correct me if i am wrong. I can just take some of supliments , stratch it and thats all. If that dont help me and if my curve increses even more i am done with sex life at age od 22... Worst thing  ever possible for man. This crap SUCKS aniway. And i have good testosterone and need look at that curves twisted crap of penis every day. If i dont have sex or mastrubare once in 2 days i cant fall in sleep because he is hard. Even if i fall a sleep i would woke after 2-3 hours with erection. This crap SUCKS because you cant escape it and even forget about it for just one day to rest my long depressed brain because all crap that happened im my life and now this.  Sorry for my bad english.
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projectpd

@samsung . for someone so cynical your name irks me. I had a Note 4 which was by far the best phone I ever owned but that started freezing/shutting down for no reason, and buying another to replace it, it soon did the same thing. Samsung have not admitted to a fault.
It sounds as if you are still partly in an active phase which puts you in a fortunate position to treat as there are many natural /other antiinflammatory and/or antifibrotic substances (tgf beta counteractors) . how about  antinflammatories such as diclofenac , dexamethesone, or hydrocortisone ?  possibly with DMSO or iontophoresis to enforce delivery.
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

samsung

Thanks for calling me cynical. I appreciate that. I'll make sure, absolutely certain, to never help anyone on here again. I have had hour long phone calls with people guiding them through what to expect with xiaflex. I have had a few young guys call me and I helped them all. I offer advice to people here regularly.

No more. You can all eat my ass.

Especially you, Godisreal, NeoV and pfract.

I hope your mothers get anal cancer. And I hope a syphilitic rapist cuts their heads off and sodomizes your fathers with the head stump in front of you. And then eats you.

I have been going back and forth with a researcher about a promising new drug. If anything pans out from it, I will make absolutely certain to share nothing with this childish b.s. of a forum. If they cure peyronie's, I won't tell you about it. I would rather you suffer.

F~@< you all. Account being deleted very shortly.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

projectpd

cynical was a compliment really but I still don't like your name  
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

peter123

Quote from: popopo on January 27, 2020, 02:18:10 PM
You're not alone Samsung, there are more guys who don't seem to find a solution and I'd even go as far as saying 95% of the people here may never fully return to pre peyronies state. Even those that are "cured" have lost some size, shape, sensation or the ability to get erect. I think getting your penis back EXACTLY like it was before is very rare. I would really recommend you to look into pelvic floor tension and what it can mean for your case. I went to a urologist today and he basically told me there's nothing they can do, but he did diagnose me with pelvic floor tension and thinks the best I can do is to fix that. He says it can even cause the pain symptoms I have and it can even cause "shrinkage" if your pelvic muscles are very tight. Other than fixing this there's not much he can do for me and I don't think another doctor would be able to do much more. I'll open another topic about my urologist visit, but I think looking into pelvic floor tension is worth a shot for you as well. Like you I continue to have pain and progression of peyronies, so if pelvic floor theraphy helps me it could help many others who also can't seem to get out of active phase.


I would be very keen to know what an urologist has to say over your story of having progression of peyronies 8 YEARS after onset as this has never been described in any medical literature. as it is with all forums catered to a specific purpose, this forum is toxic AS F~@<. holy F^@$!ng hell
THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

samsung

Then I apologize to you projectpd. I was upset at the rest of the replies to some of my other posts. I won't be posting here for a long while if ever.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Hontas

Quote from: samsung on June 29, 2020, 04:34:37 PM

I hope your mothers get anal cancer. And I hope a syphilitic rapist cuts their heads off and sodomizes your fathers with the head stump in front of you. And then eats you.

I have been going back and forth with a researcher about a promising new drug. If anything pans out from it, I will make absolutely certain to share nothing with this childish b.s. of a forum. If they cure peyronie's, I won't tell you about it. I would rather you suffer.


Sounds like a post-apocalyptic comedian bit. I can't imagine that there is a real person typing these things unironically behind a keyboard. It's just so funny to me...

Hontas

Quote from: samsung on June 29, 2020, 06:13:41 PM
I was upset at the rest of the replies to some of my other posts.

Your inbox is full brother. Make a space and let me talk with you.