Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

ALL Members PLEASE Add a Signature line with age, history etc
PROFILE -> FORUM PROFILE -> SIGNATURE
More instructions here -> Signature Line - History - Peyronies Society Forums

Pages: 1 [2]   Go Down

Author Topic: Tonys IPP revision surgery diary.  (Read 1394 times)

0 Members and 1 Guest are viewing this topic.

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #50 on: February 24, 2020, 08:40:41 PM »

Thanks Hawk, that’s very helpful.
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #51 on: February 24, 2020, 09:45:51 PM »

Two weeks tomorrow and I measure length which is same as day of surgery: 6.75”. W the 2 extra cm this time I’ll see if it increases w daily cycling 2x 2 hrs.
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 4546
    • Peyronie's Disease
Re: Tonys IPP revision surgery diary.
« Reply #52 on: February 26, 2020, 11:59:27 PM »

I bet my money on increase.  Be sure to measure length and girth.
Logged
Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Larry

  • Solid Contributor
  • ***
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 107
  • Best sex since I was in my teens.
Re: Tonys IPP revision surgery diary.
« Reply #53 on: February 27, 2020, 08:54:49 AM »

Is the Titan truly one touch (squeeze) or do guys find multiple squeezes is best?

No, you have to pump it up like an inflatable boat.  When you release, it is a good idea to hold the button down and squeeze the shaft.  Then give the pump a little squeeze until you feel a click... this locks out the saline so that it can't come in unless you pump it in.  I'm not really sure why this is necessary but it is.  I spoke to Jamie (the nurse at the implant company) and she says that she has heard that from a lot of people that have both Coloplast and AMS. :)

Larry
Logged
52, 3 Botched Circumcisions, 3 botched Reconstructive Surgeries. 2018, my saviours - Urologist & 1Plastic Surgeon... both highly respected international professors. AMS LGX implant March 2018 - septic shock implant removed, LGX reimplanted Dec 2018.

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #54 on: February 27, 2020, 10:05:03 AM »

Larry thanks for your posting.

and Hawk thanks for posting your explanation too.

I think we need a section on how to inflate and deflate and all the nuances with it.

I received excellent instructions for my Nest Thermostat, but nothing with my implant.

I have had to grab little things from this website and searches of my own to figure out this new product with no instructions.

As a matter of fact, Hawk, thanks to your last instruction of pressing the button real hard, and then testing it to see if the bulb is hard, is truly the first time I have done it correctly after all these times. Maybe my valve has been a little testy from the beginning and I didn't even know it.

It would be good to have something about some of the sounds we hear, etc. I know you are busy, I could try to write something if you want and then send it to you for editing. I think it would be well appreciated by everyone, rather then reading everyone's blogs and getting pieces from this and that.

thanks for all you do.
StepOne
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #55 on: February 27, 2020, 10:11:11 AM »

Opps, forgot, maybe it could be put in the Titan Colorplast guide section.

Thanks
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #56 on: February 29, 2020, 01:48:40 PM »

Yesterday, noticed bumps along vein.  Saw my surgeons NP and it’s a thrombosed vein.  Apparently resolved on its own and may be unrelated to surgery?  Here’s the thread I was posting on...will keep all lists on this thread moving forward.  https://www.peyroniesforum.net/index.php?topic=13177.msg120347#msg120347
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 4546
    • Peyronie's Disease
Re: Tonys IPP revision surgery diary.
« Reply #57 on: March 09, 2020, 10:22:02 PM »

No, you have to pump it up like an inflatable boat.  When you release, it is a good idea to hold the button down and squeeze the shaft.  Then give the pump a little squeeze until you feel a click... this locks out the saline so that it can't come in unless you pump it in.  I'm not really sure why this is necessary but it is.  I spoke to Jamie (the nurse at the implant company) and she says that she has heard that from a lot of people that have both Coloplast and AMS. :)

Larry

There is NO click when locking out a Titan pump.  If you squeeze it HARD you do not have to hold the pump down to deflate.  One HARD 2-second squeeze and it will lock the pump.  This is what they mean by one-touch :)
When you are still sensitive from surgery and the pump is not broken in it is often impossible to squeeze the valve hard enough to get the valve to lock open.  It took me a couple of months.
Logged
Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Larry

  • Solid Contributor
  • ***
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 107
  • Best sex since I was in my teens.
Re: Tonys IPP revision surgery diary.
« Reply #58 on: March 10, 2020, 08:12:49 AM »

There is NO click when locking out a Titan pump.
I have a AMS, there is a click on mine. If you squeeze it HARD you do not have to hold the pump down to deflate.  One HARD 2-second squeeze and it will lock the pump.  This is what they mean by one-touch :)
When you are still sensitive from surgery and the pump is not broken in it is often impossible to squeeze the valve hard enough to get the valve to lock open.  It took me a couple of months.  When the Dr. says it's ok, sit in a tub of water a hot as you can take it... that heats up the pump up making it easier to squeeze (you can also use a heating pad or hot water bottle but the tub works better.


Larry
Logged
52, 3 Botched Circumcisions, 3 botched Reconstructive Surgeries. 2018, my saviours - Urologist & 1Plastic Surgeon... both highly respected international professors. AMS LGX implant March 2018 - septic shock implant removed, LGX reimplanted Dec 2018.

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 4546
    • Peyronie's Disease
Re: Tonys IPP revision surgery diary.
« Reply #59 on: March 10, 2020, 10:37:49 AM »

I am with you Larry but the discussion on this topic is specifically about a Titan pump.  Tony had an AMS and completely understands that pump.  He now has a Titan.
Logged
Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #60 on: March 10, 2020, 03:09:14 PM »

Brief update, at week 3 had some new swelling of penis.  Also, was able to start using.  Swelling calming down.  Seems like significant increase in girth...but want to give the swelling a chance to completely subside before measuring or documenting what photos.  Now have the hang of the titan pump.  Interesting how bang more pumps it take to full inflations from the AMS.
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #61 on: March 10, 2020, 04:28:05 PM »

Tony, thanks for update.
I had more increased girth and length over time. But the first time, I pumped him up, I noticed the girth. I am sure your partner will enjoy.
Thanks for staying in touch, as reports help everyone.
StepOne
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #62 on: March 10, 2020, 07:55:54 PM »

How many pumps in general to full inflation for the titan?  And are the last twenty or so partial pumps?
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #63 on: March 10, 2020, 09:23:41 PM »

Learning the Titan pump is an interesting task.
What I have learned comes from the infamous Hawk.
I would read his posts about the pump for clarity.
But I have found that when I have deflated properly. Meaning I have pressed the Titan button once for about 3 seconds really hard!!!!!!! It locks the pump open so the fluid can go into the reservoir. The pump bulb will get hard as a rock. If I do this, I will totally inflate in about 27 semi full pumps. If I wait a few minutes, I can usually get in a few more pumps.
If I don’t do the full lock out when I deflate, and this seems off, somehow I will pump as many as 37 pumps.
I think I am a lousy pumper sometimes, some may be full squeezes, some may be partial.
But I have found that once I have pumped it up to the maximum, it just won’t pump anymore. The pump becomes so hard, there is no way to pump it any harder.
If you read everyone’s journal, it seems everyone has different amounts of pumps.
But you have 22, Hawk has 22, and I have 22cm, so, all things being equal, the only difference is how tightly we squeeze the pump.
Good luck and hoping for lots of fun for you, once you get the go ahead.
My spouse/partner is out of town this week, so I am pumping with no benefits, lol.
StepOne
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Larry

  • Solid Contributor
  • ***
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 107
  • Best sex since I was in my teens.
Re: Tonys IPP revision surgery diary.
« Reply #64 on: March 12, 2020, 12:23:40 PM »

You're a brave man. If any of my friends knew I would have to bury them immediately;)

Strange, when women get implants because they had breasts removed because of cancer, they celebrate their surgery but men suffer in silence. :(

Larry
Logged
52, 3 Botched Circumcisions, 3 botched Reconstructive Surgeries. 2018, my saviours - Urologist & 1Plastic Surgeon... both highly respected international professors. AMS LGX implant March 2018 - septic shock implant removed, LGX reimplanted Dec 2018.

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #65 on: March 20, 2020, 09:53:45 PM »

I keep having nightmares about my tubing falling out, always a relief to wake up.
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

b_rad

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 5
Re: Tonys IPP revision surgery diary.
« Reply #66 on: March 21, 2020, 12:31:34 PM »

I’m just past 2 weeks from surgery. I get 9-10 full pumps on my 22cm Titan then the bulb gets hard and I can maybe squeeze another 2 more partial pumps. It takes 15 or more minutes before I might get another partial pump in but more times than not right now I cannot. It’s strange how the amount of pumps differ from person to person. I don’t get how one person takes twice as many pumps as I do. 

Couldn’t be more happy that I went ahead with the surgery. I regained length back immediately but girth is the same. I am still shy 1 inch at the base and 1/2 inch at the head. Hopefully over time it’ll come back. Wife prefers girth over length. Am currently 6” length and only 5-3/4 at head and 6” at base in girth.

On the up side, it’s now straight enough for penetration!
Logged
62 years - Urolift 2/18 - Peyronies 4/18 35 degrees - Shock-wave 1/19 worthless - Xiaflex 3/19 - 5/19 now 90 degrees - TURP 10/19 - implant 3/5/20 Dr Eid - Wonderful wife of 25 years

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #67 on: March 21, 2020, 01:26:40 PM »

b_rad,

It is strange about the pumps. Sometimes I can pump up to 40 pumps.
I think sometimes I don't pump a full pump, but I think there has always been something wrong with my pump, but I can live with it.
I am able to do like you too, a few partial pumps after the initial pump.
I called my surgeon when the number of pumps started increasing, he told me that the tubes are able to expand more over time as your body opens up to the cylinders and therefore there is more to pump into the cylinders. I guess this is right, as my penis length and girth have increased over time.
My spouse favors girth too, so your base and head girths are slightly larger than mine and I am at almost a year. I bet your measurements increase.
StepOne
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Larry

  • Solid Contributor
  • ***
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 107
  • Best sex since I was in my teens.
Re: Tonys IPP revision surgery diary.
« Reply #68 on: March 24, 2020, 06:44:41 PM »

I get 9-10 full pumps on my 22cm Titan then the bulb gets hard and I can maybe squeeze another 2 more partial pumps

Make sure you pump absolutely as much as you can... it keeps the scar tissue at bay. When the day comes that it is time to replace the IPP you have, you will not want scar tissue interfering with the replacement implant. :)

Larry
Logged
52, 3 Botched Circumcisions, 3 botched Reconstructive Surgeries. 2018, my saviours - Urologist & 1Plastic Surgeon... both highly respected international professors. AMS LGX implant March 2018 - septic shock implant removed, LGX reimplanted Dec 2018.

Stepone

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 181
  • Peyronies Disease Survivor
Re: Tonys IPP revision surgery diary.
« Reply #69 on: March 24, 2020, 06:52:23 PM »

Hey Larry,
Yes I pump and pump.
I will pump to maximum and then recheck about 5 minutes later and then check again.
I can always seem to get in at least 1 pump ever so often.
I can only assume I am stretching my penis more and more.
I have seen increased length and girth, just as you have.
Thanks for sharing.
StepOne
Logged
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

b_rad

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 5
Re: Tonys IPP revision surgery diary.
« Reply #70 on: March 24, 2020, 11:52:15 PM »

So you keep pumping till the bulb is rock hard or when it hurts?
Logged
62 years - Urolift 2/18 - Peyronies 4/18 35 degrees - Shock-wave 1/19 worthless - Xiaflex 3/19 - 5/19 now 90 degrees - TURP 10/19 - implant 3/5/20 Dr Eid - Wonderful wife of 25 years

TonySa

  • Moderator
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3677
Re: Tonys IPP revision surgery diary.
« Reply #71 on: March 25, 2020, 12:32:46 AM »

One diff between titan and CX, I Max’d out on CX...now pushing it we titan...pain b4 max...more to grow!
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Larry

  • Solid Contributor
  • ***
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 107
  • Best sex since I was in my teens.
Re: Tonys IPP revision surgery diary.
« Reply #72 on: March 25, 2020, 05:41:22 AM »

So you keep pumping till the bulb is rock hard or when it hurts?

As long as you can tolerate it it, pump until you absolutely can't anymore.  Doing this regularly will help with length and girth expansion. :)

Larry
Logged
52, 3 Botched Circumcisions, 3 botched Reconstructive Surgeries. 2018, my saviours - Urologist & 1Plastic Surgeon... both highly respected international professors. AMS LGX implant March 2018 - septic shock implant removed, LGX reimplanted Dec 2018.
Pages: 1 [2]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
0 Replies
431 Views
Last post October 15, 2018, 08:37:50 PM
by Hawk
1 Replies
270 Views
Last post December 08, 2019, 12:56:35 PM
by TonySa
24 Replies
442 Views
Last post March 26, 2020, 10:57:07 PM
by SW01