Hawk says there is a solution for every man. Is this true?

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samsung

I post a lot, and I'm sure some people are sick of it. I get it. And this will be my last for a while. And the intent of this post is not self pity or "negativity." I am genuinely looking for an answer to a question.

Numerous people, Hawk included say some version or other that an implant is always your ace in the hole. Or that there is a solution somewhere if you try or look hard enough.

So far that has not been the case for me.

I saw Dr. Eid yesterday and we talked about an implant for me. He said that he could not guarantee it would straighten me out because my curvature is so distal. He said if he were me, he would consider plication.

So here is where my logic goes with all this.

1. Xiaflex doesn't work for me so far.
2. Traction doesn't work for me.
3. VED doesn't work for me.
4. Supplements don't work for me.
5. And my hole card, an implant, is not appropriate for me.
6. Plication almost always fails (peyronie's eventually comes back) and even if it doesn't, you always lose length, so that is not an option as far as I am concerned.
7. All other forms of therapy are total b.s. in my opinion and not worth my time (infrared light, blah, blah).

So if my way is blocked at all outlets, and clearly I am anatomically different from all people on the planet (I will get clarification from Dr. Eid in this regard, as I am referring to distal curvature) then where is my out? Where is my solution? You all seem to be either so curved or so lacking erectile function an implant is the solution. Or you are so young as so healthy traction is the solution. Or somewhere along that spectrum. But not me. I feel alienated.

It costs me $5,000 every time I go to NY to get a round of xiaflex. It costs me an enormous amount of mental and physical energy to deal with this. For nothing. For zero results.

Why continue?
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

How many more rounds of Xiaflex is Dr Eid recommending?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

One more after this and then we reassess. Insurance typically only picks up the 4 rounds as far as I understand. And most if the time anywaybif you don't have an improvement after the 1st pr 2nd round you're not going to.

But I still don't feel I have exhausted every single avenue quite yet. Feel like I should continue doing what I'm doing for maybe like another 6 months before decision X is made. I'm just mentally fried.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Godisreal

Don't rely on what other forum members assure you or whatever. It's highly possible that the only CURRENT solution for you is implant. Not something I'd recommend.
You have a calcified plaque aka stem cell surgery will be your ultimate solution. If nothing works so far you can either A: Kill yourself or B (my personal favorite): Trust on the stem cells. I bet you've read tons about it, like myself. It's highly fascinating, and it's not rocket science either.
There are some steps like with all medicine that the treatment have to pass before becoming available for the public.
If I were you, I would focus on other things in the meantime. Easier said than done.  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

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Godisreal

Please highlight the part of my text that was "nonsense" to you, Mr. Putin.
I bring my intel straight from certified studies and writing. Don't come here and tell me I post nonsense when I'm just helping another member to cope.
Think before you post next time.
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

DELETED

Quote from: Godisreal on January 07, 2020, 06:14:59 PM
Please highlight the part of my text that was "nonsense" to you


Actually I've read many of your posts before I write my message to you and all of your posts were nothing but a pure wishful thinking BS. I'm not sure how did you registered here as this board is for 18+ years old adults, not for a childs. Btw, reported to moderation team for your personal insults.

samsung

I didn't write this post to start arguments. I simply wanted a logical answer as to whether Hawk's assertion that there is a solution for everyone is accurate or not.

In my case:

A) My curvature and erectile function are not bad enough (@35 degrees) for an implant and Eid said if I did an implant he couldn't guarantee it would straighten me because my curve is distal.

B) Plication and/or excision and grafting are non-starters for me.

C) Current therapies, etc. are not working.

GIR, no offense so don't take it this way, but stem cell therapies may be the future, but the future is not occurring right now. They don't exist right now. If they did I would be there. The stem cell injections offered currently are little more than meth cookhouses operated by unscrupulous butchers, mostly located in Florida. Probably real meth labs right next door. No thanks.

So it would seem his assertion is not accurate for me. This leaves me feeling alienated as I see a lot of success on this forum. So I am asking in a roundabout way, wtf do I do? In meantime will keep banging head against wall hoping for non existent results.  
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

JohnnyDoe

Why do you write off plication surgery?
From what I have read and heard from my Uro it should be fairly safe and should fix the curve if done correctly.
It seems like length reduction is different in each situation, this is something you can ask your Uro about. If Peyronies comes back in the future it will be an issue no matter which treatment option you go with, so I am not sure how big of a factor that should be in your decision making.
No recommendation, but if my degree of curvature was larger and I could get proper erections I would be thinking in this direction.
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@samsung

As I said in PM I think you should keep doing your stretching + Xiaflex treatment (or at least only stretching) for the next 6 or so months (6 to 12 if you have enough patience for this), but next step definitely should be way more "agressive" if you want to see real results. I know that many people here are not a fans of any additional surgeries with IPP, but "MUST" technique might be really helpful in your situation with distal curve. MUST is literally a lot of small tunical incisions along all of the corpora, so a surgeon can cut the scar tissue and straigthen your distal curve while inserted IPP would be working like an internal tissue expander that preventing from future scarring and curvature. I think this surgical technique might become a new gold standard for some cases of Peyronies Disease. Just look at this vid (0:35-0:45 and 0:55-1:15) https://youtu.be/diiTs_jiXAQ?t=35

desmondthethird

Hello folks, I've just been lurking around the forum for a while and this is my second post, I believe. Never felt the urge to ask for help since there is plenty available on the forum already, which is great.
I also agree with the administration that there is a solution for everybody. Weather it's as simple as oral treatment or perhaps a long run with physical therapy. I also read about DMSO and it's many benefits, have you tried that, Samsung?
There seem to be plenty of people on here that act like member Godisreal, and their intention is never to mock people from what I've come to understand. Kinda nuts that you can just "report" members that are clearly trying to help other members, Alex. But that's just my opinion.
Lastly, what is the most efficient treatment in early state? Besides Pentoxfylline
- Desmond
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LWillisjr

There is a solution for everyone but there is no solution that works the same for everyone.

It is difficult to answer your question which solution is mot efficient. Nothing works the same for everyone. That is why we encourage everyone here to study and try for themselves. And there are many on here who are willing to talk, suggest, and offer help.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

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@Desmond


I understand, but this kid was not trying to help, but spreading a wishful thinking bro-science propaganda that brings nothing but a more desperation to anyone who are looking for a real and EXISTING solution. Instead, this guy is literally saying that we all shouldn't do anything and wait for a miracle (which is obviously will not happen, at least in the nearest 50 years).

samsung

Johnny-because it seems to always reduce length significantly. And the ones for which it doesn't just seems like luck. And it also seems like it mostly always just recurs in the near future. Would rather skip that step and go right to implant. My main goal basically is to get this in the rearview. I want my life to not revolve around my dick. An implant would have solved that. It would leave me with all kinds of other psychological questions and problems but it would settle the peyronie's issue for good. And now I can't have it. Or at least that seems like reality at the moment. We shall see.

Desmond, yes I've tried DMSO, but not seriously. When I get back home from NY I am going to get verapamil/DMSO mix and try that in earnest along with traction, etc.

Alex, thank you for the advice. When the time comes that will definitely be considered.  
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

Samsung-if I were going to trust a surgeon w plication surgery who will minimize any loss in length, Dr Eid would be a top choice.

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

Desmond, start by reading the survival guide and then write up any questions you have on your own new thread if you would.  Welcome. https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Godisreal

First of all, sorry for this hijacking post on your thread, Samsung. But this will the last one for me in a great while. So I hope it gets approved by a moderator.
Luckily, I finally have gotten my affairs in order and I'm ready to go on a long Peyronie's-kicking journey. I've gathered a lot of information these months and I've received a lot of good help from lots of very kind members. I'm very thankful for that. I've been posting a lot, with two intentions, and two intentions only: to help others as well as myself. I feel outright disgusted with being "moderated" because "several complaints have reached a moderator", I believe the words were.
There was an Irish fool who came from out of nowhere about a week ago and repeatedly harassed several forum members, he also had no studies or evidence to back up his many claims.
I've been put in the same place as that out-of-control human, and now my posts will be reviewed before being posted like I'm in a leash. All my claims are backed up by certified studies that I've read and complied myself. Studies that I highly believe will aid in the battle against Peyronie's.
Also, I genuinely thought humor was widely accepted on here? Am I wrong? I know for a fact that a moderator has written "Humor is accepted under any topic, but this is a good place for a good laugh" under the specific topic: "On the light side".
But fine, moderate one of the most consistent & optimistic members on the forum. Go ahead.
And Alex, "Mr. Putin" is not an insult. Not sure why you took it that way. He's a very respected man, and you're from Russia so I simply made that innocent joke.
Anyway, I'll see you guys in a while. Thanks for everything so far!
God bless you.
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

hope794

Interesting question. Long story short: What Hawk says is not true.
Do i mean that there's no solution at all for anyone? Obviously not.
Some people stay cool with oral treatments. Some others try VED or traction and achieve good results. Other people want to solve the matter fast even at the cost of some inches and undergo surgery. Others will go for an implant (like Hawk). So yes, some people lives "decently" with this solution.

But there are some cases, MANY cases, where things in the years only get worse. I'm one of those cases, you're probably another of these cases.
What may be acceptable for someone, may not be acceptable for others.
An example? Hawk found his "best shot" with the implant. Don't misunderstand me: i'm 100% happy for him, i'm sure he's a good man and i'm glad that after years of suffering he's enjoying his sexual life again. But personally, my stretched penis is like 12cm (while the erect penis pre-peyronie was like 17-18cm). I'm 25 years old, so if i undergo the implant surgery and, let's say, i will need a revision every 10 years, it means 5 revisions for the rest of my life. 5 revisions cost is like 100,000$ - 125.000$, which are a lot in USA but are WAY MORE in Italy, where the average salary is like 1200$ a month. Make your own math. Furthermore, after 5 revisions there are tremendous higher risk of penile damage or infection or further shortenings.
And what about the penile aspect? Well, if i start with 12 cm, and i lose something during the implant surgery, i could easily finish at 10-11 cm. Do you think that, starting from 18 cm, 10 cm may ever satisfy me or my partner? Furthermore, i haven't got a good wife which can understand. The girls i would f*ck are in my university, in the clubs ecc. Do you really think that it is gonna be easy for me to say to them "Ehy, wanna get in a relationship with me? I'm 25 yo and i can offer you a 10cm implanted penis!".

After all my reflections, make your own conclusions.
26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
ED for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

desmondthethird

Have you lost 6 cm? How is that even possible? Feels like your whole penis needs to be filled with hard scarring, then?  
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samsung

Blue, I need to partially disagree with you and even myself here. There is a mental solution. I personally don't know how to get there. But I know Stephen Hawking was married and that dude was a physical mess. And Bill Clinton has peyronie's and seems to have no trouble banging his way across the country. There is a way to love yourself even if you are just a stump. I don't know how to do it, but it does exist. And neither of us can deny that. So Hawk is right in a way. It just doesn't make sense to me. But physically, practically speaking, for myself, I don't see any options.  
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

popopo

Samsung, don't be too hard on yourself. I honestly think a lot of these people are unhappy deep down as well, some people are just mentally "though" enough to keep a positive mindset. I'm sure you're dealing with this the best you can and there's nothing wrong with being down about this once in a while. Some days I'm pretty happy with my life and other days I just wanna die. I think everybody has their troubles, but in general dealing with any kind of health issue will have a negative impact on well being, wheter these people like to admit it or not. If you're not addicted to drugs, get out of bed in the morning and do what you CAN do, I think your mind is coping the best way it can. But even without any mental illness, you can't deny that peyronies affects real life situations and relationsships if it's severe and noticeable enough. If it's really bad you can try and get laid anyway, but there is always a bigger chance it won't last. Not trying to discourage you, but to me the humiliation of being unable to perform with a girl is just not worth it. I prefer to keep my dignity to myself and just stay alone as sad as that might sound to some of you. I really don't envy those with erectyle dysfunction that still have a girlfriend or wife, cause I honestly would feel worse having a girl that I care about know this about me. It's my dark secret and I probably won't be able to face the outside world if everybody around me knew. Not because I care SOO MUCH about others opinions, but simply because I don't wanna be "that guy" even though I really am.. just my 2cents about mind over matter.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

hope794

Quote from: desmondthethird on January 08, 2020, 10:45:32 AM
Have you lost 6 cm? How is that even possible? Feels like your whole penis needs to be filled with hard scarring, then?

No. I've lost like 3 cm. The thing is that my stretched penis lenght has never been like my erect penis lenght.. Dunno why.
26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
ED for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

DELETED

Quote from: hope794 on January 08, 2020, 09:24:13 AM
5 revisions cost is like 100,000$ - 125.000$

Do you mean cost of the surgery? Because both AMS and Coloplast give a lifetime warrancy for their implants, so after you bought one, when you're going to revision (when it's needed) the new implant is technically free. You have to pay for surgery only. If it's wrong information, please correct me.

QuoteThe thing is that my stretched penis lenght has never been like my erect penis lenght

That sounds like wrong measurement. Every time in every publication regarding penis size, stretched length was always correlate with erect length.

samsung

My stretched length also absolutely does not match my erect length, no matter how hard I pull it. Erection always significantly bigger.  
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2