Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

ALL Members PLEASE Add a Signature line with age, history etc
PROFILE -> FORUM PROFILE -> SIGNATURE
More instructions here -> Signature Line - History - Peyronies Society Forums

Pages: [1]   Go Down

Author Topic: How do you keep a sense of optimism with no evidence?  (Read 228 times)

0 Members and 1 Guest are viewing this topic.

samsung

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 534
How do you keep a sense of optimism with no evidence?
« on: December 24, 2019, 07:13:44 AM »

Just tying together some patterns here across many, many threads. And sorry in advance for what might read like pessimism.

Hawk said there is a solution for every man here. Skunkworks said it just takes perseverance over time. Christopher1 says if you fast for long periods of time, etc.

But what about me?

All I read about here is the doom of "calcification." And how you don't want to end up with a calcified plaque, like it is the end of the world.

Well, mine is almost certainly calcified. So what about me?

It is my opinion that all the people who "heal" do not have the genetic form of peyronie's. They were young and had a sexual injury and soft plaque.

I have tried restorex, penimaster, VED, various supplements, heat, and now xiaflex.

It hasn't helped.

So, why would I believe there is help? If there is not help, then how is there help? I don't get it.

Why believe anything positive I read here if it is not demonstrable?

People constantly talk about hope and light and effective treatment, but I have experienced the opposite. How do you believe untrue things?

If someone told me, "you are doomed," well, I believe that because so far, that is accurate.
Logged
44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

samsung

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 534
Re: How do you keep a sense of optimism with no evidence?
« Reply #1 on: December 24, 2019, 08:27:14 AM »

Did not mean to make this a self pity post. Really asking "how do you keep any sense of optimism if what you are doing does not yield results especially when it appears that other people get results?"
Logged
44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3708
Re: How do you keep a sense of optimism with no evidence?
« Reply #2 on: December 24, 2019, 09:51:49 AM »

Are you continuing with Xiaflex and if so w traction?
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 534
Re: How do you keep a sense of optimism with no evidence?
« Reply #3 on: December 24, 2019, 10:02:50 AM »

Yes I am Tony. I am going for the 3rd round on 1/6. And I have been doing restorex 2X daily for 30 min. And it has made the hourglassing worse. It also feels thinner. I haven't done any measurements lately. Will do so before the next xiaflex round.
Logged
44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

popopo

  • Major Contributor
  • ****
  • Country: nl
  • Offline Offline
  • Gender: Male
  • Posts: 672
Re: How do you keep a sense of optimism with no evidence?
« Reply #4 on: December 24, 2019, 10:05:14 AM »

I also fall in the category of people that don't respond well to current treatments and we are not the only ones. It's hard to stay positive cause we'll basically have to wait for better treatments in the future.
Logged
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3708
Re: How do you keep a sense of optimism with no evidence?
« Reply #5 on: December 24, 2019, 03:49:50 PM »

I’m glad you’re still giving treatment a shot...good luck!  Esp that you’ve added restorex to Xiaflex, did you see the study w improved outcomes of Xiaflex by adding traction, especially the restorex!
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 534
Re: How do you keep a sense of optimism with no evidence?
« Reply #6 on: December 24, 2019, 03:57:27 PM »

Yes, I read the study. Thanks. I can't "bury" the white lines on the restorex though. I don't know how anyone could. That would tear something. It already hurts as is. I can't get it past the second level on the counter bending either. I got it to 3 a few times. But it is like my dick is a different flexibility every day.
Logged
44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 3 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3708
Re: How do you keep a sense of optimism with no evidence?
« Reply #7 on: December 24, 2019, 10:03:35 PM »

Consult w dr trost, he’s great!
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
4 Replies
1398 Views
Last post June 16, 2015, 09:25:05 AM
by Funny9097
1 Replies
3607 Views
Last post November 15, 2018, 03:02:36 PM
by Hawk
10 Replies
1046 Views
Last post May 27, 2019, 04:39:31 PM
by program4004