Peyronies of the entire septum/tunica?

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keepbatmangritey

So I hung to much weight causing peyronies all along the septum (the part right in the middle of the penis directly below and in between the corpus cavernosums, right above the corpus spongiosum, it makes an upside down v, it's in the first picture) to grow and get hard, it's like a metal cable right above my corpus spongiosum and it's very unusual. I have lost all my girth due to this, my penis is incredibly skinny and it makes me depressed. See as the penis expands the tunica acts as a skeleton stopping the penis from expanding past it. So basically the smaller the tunica, the bigger the penis and the bigger the tunica, the smaller the penis. The tunica which covers the penis is also composed of 5% elastin meaning it stretches a little but because of what I did my tunica doesn't stretch much and my penis can't expand past the entire focal length of the septum which now is huge and hard.

I have a diagnosis from two doctors and ultrasound pictures of the cross section to prove it. The problem is that 99% of peyronies is a single mass like a lump. You almost never see plaque that runs the entire length of the penis IE overhanging, stupid I know Mia culpa. Anyways now we don't know what to do about it surgery is looking like the only option, problem is they don't know how to approach it. I think they should pry open the three tubes, separate them right before they reach the head and either grate the septal cable like plaque or preferably cut it out. But the problem is how do you cut out something that runs the entire length of the penis and replace it. What do you replace it with, I've heard of using a synthetic tunica but I don't know where or how to grow one or get one. I've also heard that human dura works but again I don't know where to find one that is long enough. Please if anyone has any ideas or suggestions, please Id appreciate it I'm getting desperate here. Thank you for reading this long cry for help.

newguy

It sounds like you're in a bit of a bind here and it doesn't fill me with confidence that there are doubts over how to approach the surgerical procedure. While, I certainly wouldn't rule out surgery, have you thought of exploring oral treatment options in combination with a vacuum device. I might have suggested traction, but as your condition was brought about by hanging weight, it might be a bit too similiar to that. Just a thought. If you're unable to use the VED either, due to the specific nature of your condition, it still might be worth exploring the oral treatment route (pentoxifylline etc).

skunkworks

If the condition really is as described, I'd suggest pentox, l-arginine, acetyl l-carnitine and viagra for a year, then if nothing, get an implant.  
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

newguy

Quote from: skunkworks on August 06, 2010, 10:20:49 AM
If the condition really is as described, I'd suggest pentox, l-arginine, acetyl l-carnitine and viagra for a year, then if nothing, get an implant.

Yes, that might be a useful strategy. I would also suggest pycnogenol, due to the synergy with l-arginine, for additional help with erections.

peyroninsidepglans

Quote from: keepbatmangritey on August 05, 2010, 05:57:45 PM
So I hung to much weight causing peyronies all along the septum (the part right in the middle of the penis directly below and in between the corpus cavernosums, right above the corpus spongiosum, it makes an upside down v, it's in the first picture) to grow and get hard, it's like a metal cable right above my corpus spongiosum and it's very unusual. I have lost all my girth due to this, my penis is incredibly skinny and it makes me depressed. See as the penis expands the tunica acts as a skeleton stopping the penis from expanding past it. So basically the smaller the tunica, the bigger the penis and the bigger the tunica, the smaller the penis. The tunica which covers the penis is also composed of 5% elastin meaning it stretches a little but because of what I did my tunica doesn't stretch much and my penis can't expand past the entire focal length of the septum which now is huge and hard.

I have a diagnosis from two doctors and ultrasound pictures of the cross section to prove it. The problem is that 99% of peyronies is a single mass like a lump. You almost never see plaque that runs the entire length of the penis IE overhanging, stupid I know Mia culpa. Anyways now we don't know what to do about it surgery is looking like the only option, problem is they don't know how to approach it. I think they should pry open the three tubes, separate them right before they reach the head and either grate the septal cable like plaque or preferably cut it out. But the problem is how do you cut out something that runs the entire length of the penis and replace it. What do you replace it with, I've heard of using a synthetic tunica but I don't know where or how to grow one or get one. I've also heard that human dura works but again I don't know where to find one that is long enough. Please if anyone has any ideas or suggestions, please Id appreciate it I'm getting desperate here. Thank you for reading this long cry for help.



I don't have a normal peyronies diseease either, mines actually inside the top left gland (head of the penis) stopping blood flow, as I said before this disease sucks  

skunkworks

Quote from: keepbatmangritey on August 05, 2010, 05:57:45 PM
So I hung to much weight causing peyronies all along the septum (the part right in the middle of the penis directly below and in between the corpus cavernosums, right above the corpus spongiosum, it makes an upside down v, it's in the first picture) to grow and get hard, it's like a metal cable right above my corpus spongiosum and it's very unusual. I have lost all my girth due to this, my penis is incredibly skinny and it makes me depressed. See as the penis expands the tunica acts as a skeleton stopping the penis from expanding past it. So basically the smaller the tunica, the bigger the penis and the bigger the tunica, the smaller the penis. The tunica which covers the penis is also composed of 5% elastin meaning it stretches a little but because of what I did my tunica doesn't stretch much and my penis can't expand past the entire focal length of the septum which now is huge and hard.

I have a diagnosis from two doctors and ultrasound pictures of the cross section to prove it. The problem is that 99% of peyronies is a single mass like a lump. You almost never see plaque that runs the entire length of the penis IE overhanging, stupid I know Mia culpa. Anyways now we don't know what to do about it surgery is looking like the only option, problem is they don't know how to approach it. I think they should pry open the three tubes, separate them right before they reach the head and either grate the septal cable like plaque or preferably cut it out. But the problem is how do you cut out something that runs the entire length of the penis and replace it. What do you replace it with, I've heard of using a synthetic tunica but I don't know where or how to grow one or get one. I've also heard that human dura works but again I don't know where to find one that is long enough. Please if anyone has any ideas or suggestions, please Id appreciate it I'm getting desperate here. Thank you for reading this long cry for help.


Did you experience any pain afterward, recurring pain?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]