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Author Topic: Anyone regret surgery?  (Read 1748 times)

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RainyDay

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Anyone regret surgery?
« on: December 11, 2019, 09:10:37 PM »

Do you regret surgery? If so, why?
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TDix

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Re: Anyone regret surgery?
« Reply #1 on: December 11, 2019, 11:30:49 PM »

Nope
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

MarkDS

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Re: Anyone regret surgery?
« Reply #2 on: December 15, 2019, 04:25:59 AM »

Yes I do.

I had an upward curve of around 100 degrees.  I had an incision and grafting procedure, which also included circumcision.

I am left with a residual curve of around 45 degrees, total loss of length of over an inch, daily discomfort from circumcision and retracted flaccid penis, and loss of sensitivity.

I have now had further surgery to try and make things more comfortable; in other other words to try and get me some way back to where I was prior to surgery; with little or no option to correct the curve without going down the implant road.

So, in hindsight, I would have just lived with the extreme curve, where I was only impacted in the bedroom.  I would have overcome the difficulty in the bedroom, but struggling on a day to day basis affects all aspects of my life.
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Peyronie’s started in 2016, resulting in upward curve of around 100 degrees. Incision and grafting surgery in 6/2019.  Resulted in loss of length of over 1 inch, and residual curve of over 40 degrees.  12/2019 had skin anchoring and partial lig cut

2Oldfords

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Re: Anyone regret surgery?
« Reply #3 on: December 16, 2019, 06:59:10 PM »

   I regret that I had the incision and grafting procedure done. I had a 70 deg bend without other complications. Now I have some loss of sensitivity with hour-glassing so the end is almost floppy. I knew that there was a possibility of Erectile Dysfunction. I wish I would have gone implant from the start.
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Age - 63
Peyronies of unknown length of time
70 Deg curve 10-11 o'clock
first 2 uro's offer for xiaflex and referral
incision/grafting 12/18/18

TonySa

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Re: Anyone regret surgery?
« Reply #4 on: December 16, 2019, 07:43:59 PM »

There are some good peyronies surgeons in the states.  Dr Levine and Karpman come to mind.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jan.schaller1958

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Re: Anyone regret surgery?
« Reply #5 on: February 23, 2020, 02:24:44 PM »

Yes I do.

I had an upward curve of around 100 degrees.  I had an incision and grafting procedure, which also included circumcision.

I am left with a residual curve of around 45 degrees, total loss of length of over an inch, daily discomfort from circumcision and retracted flaccid penis, and loss of sensitivity.

I have now had further surgery to try and make things more comfortable; in other other words to try and get me some way back to where I was prior to surgery; with little or no option to correct the curve without going down the implant road.

So, in hindsight, I would have just lived with the extreme curve, where I was only impacted in the bedroom.  I would have overcome the difficulty in the bedroom, but struggling on a day to day basis affects all aspects of my life.

Well, I’m seeing a Peyroines specialist, Dr Lue, at UC San Francisco, about his surgery with alloderm grafting. But, if it will lay down scar tissue that would negatively impact my foreskin stretching efforts to get full coverage, and then some, then I’m saying no to the surgery.
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csm101

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Re: Anyone regret surgery?
« Reply #6 on: April 13, 2020, 04:36:51 PM »

NOPE! - only treatment that worked.
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LWillisjr

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Re: Anyone regret surgery?
« Reply #7 on: April 14, 2020, 09:38:09 AM »

I had excision and grafting and it worked extremely well for me. From +70 degree upward curve to now straight, and that was 12 years ago.

I think you need to careful when evaluating "surgeries" in general. You also have to include the SURGEON in that analysis. Am I implying there are "not so good" surgeons.....  unfortunately, yes.
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Les - 10 yrs Peyronies Disease free
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Benjamin62

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Re: Anyone regret surgery?
« Reply #8 on: April 14, 2020, 07:54:12 PM »

No absolutely no regrets.
Eight weeks post op. Plication and grafting (graft for hourglassing) with Dr Brian Christine in Alabama.  Trained with Tom Lue.
I’m grateful every day!!!
Yes there are other options.  But the surgery which takes about 45 min and has very little discomfort post op is worth it.
I’m
Done.
And
Done
With Peyronies
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Frank55

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Re: Anyone regret surgery?
« Reply #9 on: April 17, 2020, 06:11:58 AM »

Thanks for the update Benjamin and pleased to hear of your result.

Please continue to update us on your post-surgical experience.
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

skunkworks

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Re: Anyone regret surgery?
« Reply #10 on: April 19, 2020, 10:24:26 AM »

There have been a few studies done on this exact subject, and they all concurred that most men regret penis surgery. I have not seen one on implant surgery though, just the usual plication etc.
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This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

jj21

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Re: Anyone regret surgery?
« Reply #11 on: April 19, 2020, 09:22:01 PM »

Benjamin - did you suffer any loss of size or Erectile Dysfunction after surgery ?
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

TonySa

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Re: Anyone regret surgery?
« Reply #12 on: April 19, 2020, 11:05:11 PM »

Skunk, it would be helpful if you can reference such studies as this is very disconcerting.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Benjamin62

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Re: Anyone regret surgery?
« Reply #13 on: April 23, 2020, 07:23:58 AM »

Ten weeks post op; happy this was done.  Good solid straight erections.
Loss of length was minimal.
But understand that your penis will never be the same as it was.
The disease causes some loss of length regardless of the procedure.

I don’t mourn the loss of my old penis;  I celebrate having a new one.
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skunkworks

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Re: Anyone regret surgery?
« Reply #14 on: April 23, 2020, 11:55:03 AM »

Skunk, it would be helpful if you can reference such studies as this is very disconcerting.

Very true Tony, and as I hope you'd agree, I do usually lead with the reference rather than just mentioning it. I will find and post it as soon as I get time, I've not been online much as all this covid-19 stuff has caused a huge boom in business.

But understand that your penis will never be the same as it was.
The disease causes some loss of length regardless of the procedure.

I don’t mourn the loss of my old penis;  I celebrate having a new one.

This is at the core of the dissatisfaction I would think. Men expect the same as they had before, but that is often unreasonable.
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This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

TDix

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Re: Anyone regret surgery?
« Reply #15 on: April 23, 2020, 11:52:51 PM »

I agree with this.  After my surgery I am not back to “normal”, but I am better than before surgery.  I was scared of continuing to lose length, and that is no longer a concern.  I have regained my length, and am straight.  I do have a bulge where the graft was placed, but that doesn’t bother me.  I also don’t have rock hard erections anymore, but still have them and can have sex.  Getting rid of the fear of a worsening curve and more length loss, I am happy I had the surgery
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Frank55

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Re: Anyone regret surgery?
« Reply #16 on: April 25, 2020, 07:19:26 AM »

I strongly regret having surgery but only because the procedure was a failure. Had it been a success I'm sure there would be no regret.

My case is an example of why due diligence is so important. For a period Franklin Kuehhas in Vienna was the "poster boy" of successful surgery in this forum. I mistakenly bought into that and proceeded to have him perform the surgery. Mistake which may have been avoided if I had done more asking and checking around. I did some of that but obviously not enough. I'm in worse shape now than I was prior to the procedure.

I like Benjamin's attitude toward the post surgical state. No one will be exactly the same after surgery. If you come out of this with a functional and usable erection you've done well. But don't expect things to be exactly as they were.
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

Richardd

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Re: Anyone regret surgery?
« Reply #17 on: May 08, 2020, 05:21:46 PM »

I'm on the fence about my surgery. At the time it was the right choice for me as nothing else worked. But now after a year of being straight and happy with the result.  I have noticed some upwards curve which I think could be a messed up surgery. So now I am back in a dilemma  :(.
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TonySa

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Re: Anyone regret surgery?
« Reply #18 on: May 08, 2020, 09:03:42 PM »

Richard, how much upward curve is it?  Is it possible you’ve had a recurrence if Peyronie’s rather than the surgery failing?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Richardd

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Re: Anyone regret surgery?
« Reply #19 on: May 08, 2020, 09:58:18 PM »

Richard, how much upward curve is it?  Is it possible you%u2019ve had a recurrence if Peyronie%u2019s rather than the surgery failing?

It is about 6 or 7 degrees I am not entirely sure. I thought it was a recurrence at first, but the curve is upwards and my previous curve was to the left. I have no plaque on the top. So I think its a surgery failure.
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TonySa

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Re: Anyone regret surgery?
« Reply #20 on: May 10, 2020, 08:52:11 PM »

One can have plaque and not feel it.  Did the doc do an ultrasound?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Richardd

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Re: Anyone regret surgery?
« Reply #21 on: May 11, 2020, 10:21:12 AM »

That's true but I am not aware if I did injure myself to cause another bend. I have been careful ever since the surgery. I was meant to have one but with all this pandemic. It was canceled. It is not as bad as my previous curve. This one at least is functional and can have sex without any issues.
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Benjamin62

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Re: Anyone regret surgery?
« Reply #22 on: May 12, 2020, 08:40:21 PM »

12 weeks post surgery.  Grateful beyond belief.
It’s a question of Time, dedication, and resources.
Yes organic options MIGHT lead to a solution.  But a 45 min surgery with a reasonable recovery... leaves me believing (FOR me) this was a great outcome.
 Ability to have a normal sex life and preservation of my mental health is paramount.

Want it opinion?
Contact...
Dr Brian Christine, Birmingham, AL

What a wonderful man...
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kusher

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Re: Anyone regret surgery?
« Reply #23 on: May 17, 2020, 01:43:11 PM »

.
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LWillisjr

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Re: Anyone regret surgery?
« Reply #24 on: May 17, 2020, 05:55:45 PM »

We've never done a poll, and I don't think it would be accurate if we did. I read most of the posts on the forum and it seems to me that there are more members who were satisfied with their surgery than not.
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Les - 10 yrs Peyronies Disease free
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kusher

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Re: Anyone regret surgery?
« Reply #25 on: May 28, 2020, 02:26:15 PM »

.
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Jack1909

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Re: Anyone regret surgery?
« Reply #26 on: May 29, 2020, 06:30:04 PM »

I don’t get how I could such disfunctional after kuwhhas surgery. I had basically no erecting problem prior to it and after that I can’t keep it. Stimulation getting it to fade away no matter what.
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jj21

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Re: Anyone regret surgery?
« Reply #27 on: May 29, 2020, 11:23:31 PM »

This was one of the reasons why I was cautious of surgery. Some people come out worse than when they went in, with no fuction or nerve damage where they lose feeling int heir penis.

These were the risks explained to me... I think its important everyone is aware of the risks involved and try all other treatments and therapies before opting for surgery.

Best option for you guys who now have Erectile Dysfunction for the kuehas surgery is probably an implant? Hope you guys haven't lost too much $ from the surgery and it was covered under insurance.

JJ
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Jack1909

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Re: Anyone regret surgery?
« Reply #28 on: May 30, 2020, 02:57:04 AM »

The point is the literature itself is blurry and confused. Doctors sell it as candy but if you consider that re operation is extremely common, well, the amount of people getting out of the process disfunctional is enormous. It’s a tragedy going on under silence as people seldom complain about it due the intimacy of the problem.
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Frank55

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Re: Anyone regret surgery?
« Reply #29 on: June 03, 2020, 08:28:26 AM »

Jack have you spoken to Kuehhas about your result? If so, what does he think is the problem?
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

Jack1909

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Re: Anyone regret surgery?
« Reply #30 on: June 03, 2020, 11:53:46 AM »

He can’t. Last time I spoke with him he offered me an implant. He was all on the things we solved through surgery but he always got around my precise question: why I got so impotent?
I have been repeating myself this question and despite the tests I did no one Has been able to tell me why. What baffles me is the severity of it as I could expect some but since the surgery I have never been able to ejaculated erected. Either on meds or not.
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Frank55

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Re: Anyone regret surgery?
« Reply #31 on: June 04, 2020, 05:37:56 AM »

I suppose Franklin's response is not too surprising. He is quite the talker. It sounds like he tries to talk his way around your problem because he doesn't know the answer. Or he prefers not to discuss it.

These cases regarding Kuehhas illustrate an important point. The likelihood of satisfaction with a surgical result is strongly dependent on the choice of a surgeon. Hawk has emphasized this several times in his threads. Clearly some doctors have a higher percentage of successful results than others. I think Franklin is a better salesman than he is a surgeon.

I corresponded with another member who has had two surgeries from Kuehhas. Both were failures. Wish I had that correspondence prior to proceeding with surgery.
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

Jack1909

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Re: Anyone regret surgery?
« Reply #32 on: June 04, 2020, 06:06:24 AM »

May I get in contact with him as well?

Unfortunately he was “the surgeon” when I stepped into the forum. I knew he made more than 250 surgery per year which it was fundamental in the making choice process. So now we know he is not as good as we thought and all our attention is pointed at Eid, Gealman, Christine, Kramer. Well, its just about 4 surgeons for a problem which hits millions of people in my country alone. It’s pretty clear there is something going wrong. 
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Frank55

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Re: Anyone regret surgery?
« Reply #33 on: June 05, 2020, 06:52:48 AM »

Jack - I'll send you a PM. I too remember the time when this forum had multiple glowing reviews of Kuehhas' surgical results. Those seem to have faded off.

Overall, this forum is a highly valuable resource but all members should conduct their own thorough due diligence when considering/selecting a surgeon. Positive reviews here are helpful but not sufficient information.
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step
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