We’re really stuck in this b*tch huh

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Godisreal

Is Peyronie's disease a life long disorder? Will the inflammation leave permanently at some point? Does it depend on the individual? Does the inflammation/symptoms stay dormant after "curing" once and can come back whenever with a blast? The last one strikes me the hardest with being true. It feels like even if you "cure" yourself, you will always be vulnerable to getting f*cked with new symptoms once again.
Maybe this is obvious to most of you, but it feels like the mission for us will forever be to get rid of the symptoms we experience every time we get Peyronies-trouble throughout our lives. It feels like, if you cure yourself you have only bought yourself time... time to enjoy life without having to think about your dick all the time, time to be revealed from all the stress and anxiety Peyronie's brought you. Because it will always strike again even if you "cure", right?
But maybe that time you bought yourself, will be as good as if you didn't have Peyronie's in the first place? Maybe all we who suffer will get to feel like we're not Peyronie's sufferers again  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

buzzin2

im thinking, honestly, even if it gets better im gonna have some concern while having sex.  like even if it gets better i dont think im gonna let girls ride me anymore.  i figure theres absolutely going to be a level of anxiety and concern, even if it gets better.  i think surgery would fix the issue permanently.. but i would only let the best dr on the planet do it
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buzzin2

you gotta think also, its about to be fukin 2020.  at some point they're gonna have to develop a solid treatment plan thats permanetnly effective.  i highly doubt its gonna go that long without a breakthrough, someone is gonna crack the code.   it seems bleak currently but i think theres a high probability of a breakthrough
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popopo

I hope you're right about the breaktrough, but nothing has changed in the last 30 years or so, so I'm not very confident.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

buzzin2

ya true, but medicine is advancing exponentially with technology. i heard surgeries were getting way better as of recent.  im getting frustrated as hell with drs inability to diagnose me tho.  
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buzzin2

it would be nice to find a urologist that has actually had peyronnies himself, i know i would trust what they say way more.  
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Godisreal

I doubt you can find even one "specialist" who has had peyronies himself
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

TonySa

I understand the sentiment, wanting someone who understands, but a good doc hasn't had all the conditions they treat.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Godisreal

Not all conditions, Tony, but some or at least one... a doctor with peyronies would have both  the expertise and the motivation to treat both his own and everybody else's problems.
He wouldn't have a reason to be arrogant or non-caring to his patients. Because he is his own fkn patient. Simple as that, eh?
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

buzzin2

ya its the motivation part i was thinking would be beneficial, having a compromised dick is a big motivator lol
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buzzin2

hey tony u got grafting in mountain view? i was born mountain view and grew up in the south bay, im switching back to my old primary doctor in that area most likely but im living in sac right now
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TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Godisreal

Is surgery even possible to get without losing girth or length?  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

Godisreal

Btw I just got back from my urologist-appointment. And wow... I have never met such an arrogant little b*tch of a "specialist". This guy completely flipped me off along with all my problems.
He said he could feel my scar, but he said it was the dorsal ligament of the tunica albuginea that was hardened and injured. He told me to wait and see, what a fkn surprise huh?
The only thing we were on the same page about was the fact that my scar is located in the very outer layer of the tunica. But I already know that, man!
I waited MONTHS for this appointment and he told me nothing worthy! NOTHING!
He told me to think about something else, it's not the end of the world. I said to him, get in my chair and then let's see how you feel. He got pissed off and told me I was overreacting.
He also told me that cialis and viagra won't help my problems at all and he REFUSED to prescribe it for me. He also refused to give me any tests or ultrasounds of any kind.
At least this time, I'm not surprised, if I'm gonna search medical care for my beloved dick - I have decided to fly over to the US. I know for a fact they are the best in the world at this.
I have another "ordinary" doctor's appointment in a few weeks, and since that man is not an arrogant piece of garbage, he will definitely prescribe me low dose cialis...
F*ck the uros and f*ck this joke of a disease. When I get rich I'm gonna buy all the fkn hospitals in my country and sell them to Chinese billionaires and make all these f*ckheads work for pennies for the rest of their miserable lives.
I will NOT live out my life, that has so much potential, without putting all the eggheads who act like specialists to the ground.
And lastly, to all the people that say "women don't care bla bla bla" it's not about that. I couldn't give a f*ck about what a women thinks of my dick. Girls will suck this crippled d*ck anyway, you know why? Because i got attitude and I'm a money-getter. The difficulty is about losing a part of what you was made to be. God made us who we are. The hard part about this is the change, we were born to be a certain way. But bad decisions ruled out by society f*cked us up.
God does not stand behind f*cking people up with Peyronie's. But he does stand behind the fact that life gives you lectures, and it is up to you how you're gonna handle it.
Even tho I believe in the Lord almighty, there's no God that can fix this miserable disease or put some fkn knowledge in these snobby and poor excuses for urologists.
But one day, we will all cure. I swear to God, I will save the young people and the future generations from this pain and agony. One day I will finish the work that François Gigot de la Peyronie started 400 years ago. What do you think he would say if someone told him, that after 400 years, the best commonly prescribed treatment is a natural antioxidant called Vitamin E. Hahahahahh WHAT A JOKE
God bless you people  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

buzzin2

i feel you man... i could tell you to chill out and take it a step slower, breathe a bit and create a game plan each day and just handle it one step at a time, which is the practical thing to do.  but im still trippin and cant really take my own advice, despite knowing the fact its the right way to handle the situation.  ive made a decision to define daily parameters around this crap and stick to it, like only trying to solve a single issue and let my mind focus on just that and other than that focus on my daily goals in life.  like, im having the exact same issue with the uro's so i figure the best thing to do is to reseach doctors and compile a list that have a high probability of diagnosis and focus on contacting those drs.  from what ive gathered it seems pointless going to a random uro, so why not just focus on the aces and only go after them.  create a list of drs and just start contacting them via email, see if a dr can skype if you cant get there.  almost like casting a wide net when looking for women lol throw it out and see what sticks.  if you complile a list of all the best drs in the world and contact all of them via email or better yet call the offices, something is bound to stick.  in that sense youre focusing your energy in the right place and will be avoiding, for the most part, dealing with a uro that has no clue. you can circumvent the frustration in that sense.  i understand that location and health insurance can play a role, but that doesnt stop you from fishing by contacting dr's.  furthermore, if you find the right dr im sure location and health insurance wont even be a factor, if you can put up the funds.  i mean luckily there is a list of drs on here to start with.  
getting caught up in putting hope in a random dr or a random uro seems like a perfect recipe for frustration, so fuc k it refine your search to drs who are absolute specialists. were lucky enough to be in the internet age when thats actually totally feasible.  figure out your entire list of drs who you have vetted to be the best and start your email campaign, or call their offices and one by one see if you hit something that sticks.  you can make 100 calls in a couple hours, so no excuses.  i GUARANTEE if you hit up 100 peyronies specialists, at least like 5 are going to be willing to work with you via skype or another means.  its a numbers game and money talks, i mean uros are doctors but their practice is a business.  if you come out of pocket i bet that number out of 100 that responds skyrockets.  its f'd up putting hopes in a dr and waiting weeks for an appointment to get disappointed, which has basically also happened to me every time ive made an apt since this started.  so why not use the internet as a resource, compile a list of superstar doctors and go on an email and phone calling campaign.  cast a wide net and find a dr thats willing to work with you via your current parameters and keep taking shots until something sticks.  what else can you do
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buzzin2

going to a regular dr is amateur af in reality.  based on the fact that we know 99.9% of drs dont know how to handle this situation or diagnose properly, its illogical and low intelligence to put hopes in one of these drs.  its an exercise in futility.  in a practical sense we shouldnt have any other expectation than the results we get when going to a dr or a uro that isnt a specialist, because we inerently know they are uninformed.  so why build it up and put hopes in one of those drs.  the answer here is only considering the best drs and figuring out how to be seen by them
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Godisreal

I wanna find somebody with similar symptoms as me, I haven't found a single person yet.
I'm very young and I have A LOT of small soft lumps on my shaft, some of them have disappeared, but the remains all reach around the tunica causing severe narrowing... I also have a hard and thin scar in the outer tunica (dorsal side) but I know this can safely be fixed by a top surgeon. I've heard about people getting rid of soft lumps after many months of oral treatment, my faith stays alive everyday, if I somehow get rid of these lumps I will be a new man. I will be unstoppable. Because this disease has made me feel worse than anything else in my entire life. I won't be hurt by anything else in this life, because I believe this is hell on earth for the majority of men. Especially those who value rough and reckless sex lol
Absolutely nobody wants to think about "what if my dick breaks while I'm F^@$!ng this girl"
God I don't belong in this mess f*ck  
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

buzzin2

dude i just turned 32, this shitt isnt even in the top 3 worst things ive experienced.  its not even that bad, it sucks and brings a sh itload of anxiety and frustration but its benign.  youre not gonna die, i wouldn't test god with saying nothing else is gonna affect you in life.  thats a can of worms you dont want to open.  id be cognizant of what you're supposed to learn through this experiene and grow as a person as a result.  but if i told my 20 year old self that, my younger self would tell me to fuk off. life isnt about money, its not about any of that shi t.  all life is about is developing a relationship with god and development of character and growing throughout life, its a journey and the greatest gifts come through overcoming adversity and changing as a result.  obtaining status and money is meaningless, it will get you nowhere and has no bearing on what you're supposed to accomplish on this earth.  if anything its a hindrance.  its not about fuking chicks anyway, even going down that road will do nothing but separate you from god.   god might be putting this in your path to stop you from yourself.  i know this dude who flew out a car window had his arm ripped off and wound up in the bottom of a lake, got saved randomly by some dude who dove in a football field size body of water and happened to find him and save him.  he died went to hell and got pulled out of hell by jesus.  he says if you have a hand that is going to make you sin its better to cut it off than to live an eternity in hell as a result.  that applies here, maybe your dick is going to make you do some s hit that is going to separate you from god.  i dunno, something to think about.  you're way further along spiritaully than i was at 20 i can tell you that
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Godisreal

Thanks man, I really appreciate what you're saying. I really do. I totally agree with you that status has no effect or actual worth in my life. I never mentioned anything else regarding that. I prefer exclusivity and privacy over status and fame every day of the week.
But money DOES make life easier. Why? Because the western world revolves around it, weather you like it or not. I'd rather be miserable with than without, eh? If you deny the worth of big money, you have to think again. Money doesn't make you happy, but it helps you get there. Because we all have different things that make us happy. That's how it is. I'm a broken man, I can barely choose what drink I'm gonna buy at the store. I smoke weed but I call myself a child of God. Everything is what you make it. We can all choose not to care about our dicks. Easier said than done.
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.

Unknownhide

godisreal
i couldnt agree more with you
its really a very daunting disease
i have been suffering from it since 5 years
pentox with vit e didnt work
and i think cialis will not help either
its really a debilitating condition to the physical and psychological state


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TonySa

Interestingly, Psychological studies show happiness is tied to income until one reaches a comfortable living (around $75,000 annually for one person in US), after that increased income doesn't improve happiness.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

popopo

Godisreal, my experience with urologists has been the same. Disgusting how these guys have studied the penis, have one themselves and still don't get the psychological destruction this disease brings. It's almost as if they DO know, but literally don't care.. maybe some of these doctors even are at peace with it because of "natural selection" or crap like that. I mean, they probably think sex is a luxury and not a necessity so if some dude has a dick that doesn't work its not a big deal. He can still perform cunnilingus and not all men can to reproduce in nature either.. I mean in other animals. Only strong males get to reproduce in nature. These uro's percieve us as being lesser males that don't need acces to sex or something..maybe what I say doesn't make sense, but I cant help but think some of these "intelligent" doctors are f'~c<+d up like that.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

Also, I never got a proper diagnoses, I did get Body dysmorphic disorder diagnoses and "very minimal" damage to my penis some even say none. Yeah right, I'm soooooo crazy that I just *imagine* my dick hurting, hard flaccid, feeling cold, red dots in skin, overall discoloration, changing shape and shrinking. How could anyone make this stuff up?? I know the reality. It's not that there's nothing wronf and it's all psychological, they just want you to THINK it's all psychological cause there is nothing much else they can do.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Patientxyz1992

I think that realisticly there is only few branches in medine which is helpful, other is BS, my father has chronich disease and he needs to stuff himself with pills to function without pain  yet none of his doctors know crap about his disease  he knows more then them, its ironical but i think that doctors are people like all of us, big percentage crappy  ones and few diamonds...
29 years old with injury induced Peyronies Disease - 7 years ago
Straight erections but easy to lose and hard to fill with soft glans
No morning erections
been depressed but not anymore
The biggest problem with my Peyronies Disease is loss of sexual desire.

Godisreal

Luckily, the diamonds are real but unfortunately you have to try hard to find doctors like that.
We are all much smarter and better at directing ourselves towards a real solution, than 90% of the Peyronie's doctors and urologists in the world. We are the real specialists fellas, but things like stem cells and all these promising things needs a budget and real scientists - just like with all other treatments and medicines that gets approved for different diseases. So we can't do anything in particular to enhance the process.
Popopoo, I promise you, if we get out of this mess one day, we will make these poor excuses for urologists pay for their useless guidelines along with the false hope they have given us.
However, you're statement regarding "natural selection" is incorrect. You CAN still have sex like a normal person, so can I. It's just slightly more miserable since he have all our personal dick-issues. It's your own choice not to advance into a sexual relation.
And lastly, I refuse to believe that my beautiful sex-life is forever crippled and limited because of what started of as unknown circumstances. We will find a way.
God bless
30 degree dorsal curve, immobility and heavy loss of girth.
My body seems to get very inflamed when I masturbate too often or eat unhealthy.
Using antioxidants, Pentox and hirudoid cream, as well as manual traction, heat and Cialis.