Xiapex discontinued in EU, Australia & Asia!

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TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

shrugs

Early 40's. Completed 4 rounds (8 shots) of Xiaflex in early 2020. Using low-dose Cialis and Citrulline to maintain decent results.

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bobinlondon

This is bad news as I was thinking of paying for a few injections before I went for surgery.  Now I don't have that option.

I rang the UK distributors this morning and they confirmed it was a 'commercial' decision not related to safety or effectiveness.  I can't really understand it as they were selling it for a fortune here.  The person I spoke to said they were all gutted by the manufacturers decision.  Not that that helps anyone outside of the USA.

Can anyone let me know how much it costs to have an injection in the USA if you pay yourself?  

Cheers, B
69 yrs old
Peyronies Disease + ED for 6 years. 90-degree sideways bend
Tried VED, diets, Pentox, Restorex plus electrical stimulation, DMSO without success, 
In a long-term relationship. 
Implant by Dr Christopher 22cm Titan July 2022 no RTEs.

TonySa

I hear verapramil has had some success w injections (not as much as Xiaflex) but is MUCH cheaper.  See that section in forum.  Xiaflex in US is VERY expensive.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

Dr. Eid for ex. charges me $1000 to do the injections (2 for each round). My insurance covers the drug itself. I think if I remember correctly it is something like 4-5,000 per round if you paid out of pocket.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Bobinlondon

Oh Wow!

That is a painful price  - so basically around $5000/6000 for 2 injections including the doctor and the drug?

B  
69 yrs old
Peyronies Disease + ED for 6 years. 90-degree sideways bend
Tried VED, diets, Pentox, Restorex plus electrical stimulation, DMSO without success, 
In a long-term relationship. 
Implant by Dr Christopher 22cm Titan July 2022 no RTEs.

samsung

Yup. Call 1-800-743-2382 to see if you qualify for their copay assistance program. I'm sure it would be cheaper than that if paying all cash.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Bobinlondon

Thanks for the idea but I doubt they would cover people from outside the USA.  Back to the drawing board...  Bob
69 yrs old
Peyronies Disease + ED for 6 years. 90-degree sideways bend
Tried VED, diets, Pentox, Restorex plus electrical stimulation, DMSO without success, 
In a long-term relationship. 
Implant by Dr Christopher 22cm Titan July 2022 no RTEs.