Bike straddle injury - Peyronies Disease and sexual dysfunction

[PetrosP]

Hi everyone,

I was recently diagnosed with Peyronies Disease after I sustained a straddle injury riding my mountain bike with my two boys. I'm 45yrs old and some sexual dysfunction effects are present with softer erection (suspecting venous leak). Needless to say I have been devastated by the bad luck and consequences of what was supposed to be a fun experience.

I've been seeing Dr. Munarriz in Boston and I'm under Cialis and Pento medication. I'm researching for the RestoreX device as well.
Is there another doctor in Boston that you'd recommend I get a second opinion?
Has anyone experienced Peyronies Disease from trauma and what is recommended in the early stages?
Is Xiaflex recommended at these early stages?
Is iodine supplements also recommended?

Many thanks to all for the support.
Petros

[samsung]

Morganthaler is more experienced but he is an incompetent sociopath. Lazerou less experienced, but nice guy. If you get doppler, don't let him use bimix. Make him do it erect, not flaccid.

Opinions all over the place with everything else, so others can answer.

Read the survival guide here. Do a lot of research on xiaflex before you go that route. Read a ton on this forum first.

Iodine waste of time imo.

You're on right track with Pentox and cialis. Consider Ubiquinol, arginine and acetyl carnitine. Read up on traction and VED.

[Pfract]

Hey petrosp. Ed after injury like yours is recognized by some doctors. Check this video out...

https://youtu.be/hfJ4EcuwLVE

It may be an option for you. This doctor is very well known. Chances are it's not venous leak, but arterial insufficiency.

https://youtu.be/UczXXgLwEpk

[PetrosP]

Thanks a lot for the guidance guys!

Munarriz (here in Boston) also has relatively poor bed manners and the Boston Med Center is a cluster.
I'm consulting with Dr. Conners tomorrow and I'll have a phone consultation with Levine as well. Any quick reaction on both?

I agree, I don't want to have docs freely injecting stuff and try to treat the Peyronie's plagues haphazardly. I think there is some stenosis or hour-glass already starting to form but because it's so close to the pubic bone is not so evident.

What is your opinion/advise about verapamil injections? That's what Munarriz wants to start with this coming Friday.

Many thanks again,
Petros

[Pfract]

So... what exactly did you make out of the videos i sent you? did you even watched them?

[PetrosP]

I did watch the videos and started reading much more about this.
I am almost sold on the most probable cause and I will try to do a full vascular test to assess arterial flow, pressures etc.

The Peyeonie's issue is still perplexing to me and how it must be addressed in relation or not to the above vascular issue. Hence my questions above.
It appears as though Peyronie's is directly linked by most doctors to the ED symptoms and it doesn't seem to be the case always or especially in my case.

Many thanks again for the enlightening comments and advice.
Petros  

[Pfract]

Well.... I think you are going in the wrong path. You have a straddle injury, and you know there's a reputable doctor that treats them, is famous in America, is easily reachable by plane and maybe accepts your insurance. For peyronies, you can read about treatments here and their success among members. Also, xiaflex has been more effective than Verapamil. It has its risks as well.

The take home message is that the ed you are experiencing, has nothing to do with venous leakage. It also won't resolve over time. That surgery that Dr Goldstein does, may help you regain normal natural potency. Other than that, now you have to deal with Ed with pills /injections/vacuum pump.

[PetrosP]

Pfract and all,

I visited Dr. Conners today in Boston. I had a much more lengthy and in-depth discussion with him about my options because my case is fairly complex.
Likely there is arterial insufficiency that is causing the ED symptoms. Beyond that, there is extensive fibrosis at the injury point (slightly bigger on the right than left).

He said that Xiaflex is very risky in my case because the fibrosis is very close to the base/pubic bone/proximal and as a result close to the urethra. Any disturbance of the urethra could mean a lot more trouble. He suggested a treatment with Verapamil instead. He also advised against traction at this stage due to the pronounced fibrosis, risking potentially bigger issues if overdone.
Has anyone had success with extracorporeal soundwaves to break up the fibrosis and prevent further calcification? (I continue to read the specific section, hard to pinpoint cases of fibrosis vs. Peyronie's)

A discussion with Dr. Goldstein for vascularization surgery is a good idea, albeit early in my case until we exhaust some other options and allow the body to heal as much as possible. I agree that the likelihood of resolving on its own is low but worth trying to maximize blood flow in the area to give it a chance.

I just wanted to report back.