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Author Topic: Had 1st xiaflex today with Dr. Eid  (Read 399 times)

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samsung

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Had 1st xiaflex today with Dr. Eid
« on: October 07, 2019, 04:48:55 PM »

Had round one today. Not as bad pain as I thought. Don't get me wrong, it was highly unpleasant. But I didn't throw up, so I count it as a win.

Here is what I would appreciate some advice about.

He said the following:

1. Don't take cialis for at least 2 weeks. Continue with arginine, that's fine.

2. Don't do any traction or VED for 2 weeks. Just the hand modeling following the 2nd shot.

He also does not do any wrapping with coflex, says it cuts off circulation. I wrapped it myself very loosely with one of the Lyon legacy magnets on the underside. He said that was o.k. but be careful. Don't wear it too long. I don't have any bruising as of yet. We'll see what's what tomorrow.

Opinions? I know there are some on here that got good results doing restorex, etc. right away. But I am between a rock and hard place in deciding whether internet people are correct or a world's expert. Hmmm.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #1 on: October 07, 2019, 06:17:05 PM »

I’m not one to positively weigh in here, but I hope you don’t develop any hematomas.  Those really hurt
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #2 on: October 07, 2019, 06:32:09 PM »

Thanks man. No bruising yet. Sort of stings a bit. But that's it so far.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

Fernapal

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #3 on: October 07, 2019, 07:56:47 PM »

My two cents, follow the advice of your urologist to the letter of the law. I’m on my third round and starting  to see some results. My doctor recommended not doing anything until three days after the second shot, then mild stretching to opposing direction of the bend. Good luck and I hope you see progress soon, it’s not as painful as people put it, once you get past the notion of your dick and needle in the same sentence.
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59 years old, onset of Peyronies’s two years ago, 20 degrees of curvature to the left, second round of Xiaflex.

curved

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #4 on: October 08, 2019, 10:40:07 AM »

Samsung--- just my 2 cents on this but I would do whatever Dr Eid says.  I would ask him about traction 2 weeks after the second shot and what to do if you get a nocturnal erection.  I was told when I got a nocturnal erection to "very gently" bend the penis in the opposite direction of the curve. As I have written before there doesn't seem to be "one" agreed upon protocol following Xiaflex injections (e.g. some docs wrap with coflex, other don't, some docs are okay with traction and others say hand modeling only, some docs use dopplar to locate plaque while others do it by feel, etc.).
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51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no Erectile Dysfunction
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

pfract

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #5 on: October 08, 2019, 11:34:26 AM »

Since when does Dr eid do xiaflex injections?

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #6 on: October 08, 2019, 03:19:35 PM »

Pfract, he says he's been doing the xiaflex for quite some time. Only had 2 patients that had fractures as a result. One had sex immediately after and another rolled over in his sleep on an erection.

2nd day and zero bruising. Little lumps at injection site(s). Some pain, but manageable. I'm just using a rice sock. Next shot Thurs.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

pfract

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #7 on: October 09, 2019, 09:17:44 PM »

Wondering why it is not mentioned on his website?

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #8 on: October 10, 2019, 08:15:02 AM »

I don't know. Why don't you call him and ask?
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #9 on: October 11, 2019, 08:06:09 AM »

Please forum, please help me. Please take a break from water fasting arguments and give me some guidance.

I know nobody will read this and there will be 5 different opinions and/or this will be dismissed as a crazy post and ignored. All I know is I can't go home alive if I don't know what caused this definitively.

Sorry of I sort of just insulted you all but I don't know how else to phrase this.

Here goes:

I got the 2nd shot yesterday. Per his advice and per this stupid forum's advice, I did some gentle traction when I got home. For 1.5 hours in the penimaster pro.

As soon as I was done, my dick began to swell.

Then it bottlenecked like an elastic was tied around it and bent in 2 different directions and a red band formed around it. This took a few hours ro really reach a peak and it is now the next morning and swelling has not abated.

I went out and played in the 1st round of a chess tournament in the meantime. I left after this 1st round because the swelling had gotten to this level. My dick never looks like this.

You are supposed to do modeling after the 2nd shot so I just did as I was told.

Here is what I am asking advice about.

If I caused this, I can't leave the state of NY alive.

I need to know if I have a fracture or not.
When I texted Dr. Eid last night he said to come in this AM and he would examine me.

To my knowledge if you have a fracture you need to get it operated on immediately or you are f'~c<+d.

I need to know if this is just swelling from the shot or if I caused it and if I caused it then I will kill myself immediately. A whole year down the drain in one act. I can't live with that kind of betrayal.

There is no guidance or protocol with this disease. This is the most f'~c<+d up thing in the world. People with cancer are instructed exactly what to do. People with MS know exactly what to do. Doctors follow an exact protocol and procedures. But not with peyronie's. With peyronie's everyone has an opinion. Opinions are an abomination. An absurdity.

I am beyond freaked out. I slept for no more than 5 minutes last night. I don't even know if he will be able to diagnose a fracture. To my knowledge a fracture means more fibrosis and God knows what will happen to the structure and function of my dick now.

He told me it would resolve on its own even if it was a fracture. B.S. B.S. B.S.

What the hell should I do? I can't calm down.

My flaccid dick does not look like this or bend in these directions. It goes left and right and the foreskin is creeping over my glans now. And it has an elastic band around the top and a golf ball stuck in the middle. This is insane. If this is just swelling from the shot I am allowed to live. If I caused this, I die and I die today.

Normal swelling=life
Causation by my hand=coming home to my mother in a pine box

Please advise.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

Junior

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #10 on: October 11, 2019, 08:48:37 AM »

Hey Samsung,

Don't panic, maybe too much traction after  the shot. My last series of shots were in end of Aug & 4 weeks latter I did VED for awhile afterwards & I got a bigger bruise (blood spot) on the side of my penis exactly where one shot was given;whereas it was smaller when I got the shot.

When I do the VED my penis does swell & then goes away.

I been using the RestoresX everyday since 9/7 1/2 hr twice a day, tried doing the bend onthe RestoreX, I did not like what it was doing to my penis.

Good Luck

Junior
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Erectile Dysfunction - born 1952   /Peyronies Disease Onset 7/2018 at 65 / Prostatectomy 4/1/2019 / Low - T testosterone therapy June 2019 / June 2019 Peyronies Disease at 70 degrees - July 2019 started Xiaflex 1st cycle

curved

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #11 on: October 11, 2019, 09:22:02 AM »

samsung... i went through 4 rounds of Xiaflex (8 shots) and a couple of thoughts.  Your penis looks exactly like mine did after the shots.  the swelling will go away in a week - 2 weeks.  I doubt it is a fracture although it may be a hematoma but you would have felt sharp pain with that.  Personally I would not do any traction involving a device within the first 2 weeks of the second shot.  I would do hand modeling only during the first 2 weeks.  After the first 2 weeks I would introduce the penimaster pro or whatever device you choose.
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51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no Erectile Dysfunction
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #12 on: October 11, 2019, 10:55:07 AM »

Sorry gents. I should not have written this. I don't need any more replies and I thank the ones who did reply. I just have a terribly difficult time not knowing things.

Dr. Eid said my penis would be much, much more swollen if a fracture. But you can't know 100% without an ultrasound, urinalysis, etc. And that's not happening.

He also said he doesn't like traction devices. At all. And says VED is useless.

A bunch of you swear by VED

A bunch of you do restorex immediately following the 2nd shot.

Some of you do hand traction. Some don't.

Some take Pentox. Some don't.

I just have to learn to accept that I am just here in this crap body for a short time and that there might be a good t.v. show on in the meantime.

But I don't really actually accept that.

I know there is an exact physical cause and a precise course of action. But I will never know it and neither will any of you. Not for a few hundred years and with the advent of quantum computing and AI. In the meantime there is virtually no point to being alive unless you pretend things.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #13 on: October 11, 2019, 01:19:03 PM »

My results from Xiaflex were much worse than yours and they resolved, but took over a month to get somewhat back to normal.  It was then I decided to stop Xiaflex and go forward with surgery.  Hang in there bud
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #14 on: October 11, 2019, 01:48:51 PM »

I'm just reading how xiaflex is same as gangrene. And how some people have blisters a year later. And how some people "crack" the plaque because of immediate aggressive modeling. And how xiaflex dissolves blood vessels. And how some people don't do any modeling because they are in pain. And how some doctors do aggressive modeling and wrapping in coban tape and some don't.

See what I'm saying?

This board is making me psychotic. Uncertainty is maddening to me. I am going to stop reading and checking 24/7 here. There are no answers. I can only do the best I can.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #15 on: October 11, 2019, 01:56:11 PM »

Plus there are little things in everyone's speech that you don't even notice that mean EVERYTHING to me. TDix, you said "somewhat" back to normal. When I read that sentence, it signals to me that it did not return to what it was prior to Xiaflex and therefore neither will mine.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #16 on: October 11, 2019, 02:01:41 PM »

Do what is right for YOU.  I have been told here to do traction.  I have been told to avoid surgery at all costs.  I have been told I should have continued with Xiaflex.  I did none of those things.  I dropped the urologist that did my shots and went straight to a specialist.  He recommended surgery for MY case, and I agreed.  No traction, no VED, no Xiaflex.  Was told to go to a high volume implant surgeon.  Point is you will get advice from all directions to go in their direction because it worked for them.  DOES NOT mean it will work for you.  If you are at odds with Dr Eid, go to someone else.  Just because he is praised here does not mean he is the be all end all for YOU.  I was told to Gelman, I did not due to insurance, and honestly I’m glad I didn’t as he disagrees with doing my procedure.  Not suggesting you do surgery, just that you do what you feel is right for you.  Many who have had my surgery are unhappy with their results.  I honestly cannot compare my experience until someone else chimes in after using the same doctor.  Just let things calm down and return to “pre shot” status and plan out your next move.  Do not give up man, you can fight this horrible condition
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #17 on: October 11, 2019, 02:04:37 PM »

I say somewhat back to normal because you obviously weren’t normal before Xiaflex, which is why you decided to get the shots.  I hate saying back to normal because that would mean no issues if that makes any sense
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #18 on: October 11, 2019, 02:09:39 PM »

Ah, I thought you meant back to prior to getting xiaflex. Yeah, I realize it won't ever be back to my pre-peyronies state. That ship sailed. I'll eventually cam down. Seeing your dick turn to hamburger is unsettling. I don't care about that as much as the not having a clear path and not knowing whether I caused myself more injury. And I am scared to get a boner. If it curves worse or anything else I am going to be extremely upset. I am going to stay off the board for a few days now. Thanks for the replies.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #19 on: October 11, 2019, 02:10:13 PM »

 Xiaflex gave me huge hematomas and a fracture, so yes I was not the same after my 3 shots.
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #20 on: October 11, 2019, 02:13:29 PM »

I agree.  Take a break from here and focus on healing.  Feel free to PM me if you want as I’ve been through the same, but worse than you
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #21 on: October 12, 2019, 01:50:17 PM »

Swelling down a bit today. Not quite so dented under glans.

Any advice as to when you would recommend boner testing? I know not to have sex or masturbate for 2 weeks. But I want to see what ot looks like. I am very scared that it will be worse or shorter. So I want to get it over with to see where I stand. I'm just afraid it will break if it gets hard.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.

TDix

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #22 on: October 12, 2019, 01:57:45 PM »

You should be fine.  It may appear shorter due to the swelling but that will go away.  Just know it will probably hurt due to the swelling
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46 yrs old, 3 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TonySa

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #23 on: October 13, 2019, 07:40:16 PM »

I’d suggest just follow Dr Eids instructions and don’t try anything else...all the options on the forum just seem to be overwhelming you.  Unless Dr Eid says it’s ok, don’t do etection checks, traction (1.5 hrs is not usually considered gentle traction) etc.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3rte

samsung

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Re: Had 1st xiaflex today with Dr. Eid
« Reply #24 on: Yesterday at 05:21:50 PM »

Bruising is improving. Zero improvement in curve or anything else. In fact, now that I stopped daily traction my flaccid is way smaller. Turtling like crazy. And now it hurts like a dull sting all day. Been told not to expect anything from first shot though. I checked erection last night. Difficult to tell if it is worse. Maybe a little, but definitely not better. My plan is do 1.5 hours traction 2x per day and do counter bend restorex 2x per day. Restorex almost impossible to keep my dick head in that thing. And it always hurts after. Maddening device. Not well designed. So we shall see.

I think restorex could be combined with a suction head like a penimaster. Then you'd have best of both worlds in one device.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Torsion to left. flaccid. Xiaflex rd. 1 10/7 and 10/10. PMP traction, heat, VED, arginine, cialis, lipoic acid, vit. K2.
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