Confused about Peyronies vs regular penile injury trauma.

[Stratt_mat1]

I have been having penile pain that hurts most with night time erections for the last seven weeks after a sexual injury, though it's improved since it first happened . It feels specifically like nerve pain in nature. Which the doctor mentjined as well based on location and sound not jt. alsolight feeling of indent on the very top of my penis near the head. Which I am not sure was present before or not. I went to a urologist who diagnosed me as Peyronies. Based on what I told him about it. But I feel his explanation was a bit confusing and wanted clarity on some things.

First off because I don't want to take chances and was technically diagnosed with Peyronies I am going to start taking Pentox, and already got Cialis and the arginine. As well as some other supplements. And going to do traction / ved as well. Though I'm not sure when to start that as I don't want to aggravate and acute injury. What do people think is the best time? I will at least wait until I am on the Pentox to do it though.

The doctors told me I had soft tissue injury from the sex but it wasn't damaging enough to be a full on fracture. I have no plaque or anything that is feelable in terms of plawue or scar tissue. I had two different doctors do a physical exam and they stated the same saying there was no feeling of scar or plaque when flaccid. No ultrasound yet though. Next visit.

Anyways my question regarding all of this is that I read in the Peyronies survival guide  that healing scar tissue is not Peyronies disease, and that Peyronies disease is when scar tissue starts to spread and form on healthy tissue beyond any injured tissue.

I also read that the type of scarring and healing with Peyronies is different then a regular healing injury. But cases of penile fracture that aren't prompty taken care of end up with the same type of damage that Peyronies causes too. Painful erections , penile deformity, trouble urination, erectile dsyfunctiin etc. But all these people do not nexessirely have a genetic healing disorder which is what I hear proposed with Peyronies.

I know I definitely damaged my penis and am taking all the proper steps now to take care of it. But I can't imagine what kind of healing would be different for a penile injury then the typical healing of any injured soft tissue injury . Like what is the difference between a "regular" healing penile injury and damage and "Peyronies " version.

I definitely damagedamage tissue that was so I am trying to take care of that. But my thought is how will I know if I have Peyronies where it starts to have palque and scarring to happen over healthy issue too , and spread? Vs just injury healing at the site of my pretty bad injury? What's the difference with all of this?   Still treating it all the same to prevent any more damage or worsening condition though. On another note something I've been curious about, why are penile implants the absolute last resort when they seem so damn effective? From my understanding it stops the disease process completely and out of pocket only 20k is a lot cheaper then even those drug injection shots people get. And it apparently also prevents worsening girth and length loss if the condition worsens for someone too. Treats erectile issues as well. Seems like an all around awesome solution albiet with some risks and definite getting adjusted to.  

[agranderson2019]

Hey brother. I don't have an answer for you but I want to hop on this thread too because I want to know the answer as well when one comes. I saw the same thing on the survival guide where it mentions that not all injuries heal like peyronies injuries. I am in the same boat. I have a small indention on the side of my penis and I too have no idea how long it's been there. I have been worried and I also want to know what the difference is between a peyronies scar and a normal scar. I'm wondering if a normal scar will heal as a small indent too? Just not spread or calcify? I hope?  

[Stratt_mat1]

Hey brother. I don't have an answer for you but I want to hop on this thread too because I want to know the answer as well when one comes. I saw the same thing on the survival guide where it mentions that not all injuries heal like peyronies injuries. I am in the same boat. I have a small indention on the side of my penis and I too have no idea how long it's been there. I have been worried and I also want to know what the difference is between a peyronies scar and a normal scar. I'm wondering if a normal scar will heal as a small indent too? Just not spread or calcify? I hope?

It seems a lot of things get lumped together with Peyronies type symptoms so sometimes it's hard to say I guess. Maybe thats why going to a Peyronies expert is important. I know for myself that I had an obvious and stupid injury, and still it's been over two and a half  months and no scar tissue or plaque at all. Just the tissue damage from the injury that I am assuming is just healing. When you strain any other muscle in the body it can take a lot of time to heal, and it does cause changes in the look of the muscle depending on the extent of tear. I'm assuming from speaking to others and multiple doctors. Which they mentioned the same, that I had a tear in the tissue but not severe enough to be a full on penile fracture.

It seems to be healing up now and the pain is nowhere near as bad as the beginning. But it was never unbearable either. And the indentation is right above the dorsal nerve. Which is what seems to hurt in a really nagging nerve pain kind of way.

I guess to my understanding if plaque ends up developing that it hasn't healed as normally as it could have? Also I heard others and the survival guuide also mention that scar tissue forming over an injury is not Peyronies , but when it spreads to other healthy tissue as well is when it's considered a disease process. Then others define just having some kind of scar tissue in the penis as Peyronies itself.

Nevertheless for myself I am doing everything for oral treatment as if it was early Peyronies because all the supplements suggested in the survival guide help for any healing of the penis anyways. I also got on low dose daily Cialis and pentox to prevent any plaque from forming in the first place. I ordered a traction device but yet to use it, contemplated doing VED as well but both those options seem they could further stress the injury and make it worse. Some say acute stage Peyronies responds very well to traction and VED. But if this is just a healing injury I don't want to make it worse either. So I am giving it a few weeks for the Pentox to really kick in. Then contemplating doing VED and or traction from there. I will probbaly start with VED if I do, because it seems less straining then traction can be. But I could be wrong on that.  

[syrmale30]

Hey Stratt_mat, what will be the "kicker" that makes you start using the traction device? I feel like I am in a similar boat as you, although I am a little more confident that I am actually in active phase (despite two urologists saying they don't believe I have peyronie's right now). Do you know if plaque forms for the "hourglass" type? Also, can using a traction device make things worse?

[Stratt_mat1]

I just want confirmation from a Peyronies specialist that a traction or VED device wont risk more damage or prolong healing from the torn tissue I damaged. I understand and see how useful VED and traction is for the scar tissue. But I also heard how it can potentially damage or prolong the healing process after an acute injury. Plaque does form for the hourglass type too to my understanding. Because it's a ring of scar tissue causing it? To my understanding true hour glassing happens upon full erection though. A flaccid penis can have an hour Glass look at times without being damaged.  

[Stratt_mat1]

And just as personal opinion after much research, reading, and checking these forums. If they did end up diagnosing me with Peyronies disease and this is more then an acute injury that can heal without last damage. If I had to deal with the risk of losing any girth or length due to Peyronies and the unpredictability of it all. I would do all I could to attain my pre Peyronies length and girth using VED, Traction,  and oral supplements/prescription Ciais and Pentox and jump straight to an Implant. Rather then risk a possible further disease process casing more deformity and shrinking my penis, erectile dsyfunction, and long term alterations in my sex life as a result of interminnet  Peyronies symptoms.  

My understanding isn't 100 percent right now but if there is no way to non surgically cure Peyronies disease and the treatments just help to retain sexual function and prevent worsening disease. It seems the implant kind of solves all of that at once. I would hate to try and manage a potentially worsening disease process for years, and have changes to the type of sex I have for a long period of my life to just end up eventually having to implant anyways. They seem pretty damn cool, and an end to any worry of worsening disease and micro management of the condition.

[TonySa]

The non surgery treatment can cure peyronies by remodeling the plaque, no guarantees Of course.

[Stratt_mat1]

The non surgery treatment can cure peyronies by remodeling the plaque, no guarantees Of course.

Sure, and i suppose that's why the surgery is a last resort. My anxiety was centered around what if I hold off on doing the surgery and have this disease full blown and just progressively end up losing more and more length and girth before doing the surgery and ending smaller as a result. On the flip side there are a lot of non surgery options that are shown to restore girth and length ifbthere was loss. And other types of surgery that can assist with that too, albiet with slight ED risk. There was just a lot of fear based around the lack of total understanding of how this condition is I guess.  

[PetrosP]

Guys,

Somewhat on the same boat here and trying to decipher the fibrosis vs. Peyronie's. I had a pretty severe cycling straddle accident, blunt trauma to the penis and artery from hitting the saddle. A fairly substantial fibrotic tissue has been formed at the base of the penis, almost all around, very close to the pubic bone and likely some damage has been done to the artery because of some moderate ED symptoms with softer erection that is not easily sustained.

I'm on Cialis and Pentox and I've done an MRI and ultrasounds to confirm. I'm failing to get an expert diagnosis and clear distinction between Peyronie's and fibrosis, but the other day I saw Dr. Conners here in Boston, being quite assertive about the difference between the two. As a matter of fact, he discouraged using traction at this early stage (2mo) because of risk of doing further damage. Manual traction was suggested only. I'll go ahead with Verapamil injections to help reduce the fibrotic tissue formation and calcification but  I also started looking into GainesWave and  p-shot to give the body the best chance to potentially heal as best as possible. To the contrary, a first doctor I saw diagnosed it immediately as Peyronie's and suggested traction right away! I don't want to cause any extra damage to a healing body part, so I'm taking it easy and obtaining more opinions.

Do you know of experts that have experience with traumatic cases of fibrosis in the North East or around the country?
I'll attempt to talk to Dr. Goldstein as well in San Diego who at least is an expert in re-vascularization surgery which might be a last resort in the future.

Thanks in advance,
Petros

[Pfract]

PetrosP:

Seems that you are taking all the recommend medication, for this, so far. I would add that i saw your reply on the thread the other day and seems like you are confident on the doctor you are seeing. That is very important also.

The only thing that i add, and i cannot stress this enough! is that you schedule a free courtesy call with Dr. Goldstein, and tell him of your straddle injury. He has been treating those types of injuries for years now, and is one of the very few doctors doing that micro surgery that you've seen in the video. I was there in 2016, to see him. I have the emails, plane tickets, and photos to prove if you want to see.

I am not saying he is going to cure you. But he is definitely an expert in dealing with these injuries, and penile fractures as well. (that's why i went there) You can do an in office ultrasound, on a top of the line machine while you watch it on a monitor right in front of you. You can also bring pictures of your ultrasound home if you want, and you will be given a full report that you can show to other doctors later, in a language they understand. (blood flow values and what not).

When and if you go there, then you take it from there knowing you went to the very best doctor to deal with your injury type. Don't go by my word. Check his videos on the youtube channel, and search his name online.  

[PetrosP]

Pfract,

Fully agree. I'm scheduled to talk to his group on the phone and already scheduling a trip shortly.

Best,
Petros