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Author Topic: Perceptible Curve implant diary  (Read 333 times)

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Perceptible Curve

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Perceptible Curve implant diary
« on: September 08, 2019, 07:23:25 PM »

9-8-2019. Night before surgery.
Tomorrow at 0600 I will report to the hospital for my penile implant. My urologist an MD will be placing it and I will have an AMS LGX or CX implanted. My doctor has done many of them and I believe he can do as well as the high volume doctors available. I will also be having an Orchiectomy or testicle removal because of pain and it has been atrophying for 20 + years now. We decided to remove it as it would be in close proximity to the pump and could cause more discomfort. I kinda see it as a good thing, I will now have plenty of room for the pump to reside in that spot. And yes I'm asking to take the testicle back and have a wet specimen jar with formaldehyde ready for its new home. Some may think it disturbing but seriously how often do you get to see something like that. And of course the fun you could have handing it to someone not expecting to hold your testicle.
So starting tomorrow I will be adding to this diary. Should I include pictures to the diary moving forward?
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Hawk

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Re: Perceptible Curve implant diary
« Reply #1 on: September 08, 2019, 10:12:26 PM »

Pictures are allowed on this topic and appreciated.  You can stay awake with a spinal and video record the surgery if you like ;)

Best wishes brother!
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #2 on: September 09, 2019, 04:03:10 AM »

I will be unconscious by use of general anesthetics. So no videos, although told hospital they could record video for their own video library but they said they don't need it. 
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #3 on: September 09, 2019, 07:01:52 PM »

9/9/19 1900. I've been back at my room since afternoon.  I am guessing the surgery went well, or so they say.  Pain level at about 7  or 7.5. Hurt to walk around too. Here are some pics of it.

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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #4 on: September 09, 2019, 07:09:26 PM »

Another view
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

pfract

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Re: Perceptible Curve implant diary
« Reply #5 on: September 09, 2019, 08:42:37 PM »

And there you are on the other side! Takes a lot of courage to go through this no doubt..

chasema

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Re: Perceptible Curve implant diary
« Reply #6 on: September 09, 2019, 11:11:06 PM »

Thanks pfact. The main hurdle for me was the fact I'll never get a natural erection again and my glands might never engorged again. I was able to get  erection although it was not a good one .....never again will that happen. But should get harder and straighter now.
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Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #7 on: September 10, 2019, 05:18:17 AM »

9/10/19. 0530 ~ 24 hours later. Starting to bruise from having the modling done also scrotum turning black and blue. Been taking pain pills but don't seem too help a whole lot. Pain is about 5 to 6. Nurses at hospital have been great and very helpful.  Waiting for Doctor to remove bandages and piss tube and then probably send me home.
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #8 on: September 10, 2019, 08:47:24 AM »

Got my keychain. It make the surgery worth while.
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Junior

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Re: Perceptible Curve implant diary
« Reply #9 on: September 10, 2019, 08:53:42 AM »

Hey Guy,

Your through the worse of it, be strong, I'm sure you've been through a lot worse. Hang in there wish you the best on your recovery!

Junior
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Erectile Dysfunction - born 1952   /Peyronies Disease Onset 7/2018 at 65 / Prostatectomy 4/1/2019 / Low - T testosterone therapy June 2019 / June 2019 Peyronies Disease at 70 degrees - July 2019 started Xiaflex 1st cycle

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #10 on: September 10, 2019, 09:47:17 AM »

Thanks Junior. Tell the truth I was hit by a car at age 15 and this is worse than that.
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

pfract

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Re: Perceptible Curve implant diary
« Reply #11 on: September 10, 2019, 11:35:55 AM »

Woah! Here is a thing we following diaries don't see often. The implant deflate instructions and the model key. Hang in there curved... :)

Roddy

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Re: Perceptible Curve implant diary
« Reply #12 on: September 10, 2019, 06:05:26 PM »

Good to hear from you now that you’re through the other side, perceptible curve. Whatever the pain you’ve got, and whatever pain is on it’s way, you must remember that it’ll all be worth it in the end. The 3-4 weeks immediate recovery is manageable with the right pain medication. Take it. And take it regularly because it’s only short term and you’ll only be taking the meds for weeks and then it’ll all be in the past. Stay ahead of the pain is the best piece of advice I can give you. It took me 2 weeks to do that properly and it would have been much easier if I had taken my mixture of proper painkillers - alternated every 2 hours as directed. Hang in there, brother. It’ll all turn out great in the end - no doubt about it.

Roddy
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Aged 47, congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019
Dr. Mike Fraser - Glasgow

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #13 on: September 10, 2019, 08:30:50 PM »

Thanks Roddyi will keep that all in mind. Here are a couple more pics as of tonight. Pain meds making me sick and staying another night at hospital because I can't empty my bladder . Having a testicle removed ads to the injury shown in the following pictures.
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #14 on: September 10, 2019, 08:31:58 PM »

Another view.
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #15 on: September 11, 2019, 12:11:52 AM »

Don't let the pictures scare any future recipients of getting a penile implant. It looks bad mainly because the testicle removal. And penile modling because of Peyronie's.
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #16 on: September 11, 2019, 12:36:19 AM »

I just noticed this about the second picture up from here. It would look like I was wearing crotch less ladies panties. but I guarantee they arent.
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #17 on: September 11, 2019, 12:46:43 AM »

The model I got is an LGX 18 cm with 2cm RTE's. 20 cm total.
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

pfract

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Re: Perceptible Curve implant diary
« Reply #18 on: September 11, 2019, 10:56:21 PM »

Don't worry perceptible, we know you aren't! It does look nasty right surgery I give you that. Did doctor do some hand modelling like Dr Kramer?

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #19 on: September 12, 2019, 07:53:30 AM »

Yes pfract Doctor did do the modeling to offset the upward and left curve. I think he said some curve will still be present but not as bad and should be stiff enough to use. 
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.

pfract

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Re: Perceptible Curve implant diary
« Reply #20 on: September 12, 2019, 11:44:48 AM »

Hopefully it will straighten itself out completely with the implant as well.

Perceptible Curve

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Re: Perceptible Curve implant diary
« Reply #21 on: September 13, 2019, 08:25:18 AM »

Ended up staying a couple nights at the hospital was having bladder emptying issues.They said it has something to do with the anesthesia. At this time I am peeing just fine and having some pain in the scrotum area, nothing too bad about 5 of 10 scale. I stopped taking the prescribed pain pills as they were making  me nauseous and throwing up. Swelling gone down to where I can feel all the pump parts and little hose. Still not sure where the release button is located, but have until the 17th doctors appointment to be shown where it is. I will write more later as I feel up to it and can sit more comfortably.
Logged
Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.
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