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Author Topic: I think Vitamin D supplementation caused my Peyronies Disease  (Read 4338 times)

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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #50 on: August 01, 2020, 02:12:23 PM »

Grag, all these posts about Vit D and I don’t see that you’ve ever even described any Peyronie’s symptoms.  What makes you think you have it, other then having an injury?  Why not focus on your actual situation and what can be done about it?  This rumination on Vit D seems to be taking you down the depression hole.  Please share your condition and put it in your signature line.  Have you read the survival guide?  This way we can help you focus on improving your condition.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #51 on: August 01, 2020, 05:34:40 PM »

Grag, all these posts about Vit D and I don’t see that you’ve ever even described any Peyronie’s symptoms.  What makes you think you have it, other then having an injury?  Why not focus on your actual situation and what can be done about it?  This rumination on Vit D seems to be taking you down the depression hole.  Please share your condition and put it in your signature line.  Have you read the survival guide?  This way we can help you focus on improving your condition.

I can feel a sharp vertical scar on the left side of my penis, which pulls my penis to the left. In erect state it bends slightly left, the left side of my penis is completely straight but the right side is rounded during erection, which suggests that the left side is shortened/or less stretchable due to the scar. I experience pain during and after an erection. My penis constantly feels hardened and when I pull it to the right during semi-erect, I can feel the scar giving me pain. It’s textbook peyronies and it isn’t fair. Not in a depressed 23 year old. Should I start injecting testosterone or something?
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #52 on: August 01, 2020, 09:38:13 PM »

As you describe, it’s early Peyronies or a very mild case.  If you’re concerned it is peyronie’s just start basic treatment such as low dose nightly generic cialis (2.5-5mg) and hand traction or VED.  If you can’t do that and are still catastrophising - it’s def your emotional state that needs to be addressed. IMO
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

projectpd

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #53 on: August 01, 2020, 10:37:24 PM »

Hi Gragg, you had no known injury or genetic factor and as you say only 23, and depressed.  vit D seems unlikely.  There is a link between low testosterone and depression, and it's been suspected with Peyronies (even if just on generalistic arguments).  is there something made you suggest that? by the way someone I know well who should know (used a lot of it), said testosterone makes your dick grow, which i guess makes sense.
have you seen Monty's history /photos ?
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #54 on: August 02, 2020, 01:05:56 PM »

I don’t know I’m just suspecting low T because I’m such a depressed whiny bit** lol, I had levels of 760 ng/ml when I was 17 years old. They must have dropped by then..
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #55 on: August 14, 2020, 02:00:24 PM »

Ok there are two things that could caused my peyronies:

- I took accutane at age 16 and 19
- I megadosed vitamin D and developed a small kidney stone but there was no toxicity when I developed the stone, so I tend to think it was partly genetic (my cousin had a kidney stone as well at my age)

What do you think, what out of these two caused my peyronies?

I just want to be normal again.. I don’t feel like a man anymore. This is hell on earth.
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projectpd

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #56 on: August 14, 2020, 04:29:18 PM »

this one could be a must read for you  :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3120050/

"Recent genetic studies, however, have shown that vascular calcification can be prevented by reducing serum phosphate levels, even in the presence of extremely high serum 1,25-dihydroxyvitamin D and calcium levels. "

bear in mind, vit D deficiency is also a risk considering studies on its relation with tgf beta.. https://www.fertstert.org/article/S0015-0282(15)00826-2/fulltext (just a random indication, not meant to be the most relevant one)

i guess in general, in the body, nothing should be extremely supplemented in isolation, as everything works together.

as you took accutane, if that was for inflamed acne?, if so possibly you may have been prone to some general inflammation?  and it might have contributed in some way?

wildly guessing as well, I wonder if did you abruptly withdraw from extreme vit D supplementation ?
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #57 on: August 15, 2020, 03:51:16 AM »

this one could be a must read for you  :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3120050/

"Recent genetic studies, however, have shown that vascular calcification can be prevented by reducing serum phosphate levels, even in the presence of extremely high serum 1,25-dihydroxyvitamin D and calcium levels. "

bear in mind, vit D deficiency is also a risk considering studies on its relation with tgf beta.. https://www.fertstert.org/article/S0015-0282(15)00826-2/fulltext (just a random indication, not meant to be the most relevant one)

i guess in general, in the body, nothing should be extremely supplemented in isolation, as everything works together.

as you took accutane, if that was for inflamed acne?, if so possibly you may have been prone to some general inflammation?  and it might have contributed in some way?

wildly guessing as well, I wonder if did you abruptly withdraw from extreme vit D supplementation ?
Yes I withdrew vitamin D abruptly..why?

I took accutane for teenage acne.. haven’t had any acne since
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #58 on: August 16, 2020, 03:27:04 PM »

Guys please why do I have to deal with this disease?


Could vitamin D really be the cause? Millions of people on this planet supplement with vitamin D and millions have artificially high vitamin D levels. If vitamin D could really cause peyronies, wouldn’t there be much more reports? I mean I couldn’t find anything about a connection between vit d and Peyronie’s on google. Only the one Turkish study... my thread on this forum is the only thread on the Internet about vit d and peyronies connection. This is crazy
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Timewilltell

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #59 on: August 16, 2020, 04:00:39 PM »

I understand the need to attribute a cause. I think everyone who is a victim of poor health, whatever the disease, wants to have a clear answer to the question “Why me? What did I do to deserve this?” That is perfectly natural.

Still, I think you are hyperfocusing on the wrong thing. More than likely Vitamin D did not do this. As you said, there is very little within the medical community that suggests it did. Still, all sorts of people respond to things differently, so maybe it did.

But what would that change for you if you could prove excess vitamin D did this? It might give a certain sense of causality and a clear event that you could blame but it wouldn’t change anything. The result is the same. You have some form of fibrosis.

You should try and focus on giving your penis everything it needs to try to heal: following recommended treatments, consulting with medical experts who are familiar with this disease, and giving your body time.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #60 on: August 16, 2020, 05:52:58 PM »

I understand the need to attribute a cause. I think everyone who is a victim of poor health, whatever the disease, wants to have a clear answer to the question “Why me? What did I do to deserve this?” That is perfectly natural.

Still, I think you are hyperfocusing on the wrong thing. More than likely Vitamin D did not do this. As you said, there is very little within the medical community that suggests it did. Still, all sorts of people respond to things differently, so maybe it did.

But what would that change for you if you could prove excess vitamin D did this? It might give a certain sense of causality and a clear event that you could blame but it wouldn’t change anything. The result is the same. You have some form of fibrosis.

You should try and focus on giving your penis everything it needs to try to heal: following recommended treatments, consulting with medical experts who are familiar with this disease, and giving your body time.
Dude I am only 23.... this can’t be real. Like I said, my girlfriend of 2 yrs recently left me and now I’m struggling heavily! My hair is thinning, my penis is losing length... I start to feel like all of this is a nightmare and someday I will wake up. I AM ONLY 23. I took vitamin D because I wanted to improve my health. This isn’t fair. None of this is fair
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Timewilltell

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #61 on: August 16, 2020, 07:00:09 PM »

I understand the sentiment. There are people on this forum that are even younger than you and regardless of age, we are all suffering from the mental turmoil of this disease.

Still, health does not work based upon what is fair or not. People don’t get diseases because they deserve it. You need to stop thinking about what is fair and think about ways to get better.

You said your girlfriend left you not because of your penis and not because of your thinning hair but because you were treating her badly. You were treating her badly and you did not even realize, which suggests that your hyperfixation and depression is what actually drove her away.

Your problem is not vitamin D. Even if it was, you are just looking for a cause and not a solution.  You really aught to look into seeing a good therapist and maybe medication like Wellbutrin as an antidepressant.

Still, I see that others have already suggested this. I don’t think you are looking for advice as much as you are venting here. That is fine. Everyone needs a place to vent. But I don’t think there is anything I can do to help with your situation if that is the case.

Look into getting help with your mental health.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #62 on: August 16, 2020, 07:17:13 PM »

I understand the sentiment. There are people on this forum that are even younger than you and regardless of age, we are all suffering from the mental turmoil of this disease.

Still, health does not work based upon what is fair or not. People don’t get diseases because they deserve it. You need to stop thinking about what is fair and think about ways to get better.

You said your girlfriend left you not because of your penis and not because of your thinning hair but because you were treating her badly. You were treating her badly and you did not even realize, which suggests that your hyperfixation and depression is what actually drove her away.

Your problem is not vitamin D. Even if it was, you are just looking for a cause and not a solution.  You really aught to look into seeing a good therapist and maybe medication like Wellbutrin as an antidepressant.

Still, I see that others have already suggested this. I don’t think you are looking for advice as much as you are venting here. That is fine. Everyone needs a place to vent. But I don’t think there is anything I can do to help with your situation if that is the case.

Look into getting help with your mental health.
yes she left me because of my depression. She left me because I couldn’t focus on my love to her. Because I thought obsessively worrying about my health will lead anywhere good, instead of giving her more attention. She left me because she found a guy who didn’t have mental problems. An active, outgoing, funny guy. It’s such a downward spiral. This only makes me more depressed. I’m really done taking any meds. The only meds/drugs I ever took were accutane and vitamin D and I only got problems from both

There are no ways to get better. I feel the hardening in my penis. I did everything. Daily cialis, vitamin E, L-arginine, QoC 10, vitamin K2, magnesium, Acetyl L carnitine, topical DMSO+acv+castor oil etc.
This disease is permanent. It can only be cured by surgery which leaves you with a small dick. I am 23, I should be having the time of my life. This life isn’t for me

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Timewilltell

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #63 on: August 16, 2020, 09:46:29 PM »

Thinning hair? Hair transplants and some procedures might work. Or you can shave your head and muscle up and look manly that way. A lot of guys lose their hair and early 20’s is a common age for it to start. It sucks to see the process of aging but there are ways to make it look good.

Peyronie’s is getting worse? Keep trying new things. Look at the case of NeoV. His onset was young and, after struggling throughout his 20’s, he describes himself as essentially cured but it took years and lots of effort. So there is always hope. Yes, there are surgeries. Some implants won’t even cost you that much in terms of size.

Also, it is a poor lover that relies only on his penis. Getting good at using your hands and giving oral goes a long way with a lot of women. The clitoris is on the upper part of of the vulva and the g-spot is on the top of the vaginal canal and is usually only a couple of inches in. Stimulate those parts and put the woman in the right mental state and the size of your penis doesn’t matter as much.

Ultimately, women date the person. Yes, an above average penis does help but the most important factors are what you say, what you can contribute to their life, what kind of vibes and emotions you give them. There are some really average guys who are very successful with women because they pay attention to the woman and respond with confidence and social intelligence.

I don’t mean to downplay your emotions. I think everyone who has Peyronie’s can relate to its psychological destructive effects. We are all in or have been in very dark places because of this disease. I am sorry to hear of your situation. I just mean to highlight ways to can try and find a better frame of mind. The only real path forward for any of us on this forum is to try to find the best most positive approach and see what the future holds. I understand depression, I truly do. But you need to try and find a way to get out of your negative and obsessive spiral. More than anything else, your depression is what is really destroying you.

Anyway, this is probably the last I will respond to this thread because I don’t get the impression you are here to do anything other than vent. That is okay. Vent away. I hope it provides some solace. Good luck, man. I hope you find a way to address your mental health.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #64 on: August 17, 2020, 07:34:31 AM »

Thinning hair? Hair transplants and some procedures might work. Or you can shave your head and muscle up and look manly that way. A lot of guys lose their hair and early 20’s is a common age for it to start. It sucks to see the process of aging but there are ways to make it look good.

Peyronie’s is getting worse? Keep trying new things. Look at the case of NeoV. His onset was young and, after struggling throughout his 20’s, he describes himself as essentially cured but it took years and lots of effort. So there is always hope. Yes, there are surgeries. Some implants won’t even cost you that much in terms of size.

Also, it is a poor lover that relies only on his penis. Getting good at using your hands and giving oral goes a long way with a lot of women. The clitoris is on the upper part of of the vulva and the g-spot is on the top of the vaginal canal and is usually only a couple of inches in. Stimulate those parts and put the woman in the right mental state and the size of your penis doesn’t matter as much.

Ultimately, women date the person. Yes, an above average penis does help but the most important factors are what you say, what you can contribute to their life, what kind of vibes and emotions you give them. There are some really average guys who are very successful with women because they pay attention to the woman and respond with confidence and social intelligence.

I don’t mean to downplay your emotions. I think everyone who has Peyronie’s can relate to its psychological destructive effects. We are all in or have been in very dark places because of this disease. I am sorry to hear of your situation. I just mean to highlight ways to can try and find a better frame of mind. The only real path forward for any of us on this forum is to try to find the best most positive approach and see what the future holds. I understand depression, I truly do. But you need to try and find a way to get out of your negative and obsessive spiral. More than anything else, your depression is what is really destroying you.

Anyway, this is probably the last I will respond to this thread because I don’t get the impression you are here to do anything other than vent. That is okay. Vent away. I hope it provides some solace. Good luck, man. I hope you find a way to address your mental health.

Thank you, man... i was losing my mind when I wrote that comment. It’s such an up and down with my emotions and when I truly think about it, I am beyond fcked, but you’re right it’s not smart to stress over it.

Do you think I could start using finasteride for my hair loss?
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Timewilltell

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #65 on: August 17, 2020, 10:43:11 AM »

We are all f'~c<+d, man. This is a forum full of people either gripped by fear and despair or are doing everything they can to fight against it. But we are not without hope. We have to have hope. Even if just to recognize that the stress of worrying can only make our body worse.

I would suggest caution with finasteride. Male pattern baldness is the product of testosterone and genetics. Because of this biological fact, anti-hair loss medications have effects on testosterone levels and that can lead to problems with your penis. It might not be a good idea for someone dealing with Peyronie’s and could potentially make it worse.

Still, I appreciate that hair loss is worrying. Much like an injured penis, hair loss hits at your feeling of manliness and virility. Think about what kind of risks you are willing to take and whether you are more worried about penile health or hair loss. There are other options for hair loss but many others are more expensive or not as effective.
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Swain

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #66 on: August 17, 2020, 11:31:47 AM »

Thank you, man... i was losing my mind when I wrote that comment. It’s such an up and down with my emotions and when I truly think about it, I am beyond fcked, but you’re right it’s not smart to stress over it.

Do you think I could start using finasteride for my hair loss?
For the hair: just shave it off. I had such a hard time for the 3-4 years when I was struggling with hair loss. Then I just shaved it all off, and after that it was done. Now I'm just a dude with a shaved head. It's just a look.
The lesson: It was all in my head.
For the dick: If you have slight curvature, your dick works. It's only really a problem if the curve is so sharp that it bends a lot.
I see people here losing their minds over a shortening of their penis to a length that is still longer than my original length. And I've never gotten any complaints. This all started happening in my late 30s, and before that, I'd learned all kinds of tricks to turn girls on more in bed.
#1 of course is being present.
So all your problems are, and I am quite sure of this, in your head.
These are very very good news. Because this means that it's all within your means to fix.
I have accepted the fact that if this will completely wreck my dick, I can always get one of those pumps, and I'm good again. The worst case scenario then is that I'll have to make robocop jokes in bed. I've gotten over tons of stuff in my life. The key is to own it. Just accept crap on a deep level and then start making fun of it.
So you just need someone to talk to.
And just forget the vitamin D thing. Get one of those sun lamps or something.
Even if that was the cause, you didn't cause it. It was an accident. And it's unlikely to be the cause, at best. I'd taken D many times during my life. It did now mess up my penis at once. Vitamin D doesn't cause this en masse, if it did, they wouldn't sell it.
Forgive yourself. You don't have much to forgive, but you still need to do it. You're young, and you've been alone with your fears, and you need to learn to get to grips with them. You can. You will. Seeking professional help will certainly help make that go faster.
This thing, this disease, causes immense loneliness. It's such a meaningful thing. And that constant dull pain can drive me mad. It took me a long time to open up about it, but now I talk to people.
This is something you can live with. That's the general consensus here, from what I've heard. The fear is the worst. That's why we need other people.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #67 on: August 17, 2020, 06:22:12 PM »

For the hair: just shave it off. I had such a hard time for the 3-4 years when I was struggling with hair loss. Then I just shaved it all off, and after that it was done. Now I'm just a dude with a shaved head. It's just a look.
The lesson: It was all in my head.
For the dick: If you have slight curvature, your dick works. It's only really a problem if the curve is so sharp that it bends a lot.
I see people here losing their minds over a shortening of their penis to a length that is still longer than my original length. And I've never gotten any complaints. This all started happening in my late 30s, and before that, I'd learned all kinds of tricks to turn girls on more in bed.
#1 of course is being present.
So all your problems are, and I am quite sure of this, in your head.
These are very very good news. Because this means that it's all within your means to fix.
I have accepted the fact that if this will completely wreck my dick, I can always get one of those pumps, and I'm good again. The worst case scenario then is that I'll have to make robocop jokes in bed. I've gotten over tons of stuff in my life. The key is to own it. Just accept crap on a deep level and then start making fun of it.
So you just need someone to talk to.
And just forget the vitamin D thing. Get one of those sun lamps or something.
Even if that was the cause, you didn't cause it. It was an accident. And it's unlikely to be the cause, at best. I'd taken D many times during my life. It did now mess up my penis at once. Vitamin D doesn't cause this en masse, if it did, they wouldn't sell it.
Forgive yourself. You don't have much to forgive, but you still need to do it. You're young, and you've been alone with your fears, and you need to learn to get to grips with them. You can. You will. Seeking professional help will certainly help make that go faster.
This thing, this disease, causes immense loneliness. It's such a meaningful thing. And that constant dull pain can drive me mad. It took me a long time to open up about it, but now I talk to people.
This is something you can live with. That's the general consensus here, from what I've heard. The fear is the worst. That's why we need other people.
How did vit D mess up your penis?
Yeah the vitamin D levels they were talking about in the study were actually average levels for people supplementing vitamin D I think. It would suck so much if vitamin D caused it though..
just got my testosterone test back. It’s at 560 ng/dL, so quite average/low for a 23 yr old guy. I don’t know.. maybe low T caused my peyronies
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #68 on: August 17, 2020, 06:30:52 PM »

Are you starting treatment or just focusing on the cause which you will NEVER know?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #69 on: August 17, 2020, 06:46:06 PM »

Are you starting treatment or just focusing on the cause which you will NEVER know?

There is no treatment. I will have to get surgery at some point which will leave me with a small dick. Life isn’t fair to me, man. I had acne in my youth which I got bullied for, had to take accutane. Eventually got a gf but I started treating her badly at some point because I was depressed. Nonetheless I had the best time of my life with her in hindsight, which I didn’t even realize. Then she leaves me, I get peyronies and thinning hair. Now I am getting uglier day by day and have to hope for an understanding woman for my Peyronie’s disease.

None of this is fair. I would at least like to know the damn cause of this bullsht.
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #70 on: August 17, 2020, 08:29:18 PM »

There are several treatment strategies.  Please describe your circumstances in your signature line so folks can advise appropriately.  Have you read the survival guide, it has all sorts of treatment options?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Tortão Pra Direita

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #71 on: August 17, 2020, 09:48:13 PM »

Dude, relax.

Why are you so obsessed with vitamin d? I mean, if it really caused your Peyronie, then avoid it. Or use it in small doses (like 1000ui daily) plus vitamin k2 + magnesium. This combo will drag the calcium your body need to your bones and not your organs.

Let me tell something: my symptoms started when I was taking a high quality Cordyceps supplement. In my head, I think it triggered some immune response somehow. It's well known that cordyceps and other fungis can enhance your immune system, but I think it messed with mine somehow. However, I cant prove that. I made an association cause the inflammatory process (painful erections) started when I started to supplement it. But... what now? It makes no sense to obssess over it. What was done is done.

Search for my post history. I was mad like one week ago. I got better, and luckily my pain fade away. But still, I have a 45º to 50º bent penis and can't have sex. What do now? Try to focus on improving. Or getting money to pay the doc. This is what I and you can do. Whinning led me nowhere and will leave you nowhere. It's shi.t, man. But look at this as some game level you need to pass through.

If you are in a bad place mentally, I can recommend you good supplements that can bring your mood up. Agmatine and Polygala Tenuifolia are good ones.
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Symptoms started something like september 2019. Peyronies Disease developed quickly. After one complete year, pain is almost gone. Currently regimen: VED 2x day, Pentox 1x day, Cialis every week. Excellent erections, but a 70º degree (approximately).

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #72 on: August 18, 2020, 07:17:02 AM »

Dude, relax.

Why are you so obsessed with vitamin d? I mean, if it really caused your Peyronie, then avoid it. Or use it in small doses (like 1000ui daily) plus vitamin k2 + magnesium. This combo will drag the calcium your body need to your bones and not your organs.

Let me tell something: my symptoms started when I was taking a high quality Cordyceps supplement. In my head, I think it triggered some immune response somehow. It's well known that cordyceps and other fungis can enhance your immune system, but I think it messed with mine somehow. However, I cant prove that. I made an association cause the inflammatory process (painful erections) started when I started to supplement it. But... what now? It makes no sense to obssess over it. What was done is done.

Search for my post history. I was mad like one week ago. I got better, and luckily my pain fade away. But still, I have a 45º to 50º bent penis and can't have sex. What do now? Try to focus on improving. Or getting money to pay the doc. This is what I and you can do. Whinning led me nowhere and will leave you nowhere. It's shi.t, man. But look at this as some game level you need to pass through.

If you are in a bad place mentally, I can recommend you good supplements that can bring your mood up. Agmatine and Polygala Tenuifolia are good ones.

I‘m stressing because it seems so obvious that vitamin D caused my problems down there. I feel so dumb for taking such doses. I’m never touching that stuff again
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Swain

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #73 on: August 18, 2020, 09:12:18 AM »

How did vit D mess up your penis?
Yeah the vitamin D levels they were talking about in the study were actually average levels for people supplementing vitamin D I think. It would suck so much if vitamin D caused it though..
just got my testosterone test back. It’s at 560 ng/dL, so quite average/low for a 23 yr old guy. I don’t know.. maybe low T caused my peyronies
Feel free to send me a private message if you wanna chat. You need to unspool that obsession, free up your mind to think about something more positive and fun.
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Hawk

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #74 on: August 18, 2020, 01:11:51 PM »

I will NEVER believe normal vitamin D levels can contribute to Peyronies Disease.  Show a study that establishes a direct connection.  It does not exist.

I was very low on the edge of actual deficiency in vitamin D when I got Peyronies Disease.

Low vitamin D is established to be a factor in Prostate Cancer ( which I had).  Prostate cancer is a huge factor in bot Erectile Dysfunction and Peyronies Disease.

Low vitamin D is associated with many cancers and one of the most critical vitamins.  The population in general is very low in vitamin D levels due to sunscreens and sun avoidance.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #75 on: August 19, 2020, 08:09:31 AM »

I will NEVER believe normal vitamin D levels can contribute to Peyronies Disease.  Show a study that establishes a direct connection.  It does not exist.

I was very low on the edge of actual deficiency in vitamin D when I got Peyronies Disease.

Low vitamin D is established to be a factor in Prostate Cancer ( which I had).  Prostate cancer is a huge factor in bot Erectile Dysfunction and Peyronies Disease.

Low vitamin D is associated with many cancers and one of the most critical vitamins.  The population in general is very low in vitamin D levels due to sunscreens and sun avoidance.

Maybe not because of the vitamin D but because of the Hypercalcemia? I didn’t even have Hypercalcemia when I was hospitalized with kidney pain due to the kidney stone. But I think I must have had Hypercalcemia at some point because how else would I have gotten the kidney stone? Well a cousin of mine also developed a kidney stone at that age so I can’t say anything for sure.
It sucks that I don’t even know where I got this crappy  life altering disease from
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Tortão Pra Direita

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #76 on: August 19, 2020, 09:57:52 PM »

Maybe not because of the vitamin D but because of the Hypercalcemia?

Calcification isn't the first thing that happens in Peyronie's disease.
At first your tunica albuginea gets inflammated and a plaque is formed. Later, if the disease progress, you get some calcification.

I got a small calcification more than half year after my initial diagnosis.
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Symptoms started something like september 2019. Peyronies Disease developed quickly. After one complete year, pain is almost gone. Currently regimen: VED 2x day, Pentox 1x day, Cialis every week. Excellent erections, but a 70º degree (approximately).

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #77 on: August 21, 2020, 11:58:28 AM »

So all of this sh*t most likely started because of having sex with a semi erect?
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #78 on: August 21, 2020, 12:11:20 PM »

Yes, as you said in your first post “crushing” your dick during sex.  Ok, so now you have a likely reason.  What are your symptoms and what treatments will you try?  Please put these in your signature line and let’s get started.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #79 on: August 21, 2020, 12:39:09 PM »

I feel a lump on the left side of my penis, it bends a little bit to the left but not much at all. My penis gets hot after masturbation. It hurts hours after masturbation. It hurts to get an erection. I have lost size (around 2 cm)
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #80 on: August 21, 2020, 12:59:08 PM »

Ok, now you are getting on track!  Are you going to see a doc and possibly get a diagnostic ultrasound to confirm Peyronies Disease?  They can also prescribe pentox and low dose nightly generic cialis (2.5-5 mg).  You can add traction or VED.  All will help remodel any plaque (causing loss of length) to healthy tissue.  Be sure to read the survival guide to get started.  It explains how to take accurate measurements to track changes.  Often guys think they see changes which aren’t even there-or a lot less than it seems.  Do you know how to add a signature line?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #81 on: August 28, 2020, 08:44:50 PM »

I have been taking cialis daily + L-citrullin.. yes i was diagnosed via ultrasound. Doctor told me to come back in 6 months and that it’s too early to start POTABA or something like that. Life is a sick joke to me right now. Not a single guy in his 20s, 30s,.. deserves this disease. Not a single guy
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #82 on: August 28, 2020, 08:48:29 PM »

I feel like my body is slowly falling apart. Just yesterday I was also diagnosed with varicocele and I might have a hernia in my groin. My testosterone level is only at 560 ng/dL at age 23... I’m not trying to dramatize things but this whole crap really gets to me. I just want to live a normal life again
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #83 on: August 28, 2020, 10:12:37 PM »

What about adding in VED or traction?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #84 on: August 29, 2020, 03:13:52 PM »

I tried VED but I feel like it made it worse. I don’t know but my penis is very hard when flaccid. Moving it up in flaccid state hurts. I can chop that useless shlt right off
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Tortão Pra Direita

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #85 on: August 29, 2020, 03:56:57 PM »

My testosterone level is only at 560 ng/dL at age 23

This is a good testosterone level. It could be better, but it's still good nonetheless.


I tried VED but I feel like it made it worse.

Don't do it till your max. It's very easy to get hurt if you over do it.
70%~80% of your max erection is ok.
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Symptoms started something like september 2019. Peyronies Disease developed quickly. After one complete year, pain is almost gone. Currently regimen: VED 2x day, Pentox 1x day, Cialis every week. Excellent erections, but a 70º degree (approximately).

Swain

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #86 on: August 30, 2020, 11:03:17 AM »

Your hopelessness is your enemy now. You need to see it. It is caused by an anxiety you can’t address. You can’t fix the past.
I went through this phase. I’m very glad you are here. I was not. I was alone and terrified and oh so hopeless. I don’t know how big your dick was, mine was medium, and after everything its still not tiny.
I was pretty good in bed. So I know that my dick isn’t the center of my sexual universe. Currently I’m not sexually active, mostly because I decided to skip it for a while. Because I’m obsessive. Like you. And I needed to relieve this pressure.
Mine is quite bent now. My country doesn’t have the injectioms, and I am taking my time figuring these things out.
I am certain you need some help working through this trauma. This is very traumatic. In the trauma, you see things in a magnified way.
No girl in the universe can sense a 2 cm difference. But we sense each others pain.
If you are not taking D vitamin, and you are still feeling the pain, its not the D. If you are still tqking D, stop. If you think you need D, go to a standing solarium, and get a daylight lamp, the big one you sit in front of for 30 minutes a day to recieve enough d. And its still summer in germany, just be outside for an hour a day.
The point is clear: vitamin D needs to stop being your focus. And you need to see peyronies realistically.
If you can’t sort out these thoughts by yourself, you need help. I’d recommend a shrink, one who deals with trauma.
I PROMISE you this will help you deal with this. My DMs are open if you want to discuss this more.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #87 on: August 30, 2020, 11:54:28 AM »

Your hopelessness is your enemy now. You need to see it. It is caused by an anxiety you can’t address. You can’t fix the past.
I went through this phase. I’m very glad you are here. I was not. I was alone and terrified and oh so hopeless. I don’t know how big your dick was, mine was medium, and after everything its still not tiny.
I was pretty good in bed. So I know that my dick isn’t the center of my sexual universe. Currently I’m not sexually active, mostly because I decided to skip it for a while. Because I’m obsessive. Like you. And I needed to relieve this pressure.
Mine is quite bent now. My country doesn’t have the injectioms, and I am taking my time figuring these things out.
I am certain you need some help working through this trauma. This is very traumatic. In the trauma, you see things in a magnified way.
No girl in the universe can sense a 2 cm difference. But we sense each others pain.
If you are not taking D vitamin, and you are still feeling the pain, its not the D. If you are still tqking D, stop. If you think you need D, go to a standing solarium, and get a daylight lamp, the big one you sit in front of for 30 minutes a day to recieve enough d. And its still summer in germany, just be outside for an hour a day.
The point is clear: vitamin D needs to stop being your focus. And you need to see peyronies realistically.
If you can’t sort out these thoughts by yourself, you need help. I’d recommend a shrink, one who deals with trauma.
I PROMISE you this will help you deal with this. My DMs are open if you want to discuss this more.
Thank you for caring.. I think u switched things up a bit. I took vitamin D only for 2 months back then because of a deficiency and I ended up with a level of 54 ng/ml before stopping. I never touched vitamin D again after that. I developed peyronies symptoms around 2-3 months after this incident, so, long after I stopped taking vitamin D. I don’t know til this day if vitamin D was the cause but I think vitamin D overdose is just Hypercalcemia and many cancer patients are hypercalcemic for several months so I think if Hypercalcemia lead to peyronies, there would be case reports but I couldn’t find any.
I am going on vacation tonight. I have so much baggage i just want to get rid of. I just want to live a carefree life again without any of this BS. Thank you for your help
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #88 on: September 01, 2020, 05:24:35 AM »

I don’t understand this. The authors in my first post write that vitamin D can lead to Peyronies Disease due to higher TGF-Beta expression but studies like this https://doi.org/10.1016/j.fertnstert.2015.07.324 found that vitamin D decreases TGF-Beta....
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #89 on: September 01, 2020, 05:26:39 AM »

Also this study says that vitamin D attenuates the profibrotic effects of TGF-Beta 1 https://doi.org/10.3390/nu9090980 . Very conflicting
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #90 on: September 01, 2020, 10:38:37 AM »

Back to Vit D????
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #91 on: September 01, 2020, 04:41:37 PM »

Life never really was fair to me, I shouldn’t have to deal with this at all. At least make me not go bald. It’s hard to see the silver lining for me
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TonySa

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #92 on: September 01, 2020, 09:22:05 PM »

If you have Peyronies Disease, get started on treatment it’s the only thing that will make you feel better.0
Logged
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #93 on: September 03, 2020, 07:28:01 PM »

I am on soft treatment. Taking Lcitrulline and Qoc10 and sometimes vitamin E right now plus a few cycles of Tadalafil. I noticed my dorsal vein on my penis is much more prominent since starting 5PDE inhibitors.
I have an appointment with my doctor on Monday I will ask for Pentoxifyllin or Potaba. I read studies where hyperthermia therapy made the plaque in 35% of the patients disappear so this gives me hope. Honestly peyronies should be cured in the next 10 years I think. It doesn’t seem impossible to be cured. Much more achievable than curing male pattern baldness
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #94 on: September 04, 2020, 01:21:07 PM »

This is a good testosterone level. It could be better, but it's still good nonetheless.


Don't do it till your max. It's very easy to get hurt if you over do it.
70%~80% of your max erection is ok.

So 560 ng/dL shouldn’t cause Peyronie’s disease?
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Tortão Pra Direita

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #95 on: September 04, 2020, 05:50:00 PM »

So 560 ng/dL shouldn’t cause Peyronie’s disease?

Low testosterone isn't the unique cause of Peyronie.
The lower the testosterone, the more chances you have to develop Peyronie. This doesn't mean a young guy with high levels won't develop the disease.
560 ng/dL is a good testosterone level. Could be better? Yes. You can increase this level using tamoxifen for a short period of time. But don't worry so much, you're not suffering from a deficiency of testosterone.

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Symptoms started something like september 2019. Peyronies Disease developed quickly. After one complete year, pain is almost gone. Currently regimen: VED 2x day, Pentox 1x day, Cialis every week. Excellent erections, but a 70º degree (approximately).

jan.schaller1958

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #96 on: September 05, 2020, 02:45:34 AM »

It‘s sad to hear young men suffering from Peyroines. I got it at 56, so I guess that makes me a bit lucky, compared with guys only 22.

Peyroines is a wound healing disorder of unknown origins. It’s a bit like developing keloids after a facelift. Everyone’s penis suffers repeated micro-Trauma for years, recovers and heals normally,  and it never develops Peyroines (IPP). Then some do develop it, but no one knows why.  I think genetics play a big role. It’s not all there is to it, but it is a big factor. It’s got nothing to do with vitamin D. That’s just silly.

But, there are treatment options, so never give up. Keep working at it.
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #97 on: September 05, 2020, 11:30:38 AM »

My testosterone declined from 680 when I was 19 to 560 now at 23... don’t know what that means. I’m worrying that there is something with my androgens going on which also caused my peyronies
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Graggaxy

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #98 on: September 05, 2020, 01:22:01 PM »

My girlfriend left me Because I was depressed from my symptoms. I lost the joy for life etc and she noticed that and left me. We were together for 2.5 yrs. she’s already in a new relationship. Now I started balding and my peyronies will get worse in the future. How do I know I will ever find a better girl than her?
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NeoV

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Re: I think Vitamin D supplementation caused my Peyronies Disease
« Reply #99 on: September 06, 2020, 09:55:56 AM »

I highly doubt it was caused by vitamin D.

That said, you don't deserve to know. You only deserve to take actions, and if you someday learn the truth then that's great. You can get a woman to "love" you again. Balding is clearly fine and some girls (many) like bald dudes. I don't want to be rude here, and I'm sorry if this comes across as rude, but I've talked to so many men who demand to know the precise reason, yet this is largely a selfish fantasy. "Is it MY fault? Was it the vitamin D? The injury? The alcohol I drank or something I did?" Guilt is a fantasy, it's selfish. Take actions, and take actions remembering the girl you loved and "lost." Was it vitamin D? Who cares. You love her too much to even have time to care about that. You're stronger than simply wishing to be forgiven or blamed. Such a subconscious desire is equivalent to spiritual violence against her. I struggled with this for my entire twenties, or most of it. I spent many years reading about guilt, trauma, and a lot of this stuff so I am not just saying something without any basis here. It isn't easy, sometimes you need to cry and that's okay, if not healthy. But move forward man, you can do this. Your Peyronie's was not what made her leave, and you admitted this. This can serve you as the most powerful leverage you'll ever obtain if you allow it. I feel the pain too but if we try, we can feel through it, to the other side.

A woman is a mirror to her man. The idea that you can "find" a better girl is an illusion. You will bring the self to a woman, thereby allowing her to give back to you. Nobody is waiting for you, you have to create the response in her. The man goes first, your penis does not affect your ability to go first.
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