I think Vitamin D supplementation caused my Peyronies Disease

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Graggaxy

Last year I had very low levels of vitamin D (13ng/ml) and I took like 18,000 IUs every few days, sometimes even daily (really inconsistent). Anyway, I ended up with a kidney stone after around 2 months because of my vitamin D supplementation. I was hospitalized in February 2018 because of this kidney stone. In April 2018 I got a new girlfriend and we started having sex in May/June.
Now I know that vitamin D is fat soluble and stays in your body for a very long time. So when I started having sex with my new girlfriend, I had some erection problems at first and I was penetrating without a firm erection sometimes. This lead to me crushing my penis sometimes and this is where my Peyronies started to emerge. I think the excess vitamin D lead to more fibrosis in my penis during the repair process.
https://onlinelibrary.wiley.com/doi/abs/10.1111/and.13368

This recent study supports my theory that excess vitamin D leads to excess fibrosis in the penis. Really shocking finding to me. I really regret my decisions in life at this point but what can I do...
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Graggaxy

What do you guys think? I'm really stressing out over the possibility that I may have caused this by myself. But I also read a study where the vitamin D levels of peyronies patients were lower than healthy control subjects. I don't know what to think about this contradicting research... but the thought that this whole problem is my own fault really F~@ks with my mind..
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samsung

This is just my personal opinion, so take it for it's worth.....nobody knows what causes peyronie's. At all. Not the smartest people on Earth. People on here say that it is caused by masturbating in a seated position. That it is caused by high cholesterol, smoking, beta blockers, etc., etc., etc.

And they may very well contribute. But here is a fact: I know a guy that is 95 that smokes 2 packs a day that I just saw mowing his lawn. Not sure he has peyronie's, but I'm guessing he doesn't. Peyronie's is a genetic disease or it is caused by a directly attributable injury. Either micro or macro trauma in other words. I think mine developed for years without me knowing it and then bang! Curve, etc.

The rest is a guessing game. In my case, did cocaine do it? Did that cheeseburger? They certainly didn't help. But in my opinion even if I took care of myself like I do now since childhood, I would have gotten it anyway.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

Hi G, I agree w S they you'll never know if vit D caused it, but we do know having sexual intercourse without a sufficient erection can cause trauma to the penis which can result in Peyronies, AND also exacerbate it-so don't do that any more.  Now get started w medical care and treatment ASAP, start here w the survival guide: https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

NeoV

I saw this new study as well. I always had low vitamin D, so I can't say supplementation really made it worse or better. But I would not be surprised if excess supplementation did indeed contribute to worsening.. In general you won't be able to know but this is a very interesting study for sure.

Graggaxy

Quote from: NeoV on September 23, 2019, 12:18:39 AM
I saw this new study as well. I always had low vitamin D, so I can't say supplementation really made it worse or better. But I would not be surprised if excess supplementation did indeed contribute to worsening.. In general you won't be able to know but this is a very interesting study for sure.
What I don't understand is how in another study, lower vitamin D levels were seen as a cause for peyronies  
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NeoV

Yes it did show that, but the thing is that it isn't just Peyronie's, but many diseases are associated with an imbalance of vitamin D. You really want it in a sweet spot, and how to do that is somewhat up in the air. It would require testing to really figure out what you need (or if you need supplementation at all).

I also think that vitamin D may be low or high for other underlying reasons, so it isn't really the vitamin D but something else underneath.

Graggaxy

Quote from: NeoV on September 23, 2019, 04:00:04 AM
Yes it did show that, but the thing is that it isn't just Peyronie's, but many diseases are associated with an imbalance of vitamin D. You really want it in a sweet spot, and how to do that is somewhat up in the air. It would require testing to really figure out what you need (or if you need supplementation at all).

I also think that vitamin D may be low or high for other underlying reasons, so it isn't really the vitamin D but something else underneath.
Im really freaking out over the possibility that this has happened by my own fault. This study is such a shocking finding to me. I only wanted to correct my deficiency. Vitamin supplementation is such a dangerous game...

when I was hospitalized with a kidney stone, they didn't notice abnormal calcium levels and my vitamin D levels were at 56 ng/ml which is considered optimal. To be honest, kidney stones are extremely common in my family so the vitamin D only may have sped up what was supposed to happen anyway. I really hope that my vitamin D supplementation didn't cause my peyronies though but I sense nothing good. My flaccid hurts when I move it up and down, it's such a mess. I just hope that this vitamin d didn't cause these problems
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Graggaxy

Im back from another urologist. I told him that I took high doses of vitamin D because of my deficiency and that I read that this could lead to calcification in soft tissue. Then he told me that this calcification occurs in the kidney and not in the penis. Kind of reassuring but i'm Still worrying about this study... he prescribed me Neomycin-fluocinolonacetonide cream for the pain and told me to come back in 7 days
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Hontas

Quote from: Graggaxy on September 23, 2019, 03:40:06 AM
What I don't understand is how in another study, lower vitamin D levels were seen as a cause for peyronies

Because it is a cause for Peyronie's. Low vitamin D causes low VDR activation which is proven to induce more TGF-B, maybe we need a sweet spot as NeoV said

Graggaxy

Quote from: Hontas on September 24, 2019, 09:29:13 PM
Because it is a cause for Peyronie's. Low vitamin D causes low VDR activation which is proven to induce more TGF-B, maybe we need a sweet spot as NeoV said
But in the recent study, vitamin D levels in peyronies group were only like 10ng/ml higher than control but both groups were still deficient by definition (peyronies group just not as deficient as control group)
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Hontas

https://www.jsm.jsexmed.org/article/S1743-6095(16)00534-8/fulltext

And here Peyronie's group has deficiency. Its a complex mechanism with a few different pathways. But i know VDR pathway is needed to stop fibrosis.

peyroniesurprise

low vitamin D will likely contribute to peyronie.

However, vitamin D also contributes to moving calcium around your body.

So i would say it is also likely vitamin D OVERDOSE will likely contribute to peyronie.

Normally we would get vitamin D from the Sun, through the skin. The body is extremely fine tuned to NOT overdose on vitamin D even with prolonged UVB exposure. So your body will take exactly the right amount of vitamin D it can HANDLE.

Oral supplementation however has a different route and you CAN overdose on it because the mechanism is different.

If you also took calcium supplements/drank milk etc with vit D, that most likely made the problem worse. Sadly many vit D supplements come with calcium because they are marketed towards post menopausal women (for osteoporosis)
31 yo, Hourglass Peyronies likely because of masturbation

Treatment: Vit E and fish oil (vitD+E), no more masturbation; good improvement so far, less hourglass both in flaccid and erect state, little to no pain during erection now

Graggaxy

Quote from: peyroniesurprise on September 27, 2019, 03:44:14 AM
low vitamin D will likely contribute to peyronie.

However, vitamin D also contributes to moving calcium around your body.

So i would say it is also likely vitamin D OVERDOSE will likely contribute to peyronie.

Normally we would get vitamin D from the Sun, through the skin. The body is extremely fine tuned to NOT overdose on vitamin D even with prolonged UVB exposure. So your body will take exactly the right amount of vitamin D it can HANDLE.

Oral supplementation however has a different route and you CAN overdose on it because the mechanism is different.

If you also took calcium supplements/drank milk etc with vit D, that most likely made the problem worse. Sadly many vit D supplements come with calcium because they are marketed towards post menopausal women (for osteoporosis)
How is this excess calcium gonna get to the penis though? When there's excess calcium, the body forms a kidney stone and that's it. Calcification occurs in the kidneys and not in the penis  
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Paolo

See also this;- There is a relationship between Peyronie's disease and high serum vitamin D levels

https://www.ncbi.nlm.nih.gov/pubmed/31482615

Paul.

This tiny study asked the quest "Is vitamin D levels a new risk factor"?  It did not answer the question and establish that they are.
Administrator
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

peyroniesurprise

Quote from: Graggaxy on September 27, 2019, 04:04:41 AM
How is this excess calcium gonna get to the penis though? When there's excess calcium, the body forms a kidney stone and that's it. Calcification occurs in the kidneys and not in the penis

https://www.ncbi.nlm.nih.gov/pubmed/7057504

https://www.niddk.nih.gov/health-information/urologic-diseases/penile-curvature-peyronies-disease

excess calcium is much more than kidney stones. kidney stones are the canary in the coal mine
31 yo, Hourglass Peyronies likely because of masturbation

Treatment: Vit E and fish oil (vitD+E), no more masturbation; good improvement so far, less hourglass both in flaccid and erect state, little to no pain during erection now

Graggaxy

Quote from: peyroniesurprise on September 27, 2019, 04:09:20 AM
https://www.ncbi.nlm.nih.gov/pubmed/7057504

https://www.niddk.nih.gov/health-information/urologic-diseases/penile-curvature-peyronies-disease

excess calcium is much more than kidney stones. kidney stones are the canary in the coal mine
I actually developed a kidney stone and Peyronies Disease when I Supplemented with vitamin D back in early 2018. when I had strong kidney pain, my blood levels were normal though (no excess calcium). Kidney stones are extremely common in my family so I may have sped up the formation process a bit. So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing

I developed kidney stones and Peyronies Disease when I had very low vitamin.  Did low vitamin D cause both of these?  Because you happen to be eating something, or doing something when a health change happens does not mean that thing caused it.  We deal in fact here, not superstitions.  - Administrator
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Paolo

Quote from: Graggaxy on September 27, 2019, 04:18:34 AM
So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing

Nobody truly knows, please don't trouble yourself with these thoughts, it will only spiral you downwards.

Note:- D-limonene is very effective at treating, and preventing Kidney stones  :)  
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

Graggaxy

Quote from: Paolo on September 27, 2019, 04:29:03 AM
Nobody truly knows, please don't trouble yourself with these thoughts, it will only spiral you downwards.

Note:- D-limonene is very effective at treating, and preventing Kidney stones  :)

Sorry but I can't think of anything else for what caused this. I'm only 22 years old. I should be living my life and not post on forums with men who are 30 years older than me (please don't take this offensive in any way, I hope you get what I mean). It's killing me that I did this to myself. I'm in hell  
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peyroniesurprise

Quote from: Graggaxy on September 27, 2019, 04:18:34 AM
I actually developed a kidney stone when I Supplemented with vitamin D back in early 2018. when I had strong kidney pain, my blood levels were normal though (no excess calcium). Kidney stones are extremely common in my family so I may have sped up the formation process a bit. So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing

I'm saying an OVERDOSE of ORAL vitamin D (18k IUs, sometimes daily) MIGHT have CONTRIBUTED to Peyronies, but peyronies has a complex cause, not just vit D. And it can be treated.

Vitamin D on it's own is necessary, it's just that the dosage should be much lower and ideally you should get sun exposure for it.

Vitamin D is a very important vitamin/hormone and you do need it.
31 yo, Hourglass Peyronies likely because of masturbation

Treatment: Vit E and fish oil (vitD+E), no more masturbation; good improvement so far, less hourglass both in flaccid and erect state, little to no pain during erection now

Graggaxy

Quote from: peyroniesurprise on September 27, 2019, 10:10:11 AM
I'm saying an OVERDOSE of ORAL vitamin D (18k IUs, sometimes daily) MIGHT have CONTRIBUTED to Peyronies, but peyronies has a complex cause, not just vit D. And it can be treated.

Vitamin D on it's own is necessary, it's just that the dosage should be much lower and ideally you should get sun exposure for it.

Vitamin D is a very important vitamin/hormone and you do need it.

I don't think I overdosed it because my blood test came back fine.. I naturally tend to develop kidney stones. As I said I was very deficient before supplementing (13ng/ml), that might have contributed to it as well? Also, I developed peyronies symptoms one year after my last vitamin D intake. Is one year too long to show any relation?
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Eric_C

Hi Graggaxy,

When I first realised I had Peyronie's I immediately stopped supplementing Vitamin D. I had been taking a strong Vitamin D tablet long term. It was not prescription strength, but still pretty strong. I had been taking it very long term too, like 2 years or more easy.

I'm so pissed at the doctor who directed me to do this now. But I guess the reality is, he was trying to cure my diagnosed vitam  in D deficiency. I had spent an awful long time indoors due to poor mobility after an injury.

When I read your post here I got so upset, because I felt the pain of regret at possibly doing this to myself. But at the end of the day, we were just doing wqhat we thought was best for our bodies. We were trying to do the right thing in earnest. This is not "our fault" as you put it bro.

I can completely understand all your thoughts on these matters. I totally relate. I'm probably an old man to you at 38, but believe me, I've already missed out on many potential relationships and fun times with women due to other health problems, so I can realte to that feeling of loss.

For you, you never know, you might be able to sustain an erection enough to sustain an adequate sex life in the future. I think that is the way to think.

Yes my flaccid hurts too a lot. I've now got a second sore spot in the other corpus cavernosa at the base, so I am beyond gutted.

Whether the Vitamin D did it or not, I'm not sure we'll ever know. I did ask the surgeon/urologist this earlier this year and I can't remember what he said, I guess it was just "I don't know".
Age: 40
Intermittent Hard-Flaccid
Peyronies Disease since April '19
Was hourglass only for 2 years, but now slight bend to the right.
ED seems getting worse. Intermittent Cialis helps

Graggaxy

I hate that this fking vitamin D caused it! I mean I never took too much in total. When I developed the stone I had a serum vit d level of 54.3 ng/ml. Very adequate levels actually.... I developed a "sharp" scar tissue and it hurts. This can't be real  
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Madorno

I don't believe Peyronie is caused by vitamin "D." In my conception it is caused by heat that alters something we have in the blood (example: enzyme of a bacterium).
There is not one shred of evidence to support this.  It is one guy talking about something with no basis in fact. Administrator
Some time ago I started taking vitamin D3 + K2, and I'm getting a decrease in fibrosis, and I'm also using vitamin A, E and D ointment.
And I also take cocoa powder every morning (rich in copper). And that's why I don't know which one is doing this effect.
My copper test went down: 86.6 mcg/dL. Reference values: 85.0 to 170 mcg/dL
The vitamin D test I'm going to do as soon as i pass the pandemic.

Graggaxy

It's getting worse and I honestly can't stop thinking that I caused this myself by supplementing vitamin D. what a sick joke... I learned that I was deficient in Vitamin D and wanted to do something good for my body and now I am left with a painful, curved dick... I'm only 22 yrs old. How will I live a fulfilling sexual life?
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TonySa

The one study referenced only indicates in the sole studied the patients w Peyronie's had on average higher Vit D levels.  This is association not causation.  It could simply be those w Peyronie's were under the care of a doc who did blood tests and recommended Vit D supplementation for a deficiency when the non Peyronie's patients were not.  Greg, having sex without a firm erection was probably the culprit.  As you said your dick was being crushed and this can cause micro traumas trying to heal but w plaque instead of healthy tissue.  How bad is your curve and what treatments are you undertaking, above all only use your dick when it is at least 90% erect.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Holistic

Quote from: Graggaxy on September 08, 2019, 10:59:21 AM
I think the excess vitamin D lead to more fibrosis in my penis during the repair process.
https://onlinelibrary.wiley.com/doi/abs/10.1111/and.13368

This recent study supports my theory that excess vitamin D leads to excess fibrosis in the penis. Really shocking finding to me. I really regret my decisions in life at this point but what can I do...

What levels of Vit D are considered too high? that abstract says 25 OHd, but what is the conversion into International Units (IU)? For example, I take 6,000 IU daily. Is that considered too high by the articles standpoint?
32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

projectpd

interesting , it may be extremely high dose vit D such as 18000 shouldn't be done without considering any other vits that may need to be in balance e.g. vit A?
and is the supplement fully natural., vit A and E studies have been prone to the effect of supplementing synthetic forms that bear little relation to the natural vitamin .
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

Holistic

since Vit D is commonly taken at 5000 IU, it doesnt sound like that dosage is considered high compared to 18000. As far as Vit D goes it is D3 gels as cholecalciferol.. Not sure if that is considered synthetic or natural, but I take natural Vit E as Alpha-tocopheral. Not dl-tocopherol acetate which is synthetic
32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

Graggaxy

I didn't take 18,000 daily. More like every third day or so. I also took vitamin K complex together with it and my vitamin D levels were 54.3 ng/ml when I developed the kidney stone. My kidney looks fine today in ultrasound pictures. I can't say for sure if vitamin D caused it
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Graggaxy

I'm stressing out so much over this. Quite suicide inducing thought that I messed it up myself. My levels were 54 ng/ml when I developed the kidney stone. My Peyronies only developed ~3-4 months after I developed the stone. Can this be??
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Holistic

In the psychology section in here, you may find relief from stress. Remember, we are more than just a penis. Life can still happen and will. We can still have and hold relationships. Our worth is more than a bodily appendage.  
32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

Graggaxy

My gf of 2 years just left me for someone else. I took her for granted during our relationship and sometimes treated her bad. I feel like crap now. I feel like I could have had her forever if I treated her right. Additionally I'm losing hair and I don't think I can take finasteride. Life is a sick joke for me right now. I'll turn 23 in two weeks  
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projectpd

Hi Graggaxy,
was it any particular form of D, out of interest ? eg D3

In addition, treatment with vitamin D3 decreased α‑SMA expression, collagen deposition and goblet cell hyperplasia, and inhibited TGF‑β :D/Smad signaling in the asthmatic airway. The upregulated levels of malondialdehyde, and the reduced activities of superoxide dismutase and glutathione in OVA‑challenged mice were also markedly restored following vitamin D3 treatment. Furthermore, treatment with vitamin D3 enhanced activation of the Nrf2/HO‑1 pathway in the airways of asthmatic mice. In conclusion, these findings suggest that vitamin D3 may protect airways from asthmatic damage via the suppression of TGF‑β/Smad signaling and activation of the Nrf2/HO‑1 pathway.. https://www.spandidos-publications.com/mmr/14/3/2389

effects of vit D deficiency are also pretty terrifying, https://www.nature.com/articles/srep30217

you very young btw, I was nearly 30 before had a gf.


Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

Graggaxy

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projectpd

all of that should be good , and the opposite of the scary study.  the equivalent dose might have been different though.
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Graggaxy


Can one say I overdosed when my vit D Levels were 54 ng/ml three months before I developed my Peyronies? I calculated it and I must have averaged at about 8,000 IU daily. Vit D toxicity begins at 150 ng/ml no?
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Holistic

Quote from: Graggaxy on July 04, 2020, 06:29:39 AM
Can one say I overdosed when my vit D Levels were 54 ng/ml three months before I developed my Peyronies? I calculated it and I must have averaged at about 8,000 IU daily. Vit D toxicity begins at 150 ng/ml no?

Doubtful at 8k IU. It would be hard to OD on Vit D. there are people who take more than 8k IU daily. But every individuals body is different. But highly doubt the Vit D caused it.

Try not to hyper focus whether you OD or not. no one knows the cause of Peyronies Disease. People get it without taking Vit D. I would focus on other things like mineral dificiency or any other blood test. Check with a Naturopath in this area of expertise.
32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

Graggaxy

Quote from: Holistic on July 04, 2020, 10:47:32 AM
Doubtful at 8k IU. It would be hard to OD on Vit D. there are people who take more than 8k IU daily. But every individuals body is different. But highly doubt the Vit D caused it.

Try not to hyper focus whether you OD or not. no one knows the cause of Peyronies Disease. People get it without taking Vit D. I would focus on other things like mineral dificiency or any other blood test. Check with a Naturopath in this area of expertise.
I don't know the exact dose but my vit D and calcium levels were in range when I developed the stone. I stopped vitamin D after this incident. And 3-4 months later when I got a new gf and we had sex for the first times I was penetrating semi erect and crushed my penis lightly sometimes. Do you think there isn't any connection to vitamin D because I stopped taking vitamin D when I developed the stone and when my levels were in range? I think they couldn't have worsened because I stopped taking it
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Holistic

32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

Graggaxy

Also wouldn't there be some calcium deposits in my kidneys as well? I think the kidney is more likely to calcified? Wouldn't it be strange if I had calcium deposits in my dick but not in my kidneys?
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Graggaxy

So is it really not too realistic that my vitamin D overconsumption caused this? I mean I had levels of 13 ng/ml which is very low and in the course of 3 months I upped my levels to 54 ng/ml with supplementation. I developed a small kidney stone (3x3mm) but I didnt seem to have toxicity or hypercalcemia. My blood/urine levels were very good when I was hospitalized with a kidney stone. So 3-4 months after this incident I had sex for the first times with a new girl and I penetrated a few times without a good erection. Actually it was SOFT when I was in here and slipped out sometimes. Yeah I had ED but I think it was due to nervousness.. Anyway, I noticed a small lump a few weeks after having sex with her for the first times.

So all in all, could there be a correlation? If vit D really caused this misery, I would feel utterly devastated. I only wanted to do something for my body by supplementing vit D...

Sorry for asking all this again, I have OCD issues and I can't seem to find peace with this. I just want to live a normal life, with dating women and being carefree.. I'm only 23. What do you guys honestly think?  
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Paolo

I think you will never be 100% certain, I doubt very much you can pin it to D3. Guess you are still taking it, if so take K2 with it.
I would change the Vitamin E to dry E Succinate, I just feel better on it, ensure it is pure without additives, powder therefore is better, as with most unadulterated supplements.
By the way most Vit D is produced in the gut.

So put the doubt behind you and move on  :)
Paul.
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

Graggaxy


I'm gonna be honest it would break my heart if I did this to myself. Knowing that I had control over this woudl mess with my head big time.. I'm only taking K2 and getting my Vit D3 from the sun. Anyway Ive searched the entire internet for any correlation between vitamin D and peyronies and this thread plus the one study I linked in this thread are the only two things I found.. Many people take vitamin D and many people have levels at around 54 ng/ml or higher.. Wouldnt there be much more talk about it if there truly was any causation?
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projectpd

Hi Gragg
if you did that to yourself, that would, of course, be your best case scenario. I wonder if subconsciously, that is what you were hoping you would be told? You could then simply avoid doing it again! Unfortunately, for you, it's very unlikely considering half lives for vitamin D. Therefore your cause is unknown and/or out of your control, possibly genetic. if it's genetic, it's just bad luck, but, at least, then, to be positive, you would know you need to take extra care.
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

Graggaxy

Quote from: projectpd on July 23, 2020, 05:14:43 PM
Hi Gragg
if you did that to yourself, that would, of course, be your best case scenario. I wonder if subconsciously, that is what you were hoping you would be told? You could then simply avoid doing it again! Unfortunately, for you, it's very unlikely considering half lives for vitamin D. Therefore your cause is unknown and/or out of your control, possibly genetic. if it's genetic, it's just bad luck, but, at least, then, to be positive, you would know you need to take extra care.

Well, for me it would be worse if it was caused by vitamin D because I had 100% control over it. I have no control over my genes so naturally it wouldn't be as worse as something I had control over...
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Holistic

Have you considered the possibility you may be obsessing over it too much to the point it is affecting your mental fortitude? Unless you have a medical condition, I doubt youd need to take such high Vt D in general terms anyway. Peyronies is also an umbrella term for the fibrotic disorganization of tissue during healing. If you go into the theories section youll find a bunch of stuff. people get peyronies for a multitude of reasons. If it is in your control than it is better than out of your control. because if it is in your control you can take the steps to reverse or manage. regardless if your percieved control caused the issue, that is no longer beneficial to ruminate over. the damage is done. Excessive worry wont make it disappear. But you can control your energy and efforts to continue forward, research, and treat. A lot of organic conditions are more in our control than we think. We just dont all know how to manage. But the best place to start is fixing your diet and lifestyle.
32 yo. Unknown cause. 1st plaque proximal left base near pelvis 9/19. Expanded and shrunk after 8 mo by 50% (still working on it). Minor bend but malleable. 2nd small plaque 5/20 superficial distal right just under tip. Currently growing. No bend.

Graggaxy

Quote from: Holistic on July 26, 2020, 03:02:53 PM
Have you considered the possibility you may be obsessing over it too much to the point it is affecting your mental fortitude? Unless you have a medical condition, I doubt youd need to take such high Vt D in general terms anyway. Peyronies is also an umbrella term for the fibrotic disorganization of tissue during healing. If you go into the theories section youll find a bunch of stuff. people get peyronies for a multitude of reasons. If it is in your control than it is better than out of your control. because if it is in your control you can take the steps to reverse or manage. regardless if your percieved control caused the issue, that is no longer beneficial to ruminate over. the damage is done. Excessive worry wont make it disappear. But you can control your energy and efforts to continue forward, research, and treat. A lot of organic conditions are more in our control than we think. We just dont all know how to manage. But the best place to start is fixing your diet and lifestyle.

Well, my medical condition was vitamin D deficiency and upon researching it I discovered that it possibly leads to a bunch of problems so I tried to fix it. I really can't say for sure why I took such high doses. I think I must have read somewhere that megadosing is the way to go to correct a deficiency and that doses like 4,000 IU are more appropriate for maintaining instead of deficiency correction.

I know the damage is done but for my peace of my mind I would just LOVE to know if this was caused by vitamin D or not. If I had control over it or not. Of course deep down I hope and I pray to god that this wasn't caused by vitamin D and that's just what I want to hear but I know I won't ever know for sure, so I'm obsessing over it until I find an adequate answer, if there is any.
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Graggaxy

I asked an urologist about calcification from vitamin D overdose and he said ,,yeah it can happen in the kidneys, but not in the penis"

I am so done with this BS. I am only 23 years old. My Wonderful girlfriend left me because I was treating Her badly. I never realized I was treating her badly. I was so consumed by my depression and my health worries that I totally neglected her.

On top of that, I am balding. Ok so this is m downfall. This is seriously my downfall. I don't know how I could ever recover from this. I know for sure I won't ever find a cute, beautiful, caring and loving girl like her again. I messed it up by myself and my entire life is a mess. I feel so low, my brain is hurting from all these depressive thoughts. WHY IS THIS LIFE SO UNFAIR ? Did god give me peyronies because I was treating her badly? This isn't fair... I hate everything about my situation. I don't know what to do. I just want to get out of this hell. I want a normal life. I want to live life like all my other friends, who don't suffer from peyronies, who don't have to worry about this and can go out and date women etc.

What did I do to deserve this? I am suffering so much, life was never fair to me
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