My consult with Dr. Eid

[samsung]

I am at sea here. My case is perfectly sealed against any solution. Totally don't know what to do.

--My curvature is @35 deg. upward.
--I have no erectile dysfunction.
--Plaque is moderately calcified.

My understanding is that without taking Pentox a plaque cannot soften once it is calcified (I hate this phucking word "calcified"). I cannot take pentox.

Dr. Eid said that the position of my curve (more toward the head) would not lend itself to easy straightening. He said he cannot guarantee it would straighten.

So, without erectile impairment and with only 35 degrees of curvature I can go phuck myself.

And with calcification and inability to take Pentox, I can go phuck myself.

And since it is known that xiaflex is ineffective against calcified plaque, I can go phuck myself.

Hawk and others say there is always a solution to a problem, but that is not true in my case. Because I am in a program designed to make me die. I can't view this in any other way. Every available avenue is cut off.

An implant would be a way out. Xiaflex would be a wat out. Traction and VED would be a way out. But if you are me, you can go phuck yourself.

You people with total erectile dysfunction or with a 90 degree curve or with a botched surgery, you are lucky. You have a way out. I have to live with mine. And I have to watch it get worse. And go phuck myself. Even cutting it off would be a way out, but if I tried to do that the knife would be too dull or it would break as soon as I picked it up.

[Hawk]

Samsung,  I empathize with your plight.  I know that you want your penis to fall more solidly in the middle of the "normal" range.  Without ED and with a 30 degree curve you should be able to successfully have intercourse.

Is that an option?

[Alibaba]

Insurance companies here in the states will not cover an implant unless you have30 degree or more and many now want xiaflex injection failure first before approval. None of the injectables nor pentoxifiline will dissolve calcification. Calcification in basic terms is that your body has place bone in the area.  Pentoxifiline is a vasodiolator.  That means it causes your veins and arteries to open up more and it tends to work more from the waist down which is why in many countries it is commonly used for leg circulation. Pentoxifilline also has a side effect of inter cranial hypertension. High blood pressure in your head.  I took it for years on my urologists advice but had to lower the dose because my head "did not feel right".   Calcification also occurs when the body tries to repair damage or to seal off an unknown entity such as infection from the rest of the body. Most of my lymph nodes in my body trunk are calcified. I am told that was how my body sealed off infectious matter the lymphatic system could not dispose of otherwise.   Hope some of this information give you some direction. Cheers.  

[samsung]

Hawk-I don't want a curve. Period. I don't care about intercourse. I don't care about people. At all. I thought that an implant was a way out. Apparently I was just made to suffer.

Ali-No, that doesn't give me direction. I had direction previously. I thought doing traction would get some length back. And that if the curve didn't straighten I always had option of implant. So telling me that I have no hope with calcification just gives me the direction of suicide. That is the only option here. I calcified almost immediately after diagnosis. That doesn't happen to anyone else. That makes me obviously very different and uniquely placed on this earth to suffer in a different manner than the rest of you. I was singled out.

Dr. Eid said my curve is in the exact perfect spot so that I could not be helped. That is destiny and fate. Satan placed it in the exact spot that would give me no way out. And he also calcified the plaque.

I'll be killing myself later today.  

[samsung]

There are people in other threads that say calcification can be dissolved with pentox.

Only one of you is correct.

And that is why this forum has utterly destroyed my life. And is part of the reason I will be taking that life.

Questions have answers. But they can't have 2 answers. Every question here has 16000 answers. This forum is an abomination.

[samsung]

I am being forced to watch my penis shrink in length and girth.

I am being forced to watch it undergo torsion to the left.

All without recourse.

Everyone on this forum has recourse except me.

Previously, although I did not like the options, I had recourse.

One by one the ability to fight has been taken from me.

When I first came on here, there was Pentox. I quickly learned that I could not tolerate its side effects. Strike one.

Then I learned about traction and VED and other supplements. Then I learned my plaque was calcified. And that all this was a goddamn waste of time. Add to that constant shitting in my ear from doctors who told me flat out that it was all a waste of time. Strike two.

Now, at least I thought that after all my time was wasted and I exhausted these other options I could do xiaflex. Nope. Xiaflex doesn't work for calcification. Strike 3.

Oh wait. There is excision and grafting. Oh wait. They take away even more length. And peyronie's will just return anyway. And for all your efforts in surviving the surgery and recovery, you are awarded with, waiting for it.....a return of peyronie's and uncertain outcomes.

So, then as a last, last ditch the concept of an implant was presented to me. A light in this dark tunnel. A light that I absolutely did not want, but at least it was a light of some kind.

So I talked to Dr. Eid. And he said that because of the position of my plaque, he didn't think it would straighten it. But wait, Hawk said a coloplast would straighten anyone. So who is right, the world's foremost expert or the founder of this forum? I guess I would have to risk infection and life and limb to find out. Because only one of you can be right.

So, at the end of the day it seems my only option is to wave goodbye to my dick and just watch it disappear.

I thought to myself, maybe all of this could be mitigated by making my dick irrelevant. If I became a Catholic priest or I went to live on a deserted island, then it doesn't matter if I have a dick at all. But these are not practical measures.

The only practical measure when all doors are closed because you know that you are the chosen one, when you know beyond all doubt that you were singled out, is death.

When you calcify before all others. When you have a rare disease but within that rare disease you are the rarest, when all others can take Pentox, have success with traction or xiaflex or surgery or an implant or any one of a number of other things, but you and only you are denied the hope of any of these then there is only one route to take.

Kill others or kill self. Or both. I have no choice.

I looked for a crack, a sliver of light. But you won't give it to me. I could run with almost anything. I would cling to it like a life raft.

But you keep throwing me cinder blocks. So phuck you all.

Don't waste your time telling me about therapists and antidepressants. I've seen them all. And I've taken them all. Those pillars of hope were taken from me many years ago. All avenues were cut off so many times it's a joke.

You all have outs. You have therapy. You have implants. You have Jesus. You have antidepressants. You have the concept of acceptance. You have wives. You have kids. You have one thing or something. You have an out.

I have zero outs. Except the one that has been staring me in the face the whole time. The total certain knowledge that I am in a program designed to force me to kill myself or kill other people. One with perfect rules. And one with only one outcome.

[samsung]

I wish to issue a retraction here. I am not a danger to others. I have no desire to kill other people. I just do not see how to deal with this latest setback. I don't see any options. I am not allowed to take narcotics. I am not allowed to kill myself or others. I am also not allowed to have any help from peyronie's. So I am stuck in total madness.

[Alibaba]

I really hate to hear that there is a place that calcification cannot be treated. I know it does exist.  I asked Dr. Rybak if the fibrosis calcifies like it does in other parts of the body. He told me absolutely. He told me that sometimes he can hear it crunch like bone when he breaks through it with the cavertomes. I would consider doctor Eid top notch but don't give up yet. Keep searching. Some doctors have unique skills with surprising results.  Once in a while we read of a eureka moment.  If you have a scan of your calcification, It should show up white on a simple xray or a C.T., you can try sending it to other doctors for a quick look to see if they might help with follow-up.  A couple guys over the years had implant surgery abandoned because they could not get the implant in. Perseverance and treatments finally led them to surgeons who succeeded. It took me several years and 15 doctors before I had my first implant. Life never guarantees fairness as much as we would wish it but giving up lets the unfair side win. Sometimes you have to push back to get to the other side. Hugs buddy.  

[TDix]

Samsung, I feel for you.  I will say that while Dr Eid is the gold standard, as it appears here on the forum, I would not give up.  I do know that Dr Eid does not like to do excision and grafting (I could be wrong?)-I had excision and grafting, and while I'm still healing, I am straight.  I do not feel that peyronie's is returning, although it has only been 5 months, and while I do still have some scar tissue, the area that was causing the issues has been removed.  I know I talk up Dr Yafi like many here talk up their own doctor's.  I recommend him to anyone

[samsung]

Thanks Alibaba. I am sure it was unintentional but that just made me feel much worse. So now my penis will ossify and there nothing I can do about it unless I find a miracle doctor. The image of bone crunching is now in my mind. Cool. You all get to be fixed, but not me. Awesome.

I did not know you could not get an implant if you had calcification. Now I do.

[samsung]

Maybe I'm just incorrectly interpreting what Ali is saying.

[2Oldfords]

   Samsung, Find a surgeon that will excise the calcification and do a graft over the defect and then if that is not satisfactory put in the implant. Not everybody will have Peyronie's return to screw-up the outcome of the excision/grafting procedure like mine did.
   I feel for ya, when you feel like you have no options the desperation sets in and life seems impossible to deal with. Not true. Just the anger you demonstrate in your writing says you are not the kind to give up. You are a fighter so use that anger and fight this disease.

[Alibaba]

Samsung,  your post bothered me that your read pentox would help and I stated it was a vasodialator and would not.  I spent a lot of time this morning researching to see if I might be wrong. It looks like I owe you an apology.  Pentox is a vaso dilator.  I found several pay to read urology journal stories from around 2010-2011 that stated by ultrasound measure, pentox did help reduce calcification over time. It did not get rid of it all but some. It said it mainly reduces calcification and plaque from high lipids that are at a microscopic level.  Anything that helps is a plus but hopefully you can find a real fix. Cheers man. Never give up. Somewhere you will find your savior if you continue to search.  

[Alibaba]

Maybe I'm just incorrectly interpreting what Ali is saying.

I had an hour or longer visit with Dr. Rybak. He is a swell guy and sincere. People who know me know I ask lots of questions. I may be old, but I am like a kid that is curious. When talking about penis plaque and scaring, I asked him if the plaque calcifies like the lymph node in my thorax all did. He told me absolutely, then went on to explain that it gets like bone and in surgery he can actually hear it crunch as they work through it. I love conversations like this where I learn something new.  Somewhere there has to be a doctor that has designed a way to deal with this.  Reading thousands of threads over many years, sometimes someone has an issue that seems insurmountable, but in the end, it always seems they find the right guy willing to take a chance and work things out. Keep a positive mind set. It goes a long way into getting a doctor to take a try at it.  

[samsung]

Sorry, we are not communicating properly here.

1. I can't take Pentox. So that door is closed.

2. You are saying that most doctors can't do an implant with calcified plaque present if I am understanding you correctly.

So I interpret that as I am screwed. With calcification no therapy traction or anything will help. And now that I can't get an implant my only choice is to look at my penis turn into a bone. Helpless. Just totally helpless. Why do keto diet? Why take vitamin K2? Should take heroin. Should ear whatever I want. Helpless.  

[Alibaba]

Please quit putting context into things not stated.  You said Eid could not implant you. I suggested you look for another doctor that could. I told you Dr. Rybak said he can hear the calcified material crunching when they work on a penis with it. That tells me doctors do work on them. My understanding is you decided you could not take pentox due to other people's comments. Why can you not take it?  

[samsung]

Dr. Eid did not say he could not implant me. He said he could not guarantee that he could straighten the curve 100% because of where it is (more distal toward the glans). I had assumed he could not implant me because of what you said, that surgeons can't get the implant in properly, etc. because of the calcified plaque. Dr. Eid has not examined me yet. I have an appointment with him on 8/26 to get a doppler. Already had this done, but he wants to do it himself on his machine.

I can't take Pentox because it causes extreme aggression and anxiety. And causes me to feel pretty much like I have a really bad flu. I took it for about 1.5 months, tried to up the dose very slowly, but finally just couldn't take it.  

[Alibaba]

I understand now. Pentox made my head just not feel right. Not dizzy but just not right. I had to use 1/2 dose myself despite whole dose prescribed.  I think most doctors will tell anyone they might not be able to get them 100% straight. Many factors affect that including how much or if tissue scars and shrinks after surgery but most of the time the bend is very minor if any and often the doctors do fabulous work, especially if they do many and know where to make allowances. Few doctors will go by scans done elsewhere. Some scans suck. Been there, done that.  No doctor wants to risk cutting someone open to find out the scans they were working from were crap and find things different than they planned or expected. Been there, did that too.  For the record, I've had 24 surgeries in 61 years, most in the last 10.  Seen a lot. Hang in their buddy. I think you have good chances coming your way. Even if you have a little bend with the proper implant installed properly, it should not worsen and likely will improve over time. There are many such stories. Cheers.  

[Junior]

Samsung, yourinbox full

[samsung]

Inbox empty now. Thanks.

[Alibaba]