0 Members and 4 Guests are viewing this topic.
Quote from: ComeBacKid on June 05, 2010, 06:11:33 PMFred,Is there enough PDS interest on sending a letter to them? We'd want to cover a few points such as:1. Tell who we are2. Say why we are writing3. Hope to accomplish some kind of goal with the letter, which for us would probably be to let them know we are here, send patients to our forum, get on our forum, keep us updated on whats going on, and continue to have an open line of communication to talk about ongoing research projects.If you want to draft a letter, that would be excellent. Then we can all edit your version, and I will send it off. Due to the mass mailing project and other responsibilities I don't have time to draft the letter at this point. Let us know what you think.Comebackid
Quote from: SSmithe on June 09, 2010, 04:24:44 PMI would be happy to draft a letter to the Wake Forest institute on behalf of the PDS. As I am relatively new to this forum, I would need some guidance and would like to use the mass mailing letter to get a start.I may not be the ideal author for this as I am a newbie, but I have the time and motivation to help our cause. Let me know if you would like me to have a crack at it.SSmithe
Quote from: ComeBacKid on June 27, 2010, 01:12:42 PMEvery doctor we reach, can reach a handfull of patients like you , who maybe if they had better information, could of avoided surgery, or tried a different treatment route.
Quote from: james1947 on April 23, 2012, 11:05:21 PMgoodluck After reading George last post (and other previous posts by George regarding causes of Peyronie's disease) it seems that we need to make many polls if we want to understand what people are thinking about the trigger of they Peyronie's.Arranging a poll is quiet complicate because is difficult to define the questions that it will give you a real picture and to be relevant we need to have many participants as possible. From past experience, very few members have answered to polls so the polls became irrelevant.I am proposing in this stage that all the members that are interested to answer to the questin if they have AUTOIMMUNE CONDITION prior the PEYRONIE'S to PM me and let see how many PM's I will get in the subject.James