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Author Topic: Treatment with 50mg cyclophosphamide daily and 5mg dexamethasone twice weekly  (Read 411 times)

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Michiganguy19

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I am on my 3rd day starting this treatment. Below is a link to a single study showing this treatment resolved peyronies disease completely in 8 months. Only one study to go off of and the cyclophosphamide has extreme side effects including hair loss. I have nothing to lose at this point so I am giving it a shot and will keep you updated if this actually works at all. Cyclophosphamide has been shown to break down and stop scar tissue from forming in a few different diseases including pulmonary fibrosis.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4037975/
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Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.

Patientxyz1992

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Man ill be folowing your updates ad if even remotely helps i will consider using it, i would care less abaout the hair, thank you very much! Btw there are so manny treatmants in development like peptides and stuff who promote angiogenesis etc that i dont know where to look for.....and why arent they on market...
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samsung

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Please keep us all updated. And stay safe. Those drugs sound like serious stuff.
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Onset of symptoms pain (stinging like a wasp) was @ 6/2018. Do not remember how curve developed. Pain upon erection.

skunkworks

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Is this being monitored by a doctor?

Werther

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How did you get these things prescribed?

Was it a urologist?
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samsung

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In my participation in this thread I hope it is not mistaken that I advocate taking this course of action. Without doctor supervision this is very dangerous. All I meant to say was, stay safe. Nobody on this forum would recommend doing this without the supervision of a physician.
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Onset of symptoms pain (stinging like a wasp) was @ 6/2018. Do not remember how curve developed. Pain upon erection.

Michiganguy19

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To be quite honest it is not from the supervision of a doctor. I called a pharmacy in another country and ordered it. Then confirmed with a friend that is a pharmacist that I got legitimate cyclophosphamide.
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Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.

Michiganguy19

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I also am taking the dexamethasone twice a week
Logged
Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.

skunkworks

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Pharmacists don't tend to have the equipment or skill to identify unknown substances... H-NMR, HPLC, Mass spec?

To be clear, I think this is a very bad idea. Dose is VERY important with cyclophosphamide, equally important is close monitoring.

samsung

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Any updates for us Michiganguy? We all hope you are o.k.  Please check in.
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Onset of symptoms pain (stinging like a wasp) was @ 6/2018. Do not remember how curve developed. Pain upon erection.

Michiganguy19

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13 days in, no change. Cyclophosphamide supposedly takes 6 weeks to begin working in the body. So I will update then.
Logged
Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.

Michiganguy19

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Saw the best urologist supposedly in the state of Michigan for Peyronies, Dana Ohl at U of M. Said even though I'm as bad as I am he won't consider surgery until my penis is half the size it was before. I was 7.2 before now 6.1. That seems ridiculous to me cause flaccid I am embarrassingly f'~c<+d now. Said he's seen worse at count myself lucky I was the most mild case of the day. And he said to stay off this forum cause people give wrong info and he hates this forum it's just a bad idea lol
Logged
Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.

skunkworks

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Yeah because most of them see surgery as the only option. Sad truth, they have a hammer so all they see is nails.

jj21

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Really interested in this. Keep us updated.
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Hontas

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Urologist are the dumbest of all sadly. I have a theory that they take in only the ones that performed worst overall in medicine masters test. Dont go to urologists, find yourself a smart rheumatologist. That is my experience 13/15. I found only two decent urologists both of whom offered me nothing instead of acting like the c*nts the other 13 urologists are
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Michiganguy19

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Urologist are the dumbest of all sadly. I have a theory that they take in only the ones that performed worst overall in medicine masters test. Dont go to urologists, find yourself a smart rheumatologist. That is my experience 13/15. I found only two decent urologists both of whom offered me nothing instead of acting like the c*nts the other 13 urologists are

What did the rheumatologist do for you?
Logged
Peyronies Disease November 2015.
Caused by Reactive Arthritis, caused by chlamydia October 2015.
Length before erect: 7.2in
Girth before erect: 6in? Just a guess.
Length erect. 6.1in
Girth erect: 4.1in
That's what I get for touching a stripper.
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