Hard shaft..soft glans

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Saynotopyronie

Hi all,

I have a downward bend and over the last year the number of indentation on the corpus spongiosum has increased (clear uneveness along the corpus spongiosum). Now whenever I get an errection, both errection chambers are rock hard and but the head of the penis along with corpus spongiosm remains totally soft and mushy. Its gives the errection a weird look, an unpleasent feeling and mostly unable to have sex. I have been to uroligist and he gave me cialis and been taking it for two months now. but is there any treatment for such a condition?

'Thanks

Hawk

My understanding of penis anatomy is that blood from one chamber freely spills into the other chambers as does medication from an injection.  I have never searched for the answer as to whether this happens at numerous large pass-through areas or at only a couple of small openings.  It seems strange in the relatively few people that report this that whatever openings there are between the spongiosum to EACH of the side chambers that they would all be blocked, presumably from plaque.

So, I don't know exactly what is going on or the treatment.

It does seem however that you could have intercourse.  Men with 100% total ED that get an implant have a similar situation with inflation because an implant only places a cylinder to line the cavernosa.  Because of the urethra travels through the spongiosum a cylinder cannot be placed there.  If your erection is firm a deflated glans should not prevent intercourse, especially with lubrication.

Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Zeckelbaum

I have the same problem as you op. Had it for 6 years since I injured my penis. No way to cure it :( get a ved and try a cock ring is your best bet. My glans get hard with ved that's it  
28 years old
Had an injury with GF on top
Slight curve, dent, trouble keeping erections and Glans does not engorge.

pey ron

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Pfract

Saynotopyronie: you can always try Muse urethral pills and see how it works out for you

NeoV

My glans is now harder and has it's complete feeling back for the first time in five years.
I am really shocked and happy about this, and it is due to fasting / carnivore and one meal a day for two weeks.
I know I did not have a completely soft glans, but five years ago I lost some feeling in my glans and it became softer. After going keto two years ago much of the feeling did come back, but now that I've been fasting and going extremely low carb my feeling is coming back even MORESO in my hands and penis and my glans is now filling out and feels much better. I couldn't even believe it.

I have a lot of questions and thoughts about this, but I am mostly just thankful. I think it will get even better in the next weeks since I can still feel the "TIND" neuropathy in my hands and penis which means there is regeneration going on. I made a short video on neuropathy and TIND just yesterday.

Zeckelbaum

I just watched your video neo on neuropathy but sorry what does this have to Do with soft glans? I suspect 99.9% of this forum don't have this condition with numb hands and feet

Are you saying that your neuropathy caused your soft glans? I suppose that's specific for you but probably won't work for anyone else? I'm not insulin resistant at all and take carbs fine, never had neuropathy and my soft glans occurred after penile trauma as opposed to just developing with no trauma at all. Literally the very next day after my trauma my penis was broken and never been the same since
28 years old
Had an injury with GF on top
Slight curve, dent, trouble keeping erections and Glans does not engorge.

NeoV

A study showed a large % of men with Peyronie's have neuropathy and we have plenty of forum members who have it. A lot of men have a numb penis here as well. Peyronie's via penile damage alone is a bit more rare than those who develop it from being prone to it.  

Aboqor

I had this too, but using a VED for 3 months brought me back from 15% gland hardness to about 75%. I will continue in the hopes to get back to 100%. I also used Tamoxifen, Tadalafil, COQ10, ALCAR and a Multivitamin for those 3 months.
07-03-2020: noticed 45 degree bend upwards
01-07-2020: Bend mostly gone. pain when flaccid, soft glans.
01-04-2021: soft glans mostly gone. Indents forming

shrunken_dick

@saynotoperonies ; Thanks for writing your symptoms. I also realized that my corpus spongiosum is not filling up with blood as it Used to. My condition happened because of a lack of testosterone. My urologist is making fun of me.  
29 year old. I was taking 400 Mg spironolactone to treat hair loss. Xanax withdrawal in combination with spironolactone shrunk my penis from 6" to 4".
I am seeking information about the sliding technique.

Tobyg

I also have this problem, spongy body and glans, soft. this affects my orgasm, ejaculation, erection, pelvic floor, sensitivity.
I am afraid that a peyronie cure will come out and they will forget this area.
With manual traction I managed to improve all the symptoms but temporarily, then the tissue hardens again and sometimes even worse.
I just have to try the vacuum pump one day, or wait for a cure. I honestly don't see any other options.
32 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.
Frequent urination.

jan.schaller1958

Neo,

Where'd you get this idea of men with Peyroines having neuropathy? I never had neuropathy.Never heard of such an association.  
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Quote from: jan.schaller1958 on October 31, 2020, 01:30:17 PM
Neo,

Where'd you get this idea of men with Peyroines having neuropathy? I never had neuropathy.Never heard of such an association.

So what you never had neuropathy? He said a study showed a large percentage of men with Peyronie's disease have neuropathy. He didn't say ALL MEN that has Peyronie's has neuropathy.

The same thing goes when I showed Peyronie's rate is higher among diabetic men. You then replied "DUHH but I don't have diabetes".

Let me explain like you are five ( I think you are): lung cancer is more prominent among smokers. This doesn't mean all smokers are gonna have lung cancer. Can you understand that?
Btw, before you say this is not a forum related to smokers and cancer, let me say this is an analogy. Analogy, ok? If you don't know what it is, go for a dictionary.


Quote from: NeoV on July 30, 2019, 05:13:12 AM
A study showed a large % of men with Peyronie's have neuropathy and we have plenty of forum members who have it. A lot of men have a numb penis here as well. Peyronie's via penile damage alone is a bit more rare than those who develop it from being prone to it.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.

Tortão Pra Direita

Quote from: jan.schaller1958 on November 01, 2020, 08:51:08 PM
Tortao,

I don't have a need to be stupid. You and godisreal need to learn some manners and not say horrible things about other people on the board, like you two did about Peter123 and me, all without ever being sanctioned.
Don't act like you and, especially, your buddy are saints. The moderators were very patient and took a long to ban him. People were leaving the forum cause of his behavior.

Quote from: jan.schaller1958 on November 01, 2020, 08:51:08 PM
I never denied that Peyroines was more prevalent in diabetic men. So, maybe it is. So what?
Don't ask "so what?". You were saying that diet has nothing to do with Peyronie's.

Quote from: jan.schaller1958 on November 01, 2020, 08:51:08 PM
You and your buddy godisreal just go along with Neo and everything he says, like he's the successor to Dr Lue or something.
No.
I just don't like the way you act here and try to correct you when I think you're wrong. So now you have the impression I'm his buddy. I've never talked to him.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.

jan.schaller1958

Tortao,

Well, you know what I mean. You and godisreal are pretty chummy. Yes, he's the one who says he has the mind of god and the body of a human. How sane is that? And you guys listen to NeoV constantly and never question any of his unproven and unscientific drivel. Diet has nothing to do with Peyroines. Diabetes yes, but it's just an association not a cause. Let's say you did a scientific study and found that 90% of diabetic men had Peyroines where only 10 % of non-diabetic men had Peyroines. I'd say, ,,Well. That's quite an association." But you don't have anything close to that. Or, like you said ,,bad diet has something to do with Peyroines." Okay, you might try and throw that at me, that at being 62, I messed up my body with a bad diet for 50 years or something (which I didn't by the way), because I didn't go keto, like NeoV advocates, and now I have cardiac artery disease, I messed up my gallbladder and had to have it removed a year ago because I had over 10 gallstones, and I got Peyroines.
That's one thing. But in a 22 year old like Peter123? That's absurd and ridiculous to suggest diet had anything to do with his situation. He hasn't even had enough time to mess up his body. That's absurd to suggest that diet had anything to do with his Peyroines. So, that's makes me think my diet had nothing to do with my Peyroines either. Which means you and godisreal and NeoV don't know what you are talking about. You're just going off pseudoscience is all. You're just making things up and guessing. Just grabbing ideas out of the thin air.  
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Quote from: jan.schaller1958 on November 02, 2020, 05:34:53 PM
Diet has nothing to do with Peyroines. Diabetes yes, but it's just an association not a cause.
Diabetes is majorly caused by a bad diet, so your first statement is wrong.
Btw, diabetes is not the only problem. Peyronie's is an inflammatory disease, so if you eat foods that favor inflammation in your body, it can increase the chances of developing or increase the severity of Peyronie's. Please, don't ignore the words can, may, possible.

Quote from: jan.schaller1958 on November 02, 2020, 05:34:53 PM
That's one thing. But in a 22 year old like Peter123? That's absurd and ridiculous to suggest diet had anything to do with his situation. He hasn't even had enough time to mess up his body.
I didn't say and I haven't seen people claiming the cause was solely diet.
What I, at least, say is diet has a correlation and can make things worse, so is prudent to avoid a bad diet.

Btw, your statement is wrong cause is very possible to start to develop insulin resistance at a young age.

You can choose to play safe and attack Peyronie from every angle or try to guess diet had no impact on your Peyronie's development and ignore it. It's your choice, people here are trying to help each other. It's ok to be skeptical, just be polite and ask for proofs.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.

jan.schaller1958

Tortao,


,,What I, at least, say is diet has a correlation and can make things worse, so is prudent to avoid a bad diet."

No. There is NO proof of that whatsoever except people saying that on this board. There is zero correlation between diet and Peyroines. Otherwise 22 year olds would never get it.

,,Btw, your statement is wrong cause is very possible to start to develop insulin resistance at a young age".

How young an age? Citations?

That's  false. That's NeoV's pseudoscience and drivel. And what does ,,begin to develop" mean? You either have insulin resistance (which causes diabetes 2) or you don't. There is no in between.  Metabolic syndrome develops usually at older ages.  And it can be diet related (not in all cases).

,,You can choose to play safe and attack Peyronie from every angle or try to guess diet had no impact on your Peyronie's development and ignore it. It's your choice, people here are trying to help each other. It's ok to be skeptical, just be polite and ask for proofs."

Of course I can believe what I want, duh. No one is helped here by made-up pseudoscience and the kind of garbage  you, godisreal and NeoV say.
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Quote from: jan.schaller1958 on November 03, 2020, 11:03:59 AM
No. There is NO proof of that whatsoever except people saying that on this board. There is zero correlation between diet and Peyroines. Otherwise 22 year olds would never get it.
I showed you proofs but it's your choice to keep denying it.

Quote from: jan.schaller1958 on November 03, 2020, 11:03:59 AM
That's  false. That's NeoV's pseudoscience and drivel. And what does ,,begin to develop" mean? You either have insulin resistance (which causes diabetes 2) or you don't. There is no in between.
There's not a switch, dummy. There is no such thing as people being healthy and, from nothing, is sick with diabetes. So there's a spectrum.
All start with elevated levels of blood glucose and your pancreas pumping up insulin to deal with it. If your insulin levels are constantly high, your cells start to develop tolerance to it. How insulin resistant they will become depends on your diet, genetics, habits...

A person that has diabetes type II didn't have a fasting blood glucose of 80 mg/dL one day and woke up another with 140 mg/dL. So yes, you're wrong again. There's such thing as developing insulin resistance. People develop diabetes type II, they don't get it like a virus.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.

TonySa

Saying something "may help a bit" is not exaggerating that it's a definitive cure based on medical studies.  Maybe just try to back off somewhat on the strong feedback and just share you're thoughts and experiences?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

NeoV

A study just the other month showed that Peyronie's was most common in the southern US (where diabetes rates are highest). Of course, southerners have more heart disease and cancer as well, that's no surprise.

Nobody said diabetes "caused" Peyronie's, just as it doesn't "cause" PCOS, but keto is the best solution for PCOS and the research on it is blatantly obvious. Not every woman with diabetes will get PCOS, but nearly every woman with PCOS can get better with keto. The same could be said for many cancers now and heart disease. Our genes decide where the metabolic damage goes, so if we can't change our genes, where do we focus?

Hyperinsulinemia is insidious, and does directly create a pro-fibrotic environment. That said, I personally think it's more complicated than just testing for IR and glucose sensitivity.