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Author Topic: Pelvic Floor Therapy  (Read 1109 times)

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TDix

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Pelvic Floor Therapy
« on: July 08, 2019, 06:19:20 PM »

Just started pelvic floor therapy last Friday to help heal post surgery.  Not everyone’s cup of tea as a lot of it is internal, but has anyone else had this type of therapy?  My therapist says she sees a lot of men with peyronie’s and Erectile Dysfunction
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

NeoV

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Re: Pelvic Floor Therapy
« Reply #1 on: July 08, 2019, 11:11:23 PM »

TDix my pelvic floor has been damaged from a young age and involuntarily spasms, causing Peyronie's problems (or used to). I also tightened the area on purpose thinking it was somehow good back then, since it makes your penis harder for a moment. I just had a long talk with Diehardpatriot about this.

Reverse kegels and biofeedback have helped me. For biofeedback, I touch the sensitive part of my penis while relaxing my pelvic floor, since I usually involuntarily kegel. Since a lot of guys have a problem requiring kegels to orgasm, they should train themselves off that and can use masturbation as a kind of chance for biofeedback and to relax the area.

How is it working for you?
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TDix

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Re: Pelvic Floor Therapy
« Reply #2 on: July 09, 2019, 12:20:55 AM »

I've only had one session, but she found that my right side internally was extremely tight.  She pinpointed certain areas to relax the muscles, and said after some more sessions I should notice less pain and numbness in my penis.  I always thought as you that we need to strengthen our Kegels, but when you have trauma like Peyronie's or Erectile Dysfunction in the pelvic area, you actually need to relax the muscles, which in turn will strengthen them.  During the therapy, I was involuntarily tightening my whole core and even my legs.  She showed me that those need to be relaxed to help heal.
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #3 on: July 12, 2019, 05:52:14 PM »

Had my second session today.  She focused on any tender spots, especially on the transverse perineal muscles.  Still too early to tell if it is helping but I will say I have had less soreness in my penis, and my numbness from surgery seems to be improving
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #4 on: July 19, 2019, 05:34:09 PM »

Making a lot of progress with my therapy.  My soreness has reduced a lot and hope to reduce my numbness with more sessions
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Gabriel

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Re: Pelvic Floor Therapy
« Reply #5 on: July 22, 2019, 04:42:32 AM »

Hey Tdix,

Very interesting stuff. I myself tried pelvic floor therapy, but just 2 sessions and got discouraged. I may go back to it to cure my 2 years still acute phase. Please continue and keep us up to date!!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

TDix

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Re: Pelvic Floor Therapy
« Reply #6 on: July 23, 2019, 02:05:19 AM »

She also massaged the hip muscles that go into the pelvic floor, which she said were also really tight.  I think that really helped relieve the soreness this week.  I know internal work, especially with a female therapist, is off putting to most men, but hell I’ve whipped my penis out for more people in the last year than I ever thought I would.  At this point it’s about healing and getting better.  If that takes a therapists finger up my bum, so be it
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #7 on: July 24, 2019, 03:30:54 AM »

I am 3 weeks into therapy and I’d say my soreness is almost completely gone.  I would definitely recommend this type of therapy if you are willing, and have a competent therapist
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

peyroniesurprise

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Re: Pelvic Floor Therapy
« Reply #8 on: July 26, 2019, 07:03:16 AM »

TDix my pelvic floor has been damaged from a young age and involuntarily spasms, causing Peyronie's problems (or used to). I also tightened the area on purpose thinking it was somehow good back then, since it makes your penis harder for a moment. I just had a long talk with Diehardpatriot about this.

Reverse kegels and biofeedback have helped me. For biofeedback, I touch the sensitive part of my penis while relaxing my pelvic floor, since I usually involuntarily kegel. Since a lot of guys have a problem requiring kegels to orgasm, they should train themselves off that and can use masturbation as a kind of chance for biofeedback and to relax the area.

How is it working for you?

Is there a topic with that discussion?
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TDix

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Re: Pelvic Floor Therapy
« Reply #9 on: July 26, 2019, 05:22:09 PM »

4th session today.  No more pain or soreness, she said my pelvic floor is no longer in spasm.  Said maybe one more session and I should be good to go
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Gabriel

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Re: Pelvic Floor Therapy
« Reply #10 on: August 01, 2019, 04:45:13 AM »

Hey Tdix,

This is fascinating; I'm happy for you!!

Could you be more specific about how your penis felt/feels now? Did you have any proper pain or was it just soreness? How would you describe the change in perception precisely?

I'm very interested, as I'm hoping pelvic floor therapy to relieve the pain I've been experiencing in erection for two years now!!!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

RandyPE

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Re: Pelvic Floor Therapy
« Reply #11 on: August 01, 2019, 11:24:54 AM »

This is a great thread, TDix! I'm fascinated by this, and wonder how you found your therapist.  Is she a P.T. who also does pelvic floor work, or is that a whole different specialist.  Wondering what I would look for to find someone where I am (AZ).
Thanks!
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TDix

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Re: Pelvic Floor Therapy
« Reply #12 on: August 01, 2019, 01:46:58 PM »

My therapist is a PT that mainly does pelvic floor.  My pain was really just soreness.  It’s gone now other than when I have sex, and then it’s sore for a day or two.  The erection quality and numbness from surgery will take time she says, but the sessions have really helped relax the muscles, as they were all very tight at my first session, and now they have relaxed a lot
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #13 on: August 01, 2019, 01:49:59 PM »

I would say that prior to therapy I had constant soreness at my graft site.  I always felt it and it wouldn’t go away.  Now after 4 sessions it only shows up after sex, but goes away.
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

RandyPE

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Re: Pelvic Floor Therapy
« Reply #14 on: August 01, 2019, 05:24:45 PM »

That's awesome, man.  Good on you.  I haven't had any surgery, but have wondering since I got Peyronies Disease 2 years ago if my pelvic floor had something to contribute.

My good friend is a PT, but I don't know that we're GOOD ENOUGH friends for me to have him get up in there and work me over, lol.  But maybe he can recommend a colleague who can.

Thanks for the tips, and good luck for your continued healing!

Randy
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TDix

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Re: Pelvic Floor Therapy
« Reply #15 on: August 01, 2019, 07:57:15 PM »

I hear you Randy.  My therapist is a female and coworker of my wife so I know that awkwardness!  But if they are professional and truly want to help you, it makes it less awkward.  At this point I’ll do anything to get better.  Let me know how it goes
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #16 on: August 02, 2019, 06:54:23 PM »

I posted this in another thread, but a basic session involves me taking my clothes off and putting on a hospital gown.  She comes in and has me lay on my stomach.  She uses towels to cover me so all that is exposed is my butt.  She then does her internal work for about 1/2 an hour.  She then massages my lower back and buttocks.  I then turn over, and fully covered except for where she is working, massages my nerves on both sides of the groin and scrotum.
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Wethenorth

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Re: Pelvic Floor Therapy
« Reply #17 on: August 06, 2019, 04:40:39 PM »

Starting pelvic PT on Thursday! Very excited after reading your posts.
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RandyPE

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Re: Pelvic Floor Therapy
« Reply #18 on: August 06, 2019, 04:43:01 PM »

That's awesome WeTheNorth - where did you find this therapist and how? 

Still looking...

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Wethenorth

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Re: Pelvic Floor Therapy
« Reply #19 on: August 06, 2019, 05:23:35 PM »

Took me a while, been trying to find one for my prostatitis since 2018. Finally found an affordable one in NYC. Keep googling and sending emails regarding payment inquiries.
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RandyPE

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Re: Pelvic Floor Therapy
« Reply #20 on: August 06, 2019, 05:26:35 PM »

Did you just google "Pelvic Floor therapy NYC," or something like that? I guess that's my prob - don't really know where to start.  I asked my PT buddy and he didn't know any of his colleagues who would even knew how to do. He recommended I try for a massage therapist, but that always sounds a little shady....
Thanks for the help!
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Wethenorth

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Re: Pelvic Floor Therapy
« Reply #21 on: August 06, 2019, 05:28:27 PM »

I think it was along the lines of “pelvic physical therapy male nyc” and then sifting through a lot of BS until I found one that looked legit.
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RandyPE

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Re: Pelvic Floor Therapy
« Reply #22 on: August 06, 2019, 05:40:28 PM »

You're the best.

Thanks!
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Wethenorth

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Re: Pelvic Floor Therapy
« Reply #23 on: August 06, 2019, 05:48:15 PM »

Cheers bro!
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TDix

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Re: Pelvic Floor Therapy
« Reply #24 on: August 06, 2019, 07:28:35 PM »

Congrats man, let us know how it goes. First few sessions you won’t notice much, but the therapist should definitely tell you if things are tight down there.  By my third session was when I really felt things were improving.  It appears finding a pelvic floor specialist, especially for men is hard.  My therapist is in high demand because it’s basically all she does.  I see her on Friday, so if anyone wants me to ask for any other therapist recommendations you can PM me your location
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Alibaba

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Re: Pelvic Floor Therapy
« Reply #25 on: August 07, 2019, 01:17:38 AM »

Started them long before the prostectormy. I think it helped mush. 
Still can't sit on a jar, twist my glutes and unscrew a jar lid  but everything else is working. I have heard of putting heavy washable weighs up your ass helps by tryngti hold then as long as possible.
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TDix

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Re: Pelvic Floor Therapy
« Reply #26 on: August 07, 2019, 01:47:11 AM »

My therapist actually does not want them strengthened that way, but by relaxing them.  They strengthen themselves once relaxed.  The problem stems from them constantly in spasm as a reaction to pain.  When you have pain in the pelvic area the body unconsciously tightens up as a protective reaction.  Learning a lot from my therapist ;)
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

TDix

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Re: Pelvic Floor Therapy
« Reply #27 on: August 09, 2019, 04:03:01 PM »

Another session down.  She really focused on seeing about my numbness.  She examined my penis in detail and reread my surgery notes.  Said my graft was large and I still have scar tissue, which I knew.  Focused on massaging the muscles specifically related to the penis, and said she may try some soundwave therapy next session to see if it helps.  Usually that is prior to surgery but wants to see if it helps
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

RandyPE

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Re: Pelvic Floor Therapy
« Reply #28 on: August 09, 2019, 04:11:07 PM »

Focused on massaging the muscles specifically related to the penis

Very cool.  Are those muscles in the perineum? Upper legs and glutes? I wouldn't even know where to begin with muscles related to the penis.

But very glad it's working for you.  i hope to have an appointment within next two weeks.
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TDix

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Re: Pelvic Floor Therapy
« Reply #29 on: August 09, 2019, 04:17:17 PM »

They are internal
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

RandyPE

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Re: Pelvic Floor Therapy
« Reply #30 on: August 09, 2019, 04:28:46 PM »

Makes sense.

Thanks
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Wethenorth

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Re: Pelvic Floor Therapy
« Reply #31 on: August 09, 2019, 04:42:04 PM »

Went for my first session yesterday. Was really interesting and my PT was incredibly understanding and a great listener. Looks like I have tension in my pelvic muscles that are similar to a knife stab sensation when pressure is applied. Although I don’t suffer from Erectile Dysfunction she said that patients often notice a significant improvement when trigger work is done on certain areas that pertain to the penis/overall pelvic floor. Didn’t have any internal work done (that’s for next week) but I’m genuinely optimistic going forward. I’ll be sure to periodically post my progress over the coming weeks.

(I do want to note that after pressure was applied to a pelvic floor muscle beneath the testes, we did a deep breathing exercise to release the tension. When I was done with this, I went to put my clothes back on and my flaccid penis was completely straight which is something I’ve seen rarely in weeks)
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TDix

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Re: Pelvic Floor Therapy
« Reply #32 on: August 10, 2019, 03:32:05 AM »

That’s awesome We!  Be nice to compare notes and techniques of our therapists
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45 yrs old, 2 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Faysal Yafi, pelvic floor therapy with Laureen McVickers

Wethenorth

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Re: Pelvic Floor Therapy
« Reply #33 on: August 10, 2019, 07:27:48 AM »

TD, let’s definitely do that sometime down the line
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TDix

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Re: Pelvic Floor Therapy
« Reply #34 on: August 16, 2019, 04:17:48 PM »

Another session down.  No more internal work needed as my pelvic floor is now completely relaxed.  No more pain or soreness either.  Did some low dose ultrasound work in the area of my remaining scar tissue to help aid circulation.
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