Saw uro today. Final nail in coffin.

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Inky

Had a doppler. Could not get an erection with bimix injection. Get erections fine on my own and maintain them fine too. He did the ultrasound semi-flaccid. Did not want me to get erection. Was not expecting what he said to me.

I have minor venous leakage. 4.8 on one side and 5.5 on the other. I also have some sort of calcified something or other within one side (I will have to get him to clarify this later) and a "moderately" calcified dorsal plaque.

It is my understanding that once a plaque is calcified there is no point or purpose to doing traction or getting xiaflex or really doing anything at all. I have read that doing xiaflex with calcification is actually dangerous.

He said, without measuring with a goniometer like Inasked him to do, that I have a 35 degree curve. The uro I saw yesterday said it was 45. Stupid people can't even agree on that.

Why do anything now? Shouldn't I just get a consult for an implant? From everything I have read here, it all begins and ends with implant. Implant, implant, implant. Calcification does not get better or improve. Period.
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TDix

47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Inky

Maybe. A case would have to be made that nothing can be done with calcified plaque. I need to hear someone say I am or am not doomed. Then I will consider.  
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TDix

My Dr said my calcified plaque was pretty extensive, and surgery was the best option for me.  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

NeoV

I wouldn't rule out traction or other options even if there is calcification. I would say it's even more critical.  

Inky

Hi Neo. Was yours calcified? I need some hope here. I cannot fathom surgery. I am a recovering addict, so painkillers, etc. are an amazingly perilous option. I want to do traction and fasting and everything. As a matter of fact I have not eaten as we speak for 2 days. But if it is calcified it is my understanding that there is no hope and logically speaking you should really just skip right to surgery. I just read a xiaflex study that states implicitly that there is way less chance of improvement with calcification. So what are you basing this off of? Can plaque ever be un-calcified? I really need to hear that it can, but I know that is all b.s. and I am going to end up with a robot dick. All roads lead to implant from what I am reading on this forum. That everything is a total waste of time except an implant. That the only people that recover are the young and those without any calcification. I know I am right but desperately need proof I am wrong.
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skunkworks

Quote from: Inky on July 04, 2019, 09:13:44 AMGet erections fine on my own and maintain them fine too.

Why are you even considering an implant then?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Inky

Because I need it to be straight (er) or I need me to be dead is why I would get an implant. And I have venous leakage. Things in this life do not get better. All things deteriorate. So I could watch my dick rot off or skip all that and get an implant now and deal with whatever life I have left.  
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NeoV

Scar tissue is not simply soft or calcified in a binary fashion. It's more of a spectrum and the entire health of your penis should be considered and cared for. If, for example, the part under the scar can be improved, then that alone is worth doing. What I mean is that the disease is not as simple as a singular "scar." This study references how pentox actually improves calcified scars and the "calcium load."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3565600/

Traction actually decreases TGF-beta in the penis, it is not about "stretching the scar."
The idea is to maximize your penile health so that your penis is the least fibrotic, and then encourage strong erections and do the physical therapies (traction, VED, heat) in order to remodel your penis. Even if your plaque is calcified, if you can improve the environment around it, it may improve.

I am not saying you can or cannot be cured or anything here, or even saying you should not get an implant. Only you know what is working and what isn't but I am just trying to give you a perspective before you jump the gun.

Venous leakage may not be what it seems, but I need to get back in touch with a member who went down that rabbit hole. I'll try to get in touch with him ASAP.

Inky

I would dearly love to take Pentox. Want nothing more in the world. However, it makes me feel psycho even at 200mg.
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NeoV

You can lower tgf-beta in the penis and likely reduce the calcium load in a scar with traction, diet, and the other therapies and supplements or drugs (cialis) if you choose to go that route.  

Inky

I can tolerate cialis and arginine. Can't take ubiquinol, l-acetyl carnitine or pentox.

I have been eating keto. In the middle of a fast now with that snake juice stuff.

And have restorex, VED and penimaster. Taking turmeric, ginger and r-alpha lipoic acid as well.
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