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Author Topic: Not being allowed to fight this properly, what should I do?  (Read 973 times)

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samsung

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I am in withdrawal from benzodiazepines.

Virtually any chemical causes intense symptom flares.

I need to take pentox, cialis, carnitine and ubiquinol.

So far every single one of those makes me extremely nervous. The only thing that doesn't is arginine so far.

And I got a restorex. However any manipulation of my penis in the last few days is causing intense pain so I feel I am damaging it further. Plus, how the hell do you even know if you are using the device properly? It is not fool proof.

Lastly, I went to a urologist yesterday. He refused to treat me because I was too pushy about getting xiaflex. Yiu only have a small window to fight this and now I am being denied that too. I made an appointment with another but certainly it will be at least 2 months before they could do doppler and inject the xiaflex at which point it will probably be calcified and will be too late.

wtf do I do here?
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Pfract

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Re: Not being allowed to fight this properly, what should I do?
« Reply #1 on: June 13, 2019, 11:21:39 AM »

You can't forget that the doctor is the one that decides on the treatment path, not you. You may ask for it, but that's why you went there. To be treated by him.

NeoV

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Re: Not being allowed to fight this properly, what should I do?
« Reply #2 on: June 13, 2019, 07:50:41 PM »

I recommend a standard style or suction style traction device or by hand.

TonySa

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Re: Not being allowed to fight this properly, what should I do?
« Reply #3 on: June 13, 2019, 08:33:07 PM »

I consider my doctor a partner in my treatment, not the only deciding factor.  We must inform ourselves and work with our providers to establish the best care for each of us individually. IMHO
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

wakenbake69

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Re: Not being allowed to fight this properly, what should I do?
« Reply #4 on: June 13, 2019, 08:57:40 PM »

You don't have only a small window to fight the disease. It's bs perpetuated by neurotic obsessives on internet forums. IMO trying to remodel inflamed tissue is the wrong approach. Focus on reducing inflammation / making the active stage as short as possible and improving/restoring blood flow.

Once you have no more pain/inflammation, then turn your attention to remodeling fibrotic tissue.

I often wonder how many people do more harm than good by trying to remodel hot, painful, inflamed tissue (myself included).

Many will disagree.
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samsung

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Re: Not being allowed to fight this properly, what should I do?
« Reply #5 on: June 13, 2019, 09:34:32 PM »

I should do traction.

I shouldn't do traction.

I should crap in a bucket.

I shouldn't crap in a bucket.

No wonder people kill themselves over this.

There is only one answer. Maybe in 200 years we'll know it.

In the meantime I am going to stretch out my inflamed dick and if that makes it worse, well [email protected]< it. Not my fault.
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

samsung

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Re: Not being allowed to fight this properly, what should I do?
« Reply #6 on: June 13, 2019, 09:43:09 PM »

I only know one thing for certain...

If there is a God and if there is a heaven, and if I go there someday, God is getting a red hot poker in his pooper. Advance warning. And there are probably like 50 billion others waiting in line ahead of me.
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

JS1991

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Re: Not being allowed to fight this properly, what should I do?
« Reply #7 on: October 02, 2019, 11:01:23 PM »

Just want to mention that I have been dealing with protracted benzo withdrawal since November 2018. I too am extremely sensitive to most chemicals. Fasting is how I've worked around it, and it has not only improved my Peyronie's and hard flaccid more than any other treatment, but it has greatly helped my withdrawals as well. Regarding Peyronie's, the main improvement for me was with inflammation. Also had some dents fill in, and scar tissue gradually smoothing out. I'm actually just coming out of the withdrawals in the past few months and starting to feel normal, but I get minor setbacks here and there. Message me if you have any questions, Samsung. No one knows better than me the hell that combined benzo withdrawal + penile problems can cause mentally.
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Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)

samsung

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Re: Not being allowed to fight this properly, what should I do?
« Reply #8 on: October 03, 2019, 03:03:26 AM »

Thanks JS. Sorry to hear you are in protracted wd yourself. Benzos are the worst drugs on this earth imo. So you know what an "interesting" time it is. I actually feel like the intense stress of it brought on the peyronie's in the first place. I will give fasting another try. Did it for a bit, was difficult. Will give it another go.
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

JS1991

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Re: Not being allowed to fight this properly, what should I do?
« Reply #9 on: October 03, 2019, 09:20:48 PM »

Definitely is the worst. I've gone through heroin addiction/withdrawal and benzos blow it out of the water. Good luck!
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Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)
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