Nobody ever told me

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samsung

Spent many hours combing over all categories on here. Was told the lie that it stabilizes after 18 months. Used that as a tentpole to not commit suicide.

Now, after extensive reading, across hundreds of threads, I see that any treatment is a waste of time. It is a progressive disease that comes and goes at will that will waste your penis into nothing or calcify it totally. It is just a matter of time. Any gain you make you will lose.

I see that people do gain some back sometimes. But that that is all in vain.

I am terrified to do any treatment because I am one of those for whom nothing works. I always have the worst case of anything. I don't want to take Pentox or do traction just to listen to others on here about how great it is and look at mine getting worse and worse. The only solution is a bullet. My F^@$!ng ass they will come up with a cure. Maybe in 200 years.

And therapy is a waste of time. I don't have the ability to believe anyone telling lies. The only thing that will make me feel better is a straight dick. Anything else is mental gymnastics. Lies plain and simple. If you tell yourself your life is good and your penis doesn't define you, that's excellent for you that you believe that. But it is no more true than someone with diabetes that has taken their limbs away thinking they have a good life. They don't. Period. And I won't listen to BS even if it is helpful. I don't understand how to even make yourself believe a lie in the first place.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

You're reaching out here so I believe a part of you wants to hold out hope.  Please immediately seek out help and support for your depression!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Christopher1

Have you explored all treatment options?
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

samsung

No. And that is my point. Nobody here is proving me wrong. I said that I read hundreds of threads and they all say more or less the same. They either got zero help or they improved. But the ones that improved only improved for a certain period of time.

Nobody can prove that statement incorrect. I read it, therefore it is so. One person who comes along and says, "I improved" only means that one person did, and only temporarily. There are hundreds of thousands who are kidding themselves. The only solution to this is a time machine or a bullet. And I need someone to agree with me because that is reality.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

samsung

Can you please direct me to NeoV's stretching routine? Seems restorex is recommended most? I ordered all the supplements. I started keto. I went for a walk. But I know that is all b.s. Will do xiaflex too. Waste of time according to majority of people here. I wish I had a spreadsheet to prove what I am saying, but it is all there if you read all the threads in all the categories.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

That is not true, it's your depression talking.  If you get help w the depression you'll be able to treat your peyronies.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

samsung

Why is it not true? I read many, many posts where people say nothing works. And that it comes back no matter what you do. I would love for that not to be true.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Bubba dawg

Xiaflex works for many. I had some calcification from the get go, I can have normal sex even with that problem. So Xiaflex worked for me. A year later and no worse off.  Really doesn't have to be perfectly straight. I see lot of guys in porn movies with bent dicks. Make do with what you have. Life is all about overcoming challenges. Ya get help for depression. You're not thinking straight
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

samsung

Sorry. Again please read what I said. I want to know if it can improve and then randomly go back to the active phase again. Are there any rules to this?
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Bubba dawg

My doctor advised me to keep talking Vitamin E is to prevent another attack. That is what I have done and have not had anymore problems
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

samsung

I want to know if it can improve and then randomly go back to the active phase again.

Will just keep repeating this or various versions of this in hundreds of threads until question I asked is answered. Thank you.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

popopo

Hey, I understand your worries. I used to be suicidal and depressed too and worry about the progression as well. There really is no way to know what helps unless you try it. But if you want to know the truth: yes, it can progress for a way longer time than 12 months. It seems rare, but I'm one of the cases where the progression never really stopped. But before you think worst case scenario you should really try pentox, cialis, traction and ved first because they're relatively risk free and you can do them at home. You basically have scar tissue in your penis and it can be stretched/molded to about the same it was before you got it, but it can also get worse. Nobody knows what will happen in your case, but try to be open to treatments before you conclude nothing works. Also, if nothing works and it does get worse and worse, you should know the progression id very very slow. Even now being 24 and having had this from age 17, I still have erections and my dick still looks like a dick so to speak. Yes it got smaller and the functionality is decreased, but I just try to stay hopefull that someday it will be easily treated. What gives me the most hope still is regenerative medicine. Try to find articles about dr Atala from wakeforest. Right now I'm not happy either. But I do have some peace in me and the anger and frustration is numbed down. Antidepressants really help for that even though I also think theraphy doesn't help and jist made me worse hearing all these things about acceptance and your dick not being important and bla bla bla.. doesn't work for me either. What really helps is just getting the rest of your life back, take medication for the depression if you feel suicidal ans try to hope for better treatments IF nothing else works. Also, consider an implany if necessary. I decided it's not for me and my doc agrees, but many men are basically cured that way, but it's a last resort. Stay strong and please try everything before you even think about suicide. I've been there, but it won't save you it will just end you.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help