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Author Topic: Feeling palpable plaque for the first time ever years later - any suggestions?  (Read 1019 times)

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Rags

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Hi all, my story is here: https://www.peyroniesforum.net/index.php/topic,11716.0/topicseen

Ironically (as I outlined in that long thread), my urologist just told me I didn't have Peyronies a couple months ago, and that my penile hourglass/ waisting that initially occurred 8 years ago after bending my penis during sex was unrelated. He said since I didn't have any curvature while erect I had nothing to be worried about and that my situation was nothing compared to most guys he saw with Peyronies, and that he wasn't convinced I had it. I told him it had 'stabilized' about 3 or 4 years ago, and that despite no curvature, I noticed the hourglassing would sometimes take effect while flaccid and that I felt as though it was harder to maintain erections without constant stimulation, especially if my partner is on top and gravity is working against me. I also noticed the middle of my shaft (where it hourglassed) felt more prone to bending during sex and wasn't as hard as it had been before the injury, but overall I didn't really have issues with Erectile Dysfunction or anything and he seemed to think it was all in my head.

Well, about a week ago I began to notice a bit of a weird shape (only to the touch) on the right of my shaft. It's a bit more than midway up on the right side, kind of in the middle. Every time I'm erect I seem to feel it now, and although I am still not experiencing curvature, I took a closer look today and definitely could see just a tiny little raise in the skin where the bump is, so it's both palpable and mildly noticeable at a visual inspection (although luckily I don't think a sexual partner would ever notice unless I really pointed it out).

I'm bummed because one of the things I had going for me with my experience was that it seemed to have stabilized over the past few years, and this is the first time I can recall ever feeling any kind of plaque to speak of. It seems crazy that it would suddenly occur right after my urologist gave me the all-clear, so I don't know if I should make another appointment or if it's all in my head and maybe it was there before and I never noticed.

Only thing I can think of is that a couple months ago (in fact, part of what prompted me to see him) was that I was dating a girl who enjoyed being on top and I had issues a couple times with maintaining erections at that angle without taking Cialis, and my theory was that the penile waisting makes it harder for me to maintain blood flow to the area. I'm hoping that during our interactions I didn't cause further trauma to the already-weakened area and caused more scar tissue to form, but honestly, I don't recall any specific moment at which I felt any kind of pain or noticeable 'snap'/bend.

I'm looking for opinions, guidance, suggestions -- should I take ibuprofen and vitamin E for a couple weeks to be on the safe side and prevent further inflammation? Go back to the urologist (who seemed to think I was a hypochondriac) or get a new doctor? If anyone has suggestions, I'm about 2 hours outside Philly, so feel free to recommend!

Thanks for reading my rambling worries. :)
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TonySa

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Have you read the survival guide here.  Most important thing is to find a doc specializing in andrology and peyronies! Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Rags

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Thanks, but the most frustrating part of my experience is that I went to a urologist who was supposedly very renowned in the field of Peyronies and had done research papers and stuff on it. However I think he's used to younger guys only coming in having had very traumatic, significant injuries. The biggest reason he didn't think I had Peyronies was that I never had a "bruised, black and blue" trauma -- he said I would have been in such pain that I would have known 100% right away that something was wrong, and been in an ambulance to the doctor... but I've read many people's experiences and that doesn't seem to always be the case. My flaccid hourglassing began days after I had my penis bend during drunken sex where I was having trouble maintaining an erection. That was 8 years ago, when I was 22, and I'm 30 now. I think his approach was that he wanted me to feel better about not having a worse condition, and dismissed me as being a hypochondriac or something... but I know what my penis was like before and after, and the hourglassing is something I *never* experienced until after that night.

It did seem to stabilize over time but even to this day, when it's not hourglassing, my penis has lost girth while flaccid and is droopier. Again, a total change in the shape whereas before it was much, for lack of better description, firmer and thicker while flaccid.
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TonySa

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Well, at least it has stabilized.  You could still try VED or traction and low dose nightly PDE5i to remodel the plaque into healthy tissue.  I you have serious Erectile Dysfunction as well, you’ll want to treat that as well.  Most guys feel better once they start a treatment regimen even if it’s a long term plan as VED or traction.  Keep us posted.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

program4004

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I know this may not have anything to deal with it, but, have you checked your blood pressure? And has your diet been good lately? It could just be low erection quality as well. If you already have a solid exercise routine, good diet and no bad blood pressure, then I'd get another urologist to give you an ultrasound or an MRI. MRIs can see scar tissue and can detect if you have any organic issues.
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25,  PrePeyronies possibly, semi erect masturbation injury on Sept 2017.  Erectile Dysfunction for 2017 - Mar. 2019. Semi erect waisting, normal erections. Treatment: Vit E, rice sock heat therapy, abstinence. No official tests yet (doppler, MRI).

Bubba dawg

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I have erections while lying on my back. Your problem with that could be anything unrelated to Peyrones. I have no idea how I got Peyrones. No black and blue event. Just painful erections for months, then a short skinny banana effect which went away during treatment. This is classic peyrones. The symptoms can vary. But the common theme of Peyrones is Plaque and/or calcification. Experienced Peyrones doctors usually can feel hardening of the penis. Not in all cases.  My GP felt it. I could not see my plaque. Some have noticeable lumps and/or dents. Never hurts to get a second opinion. If that doctor finds nothing wrong with you then it is time to stop worrying about it before you create mental Erectile Dysfunction. IMO
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5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Rags

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Well, at least it has stabilized.  You could still try VED or traction and low dose nightly PDE5i to remodel the plaque into healthy tissue.  I you have serious Erectile Dysfunction as well, you’ll want to treat that as well.  Most guys feel better once they start a treatment regimen even if it’s a long term plan as VED or traction.  Keep us posted.

Thank you, I'll definitely look into this.

Do you have a specific VED or traction device you use/recommend? I don't really know what PDE5i is but I'll research it.

I don't have erectile dysfunction for the most part. Let me put it this way, I'm still able to become aroused, and I've had sex without having to take any pills. But ever since my injury, I've noticed a definite decrease in things such as morning erections, and my penis is more prone to bend/snap at the part where it hour glasses -- I think the scar tissue that is there has weakened the blood flow. When I begin to go from flaccid state to erect, the top and bottom of my penis fill up first, and the middle part will appear constricted and is the last to 'fill' with blood, so I know for sure where the scar tissue is and that the blood flow is at least somewhat affected. Thus, although I wouldn't say I have true difficulty with intercourse, the overall quality of my erections can fluctuate more, which kind of sucks. I notice it most when my partner is on top. I have a Viagra prescription but try to only use it when I really need to.
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Rags

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I know this may not have anything to deal with it, but, have you checked your blood pressure? And has your diet been good lately? It could just be low erection quality as well. If you already have a solid exercise routine, good diet and no bad blood pressure, then I'd get another urologist to give you an ultrasound or an MRI. MRIs can see scar tissue and can detect if you have any organic issues.

Yeah, I've actually had my blood pressure taken a few times lately and it was fine, and my diet is pretty solid. Trying to cut back on weekend binge drinking (my one vice) and I could probably stand to drink less caffeine, but apart from that, I eat mostly plant-based (pescetarian) and exercise daily.

The irony of my relationship with alcohol is that I think it's the entire reason I got Peyronie's to begin with. I was 22 in college, really drunk, tried to have sex, and due to 'whiskey dick' as they call it, my erection was not as strong as normal, and when my partner became frustrated with my inability to maintain an erection, she got on top and as she put her weight on my penis, I remember it basically bending in half. No real pain, and we kept going afterward, but looking back now I realize that is probably the moment the trauma occurred. About two days after this is when I began to notice a pinch of skin in the middle of my flaccid penis, and it began to rapidly hourglass more and more over the course of the next week or so. I freaked out and thought it was an STD and went to my doctor, but it wasn't until a few months later that I began to Google search for 'hour glass shape penis' and found this forum.
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Rags

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I have erections while lying on my back. Your problem with that could be anything unrelated to Peyrones. I have no idea how I got Peyrones. No black and blue event. Just painful erections for months, then a short skinny banana effect which went away during treatment. This is classic peyrones. The symptoms can vary. But the common theme of Peyrones is Plaque and/or calcification. Experienced Peyrones doctors usually can feel hardening of the penis. Not in all cases.  My GP felt it. I could not see my plaque. Some have noticeable lumps and/or dents. Never hurts to get a second opinion. If that doctor finds nothing wrong with you then it is time to stop worrying about it before you create mental Erectile Dysfunction. IMO

I never had painful erections but I'd get random, really sharp pains in my penis for a couple years after my injury, usually when I'd go from positions such as sitting to standing. It wasn't frequent, but happened overall probably 10 times or so, and it stopped happening when things began to stabilize in terms of the appearance of my penis. I still get flaccid hour glassing and "droopiness", but it was WAY worse then. Looking back now, I'm convinced this pain was the scar tissue forming/healing. And when you go from a position such as sitting to standing, there's obviously a shift in pressure and blood flow, so it makes sense that I would have felt it at times like that. (I still remember a specific instance when it happened -- I was crouched over stocking a shelf at my retail job, and when I went to stand up it felt like I tore something in my penis and it was excruciating pain - but it only lasted a few seconds and then it disappeared. This was about 6 months - 1 year after the initial onset of hourglassing.)

I never had noticeable bumps/plaque until recently with this bump on the right, unless it was always there and I somehow just never noticed it.

The #1 reason I'm still convinced I do have (mild) Peyronies is simply because I do have the hourglassing and constriction in the middle of my shift. Since the injury stabilized it's far less noticeable, but my penis girth is a bit thinner, my penis when flaccid is a bit droopier, and the flaccid hour glassing occurs particularly in cold weather, after exercising, or if I've had way too much caffeine and my blood pressure is too high. It will also be noticeable often during the transition from flaccid to erect -- as I mentioned above, the penis head and the bottom of the shaft will fill out first, and the middle where the scar tissue presumably is will be the last to expand, which creates a really weird hourglass shape for a few seconds before it continues to fill out. #TMI
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program4004

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Damn. Well I'd go to a Peyronies specialist just to check everything. The Doppler can check for any blood flow issues and plaques. I'd also see if you can get on Cialis and keep blood pumping down there. Also try some heat therapy and see if that helps. It could be just aging as well.  Also you didn't mention if you are overweight as well or have any sleeping problems. Besides that, it's good you get erect during sex and have no Erectile Dysfunction. Also, don't let lack of morning wood concern you. Morning wood doesn't always mean you have to be fully hard. Sometimes I have like duper strong morning wood and I sometimes have like 50 percent erections. The goal of morning wood is to keep the penis from developing fibrosis and stuff as well as a function check. Doesn't mean it has to be 100 percent hard though. Anyways, try to get a second opinion. Don't jump into VED and traction because you need to see what the actual issue is. I wish you the best!
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25,  PrePeyronies possibly, semi erect masturbation injury on Sept 2017.  Erectile Dysfunction for 2017 - Mar. 2019. Semi erect waisting, normal erections. Treatment: Vit E, rice sock heat therapy, abstinence. No official tests yet (doppler, MRI).
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