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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
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Author Topic: Size after surgery  (Read 12275 times)

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lezt

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Size after surgery
« on: March 21, 2010, 07:03:12 PM »

I'm recovering two weeks now after surgery and I can't believe how straight my penis is. I have one concern, the size. Before surgery including the curve I was 5.5 inches erect, now 3.5 inches. My doctor says he decreased my size by .5 inches

My doctor says after swelling goes down I will see an incease in size. Is this true, or did I lose more than he says?
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jackp

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Re: Size after surgery
« Reply #1 on: March 21, 2010, 09:25:10 PM »

letz

What surgery and who was the doctor and hospital?

True the trauma of surgery will reduce size for a while but you do not give enough information.

Placation?

Grafting?

IPP?

Other?

Jackp
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lezt

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Re: Size after surgery
« Reply #2 on: March 23, 2010, 09:26:04 PM »

The surgery was done at Hackensack University Hospital by Dr. Sadeghi-Nejad. He used or as it was explained to me was a modified nesbit. Everyday it seems to be getting better. I guess I'm getting nervous of the unknown. 
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LWillisjr

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Re: Size after surgery
« Reply #3 on: March 23, 2010, 09:55:04 PM »

First off,
Rejoice that it is straight. It is too early to tell what your final length will be. And are your measurements while erect, or flacid? It takes 4-6 weeks to completely heal up from the surgery. Talk to your doctor at what point it is safe to start either VED or traction therapy. This will help you regain some length, but you must wait until you are healed up well before you start this.

Les
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lezt

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Re: Size after surgery
« Reply #4 on: March 23, 2010, 10:16:11 PM »

Thanks Les

I'm very grateful it's straight. I will speak with my doctor. My erection pain has subsided and hopefully I will start to gain some length. I'm starting my 3rd week of recovery, so hopefully I will see some progress over the next couple of weeks.
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voulezvous

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Re: Size after surgery
« Reply #5 on: March 26, 2010, 10:33:53 AM »

I have read a number of postings regarding the "size factor" - post surgery - & find a common thread whether Nesbitt, grafting, plication or even implant. We all experience a considerable amount of loss no matter what the method. In my case I received an AMS LGX implant last August & continue to be disappointed that my original girth & length have not been restored. I asked my surgeon about this when I had my 6 month follow up & although he gave me the usual response about it taking a year or more for stability to occur, he also stated clearly that the calcification of the corpora tissue was so much that it even prevented the implant device from being able to expand to its potential. I think that we all get so hopeful that the devastating consequences of Peyronies Disease will be reversed with just about any surgery that we forget the reality of what has happened to our body. For my part I have learned to accept that I will never be what I was before Peyronies Disease but at least I have rid myself of the plaque & the daily torture of doing nothing. I do believe that regular & moderate use of the VED will be of benefit, however.
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Old Man

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Re: Size after surgery
« Reply #6 on: March 26, 2010, 11:06:06 AM »

voulezvous:

Sorry that you had somewhat of a loss of dimensions after your implant. I am sure you know that the implant does not always restore one to their original size and shape. This due to the many aspects of the erectile tissue and other complications like plaque. As you stated you had a build up of plaque too. Hopefully, you can develop a method of stretching this plaque to help with your size.

I wanted to give you a word of caution about using the VED after getting an implant. It is my understanding that mild usage of a VED can be done, but with extreme caution about overpumping, etc. I strongly urge you to consult with the surgeon who did your implant about its usage before attempting to do so if you have not already done so.

JackP can jump in and give you some advice about this too as he had the same implant done back in 2008 with great success. I am sure that he has suggestions for how you can better use any further therapy to try and gain back your lost dimensions.

Hope the best for you and keep the faith, something good will come of your problem yet.

Old Man
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Age 92. Peyronies Disease at age 24, Peyronies Disease after
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Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

jackp

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Re: Size after surgery
« Reply #7 on: March 26, 2010, 03:10:45 PM »

voulezous:

AMS recommends DO NOT USE THE VED WITH AN IMPLANT!

Are you following the twice daily routine of fully inflating the implant for at least five minutes and holding it? That helps the implant and your penis expand back to as much size as you can regain.

I can not regain back to my original length either. The peyronies scar on top of my penis will not let me. I have regained my late teen early 20's girth.

Part of your problem could be the amount and location of plaque as well as the skills of the doctor that did the implant. It is true that the LGX can take up to 18 months to reach its maximum expansion.

I can tell you this. Do Not get hung up on size. If I had after loosing 1 1/2" to peyronies and all the other complications it would drive me nuts. I have gained back 1" since activation, that took about a year. I can say all I asked for was a usable erection and I received so much more back to 90% of my pre peyronies length.

You have a usable erection now. Use it with joy and delight. Your wife, girl friend or partner will be able to enjoy it with you, no matter the size.

I will second what Old Man said, talk to your doctor before doing anything that could hurt you.

Enjoy

Jackp

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voulezvous

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Re: Size after surgery
« Reply #8 on: March 27, 2010, 10:54:17 AM »

Thanks for the cautions to both JackP & Old Man. I should have added that, yes, my surgeon is aware that I am using the VED with the implant. He saw no reason to not use it if it will help restore some of the lost length, etc. His comment about AMS's prohibition was that the company has to adopt that policy because of legal concerns. Remember, AMS also states in their literature that the LGX implant should not be used by Peyronies Disease sufferers.
I don't mean to suggest that he didn't say "be careful". Of course he did. All precautions about overdoing use of the pump are absolutely still valid. The fact that there is saline fluid in the cylinders within the corpora vs. blood doesn't change the potential of tissue damage from overuse. I also want it clear that I am 90% content with he outcome no matter what happens from here on. Compared to where I was a year ago, I am about as "cured" as current medical science & technology will allow. I am very grateful & have no feeling that I was mislead about what to expect.
My original point remains, however, that, as Peyronies Disease victims, we have to accept the hand that we are dealt as far as ever being restored to wherever we started from. I think you are endorsing that philosophy.
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jackp

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Re: Size after surgery
« Reply #9 on: March 27, 2010, 01:47:02 PM »

There are many things on the AMS web site that are out of date.

Take for example the Ultrex was replaced years ago by the LGX and it is not shown on the web site you have to go to www.amslgx.com to find it.

Also the recommendation for men that have peyronies need the CX. It has been proved that the LGX will straighten peyronies and have a much more natural feel. Dr. Milam will have a paper on this in The Journal Urology in the next few months.

I asked MS Rea at AMS about updating the web site and her reply was that was up to marketing.

My best advice is talk to guys that have been through this and know what to expect. An implant is a important decision, find out the facts before taking the plunge.

I will tell you in my case the rewards are a blessing not only to me but my wife.

Jackp
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thunder

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Re: Size after surgery
« Reply #10 on: June 26, 2010, 12:30:45 AM »

I was really shocked by the loss of length after my surgery. From what I had read and been told by the Dr I understood some loss of length could be expected but that it would be unlikely to lose more than an inch. I lost at least 2-3 inches. I also have lost a lot of sensitivity which makes an orgasm difficult. I am hoping the healing will bring some of that back as my surgery was just 9 weeks ago. I'm not sure I would have elected to have the surgery given my own results although I am definitely straight now.
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Old Man

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Re: Size after surgery
« Reply #11 on: June 26, 2010, 08:15:29 AM »

thunder:

Sorry to hear about your lose of size. Did your doctor prescribe any therapy that might would help with regaining lost dimensions? If not, you should ask him about trying the vacuum therapy that has been very helpful to others after various types of surgery.

Old Man
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Age 92. Peyronies Disease at age 24, Peyronies Disease after
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Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

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Re: Size after surgery
« Reply #12 on: June 26, 2010, 01:55:58 PM »

At least the curvature issue has been dealt with, so it's not all bad. Also, it may be that more sensitivity will return in the coming months. Here's hoping that it does anyway. It's definitely worth looking into options to regain some length if your urologists gives it the go ahead.
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LWillisjr

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Re: Size after surgery
« Reply #13 on: June 27, 2010, 12:37:56 PM »

Thunder,
My sensitivity was also diminisehd right after surgery. The healing is a slow process but mine came back with time. Things started to feel close to normal after about 6 months.
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JPRHenry

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Re: Size after surgery
« Reply #14 on: June 30, 2010, 04:22:00 PM »

Thunder,

The sensitivity will return.  Be patient----You will be fine.

JP
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emperordune

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Re: Size after surgery
« Reply #15 on: July 01, 2010, 08:17:12 PM »

My sensitivity took about 5 months, so hang in there.
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jpl

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Re: Size after surgery
« Reply #16 on: July 06, 2010, 11:04:40 AM »

Thunder,
I'm going into my sixth month post-op.(excision)
Things have slowly improved!
I'm also dealing with size reduction and rigidness. 1-1/2 to 2" loss
Hopefully there will be some recovery of these with time?

Dr Levine has prescribed the osborn single stage VED. (4th month)
Not to be used for sex at that time, but more so for therapy.
Because or the excision surgery.

Makes more sense, to get penis blood flow.
Should develop more straightness and rigidness with time.
And should help with firmer erections.
Must admit, I prefer the VED over the F/S stretching method!

It now feels much better, not to be in the Peyronies Disease deformed state.
It's OK to look in the mirror now.

Hope things continue to improve for you!
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JPL

newguy

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Re: Size after surgery
« Reply #17 on: July 06, 2010, 01:08:12 PM »

I'm very pleased for you jpl. It sounds like you're making good progress, and the VED use should only help matters. I think traction and VED use definitely both have their place in tackling peyronie's, but the VED is certainly easier to use in my view. I can't help but feel that the design of current traction devices isn't ideal. In your case, as you're post op, VED is definitely the way to go and I'm heartened that it has been prescribed.

Are you takin any Erectile Dysfunction treatments to help with rigidity issues?

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jpl

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Re: Size after surgery
« Reply #18 on: July 06, 2010, 09:33:44 PM »

newguy,
Yes, I still with small doses of Viagra.
It does help.
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JPL

Brightdog

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Re: Size after surgery
« Reply #19 on: September 30, 2010, 02:30:07 PM »

You may regain some size, depending on your doctor's skill.  But for God's sake, keep this web site posted as to your progress so that people going into surgery can have some clean information from users of prosthesis, uninformed victims, the real dope.  Enough of these charlatans pushing this surgery on people who can use other methods.  It's insane.  Good luck.

I am keeping my progress log - a spreadsheet modified from the one posted in the protocol thread. I will be sure to post progress.

And we might want to be more temperate in our attitude toward the surgery. There are those of us who had no choice, and we shouldn't have to feel defensive about it. Yes, if my doctors had taken my situation more seriously earlier - maybe something could have been done with other therapies (I had oral Vitamin E and Verapamil injection). But surgery really was my only option left, and despite all the complications I have experienced, and the aggravations of the process, I am still glad I took it.

Even the Verapamil - which doesn't have a very good success rate - at least offered a chance. So while it seems it made things worse, I am also not sorry to have taken that chance.

It's also true that surgery procedures develop over time. If everyone stops having the surgery, then there is no way for improved procedures to be tried. I am aware that I am in some ways a guinea pig and that several people have a stake in the success of the surgery for my degree of deformity.

Unlike some people, my post-surgery penis looks pretty good. Yes, it is much smaller. Yes, it has new dimensions and slight bulges etc that are foreign to me - but on the whole it now looks terrific flaccid (if anything, it looks better than before the Peyronies Disease!) and the erect state is improving. I'm only 5" instead of 8", but I am told it is possible to gain 1-2" back post-surgery, and with the help and advice of this forum and my surgeon I am going to see how far I can go in recovery.

My goal: to be an unqualified surgery success story, even after everything I have been through. Why? So that the guys who really have no choice will still have some hope. Remember that the ones who qualify for surgery are usually the worst cases - they have tried other therapies and their Peyronies Disease continued to get worse. Maybe the surgical route would have better results if they weren't already working on the worst cases. So the surgery is a drastic attempt to salvage something - anything - from the situation. No, it's not perfect. But it is something, and for the past two months without pain (and able to pee freely!) I am grateful.
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LWillisjr

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Re: Size after surgery
« Reply #20 on: September 30, 2010, 10:38:49 PM »

Brightdog......

well stated.
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fubar

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Re: Size after surgery
« Reply #21 on: October 05, 2010, 11:33:27 PM »

Brightdog ( brother)

As you know we have shared many pm's and discussion about this disease.Your case to me is if not the worst on the forum is at least for me to hear.I personally am greatful for your success and knowledge and experience you bring to this forum.We both know none of us want to say 5 inches but this would not he a shock to women as I have been told mine was uncomfortable at times so loosing size may not be the worst outcome. As there are men with micro penis that probably is more vicious on the morale than somthing at normal size.

The journey you have taken has not been an easy one.But you have prevailed and will continue to have success through your fortitude and grit.I am at awe of the man that has described his condition and how he has conquered. You should feel great about your outcome.

I know you are still in recovery and this is a long prosess but you are  doing well and

You will be fine my friend and your future is bright dog, like how I threw that in there? What has impressed me the most since talking to you is the man that you are.Men like you are what make this forum worth its weight.

Thank you for all your effort in keeping us informed on your progress. And how this disease can unfold in a bad way and how you fought back is testemant to the man you are.Keep pushing on I like the ideas we have discussed you have a strong intelligent mind.Look forward to many a discussion with you take care my friend. You are much further in being complete than most .

Fubar



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Skjaldborg

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Re: Size after surgery
« Reply #22 on: December 22, 2010, 06:47:37 PM »

Grayling,

I'm trying to wrap my head around your post. What's the deal with the pure negativity? I read some of your older posts and I get the gist that you had a bad surgical experience. However, some of the "facts" you mentioned just aren't true and there are men on this forum with personal experiences contrary to what is on your list. My question to you is:

1. Who did your surgery and when? 15 years ago? 5 years? a few months ago?

2. What kind of implant did you get?

3. What was your functionality before/after?

4. Did you get second opinions or do any research beforehand?

5. Did you have post-surgical complications? If so, what were they?

The fact is that for some men with Erectile Dysfunction and Peyronie's, the benefits of having a functioning penile implant far outweigh the side effects of an implant. Surgery is a last resort: absolutely no one on this site will tell you otherwise. Surgery is an option for men who cannot get an erection AT ALL through VED or pills or who have such severe curvature that penetration is impossible. Surgery has risks, but these can be mitigated by carefully researching the procedure and finding the best doctor to perform the surgery. The male sexual health specialist urologists mentioned on this site would not push someone unnecessarily into surgery. Anyway, most doctors/surgeons have little incentive to "trick" people into unsuccessful surgery since that would lead to malpractice suits.


-Skjald

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LWillisjr

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Re: Size after surgery
« Reply #23 on: December 22, 2010, 08:04:25 PM »

I think we need to keep a balanced perspective. There are different types of surgery procedures (implants, plication, grafting, etc.). Each with their individual risks. I too agree that surgery is a last resort even though that was the eventual (and correct) decision for me. We need to acknowledge that some of had bad surgical experiences, while many have also had positive surgical experiences. And there some of each who continue to participate on this forum.

Les
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Brightdog

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Re: Size after surgery
« Reply #24 on: December 23, 2010, 10:43:55 PM »

Here's a problem:  after surgery, no one has the heart to keep replying to the Forum, because the facts aren't fun.  But you and the rest of us owe it to the next guy.  Tell the truth. Brightdog takes a stab at answering these in RED for my surgery experience - although it was not an implant but an excision/graft/plication triple whammy
 
Four things your doctor won't tell you:
1)  your penis will be shorter, and likely your girthMy doctor was totally up front about this, although he said I would get some back. And I have.
2)  to go on this forum and get the real take from guys who have lost 1/2- 2 inches. I lost 3 inches and have gained more than an inch back.
3)  it won't work as well as your natural erection. It didn't, but it is improving all the time. In some ways it is BETTER than before - a more firm angle.
4)  the shortening process of Peronies will likely continue after surgery. This is why you are supposed to do the therapies - and my doctor was quite clear that I would risk shortening if I did not do the therapies, so this was not hidden from me.
5)  your body will treat the implant device exactly like it would a cancer--surround it with protective tissue thereby creating a "tumor."  This will harden the device and speed up time for a replacement. My doctor was upfront about scar tissue and the graft, and hence the need to continue therapies
6)  when he sees you, he sees not one but two operations:  one to implant, one to replace, times the number of replacements you get.  All with the same volume of risks.  That's two paychecks instead of one. This could be said of any multi-stage or repeat operation, but it is cynical to suggest that is what the doc sees. the doc sees that you need an implant if you want to have a semblance of your sex life back.
7)  the cost of the surgery.  He'll downplay this, then charge you up to $40 K, times two don't forget.  You represent big business to him. For most docs, you represent someone with a medical issue that has finally required surgery. Yes, he might be well paid for doing it - bu doctors on the whole are well paid because we put them through hell in training, and then they have stressful lives dealing with blood and guts and life and death and there have t be some compensations.
8) Your implant is impregnated with unhealthy anti-biotics with vast potential for side-effects.  And without those antibiotics, you are even more at risk of rejection - they are there for a good reason.
9)  Anything about alternative therapies.  He will encourage you to try them--knowing you don't know where to start or what works. Oddly enough, my doctor has not suggested anything other than traction to keep the graft from shrinking. We have discussed therapies that I read about here in the forum, and he has been very helpful - but has not endorsed any of them.
10)  And if he suggest Vitamin E he knows this is a waste of time, and that no results from this will convince you there is no point in trying other alternatives.  Failing with Vitamin E, which is guaranteed, give you a failure that moves you closer to surgery and a payday for him. On the principle of trying treatments from least invasive/harmful and then escalating if needed, this is as good a place to start as any.
11)the questions you should be asking.  That's up to you--don't expect him to play Devil's advocate.  The questions relate to all of the above.
My surgeon, who is paid by our public health care system, was great about all the above. Yes, I had concerns about the post-op care and the administrative process. But he did not hide information, did not give me unrealistic expectations, and has been very supportive. He is paid the same whether I come back to him or not.
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timk

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Re: Size after surgery
« Reply #25 on: January 01, 2011, 04:20:57 AM »

I had implant surgery last August. Pre-Peyronie length was about 18cm, post-op was about 14cm. It is now about 16cm pumping up 2 x a day. Sensitivity is still a concern.

But as Jackp says, I get a solid, straight erection whenever I want, as long as I or my partner want. It isn't perfect (what is when you get to be 67), but it is a huge improvement over the pre-op situation.

But I am disappointed with AMS. Their web site isn't very helpful at all. I was having problems with the pump getting a full erection, wrote to them but got no response. (It seems I have to be upright for the fluid to get into the pump in order to get a full erection, I found out on my own.)
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jackp

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Re: Size after surgery
« Reply #26 on: January 01, 2011, 12:56:00 PM »

timk

I agree the AMS web site is way out of date. I inquired as to why and was told that was a marketing decision.

Send me an email to [email protected] I have a method of inflating the implant that should help and I will forward it to you.

Sensitivity and glans engorgement should return in time. For some of the young guys it was a matter of only weeks. For me (68) it took over a year. Todd Doran told me that most men report a return to glans engorgement within about 18 months. I supprised my wife one day. We were making out on the sun room and my glans became engorged, she said I did not think you could get hard on your own again. I told her what Todd said. It continues to improve even now after over 26 months.  :) ;) :D ;D :o ::)

Jackp
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