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Author Topic: Introducing Myself, Any Advice Appreciated  (Read 644 times)

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Introducing Myself, Any Advice Appreciated
« on: February 03, 2019, 09:30:18 PM »

I am 27 and currently living in Toronto. Some backstory is that I was using masturbation (daily, sometimes for 2-3 hours at a time, not always fully erect) and drinking alcohol frequently (two beers a day, more on weekends) and smoking cannabis as a form of stress relief due to several factors. I was taking daily Concerta for ADHD. In Sept. 2017 I first noticed a change in my penis, a vein that was far more pronounced on the lower right side. I saw 3 walk in specialists who all did not seem alarmed and felt it was a varicose vein. I than saw my family doctor who said it was likely nothing to be worried about, and to let him know if anything changed. A few months went by and I noticed changes in the volume of my penis on that side, and that when becoming erect my penis would bend to the right at an almost 90 degree angle. Once erect my penis seemed fine, but I was developing pain in the middle of my shaft when becoming erect or after ejaculation. I brought this up and was told it may just be more gentle with myself, but that I didn't need to stop entirely. I was concerned about Peyronie's, but assured it was not the case. As more changes to my penis began to occur, namely the entirely right side of my penis thinning even when erect and hourglass dents sometimes forming when becoming erect I brought it up again and was similarly told to wait and see as there were no treatments that were proven and could help. I was having less natural erections and less morning wood. In sept. 2018 my penis had significantly less volume and appeared deformed when flaccid, and erections were painful and quick to dissipate, but I was still able to have sex with my partner at the time without much issue and the thinning while bothersome was manageable to me. I was fearful of it becoming worse however, and was referred to a urologist two months later at my insistence. I saw him Nov 29, 2018 and he was the least helpful person I had seen yet. He suggested nothing, was apathetic, and asked me what I wanted to do instead of making any suggestions. At this time I had asked each doctor at each step if I could be doing anything, should be avoiding anything, or what could be done. I was not told anything apart from keep living your life. At the beginning of January 2019 my worst fears came true and the other side of my penis has begun losing girth, and I have noticed drastic changes seemingly overnight in my flaccid and erect length. I had still been masturbating compulsively for most of 2018, and have reduced it to once every one or two weeks now. 

Currently my main problem is a great deal of distal narrowing right below the head of my penis. It has shrunk the flaccid length greatly, and I feel scarring on both sides running down the side of my penis laterally. It looks and feels like an arrowhead now. This has reduced the girth on both sides when erect, and is now causing me problems in achieving an erection. I was dealing with feeling of weakness and pain in the middle of my shaft, followed by more pain, numbness, and now simply diminished sensation and size. For a long time and still at times the head of my penis and the area around it felt cold, but did not have the worrying sensations that the middle of my shaft did. I am now worried I have 4 plaques total, some that I can feel. Two in the middle of my shaft, and two on the sides near the tip that are causing the narrowing.

I have now been given prescriptions for 2.5 mg Cialis and 400mg x3 Pentox daily, but am worried the therapeutic effects will not do me the same kind of good as if I had begun taking them a year ago. I have stopped taking Concerta of my own volition as it is a vasoconstrictor, I had been taking it up until August 2018. I am waiting to be referred to another doctor with more expertise, but the waiting list is between 3 and 7 months long. I feel the medical community here has failed me, I tried to be proactive and put my trust in doctors and rather than refer me to people who know about this condition they decided to wing it and suggest nothing to my detriment. I am know doing my own research, and becoming responsible for my own treatment. I only obtained those prescriptions at my own insistence to the doctors, and they were resistant. I have also bought L-Argenine, Vitamin E, Magnesium and Tumeric supplements to take alongside my medications, and have ordered a Penimaster Pro due to the testimonies from others on this forum. This condition is having a pronounced effect on my emotional and mental well being, especially after having my partner break up with me for unrelated issues.

My main goal is to improve my erectile function and to preserve my remaining girth and length, and to hopefully reverse some of the changes that have occurred to me. Of course I am most interested in regaining my girth, length and some elasticity but am aware that this is a best case scenario that few are able to achieve. I have been reading studies and going over the posts on this forum, and at the moment am interested in Xiaflex or Verapamil injections if it can help restore some of my girth and make the tissue less constricted in the scarred areas. As a Canadian I am interested in finding out whether I will need to pay out of pocket for such treatment, who is reputable in administering it, whether it is worth the risk or effective in the ways I am hoping it will be, and that if I need to seek consultation with American specialists such as Dr. Levine what the best and most cost effective ways to do so would be. Any advice, tips, strategies, or other recommendations anyone is wiling to make that may help me regain what I have lost would be greatly appreciated, I realize it will be a long and difficult journey from here so I am thankful for any help to make it easier and more successful.


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Re: Introducing Myself, Any Advice Appreciated
« Reply #1 on: February 09, 2019, 07:55:26 AM »

Definitely peyronies


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Re: Introducing Myself, Any Advice Appreciated
« Reply #2 on: February 09, 2019, 08:33:42 AM »


From your description it sounds like you are in a good path with treatment, and yes of course it would have been better to have started soon but you at least now following the right protocol. I am assuming the wait time for doctor visits is because of your location and maybe access health care are you able to call if you have questions? When you get the penismaster make sure to come here and post if you have questions regarding it’s use. Is the urologist you’re watching ting to see from our forum list of specialists? If not you might want to have a look at our list and see if there is one close to your location.,4063.0.html

Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.
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