Chapter 2, Excision/Grafting Journey

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TDix

I wish I could say it was mental.  I was actually excited to be numb for a bit thinking it would help my PE issues.  If I didn't lose my erections I would be happy to last and satisfy.  Ain't it a b*tch how life likes to say "nope"
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Bubba dawg

Can take a good long time to recover from any kind of Surgery. I have had 5 different types of Surgery. Recovery time varied. 4 months to a year
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

I hear ya bubba.  You get excited thinking surgery fixed everything and then realize....oops you're not there yet
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Bubba dawg

Ya you recover in stages. Complete recovery takes awhile. Surprised me how long it took after my first Surgery. Still doesn't look normal---I kept saying to myself back then. Your numbness will most likely just slowly fade away. I am not patient either man. especially when it comes to having sex lol
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

Me neither!  I was ready to get it on, but my body said hold on there bud
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

No real news at the moment.  Letting things continue to heal.  Getting my Cialis scrip tomorrow, so will let you know how that helps
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Just got my Cialis....chocolate flavored lozenges.  Interesting  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TonySa

If there to be dissolved under the tongue they may be more fast acting.  But if that's not an issue, seems like one could just swallow it...
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TDix

That's what I thought but it says not to
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TonySa

Oh, maybe check w a pharmacist then.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bubba dawg

Yea let us know how it goes. Weird chocolate flavored lozenges that taste bad
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

9 weeks post op.  Still sore at site of graft, and still numb.  Progress is slow at this point.  Just continuing to heal and taking it easy
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Cialis has seemed to help bring a little more length back.  Haven't been able to take it for a run yet with the wife.  Graft site soreness and hardness at base is still normal at this stage according to Dr Yafi.  Takes awhile for everything to return  to "normal"
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Pfract

Hey Tdix! Somewhat curious here.  Did your doctor recommend traction or hand stretches to you post op?  I remember it was somewhat popular with Dr kuehas,  back when he was very recommended  here on the board

TDix

He said it was up to me but not necessary.  I have held off a bit due to the soreness at the graft site and hardness in base
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Is this journal of mine helping anyone?  I hope so.  I'm running out of things to say but will continue to post.  I won't disappear, as I know the information online is few and far between.  I ask Dr Yafi a lot of things because nothing is online and I hope what I post will help you guys.  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Just found out my insurance covered everything.  I don't know what dr Yafi did, but all I had to pay was my $300 deductible! Whew
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TonySa

Great news and will be reassuring to many who read your posts now and in the future!  Thanks for updating us.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Frank55

These journals always help TDix. Thanks for taking the time to post. You may not have as many "daily incidents" as you continue to heal but all of this content is valuable.

Please keep us "posted" (ha).
Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline ED possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

Thanks guys.  It's amazing how little info is out there for our condition.  Sometimes I've thought I should have documented with pictures, but that is just a little too personal to throw out to the world.  My little guy has gone from normal to disfigured, swollen, puffed up like an eggplant, to "different".  I'm slowly getting back to normal, but it's a long process after surgery  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

So my wife is an occupational therapist, and has been dealing with a rotator cuff issue.  She went for physical therapy, and in talking with the therapist my situation came up. Immediately she said"oh he has peyronie's, I have a lot of clients with that".  She strongly suggested I go see her to have pelvic floor therapy.  Will keep you updated
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Was able to be with the wife this morning.  3 times since clearance.  First two weren't that great as I wasn't on Cialis and would lose my erection due to my numbness.  Today was the first time while on Cialis.  It did help, and I was able to "finish", but the numbness still causes issues.  I never really know if I'm in or out as I can't really feel.  I thought it would be a bonus as I have had PE issues, but not knowing if you are even inside is kind of a bummer.  I know, baby steps.  Also, afterwards I was very sore.  We were not rough by any means....I mean, we know rough (ha), and we were very gentle.  Also had a stinging sensation in my urethra, which I have read is a side effect of antidepressants, which I am on.  I'm not complaining, as I was able to be with my wife, just sharing what I am going through 12 weeks post op.  It's gonna be a long road guys.  Also, can only really get a good penetration from behind.  Any other position I have no idea if I'm in or out
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Bubba dawg

You may want to read up on Peripheral Nephropathy. I have it sometimes in my nose and upper lip due to a blow from a crow bar. I was trying to pry something and it slipped and popped me at the base of my nose. So many nerves in that area.  I can't find any good treatment for PN. Has many different causes. Not saying that is it. Just a possibility
Glad you can get back in the sex game. That is good news  
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

Thanks bubba, I will wait out the 6-12 month period Dr Yafi said it could take for my feeling to come back.  If it is still an issue then I will pursue a solution.  I am not going to let this condition Win
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

The pain from yesterday has gone away.  Learning as much as you guys are how healing from reconstructive surgery goes
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Frank55

TDix - Question for you. When you were selecting a surgeon, did you consider Dr. Gelman? Think he may work at the same center as Dr. Yafi.

Just curious. I think Gelman does both grafting and plication.
Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline ED possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

I did but he does not take my insurance  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Frank55

OK thanks. Just like Dr. Yafi, Gelman also seems to be very good. Have seen multiple positive results here on the forum.

That facility (UC Irvine Urology) appears to have quite a urology talent pool. Worth a look for anyone considering grafting or plication.
Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline ED possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

I agree, UCI has a specialist for every urological condition
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

I did bring Gelman up to my urologist, and he said, just his opinion, that he didn't like his bedside manner anddidn't like that he doesn't take most insurance.  He did say that if you have anything wrong with your urethra Gelman is the man to see.  He was who recommended Dr Yafi.  Told me Dr Yafi is young and takes a very modern approach to Andrology.  Funny side note, he also told me Gelman is a black belt in karate
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Frank55

Thanks TDix. Interesting info about Gelman. I've had one appointment with him and agree that his patient manners are not the best. He sometimes comes across as condescending. This has been noted by other members.

In contrast, Franklin Kuehhas has excellent patient manners. He performed a grafting surgery on me in June 2016. That surgery flopped.

Point being - those excellent manners don't mean anything after a surgical failure. It is a terrible (and expensive) disappointment and all the good manners in the world don't lessen that disappointment.

This is not a new idea - it has been covered in other threads in the forum. I'd take a surgeon with less favorable manners and a higher degree of surgical skill and experience any day.

Gelman apparently has an impressive record of positive surgical results. Maybe he is a case of what Dizzy Dean said - "it ain't bragging if you can back it up."
Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline ED possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

Yeah I understand.  Like I said I did look into Gelman but he does not take my insurance.  I was not going to pay for my surgery out of pocket, especially seeing how much it cost with Dr Yafi
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Dr Yafi sent a script for pelvic floor therapy at the suggestion of my wife.  Will update how that goes
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Also was able to be with her again last night.  Did not finish but had a very nice experience.  No soreness today so that is viewed in my book as positive  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Closeness with my wife is getting stronger.  Early on with this condition we tended to stay away from sex as we didn't want to do more damage, and she was scared of hurting me and I was scared of causing more damage.  Now, 3 months post op, we have grown closer as my length returns and the pain slowly gets less and less.  We've been closer the last few weeks than we have been in over a year.  She understands that it's not going to be perfect, and I may not finish, but we are in this journey together
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Feeling more and more "normal".  As things relax I am back to an acceptable length and am able to enjoy being with my wife again.  As much as I dreaded surgery, I can say that it was a good decision for me.  Not only that, I am happy that I got connected with Dr Yafi.  I truly feel I am in a specialists hands as opposed to simply a urologist.  Like I've said there is less and less things to post but I will continue to contribute here.  I have become obsessed with this place and feel I need to help as many as I can, so don't hesitate to reach out.  I probably visit this site more than any other on a daily basis!
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Bubba dawg

Glad to see its working out for you TDix! Gives a lot of hope to others. Just to not give up. One thing might not work for you but other treatments can work
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

3 month update.....still get sore after sex, but it goes away.  While I am straight,  I am not like an arrow.  I have a slight bulge where the graft is, and bend a little where the plication happened.  Nothing serious, but I look a little like a slightly curved road😂.  Dr Yafi says this is normal and will take a few more months to stabilize.  Will be starting pelvic floor therapy soon on the advice of my wife.  Not really looking forward to it as I've seen it involves a lot of going up the bum in men.  Will keep you updated
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

MarkDS

Glad things are getting better, and thanks for sharing your journey.

I hope To be in the same position 3 months down the line, but at the moment feel as though I am in a very different place.  
49 yrs old, Married
Peyronie's started 2016
Upward curve of 100 degrees  
Incision/grafting surgery in 6/2019.  Resulted in loss of length of around 1.5 inches, residual curve of over 40 degrees, some ED
12/2019 had failed skin anchoring procedure

diehardpatriot

I wanna say, although I haven't been replying I have been following this whole thread. I am against surgery as much as possible but agree it can be a good solution for peyronies and am open to it in the future. many many times I have read that it truly takes 6 months to recover from these surgeries. I believe this because I have had penis injuries that have led me to not have a single erection for weeks. I am only 19 years old. A surgery is very traumatic to the body, not to mention the stress of recovery and dealing with pain doesn't help. There was this guy on the forum (can't remember his name, I think it was Kusher but don't remember), who had surgery from dr Kuehhas and coming out of surgery claims to not get a single erection for around 3 months. He was really sad about it. Around 4 months later he came back saying he woke up with an erection and ever since he was okay! These surgeries make our bodies really weird  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

kusher

 Everybody is different. After kuehhas surgery, i did not have good erection for 365 days. But now things are fine. I regained my natural erection through Neov's hand stretching routine, cialis and sport.  
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Bubba dawg

I think there are 2 types of Peryrones. One is injury related and one is age related. Treated differently and recover  differently. A lot of members, in their 50s, can't recall being injured. I was never injured while having an erection. I think stopping having erections would make me worse off
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TDix

Yeah seeing as my brother also has peyronie's I would say mine is genetic.  I have read somewhere it tends to happen in a lot of Northern Europe men, and seeing as we are of Norwegian descent it may well be the case.  Thank everyone for commenting.  Yeah I will say recovery is happening but slowly.  Every week is a little better, but nothing dramatic
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Seeing Dr Yafi Monday to evaluate my progress and answer any questions.  Also start pelvic floor therapy on Friday.  Will let you guys know how that goes
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

Ah the ups and downs of recovery from this surgery.  Tried being with the wife last night and just could not penetrate.  I get erections but sometimes they just aren't rigid enough for sex, even with me being on Cialis.  Really bummed me out, as I cherish the times I am able to have sex.  I am still numb, so when we are able to have sex I still need to be in a position where I can see if I'm in or not.  Will bring all this up to Dr Yafi tomorrow
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

TDix

All OK according to Yafi.  Recovery can take up to a year, and at this stage I am on track.  My erections will slowly get stronger as the nerves continue to recover.  Found out the graft was placed on top and not the side.  Told me I had a lot of hardened scar tissue, which is why recovery for me will be a little longer.  I was worried it was new scar tissue, and come to find out it's my graft
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

2Oldfords

   Tdix, please don't stop updating. I follow the progress from everyone to compare my outcome.
I have very mild numbness but there is a spot around the stich line from de-gloving that is still a little sore. I'm not sure if I can get hard enough for sex now as I quit trying. I think I'm going to try again and see. Can't hurt, I would like to think 7.5 months into it time has helped.
  Hang in there.
Age - 65
Peyronies of unknown length of time
70 Deg curve 10-11 o'clock
first 2 uro's offer for xiaflex and referral
incision/grafting 12/18/18, Implant 9/11/20

TDix

I will definitely keep updating.  2oldfords, do you think you are possibly dealing with the same issue or is your dr positive it's new plaque?  
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE