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Author Topic: Posts split from Another topic Hijacked after it was dormant for 1 year  (Read 2243 times)

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popopo

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Re: Re: Is life living without sex?
« Reply #50 on: December 20, 2018, 01:21:30 PM »

I've had stinging pains for a long time and once in a while it keeps flaring up, so I guess I switch between stable and active phase all the time or something, but like I said no doctor really has an answer except for "pelvic floor tension".
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

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Re: Re: Is life living without sex?
« Reply #51 on: December 20, 2018, 01:27:31 PM »

This will be my last post for today and was my first day on this forum since a long time and now I know why I left. Pointless discussions, treatments presented as holy grail while they've been around for AGES and some woman talking about peyronies like she's the queen of dick. I'll be out again, anybody with some actual sense in them can PM me, but I'll probably only come back here to tell y'all how well my life is going once dr Atala is going to cure me. Until then.. adios amigos!
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Stabler

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Re: Re: Is life living without sex?
« Reply #52 on: December 20, 2018, 01:29:03 PM »

I even know some guys on here that got BUTCHERED by their "top class surgeon".  And I know this shouldn't matter, but hearing this from an older man who's appearantly doing fine sexually and a woman who doesn't even own a penis to begin with is just... MIND BOGGLING.

You are absolutely correct there are men that have been butchered having implant surgery, which is why it is highly suggested that you as the patient do your homework and find a qualified one and I don't have to have a penis to know that doing nothing is not going to help you.

Stabler
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Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

popopo

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Re: Re: Is life living without sex?
« Reply #53 on: December 20, 2018, 01:43:07 PM »

Waiting for a better option isn’t doing nothing. You don’t know how hard I work every single day to keep the rest of my life together. Maybe Atala’s solution will be in 20 years! So what? I’ll still be the same age as Hawk is now by then and I’d have a real dick instead of paying like 5k for a plastic tube in my penis with possibly more damage. I must also note that I haven’t felt this frustrated and depressed in a long time all because this whole discussion makes me focus on my penis again. My original plan of NOT doing that and waiting for a true cure works better for me and that’s the point I was trying to make. So until then, I have not much left to say.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Bubba dawg

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Re: Re: Is life living without sex?
« Reply #54 on: December 20, 2018, 02:48:48 PM »

Pelvic tension is interesting because I had that problem too and still have it. Complications due to a prostate infection. Lots of nerves in the pelvic floor that send signals to the brain. Damage to that area can cause Erectile Dysfunction and other things. Mine is much better now. I told the surgeon about the tension I felt there and he had no idea what I was talking about. The infection came before the surgery. Just a burning sensation there
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Hawk

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Re: Re: Is life living without sex?
« Reply #55 on: December 20, 2018, 03:57:34 PM »

popopo,

So, now the truth comes out.  It is not that you can't have an implant because your dick can't handle it or it will come out through your dick.  You don't want one.  Worse yet you do not want one based on prejudice, ignorance, and backward thinking. Implants do NOT cause further scaring.  You reject that solution just like you reject other solutions.   it is clear.  You have made your decision.  Rather than having a balloon hold the fluid inside of your dick any time you want for as long as you want you would rather have no sex.  The crazy thing about that is that for someone that has made a decision you seem very unhappy with your decision to wait and watch your penis continue to get worse.  Embrace your decision and stop complaining.

I have no patience with such nonsense.  We are here for people to learn and help people help themselves.  It probably is time to take a break and ask yourself why you are even here.  It is not to learn. You know it all.  It not to make decisions, you have done that.  It is not to help out on the forum to keep it going.  I think you are wasting your time and our time as well.  If you feel you can benefit or if you want to help move posts and such then please consider coming back.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

popopo

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Re: Re: Is life living without sex?
« Reply #56 on: December 20, 2018, 04:13:46 PM »

The truth is that an implant is an invasive procedure and anywhere you work around with a scalpel you risk scarring. I don’t want one based on the chance of getting worse. How are you so shortsighted to think I am causing my own misery. Why do YOU WANT to believe that so much?

Edit: Looking at some other posts by you I already know why. You’re kind of an a$$hole. Ban me for this I don’t care. Have a nice day.

Extra edit: I’m not even talking about just this particular topic. I mean most of your posts.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

suicidecomingsoon

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Re: Re: Is life living without sex?
« Reply #57 on: December 20, 2018, 06:00:20 PM »

I would like to know if atala will can regenerate a penis because in my case I will need  all my corpus cavernosum regenerated not only a part. Is he working in that?
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Hawk

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Re: Re: Is life living without sex?
« Reply #58 on: December 20, 2018, 06:03:11 PM »

You clearly know nothing about implants, implant surgery, or Peyronies, and a year from now you will know just as much as you do now because all you can do is complain, reject, pretend to know, and repeat.  Read the implant journals on the forum and tell me how many have developed scarring. Answer - not one
How many wishes they had done it sooner?  Answer - everyone
Call Dr. Eid that has done 15, 000 and ask how many scar and deform after surgery.  Answer - not 1%, not 1/2 %,  none.

But you are the expert based on nothing but your ego.  I am sorry that sometimes the truth sounds like someone is giving you hell.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

popopo

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Re: Re: Is life living without sex?
« Reply #59 on: December 20, 2018, 06:54:07 PM »

You are giving me hell, and only because I'm being carefull. You don't know anything about me.

I've never even got a clear answer on what to do from any of the doctors I visited. They perscribed me cialis and pentox ONLY because I was able to convince them to try it even though they saw no point cause in their opinion pentox does nothing and cialis only works temporarily. Nobody even tried to give me any treatment, so yes I have searched around for other doctors, but I've been specifically told that (even if the implant itself wont cause scarring) you need to be in the stable phase of the disease and an implant won't STOP the progression of scar tissue building up.

 I never seem to get to the chronic phase for whatever reason and all the doctors I visited say there is not much to do and just say it's a venous leak and some scarring and continue with "it's still fine, your symptoms are probably from pelvic floor tension, so treat that."

Then I go to a physiotherapist and the tension didnt lessen, so she advices me to work on mental health, but all of this is giving me anxiety so the circle is complete.

Theraphy doesn't work cause I cant get over having this issue, the issue itself can't be resolved according to my doctors and THEY tell me I'd be stupid to get an implant.

But all of that doesn't matter cause Hawk on peyroniesforum.net disagrees with Dr.Meißner from the biggest hospital in Holland, so I should listen to him instead?

I should now fly to some place, put a load of money on the table and get my fingers crossed that Hawk's dr is really able to make things o.k. Do you not get how weird it would be to just say "yeah Hawk, you're right. I'm wasting my time, let's get a F^@$!ng implant".

Maybe you get me, probably not, but to say I only "complain and reject" is just you being a (Ha! How ironic wink wink) big fat dick.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

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Re: Re: Is life living without sex?
« Reply #60 on: December 20, 2018, 06:58:31 PM »

But I do like the fact that you're about to be the only funny age you can be "number 69", so there's that.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Hawk

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Re: Re: Is life living without sex?
« Reply #61 on: December 20, 2018, 08:25:06 PM »

I am already 69 officially although I have been there most of my life ;)
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

picgg

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Re: Re: Is life living without sex?
« Reply #62 on: December 20, 2018, 09:44:42 PM »

No one will understand depression and Anxiety until he live it.

Myself I used ti cheer people up and I used to belive its only in thier brains when I was normal.

Now, I am in 9 months of severe depression, no matter how much positive energy I think and give to myself  I end up laying on the bed, in a dark room, waiting for the moment I die. I have a family who are very supportive and ready to do anything to help me, but I cannot help myself.

I am losing my job, my life, but I cannot help it. At the end of the day, when I put my head on my pillow I CAN'T SLEEP a minute.
No sleeping Aids are effective for me anymore, body tolearted them all.

No therapist was helpful, no Anti depression worked for me, all they made worse in fact.

I have lost over 20Kg now, I was 67 Kg and now I am just 44 Kg, a wieght of kid, and still going down.

Its early morning in my country, and I couldn't sleep a moment with a fast heart beat, and Anxious thoughts.

Yes, I do understand you, I am in 24/7 pain for the last 9 months, and I don't know how much it gonna last. I would like to seperate my thinking and focus on my family and job, but I cannot help it, its beyond my control.

All what we can do, is to fight this disease by all possible means.

If your penis got butchered, you still have legs to walk and brain to use.

I do know that our brains are useless without our penis, but that is just now because we don't know what is going to happen. Once it happens, we may accept it ( I don't know and I am not sure).

I am forcing myself every single day to go to work, to play with my kids, and to contol my emotions with my wife, its really hard, and I sometime wish I died before this, or even to die know.

But we have no option other than fighting this disease, and trying no to represnt ourself by our penises.

Good luck.
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34 Yrs Old, Peyronies since 03/ 2018, narrowing, Hourglassung Subcutaionus atrophy & Erectile Dysfunction after Steroid injection. Flaccid pain, Curvature to the left. Tried ALC, L-Arganine, COQ10, Pentox, Tamoxifien, Cialis, fexofenadine, Vit E nothing working.

picgg

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Re: Re: Is life living without sex?
« Reply #63 on: December 20, 2018, 10:09:30 PM »

One thing I want to add,

All people in this page are trying to support and cheer you up, I know how it goes in your brain because I am living it, but it is not an excuse to talk and act the way you do. Thier efforts should be appreciated. Remeber one thing, They are not the reason for all your problems!! They are trying to support by all thier possible means!

So either you respect thier opinions and appreciate thier efforts, or just leave this fourm and kill yourself.

Remember, we are here because we have the same problem, we are in the same boat.

I would really respect a person like Hawak, who had post all his private journey with an implant, just to give a hope for depressed people like you and me in this forum.
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34 Yrs Old, Peyronies since 03/ 2018, narrowing, Hourglassung Subcutaionus atrophy & Erectile Dysfunction after Steroid injection. Flaccid pain, Curvature to the left. Tried ALC, L-Arganine, COQ10, Pentox, Tamoxifien, Cialis, fexofenadine, Vit E nothing working.

skunkworks

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Re: Re: Is life living without sex?
« Reply #64 on: December 21, 2018, 03:20:11 AM »

Very well said picgg.
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Bubba dawg

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Re: Re: Is life living without sex?
« Reply #65 on: December 21, 2018, 05:59:47 AM »

Really terrible to go through this at a young age. Popopo is just venting his frustration. Many of us have had decades of a normal dick. BUT he is venting at the wrong people. He should go to counseling and vent. Looks like Hawk created this place to help people get through this terrible thing. But nobody here should expect to be a punching bag for the depressed and frustrated. Not everybody here will always say the right words in the right way. But it seems everybody is trying to help. Counselors are paid to listen to our crap lol
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5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
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pfract

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Re: Re: Is life living without sex?
« Reply #66 on: December 21, 2018, 08:36:07 PM »

Hawk is giving you hell because you have a disgusting attitude. Like somebody said above, we are all on the same boat. Some better, some worst. But you think we are against you. I understand that a person gets destroyed in the beginning but after a while you have to move on. There's more to life than this. Especially when you have solutions. Yes, it's a daily battle. But should you have an attitude like that? No.

And again, this is being told from people that have the same problem or similar as you. So you should listen more and attack less. And I am amazed at hawk's patience. I would have lost my cool a long time ago.

popopo

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Re: Re: Is life living without sex?
« Reply #67 on: December 25, 2018, 03:31:50 PM »

I don’t have a bad attitude at all, I just won’t get on to the “this crap is no problem, let’s all be happy and in relationsships pretending it’s all good”-boat. I don’t see anything to gain from it, and that leaves me with a sligthtly more bitter, but also more critical attitude. I don’t care if you think that’s “having a bad attitude”. Maybe I think your mindset is underestimating the issue and beingg naive. But all in all I don’t need anther argument and I’ll be quiet here, as long as nobody is gonna imply that I creat my own misery, cause like I said REALITY created my misery and the problem is my dick not my mind, otherwise I wouldn’t be here, I woukd be on a body dysmorphia forum instead. Me not sharing your attitutide doesn’t mean I’m wrong or crazy.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

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Re: Re: Is life living without sex?
« Reply #68 on: December 25, 2018, 03:38:55 PM »

And picgg, thanks for your input. I also struggle to keep my life together because of this and I’m not trying to complaig, but it’s the reality. The reason I got angry is because I don’t like how people asume I don’t try to fix my life while I actually do keep it together and work hard to do so. But despite all that, in the end of th day my thoughts are the same as in the beginning, and that thought is “having a damaged dick is kinda f'~c<+d up” and what I’m trying to say is that I’m not like you guys that I eventually think “mehh, a dickless life is o.k for me too!”. I just do not get how people dismiss reality, because it’s less harsh on the psyche to just dismiss problems as not that severe, while I feel that I could be more happy being fixed. Anyway, disagree or not. I won’t let myself get drawn to anther discussion, cause this post already esscalted in my opinion.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Hawk

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Re: Re: Is life living without sex?
« Reply #69 on: December 26, 2018, 12:19:24 AM »

POPOPO,  Life is 95% attitude.  I can start with an 8" dick and watch it atrophy to a 5 3/4" dick and have it ruin my work, my relationships, my mental health but then run into a guy with a 5" dick that is living the life of success both with women and with other aspects of life, SO, was it really my dick that destroyed me or my attitude about my dick?  The answer is clear in that example.  It is clear in every example if you think about it.  That is why what Peyronies Disease does to your dick seldom destroys relationships.  It is what it does to the mind that does that.  While cannot always control what Peyronies Disease does to your dick, it IS your responsibility to control what it does to your mind.

You cannot tell a man that has a positive confident attitude about Peyronies Disease that has enabled his success with women and career, ............  that he has a faulty attitude that underestimates his situation.  It is his attitude that made the situation a success.  It always is the attitude that lifts you or crushes you, not your dick.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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