Tony’s excision, grafting and implant diary.

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Hawk

As I understand it the incisions on the tunica would not have stitches because that would defeat the purpose of the incisions which is to relax the scar tissue.  In my case at least there were also no stitches in the skin other than the vertical scrotal incision which was large enough to give access to the base area if the penis that needed the incisions.  I don't even have a slight trace of a scar at this point.  I was however more sore on the one side of the base of my penis after surgery.

I will present a couple of questions to Dr. Eid about this issue and report back to the forum.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Alibaba

there are carvertomes specifically made for this purpose. I think they have merit in their use. I do not have a picture at hand but they look very much like a wood rasp. Next month will be 2 years in on my implant and I do not think that manual manipulation along with a Titan alone can handle the toughest scar tissue. Dr. Kramer told me he had considered inflating me to 100% after surgery but "thought the pain would be cruel".  On afterthought now I think with a good roughing up of scar tissue, that would have made perfect sense for an exacting straight dick.  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

TonySa

Figured out w cialis or viagra my glans has full engorgement and girth rounds out due to engourgement of corpus spongiosum.  Now almost at original 6.75".  Sensitivity has returned and now can usually easily orgasm.  Someone asked for updated pics, so if interested see: https://www.peyroniesforum.net/index.php/topic,10616.msg100640.html#msg100640
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Man... I've seen the pictures... Such a dramatic improvement! Congrats, I am stunned! I would never say you had surgery just by looking at the last picture!! :o amazing how you have no bulges or humps. Did you regained some length, or you basically maintained?  

TonySa

Before surgery I regained lost length from peyronies by VED, traction & supplements.  Post surgery now—no lost length from presurgery.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Very nice Tony!  glad I followed your success story. Here's hoping it lasts you a long time till your revision!  8)

Pfract

 Hey Tony! I was thinking the other day in your situation. Now that a good amount of time has passed and you are fully healed, what do you have to say about your penis? Pre peyronies VS implant? How about the bulge post full deflation vs how it used to be?

TonySa

Hello pfract, I'm quite happy with my post surgery dick.  It's close to my pre-peyronies state and 1000% better than with peyronies.  The hang has lessened, and therefore the bulge but certainly a shower rather than grower.  Pics here: https://www.peyroniesforum.net/index.php?topic=10616.msg107716#msg107716
PS, pics show deflated but also, with 1-2 pumps as that's where I tend to have it which minimizes the dog ears.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract


Pfract

Hey... I'm thinking... Would you have any issues tucking your penis sideways like at a 65/70 angle to the left on your boxers? Flaccid, I mean. Or it tries to stay straight on all the time unless you tug it to whatever side you feel like?  

Alibaba

It looks perfect Tony. Give it a few more months and the dog ears will be no issue any more. I think a couple of pumps like you are doing helps condition your implant and weenie so they stay smooth over time.  Cheers man. Great outcome and posts.
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

TonySa

Thxs alibaba.
Pfract, I usually wear it to the left side at 10-11 O'clock or up at 12 O'clock.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

New development.
Dr Karpman placed my tips nicely uniform and high in the glans.  Now, after full healing one has shifted down lower than the other.  Anyone ever heard of this happening?  I'll give him a call tomorrow of course.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Hey Tony! You meant Dr Karpman?I only heard and read about erosion through the glans. Is it possible that with cycling you have regained some size and that caused the area at the perineum to become looser? Do you have any pain or discomfort? How do you feel about emailing Dr Kramer in Baltimore about this?  

TonySa

Oops, I incorrectly said kramer rather than Karpman.  I'll call him tomorrow.  Can't understand why the size may have changed only for one side.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

I've read a little more and apparently this can happen if a bit of curve returns and can be remedied by adding a RTE.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract


Hawk

I have no real input on this but wish you the best and am very interested in your updates.

Does it seem problematic at all in either feel, sensation, pain, or aesthetics?  
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alibaba

Quote from: TonySa on April 21, 2019, 10:06:23 PM
I've read a little more and apparently this can happen if a bit of curve returns and can be remedied by adding a RTE.

I have read the same. I have a left curve and my left cylinder tip withdraws down to glans level when deflated. It feels to me the withdrawal goes all the way down to tubing exit level. When I start pumping it back up, it feel like the crunching I feel and shift that starts to push the tip back is at the tubing exit from the cavernosa level. Do you feel a crunch when yours moves back in place?  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

TonySa

It doesn't seem to move back in place, but I'll check again tonight.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

MailMan38


TonySa

Well, one tip is lower than the other...it's not creating any problems so I'm ok w it.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

Update 10 months post up.
Post surgery and after regular daily cycling my inflated BPE length is 6.5".  I have definitely regained all my pre-peyronies length.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Another happy implantee!  Very nice to know Tony.  8)

Hawk

Great news Tony.  You have an AMS CX right?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

Yes, AMS CX due to peyronies (more rigid than LX).
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alibaba

Great news Tony. Glad you went to a reputable doctor. The CX was the right decision and sometimes on revision, people are able to go to the LGX if things remain straight and they need more girth.  

For others wondering why the CX; it is more rigid and has limited expansion.  The LGX expands in 2 directions but being so, imagine a balloon deflated. Wrap some tape or your hand around the middle of the deflated balloon, then inflate it.  It will inflate on each side of the tape but the tape section will still be skinny. That is what the scar tissue does when you have a pinched penis section or Peyronies on one side. The CX has a more rigid and controlled inflation profile to deal with this situation. Cheers all and again Tony, I am thrilled you have regained your length.  Nesbit and such procedures just add to the scar profile if you ever need an implant and shorten.  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

TonySa

A bit of a set back.  The pump is apparently somewhat defective.  After 5 minutes or so of use I need to add 3-5 pumps to return to max inflation.  Apparently with pressure there's some back flow.  I'm looking of having it replaced w a Titan for a few reasons.  It's more rigid and w intercourse I've always found it not quite stiff enough, a smaller pump, and cylinders that round out more.  Will keep all posted.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Roddy

Ah sorry to hear this, Tony. A hassle and inconvenience you could no doubt do without. When are you talking?
Aged 51 congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019 (aged 47) to correct a 90 degree bend
Dr. Mike Fraser - Glasgow, Scotland.

Stepone

Tony, sorry to read about the problems you are having. I can't imagine what you are going through. I feel hopeful for you that options for you will give you a better life. So sorry, but at least their is an opportunity to improve things. Stay in touch and prayers are coming your way.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

samsung

Sorry to hear about the new developments. I hope you find a solution soon that suits you.
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

Thanks all, Dr Karpman is seeking insurance approval for the revision surgery.  I'm quite hopeful and encouraged recovery will be much quicker as I will not need the degloving, excision and grafting as before.  I'll keep you posted.  Thank goddess for the miracles of modern medicine and that I have good insurance 😊
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

Good luck my friend.  Since the actual implant has a life-time warranty for the device is there and issue with going with asking your insurance to pay for a different brand?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

I hope not, but will let you know once I hear.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

It's very sad to read the new updates on your story tony. Hopefully it goes much smoother now once you get your revision. You will also be like Alibaba, that had the two implants installed.

Is it out of the question to travel to see either Dr. Kramer or Dr. Eid? i know you are confident with your doctor, but i wondered for a little bit.

TonySa

I'd go to Dr Eid if he was I my insurance plan but he's not.  I view Dr Karpman and Dr Karpman as comparable.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

He has no problems installing a Titan on you?  

TonySa

No, I explained I was disillusioned  w AMS given pump problem.  He'll do the Titan, but guys will essentially have to explain it's all their interested in.  I understand Dr Kramer also prefers AMS.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TonySa

Insurance denied the authorization for revision surgery, but after two weeks and a dozen phone calls to multiple people they overturned the denial.  Always appeal all insurance denials vigorously, and reach out for help if needed 😎
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Sounds like a great Christmas present Tony! Happy for you!  8)

Stabler

Great news and you are correct ALWAYS appeal and fight for your coverage.

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Stepone

Tony, so happy for you.
I know it's tough to appeal for help.
Some insurance companies aren't even familiar with penis implants.
If one of the major news stations posted a 3 minute segment on penis implants, not only would a lot of men that suffer because of poorly trained urologists find hope, but insurance companies might be forced to comply a little more.
Best wishes and stay in touch.
I will pray for you buddy.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC