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Author Topic: Xiaflex and traction NOT WORKING!!  (Read 1781 times)

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Jfriction

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Xiaflex and traction NOT WORKING!!
« on: September 10, 2018, 12:19:27 AM »

Hey guys, I wear a traction device for many hours a day, and I'm done with my 2nd round of Xiaflex. I also do hand modeling several times a day. No reduction in curvature at all...!

Do any of you have any suggestions or new tactics to reduce the curve? I'm getting really discouraged, and I'm out a ton of $$$. 😥
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QuackAttack

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Re: Xiaflex and traction NOT WORKING!!
« Reply #1 on: September 10, 2018, 08:08:16 PM »

J,

I went through 8 cycles of Xiaflex with only moderate reduction. The average reduction is 30 degrees, but when you have a 60 curvature, 30 degrees is progress, but it is still annoying that you have a significant curve. I didn't see any change until my 3rd and 4th cycles, then little if anything after that. I am convinced that the only guarantee is surgical, plication or otherwise. However, I am going to exhaust all of my options before going down that route. I am in about to have my 7th cycle of Verapimil and if that continues to be a dud, I am likely going to try Botox. Fortunately, my treatments are covered 100% by the military.
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betterbend

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Re: Xiaflex and traction NOT WORKING!!
« Reply #2 on: September 10, 2018, 08:25:52 PM »

Hey guys, I wear a traction device for many hours a day, and I'm done with my 2nd round of Xiaflex. I also do hand modeling several times a day. No reduction in curvature at all...!

Do any of you have any suggestions or new tactics to reduce the curve? I'm getting really discouraged, and I'm out a ton of $$$. 😥

THere should be an evaluation after two rounds.  If there is little to no improvement then it is recommended to stop.  Unfortunately it doesn't work for everybody
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55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

Pfract

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Re: Xiaflex and traction NOT WORKING!!
« Reply #3 on: September 10, 2018, 10:54:07 PM »

@jfriction: time to try the restorex?

Jfriction

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Re: Xiaflex and traction NOT WORKING!!
« Reply #4 on: September 11, 2018, 09:35:35 AM »

thanks for the input. I'm going to keep going with it. My insurance is covering it through the rest of the year so I think I can do two or three more sessions. I really don't want surgery because I've heard that 30% of the people that get plication surgery and up with Erectile Dysfunction. I really don't want that to happen. I wear my traction device about 5 hours a day sometimes more on weekends. I'm just hoping something will give eventually.
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Jfriction

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Re: Xiaflex and traction NOT WORKING!!
« Reply #5 on: September 11, 2018, 09:46:17 AM »

I've never heard about Botox therapy for Peyronie's disease. What does that entail exactly?
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TonySa

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Re: Xiaflex and traction NOT WORKING!!
« Reply #6 on: September 11, 2018, 10:39:05 AM »

I believe there is a Botox related treatment for Erectile Dysfunction
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

BAtBAt

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Re: Xiaflex and traction NOT WORKING!!
« Reply #7 on: March 07, 2019, 03:49:57 AM »

Check Mr. Amr Raheem, sounds interesting and seems logical. That toxin relaxes the muscles.
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23 yo. Sympt 6m ago. Diag, possible pre-/peyroines and v leak after injuries. Had 2US, MRI, +5 doc & 6 urolog, 1 and

Erectile Dysfunction, sensation & natural or night erect loss, wid&leng loss, hard flaccid, hourglas inde, scars/lumps, no curv
TBC France Androlo

BAtBAt

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Re: Xiaflex and traction NOT WORKING!!
« Reply #8 on: March 08, 2019, 03:48:55 AM »

the blood flow depends also on the correct smooth soft muscle relaxation.
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23 yo. Sympt 6m ago. Diag, possible pre-/peyroines and v leak after injuries. Had 2US, MRI, +5 doc & 6 urolog, 1 and

Erectile Dysfunction, sensation & natural or night erect loss, wid&leng loss, hard flaccid, hourglas inde, scars/lumps, no curv
TBC France Androlo
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