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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: No results from xiaflex so far  (Read 1260 times)

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Jfriction

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No results from xiaflex so far
« on: September 03, 2018, 05:42:24 PM »

Hi all. I have had 2 rounds of xiaflex (4 shots). My curve hasnt changed a bit. Still 30 degrees to the left. I'm feeling lost at this point. Have any of you experienced results later in the treatment cycle, but none in the beginning? I wear esl40 for at least 5 hours a day.
Thank you .
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skunkworks

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Re: No results from xiaflex so far
« Reply #1 on: September 03, 2018, 10:58:50 PM »

What sort of modelling has your urologist been doing?
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Review of current treatment options by Levine and Sherer]

TonySa

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Re: No results from xiaflex so far
« Reply #2 on: September 04, 2018, 02:40:09 AM »

I experienced most of my reduction after 3rd and 5th round as I recall...down from 90 to 55-60.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Jfriction

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Re: No results from xiaflex so far
« Reply #3 on: September 04, 2018, 01:03:48 PM »

My doctor doesn't do modeling in office. I just wear the esl40 device for 5 hrs plus a day.
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TonySa

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Re: No results from xiaflex so far
« Reply #4 on: September 04, 2018, 02:11:43 PM »

How long since the second round of injections?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Jfriction

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Re: No results from xiaflex so far
« Reply #5 on: September 04, 2018, 05:33:00 PM »

It's been 2 weeks and 4 days...
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TonySa

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Re: No results from xiaflex so far
« Reply #6 on: September 04, 2018, 07:51:58 PM »

That may be a bit early to see the full effects from round two...at 6 weeks you should have the full effect but I do believe that the strongest effect is seen the first week or two after the injections.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Jfriction

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Re: No results from xiaflex so far
« Reply #7 on: September 04, 2018, 08:32:01 PM »

thanks for the info man. I really appreciate it. I'm glad to have found this forum so I can get insight on things like this!
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Pfract

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Re: No results from xiaflex so far
« Reply #8 on: September 05, 2018, 01:02:37 AM »

Why not try the restorex, and bend it contrary to your curve?

Jfriction

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Re: No results from xiaflex so far
« Reply #9 on: September 05, 2018, 08:30:42 AM »

Have you had good results with restore X?
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