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Author Topic: Recommendations for surgeon in Uk  (Read 1016 times)

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MarkDS

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Recommendations for surgeon in Uk
« on: June 24, 2018, 03:49:14 AM »

Hi all

I’ve seen one specialist who is now recommending grafting surgery due to my 80 degree bend.  This is recommended after seeing some photos I have shown him.

I wondered if anyone had recommendations of surgeons in the UK, possibly in the South West, although it seems most are in London.

Also any feedback on surgeries completed by Mr Rees in Southampton?

Thanks guys
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Peyronie’s started in 2016, resulting in upward curve of around 100 degrees. Incision and grafting surgery in 6/2019.  Resulted in loss of length of over 1 inch, and residual curve of over 40 degrees.  12/2019 had skin anchoring and partial lig cut

Stabler

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Re: Recommendations for surgeon in Uk
« Reply #1 on: June 24, 2018, 08:15:03 AM »

Hello MarkDs

You might try going through our list of specialist and see who might be close to your area.

http://www.peyroniesforum.net/index.php/topic,4063.0.html

Stabler67
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Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

MarkDS

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Re: Recommendations for surgeon in Uk
« Reply #2 on: June 24, 2018, 10:20:47 AM »

Thanks.  Not many in the Uk, and the two in the south west do not appear to specialise in Peyronie’s

I’m not likely to have surgery for a couple of months, so I guess I’ll try some alternative treatments.  Are these available through the nhs, or is it just a case of buying things privately?
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Peyronie’s started in 2016, resulting in upward curve of around 100 degrees. Incision and grafting surgery in 6/2019.  Resulted in loss of length of over 1 inch, and residual curve of over 40 degrees.  12/2019 had skin anchoring and partial lig cut

Stabler

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Re: Recommendations for surgeon in Uk
« Reply #3 on: June 24, 2018, 10:22:20 AM »

Well make sure to look for replies to your post, members that live in or close to your area may have recommendations for you, first hand knowledge of who they have seen.

Stabler67
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Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

TonySa

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Re: Recommendations for surgeon in Uk
« Reply #4 on: June 24, 2018, 11:29:48 AM »

Even if you go through with the surgery, traction before and after (as recommended) will help minimize any loss in length.  I’ve gone from 90 to approx 50 with xiaflex and traction.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

MarkDS

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Re: Recommendations for surgeon in Uk
« Reply #5 on: June 24, 2018, 12:03:28 PM »

I asked about xiaflex, but it’s so expensive.  I could get one injection on my insurance, but I do not think you can get it on the NHS in the UK
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Peyronie’s started in 2016, resulting in upward curve of around 100 degrees. Incision and grafting surgery in 6/2019.  Resulted in loss of length of over 1 inch, and residual curve of over 40 degrees.  12/2019 had skin anchoring and partial lig cut

peyronies_dave

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Re: Recommendations for surgeon in Uk
« Reply #6 on: July 12, 2018, 03:55:12 AM »

I'm based in Halifax, West Yorkshire and was initially under the care of my local consultant urologist. He ended up referring me to a consultant surgeon who specialises in penile reconstruction, Peyronie's and implants. So now I'm in the care of Oliver Kayes at St James's University Hospital in Leeds. Currently waiting for my date to have penile implant and grafting/reconstruction surgery.

Obviously, I cannot report back on my own experience of the surgery as of yet. However, I'm a journalist by profession so cursed with a research obsession - and Mr Kayes ticks all the boxes in terms of experience etc, as well as teaching in the subject at the Leeds University Hospital group. I've spent a fair amount of time consulting with him to get to this stage, and he's been pretty frank about the options and answered every question I've asked both honestly and without glossing over the downsides. Bearing in mind that this is all on the NHS, not a private thing, I'm more than satisfied so far!
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UK-based, mid-fifties, 'complex' peyronie's with Erectile Dysfunction, awaiting graft + implant surgery on NHS
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