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George999

nebula,  It all makes sense to me.  Looks like you are on the right track.  - George

Fred22

Quote from: nebula on July 07, 2011, 12:19:36 AM
George, I'm not expecting miracles with the Astaxanthin or for it to be a magic bullet. The potential to help with Peyronie's, even if only minor, is only one of its many benefits that appeal to me. The stuff is just good for you in so many ways. I'm taking it more for overall health and keeping in the back of my mind that it COULD help Peyronie's but has no guarantees. As for the Pentox, I know it's overall the most effective treatment for Peyronie's right now, but I don't feel like it's going to help me and my uro seems to agree. Pain has never been an issue for me and I have no noticeable plaque, so he was hesitant about prescribing it for me in the first place. I know for a lot of guys, resolving the pain alone is a reason to take it. The only thing its really seemed to do for me is increase my anxiety and worsen my existing digestive issues. Aside from that, I have some fungal issues I'm trying to take care of and I think I remember reading on here about how you did as well and had to stop the Pentox for a while due to it suppressing the immune system. All in all it just doesn't seem like it's worth continuing right now. Although if by some chance I do notice anything going downhill, I will be sure to get back on it.

I had to discontinue pentox due to spike in anxiety as well.  If you already suffer from generalized anxiety disorder it will definitely increase your anxiety...or it did mine.

Fred22

Quote from: crashbandit on July 06, 2011, 12:07:54 PM
Hi George,

How did that Billberry work for you?

I've heard through the grapevine that astaxanthin should always be taken in the natural form and not the synthetic form. I heard the synthetic version of Astaxanthin is dangerous. Is this true? I'm taking the "NOW" astaxanthin 4mg veggie tabs and I'm pretty sure they are naturally cultivated from Hawaii.

Is the "NOW" brand of Astaxanthin 100% natural?

I don't believe the NOW brand is natural.  If you read the label it says "Made from Xanthin and then something about C02 extraction.  Well, the Swanson brand says the exact same thing....I called Swanson and they said that their brand was not natural (because of the C02 extraction process).  Nutrex Hawaii BioAstin is 100% natural astaxanthin.

Fred22

I e-mailed Nutrex Hawaii and asked some questions.  I got a reply which contained a book about astaxanthin that they have published (Cyanotech Corp.).  I assume if you e-mail and express an interest (or tell them you're taking their brand which is called BioAstin) they'll send you a copy of the book (pdf attachment).  The e-mail is bcapelli@cyanotech.com.  I've just scanned through it but it looks very informative....Fred

jetedwardz

ordering this stuff tomorrow too ill try to find the all natural brand prev listed

Fred22

Quote from: jetedwardz on July 07, 2011, 09:54:55 PM
ordering this stuff tomorrow too ill try to find the all natural brand prev listed

Swansons has it and they are very reliable and prices are good.

crashbandit

Quote from: Fred22 on July 07, 2011, 11:36:37 AM
Quote from: crashbandit on July 06, 2011, 12:07:54 PM
Hi George,

How did that Billberry work for you?

I've heard through the grapevine that astaxanthin should always be taken in the natural form and not the synthetic form. I heard the synthetic version of Astaxanthin is dangerous. Is this true? I'm taking the "NOW" astaxanthin 4mg veggie tabs and I'm pretty sure they are naturally cultivated from Hawaii.

Is the "NOW" brand of Astaxanthin 100% natural?

I don't believe the NOW brand is natural.  If you read the label it says "Made from Xanthin and then something about C02 extraction.  Well, the Swanson brand says the exact same thing....I called Swanson and they said that their brand was not natural (because of the C02 extraction process).  Nutrex Hawaii BioAstin is 100% natural astaxanthin.

SOn of a Bitc.... You gotta stay on top of these scammers like flies on crap! I just wrote NOW foods right now and I'll/ we will solve this once and for all.
Cheers

George999

Hey guys!  Good sleuthing!  Actually on my last order from iHerb, I switched to the Jarrow brand on Astaxanthin.  And now I read this which made me run out and pull a bottle of Jarrow's product.  Turns out its repackaged BioAstin Natural Astaxanthin.  Well it will be interesting if I see a difference.  I'm certainly glad I made the switch.  I didn't have a clue that the Now product was not natural.  We had some suspicious issues with Now's vitamin D so I'm in the process of switching away from the Now brand as I reorder.  But thanks guys, Fred especially of course, for all the great information.  You are really on top of this stuff.

NEW INFORMATION -

Just to CLARIFY this whole issue further.  There is such a thing as synthetic astaxanthin.  The NOW product is NOT synthetic.  It is rather a refined extract of Astaxanthin, thus the term "CO2 extraction".  The BioAstin product, on the other hand, is apparently pure astaxanthin.  This is rather like the difference between whole orange juice and orange juice made from concentrate.  The NOW product is not artificially flavored orange Kool Aid.  Rather it is the stuff made from concentrate.  While I agree that the 100% natural whole product is probably better, I don't think the NOW product is all that bad based on this perspective.  - George

crashbandit

Yep, I just got the email abck from NOW foods.

100% Natural Algae derived Astaxanthin. Other capsule ingredients are natural sourced as well:

http://www.nowfoods.com/Products/ProductsbyCategory/Category/081798.htm?cat=Antioxidants

Thank you for your inquiry,
NOW Science & Nutrition Group

So that makes sense goerge. It's sounds like the NOW foods Astaxanthin is grown in a lab rather then naturally cultivated in the wild. I'm going to try the good stuff by Jarrow brand aswell.
Cheers

sgtnick

Crash & George

Ubiquinol or Astaxanthin?

According to Dr. OZ we need to take a minimum of 184 supplements daily! ;D   So how do we figure out which of the two antioxidants to take?

Not long ago I read that Ubiquinol would revolutionize heart disease, now Astaxanthin pushers are claiming that we can't live without it, what are we to do? :-\

How much is prescribed?

Amazon:  BioAstin, 4mg, 120 count  -  $21

George999

Quote from: sgtnick on July 15, 2011, 10:49:10 PM
Crash & George

Ubiquinol or Astaxanthin?

According to Dr. OZ we need to take a minimum of 184 supplements daily! ;D   So how do we figure out which of the two antioxidants to take?

Not long ago I read that Ubiquinol would revolutionize heart disease, now Astaxanthin pushers are claiming that we can't live without it, what are we to do? :-\

How much is prescribed?

Amazon:  BioAstin, 4mg, 120 count  -  $21

Nick,  I agree.  It can be confusing.  There is much good information attesting to the benefits of all of this long list of supplements and of what each can potentially do for you.  But what to do?  Who has the time to gobble all of these pills or even to be able to afford them?  I think the solution is to try to concentrate on the big hitters and to get as much as possible in terms of nutrition from diet.  I also think that what might be the big hitters for one person might not be the same for another.  For a few years now, I have been taking a LOT of supplements.  At this point, my health having improved incredibly and my weight having gone from 200lbs to 150lbs, I am on a path of tapering off these supplements.  Even those at the top of my list such as fish oil and CoQ10, I will probably reduce the amount I am taking.  Instead I am going to channel my resources to high quality food.  But all of these supplements are functional in some way, some more than others.  You have to figure out what works for you and what you can afford and do it.  You also have to figure out what your priorities are at a given point in time.  It also helps to have blood testing along the way to provide insights.  Its not easy!  The goal for me is and has always been to roll back any shadow of metabolic syndrome in my body and to use whatever it takes to do that in the process.  At this point that is rapidly becoming more of a food based project rather than a supplement based project.  - George

sgtnick

George

Yeah, LIFE is about "prioritizing" and moderation.  Some of my priorities change everyday and that can be a hassle.  But for the most part the big things are usually very consistent.  Diet, exercise, sleep have begun to take on a very high priority.  I also lost weight, 180 to 150 and I usually eat high quality food.  I have a pair of German Shepherds and they MUST be exercised daily or they become disorderly.  They take me for a three mile walk everyday.   So, therefore, I usually can make most things fall into place with just a little effort.

The  FIRST  priority in my life is trying to maintain a proper relationship with the One who created me!  That is the hardest.

I agree with you about heavy hitters and I believe that antioxidants are very important.  I just don't know enough about them, however, I am intent on knowing what  kind and dosage are most effective.  I use Ubiquinol daily and will continue until I find something better.  Also, I believe that L-Arginine is a very important supplement, but as with most supplements, I am not sure about the dosage.

What I am sure of is the relevance of natural supplements and good health.  We all just need to know how to fine tune our individual needs.

Thanks for your reply and please post anything of importance about supplements.

George999

The accepted dose on Astaxanthin is 4-8mg per day, 4mg being widely considered adequate in most cases.  I did 8mg for a few weeks and 4mg since.  - George

crashbandit

Sockeye salmon is loaded with Astaxanthin (especially wild salmon). I've been wanting to stack my diet with healthy, nutritious, organic foods for a longtime but it's so hard when your not just cooking for yourself.

As usual I'm picking up exactly what George is laying down again. It just makes so much sense, everything that comes out of his brain. Thank you once again George for the insightful, healthy tips:)

I've been veering away from the nutrition side for along time and need to get back on track. Do you recommend those nutrition specialists George? Is organic foods the way to go?  
Cheers

George999

[OFF TOPIC (briefly)] For some food items like celery, it is very important to choose organic.  Others like asparagus and oranges, organic is not so important.  And others like meat and milk, the organic label is meaningless.  What you want with these products are animals that are eating a natural diet NOT an organic diet.  Beef and dairy cattle were not made to eat corn, for example, even it is organic.  They were made to eat grass, case closed.  It makes a big difference in the quality of the meat or milk.  Poultry needs to be "free range".  Fish need to be wild, NOT farmed and eating things nature never intended.  Every food item has a different set of requirements in order to be healthy.  - George

Fred22

Quote from: George999 on July 16, 2011, 11:33:14 AM
The accepted dose on Astaxanthin is 4-8mg per day, 4mg being widely considered adequate in most cases.  I did 8mg for a few weeks and 4mg since.  - George

I'm taking 12 mg. One with each meal along with a little olive oil.  Haven't noticed any difference yet...still in pain unfortunately.

crashbandit

Hey fred,

I have been having on and off pain for the last year in my penis, expecially after ejaculating (sorry for the graphic details). And I know I mentioned trying astaxanthin to you before because I thought it had helped me alot with my pain. But it seems it may have been a coincidence with starting astaxanthin and the diminishing pain i had experienced. As the pain had returned for myself and astaxanthin was unable to halt it. Now I've been trying Celebrex and I have been finding very nice pain reduction. A coincidence again? Perhaps, as my pain has no rhyme or rhythm.

You try Celebrex yet Fred?  
Cheers

Fred22

Quote from: crashbandit on July 31, 2011, 11:15:04 PM
Hey fred,

I have been having on and off pain for the last year in my penis, expecially after ejaculating (sorry for the graphic details). And I know I mentioned trying astaxanthin to you before because I thought it had helped me alot with my pain. But it seems it may have been a coincidence with starting astaxanthin and the diminishing pain i had experienced. As the pain had returned for myself and astaxanthin was unable to halt it. Now I've been trying Celebrex and I have been finding very nice pain reduction. A coincidence again? Perhaps, as my pain has no rhyme or rhythm.

You try Celebrex yet Fred?

You're right about the "no rhyme or reason" thing.  I though ubiquinol was working for me for months, then suddenly bad painful erections.  I have not tried Celebrex.  I struggle with chronic constipation (right now I'm on PEG but results are unpredictable...have been combining double doses of PEG with some milk of magnesia).  Does Celebrex constipate you?  I'd try most anything at this point....over 5 freaking years of pain and now prostate cancer, numbness in feet, etc.  I feel like Ratso in Midnight Cowboy ("I'm fallin' apaat heah").  HELP!!!

PablitoNJ

Hi all,

Please excuse any newbie errors. I've been searching the site and combing through the posts. I'm 46 and my Peyronie's started in July. Since then I've been taking Vitamin E and Colchine. My curvature wasn't too bad but there was some hour glassing. My doctor recommended a specialist in NY City who suggested I get Verapamil injections. The Verapamil has helped with the pain but my curvature has gotten worse over the course of 5 injections. I'm looking for advice on supplements.

From what I read on the forum I've come to the conclusion I will need to start a regiment of the following, but can't find a consensus on the recommended dosage.

Pentox 400mg 3 x day
L-Arginine - is there a recommended dosage?
Acetyl L Carnitine - is there a recommended dosage?
Ubiquinol - is there a recommended dosage?

Anything I've missed?

Thank you all for your help. This forum has been such a great resource.

Paul

George999

Pentoxifylline 400mg 3X/day with meals ONLY (this is a prescription drug that only the top Peyronie's specialists will prescribe)
Acetyl L Carnitine 2-3g/day
Ubiquinol 100mg 3X/day

For relative effectiveness of available treatments see -> http://knol.google.com/k/peyronie-s-disease-acquired-deformity-of-the-penis#



Quote from: PablitoNJ on November 04, 2011, 11:04:24 AM
Hi all,

Please excuse any newbie errors. I've been searching the site and combing through the posts. I'm 46 and my Peyronie's started in July. Since then I've been taking Vitamin E and Colchine. My curvature wasn't too bad but there was some hour glassing. My doctor recommended a specialist in NY City who suggested I get Verapamil injections. The Verapamil has helped with the pain but my curvature has gotten worse over the course of 5 injections. I'm looking for advice on supplements.

From what I read on the forum I've come to the conclusion I will need to start a regiment of the following, but can't find a consensus on the recommended dosage.

Pentox 400mg 3 x day
L-Arginine - is there a recommended dosage?
Acetyl L Carnitine - is there a recommended dosage?
Ubiquinol - is there a recommended dosage?

Anything I've missed?

Thank you all for your help. This forum has been such a great resource.

Paul

PablitoNJ

Thank you George. I appreciate the quick reply.

corvette2010

Pentox,l-arginine and coq10 (I'm only 27, ubiqiunol if older) have stopped my pain. Still have hourglassing but i've only been on it for 6 weeks. And I'm only taking pentox and coq10 twice a day bc 3x gave me bad headaches, even with food, and 5g of powder arginine before bed. I'm encouraged by how I'm feeling now.  

slowandsteady

There is an article in the LEF magazine about supplementing with collagen type 2 for arthritis. The proposed method of action was that the supplement trains the immune system not to attack the body's type 2 collagen. It crossed my mind that it might be beneficial for Peyronies Disease.

The types of collagen involved in Peyronies Disease are types I and III though, which are also available as a supplement. Perhaps the same mechanism might apply here.

I've written about how I'm also suffering from plantar fasciitis, which a lot of other runners get that involves a thickening of the plantar fascia under the feet. Guess what, it also involves collagen types I and III. I have some on order for a trial, and I'll post back with the results.

s&s

George999

Interesting!  Good connection!  I hope it works for you, keep us up to date on the outcome.  - George

slowandsteady

Another, perhaps better, avenue would be to make and eat bone broths.

QuoteTwo hours simmering is enough to extract flavors and gelatin from fish broth. Larger animals take longer--all day for broth made from chicken, turkey or duck and overnight for beef broth.

james1947

Interesting article. Some places in Eastern Europe have traditional meals made of chicken or calf legs/bones.
They are very tasty and need just bread to have a meal. If is also healthy, much better.
James  
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

dioporcolorisolvo

Hi, i order supplements as ubiquinol for example from SwansonVitamins site.
Also Brand is Swanson.
I've seen that their price is lowest.

But, how can we verify the quality of their products?

More in generally, how can we verify the quality of a BRAND of supplements?

LauRenT

dioporcolorisolvo
In my case, i buy Ubiquinol ( and all my supplements ) in Super-Smart.eu. Good comments and for me one of the most serious in Europe.

http://www.super-smart.eu/en--Cardiovascolare--Ubiquinol-100-mg--0479

Ubiquinol is the most expensive oral treatment for me. But yes, when i see the diference between the SwansonVitamin and Super-smart.eu 's prices, i don't know why i pay the same product nearly 45 euros more.....

George999

In the case of Ubiquinol, you only need to verify that the Ubiquinol in the product is made by Kaneka.  If it is, it is the same stuff no matter what the brand on the label is.  ONLY the additives are different and Ubiquinol is the active ingredient.  -  George

Luciano

Quote from: LauRenT on January 26, 2012, 12:07:28 PM
dioporcolorisolvo
In my case, i buy Ubiquinol ( and all my supplements ) in Super-Smart.eu. Good comments and for me one of the most serious in Europe.

http://www.super-smart.eu/en--Cardiovascolare--Ubiquinol-100-mg--0479

Ubiquinol is the most expensive oral treatment for me. But yes, when i see the diference between the SwansonVitamin and Super-smart.eu 's prices, i don't know why i pay the same product nearly 45 euros more.....

swanson comes to about $ 0.36 per 100mg cap
yours (from Super-Smart.eu) is about $ 1.26 per 100mg
(I converted to $)
you can get it here in europe at  $ 0.64 per 100mg capsule


http://www.dolphinfitness.co.uk/en/pharma-nord-bio-active-q10-ubiquinol-100mg-150-capsules/23497

its €75 for 150 100mg capsules and it says Kaneka on the package. (George is right! thats the important thing)
Thats the one I take. Never had a problem with delivery (as they are inside the EU they have to respect some standards)

Luc

Luciano


LauRenT

Thanks Luciano for the link, i'll make order there for Ubiquinol, Vitamin d3, ALC, Pycnogenol. Definitly cheaper and good products.

dioporcolorisolvo

Quote from: George999 on January 26, 2012, 12:50:10 PM
In the case of Ubiquinol, you only need to verify that the Ubiquinol in the product is made by Kaneka.  If it is, it is the same stuff no matter what the brand on the label is.  ONLY the additives are different and Ubiquinol is the active ingredient.  -  George

Ok George, but how to undestand the great difference of price between Swanson Brand and for example Ubiquinol sold in Europe?

George999

Its either additives or markup.  As far as I know they all pay the same price to Kaneka ... UNLESS some of the low price sellers are getting huge volume discounts.

chefcasey

I was wondering if anyone knew of any supplements that promote elastin production. With things like xiaflex it seem like we may be close to solving the elimination of excess collagen in peyronies, but what about the other half of the equation, the loss of elastin? Please let me know if anyone has any thoughts.  

George999