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Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 259756 times)

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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #650 on: November 27, 2015, 07:00:50 PM »

Quote from Lucketts
Quote
Dr. Zahalsky may be on to something very big
You mean very big on the medical field, to help the sufferers, or very big in filling up his bank account? 8)
Sorry for my cynical sentence above, but I will not take seriously that he is telling he had 100% results but no any clinical trials.

James
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pfract

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #651 on: November 28, 2015, 12:28:49 AM »

I am with James on this. I hardly believe there lots of truth in this doctors opinion...

hof1988

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #652 on: November 28, 2015, 10:49:23 AM »

Let's start a go fund me account.  We all donate $100 for one person to try the treatment at Dr Z. and than they report their results on here.  I'm fine with taking a $100 hit opposed to $3,000. 

Also, he does not use Adipose Stem Cells like California.  He uses Placental Stem Cells, but where he gets them from I don't know.  This would be something good to find out... his clinic is connected with UroStem which may be the supplier. 
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kuaka

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #653 on: November 29, 2015, 06:54:32 AM »

Unbelievable claims are exactly that.  If he really is on to something, it will become apparent over time, but I would not get too excited just yet.  We so afflicted are prime targets for snake oil as we are willing to commit mucho dinero to fix this.
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pfract

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #654 on: November 29, 2015, 09:45:33 AM »

That's what's happening in some posts i read, kuaka. Snake oil treatment believers.... But to some extent i understand. People try to think positive things about treatments which are not going to solve their problem. Like this stem cells for example...

Jack1909

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #655 on: November 29, 2015, 10:05:46 AM »

I am the first to be skeptical about my future, but there is no reason why I and we have to post our pessimism over and over again as some members do here. I understand, some in here have been suffering for decades and they do not believe in anything anymore. But this not obliges us to bring other new members/new suffers down, who, luckily, will have a cure in a couple of years. Just not post if you think there is no hope from here to the next 1000 years. Hope is important and people who spread pessimism are useless.
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #656 on: November 29, 2015, 03:59:09 PM »

About Zalansky, I read from his presentation that one patient got Priapism after 6 weeks and he developed a new small plaque.
Do you know how much an injection costs?
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #657 on: November 30, 2015, 07:44:29 PM »

Exactly. If the guy is just a big lyier he woudnt post about this priapism guy. Egydio told me that stem cell should be from ur own body though. So I dont understand this amniotic stem cell then...
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kuaka

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #658 on: December 01, 2015, 08:45:35 AM »

Stem cells are of basically 2 kinds.  Mature body stem cells are available to become essentially anything in order to replace damaged cells.  These are made in your marrow.  These are not quite as malleable as embryonic/amniotic ones though, so the reduced effectiveness of them being "foreign" is countered by the increased effectiveness of them being "new", as in "part of the process of building a human body from scratch".

My daughter is currently receiving stem cells from both her own marrow and amniotic from the baby she lost during her liver treatments.  She is basically getting a liver transplant at the cellular level, and they have her on as much anti-rejection medicine as an organ recipient...but that is unrelated here...but is why I'm informed on the stem cell thing.

The balance of how much better the amniotic cells are at becoming healthy Tunica vs their rejection potential from not being "you" is the question in this case.  I'm not sure what the answer is, but stem cell therapy/transplantation is still a new field of medicine.  Only time will tell.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #659 on: December 01, 2015, 11:29:53 AM »

So, will we collect money for someone to test Zahalsky treatment or not?
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #660 on: December 01, 2015, 11:36:38 AM »

These are the testimonials about him: https://www.zocdoc.com/doctor/michael-zahalsky-md-32753
It doesn`t seem he is a liar.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #661 on: December 01, 2015, 05:02:18 PM »

isteme

Your link is to a pure commercial site, it is not allowed on the forum.
If I was a moderator, was deleting it immediately and giving you a warning!!!
Regarding testimonials, how many you want regarding the miracles of the snake oil? or any subject for this issue
I can write many in a hour if someone will pay me for that.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #662 on: December 04, 2015, 12:04:45 PM »

Actually it doesn`t have any advertisement there. It is a testimonial website that allow you to schedule an appointment with the doc. Maybe there are some fake testimonials there, but for sure it also has true testimonials, since there is even people complaining there...
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #663 on: December 04, 2015, 04:39:28 PM »

amniotic stem cells can seriously lead to cancer if taken from umbilical cord. Adipose derived are much better but you need to purify them before injecting, and this is the biggest problem
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Lucketts

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #664 on: December 05, 2015, 11:51:53 AM »



I find the link by itsme very helpful.  It's simply the standard ZocDoc (very reputable) that describes the doctor.  It shows that he has a pedigree educational background, and that he has published a large number of articles.  As I've mentioned in a prior post, he was also accepted for a presentation to the SE section of the American Urological Association. I have to think that this group would aggressively vet a doc and his presentation before allowing him to speak.

IMHO, all information is good information on products, doctors, etc., and I've never understood why this forum is so quick to delete such information.  I for one have no problem with anything descriptive or promotional -- followed hopefully by member comments on whether it's real or just BS promotional.  I think that I and the other forum members are wise enough to tell the difference, and if its BS, the post will die a quick death. Don't know that moderator censors need to make those decisions for us.  Regarding patient reviews and testimonials, sure there are ringers out there.  But my experience when I look at doc reviews, is that the ones I like have mostly good reviews, and the ones I don't, tend to have negative reviews.  Don't think that most docs have the time, inclination or lack of ethcis to pay and play w/ reviews.

I also agree with the post about not being cynical, being optimistic, and keeping an open mind to new techniques.  But back to Dr. Zahalsky. His approach is unique in the peyronies field, similar to Dr. Morganstern's.  His patient reviews are mostly positive, but a mixed bag.  I wish that he would put his technique through the rather expensive and time consuming clinical trials, so we could see verifiable and objective findings.  Almost all stem cell treatments for the body are on the cutting edge, and outside the NIH/mainstream world.  But time will tell.  Let's hope  it works.  It would be nice if Dr. Z could participate in this Board, and be subject to questions by its members. Is it possible for the moderator to contact him and see? And BTW, my suggestions about censoring less are meant to be constructive.  I am ever mindful and grateful for the time and money spent by the folks running this board. It is such a great resource when living in the lonely world of peyronies.

                                                     Lucketts

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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #665 on: December 05, 2015, 05:05:09 PM »

Lucketts

Unfortunately I am not moderator so for your knowledge I can't censor nothing and no one has censored Istme post.
As no one censored nothing so why it was necessary to post:
Quote
BTW, my suggestions about censoring less are meant to be constructive

James
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LWillisjr

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #666 on: December 05, 2015, 09:26:29 PM »


IMHO, all information is good information on products, doctors, etc., and I've never understood why this forum is so quick to delete such information. 
                                                     Lucketts

Actually I think we pride ourselves on not deleting member's views and opinions no matter how abstract. James is correct in that the link has not been deleted.

We we do look down on are those who come here and try to sell something. We do delete links to sites that try to sell something that we don't agree or support simply to guard those from chasing the easy solution. And we do ban new members who come here trying to sell something. There is nothing easy about Peyronies.

We'll see if this thread dies on its own.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #667 on: December 07, 2015, 09:22:56 PM »

There is no way to doubt about stem cell treatment for peyronie after seeing these videos: Stem Cell Patient Video Testimonials
The center is in Thailand. It seems that Asians are far way from the US in this matter.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #668 on: December 08, 2015, 09:55:30 AM »

We find nothing at Wake Forest website :-/
Just this video about surgery:
Wake Forest MedChannel: Peyronie's: The New Fix for "Bent out of Shape"
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #669 on: December 08, 2015, 10:49:06 AM »

Zahasky research is in all serious websites: peyronie stem cell - PubMed - NCBI
I wish I was american to get it done now.
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hof1988

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #670 on: December 08, 2015, 11:01:29 AM »

Zahasky research is in all serious websites: peyronie stem cell - PubMed - NCBI
I wish I was american to get it done now.

If the link below is the company Dr Z orders his cells from, it may be easier and more affordable just to order the cells yourself and inject the cells the same way someone would inject caverject.  Why pay someone a couple grand just for simply doing an injection. 

http://arthrogenix.com/225-2/
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #671 on: December 08, 2015, 12:11:36 PM »

What is this ArthroGenix – DX100™ link for? I didn`t get that? I didn`t find anything over there about Peyronie`s...
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #672 on: December 08, 2015, 02:17:41 PM »

Hmm, I see now, they sell it: ArthroGenix – Placental Tissue Matrix Therapy
But why do you think Zahalsky is buying it from them? Thank you!
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hof1988

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #673 on: December 10, 2015, 12:40:57 AM »

I emailed Dr Z at Zurology asking where his clinic is purchasing the Placental Matrix Stem Cells from.  But before anyone here gets overly excited, you must read this post from Regenexx.

Regenexx offers regenerative medicine treatments for ligaments and tendons.  I've been researching regenerative medicine for 7 years and Regenexx is legitimate.  Based off of their research Placental Tissue Matrix products do not contain living cells from the companies products that they researched. 

Amniotic Fluid Stem Cells Pros and Cons: More Scams... - Regenexx®
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #674 on: December 10, 2015, 11:27:34 AM »

About Zahalski

How many injections should a patient do to get results?
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #675 on: December 10, 2015, 08:55:47 PM »

Here are the links to his study:
http://medrebels.com/wp-content/uploads/Peyronies-Paper.pdf
http://zurology.com/wp-content/uploads/2014/05/AUA-Presentation-Erectile Dysfunction.pdf
http://zurology.com/wp-content/uploads/2014/05/URO-StemAbstracts.pdf

3 injections for 3 months and then 1 per year for a while.
Specialists in Brazil are saying that some else`s stem cell wouldn`t work without a immunosuppressive remedies, which seems to be complicated. And these studies don`t say anything about immunosuppressive remedies. But it is also true that a lot of patients benefited from the stem cell treatment in China (Stem Cell Patient Video Testimonials).

I get all these critics about stem cell, but it is a fact that some people are being cured with them. If we use verapamil and these other things that is more than proved that don`t work, why not to give it a try? He are some other links of my research:

Jeff Blank - Ataxia - (He says some stuff about how the stem cells are done I think)

Transplante de Células-Tronco Hematopoéticas (TCTH) - ABRALE

IPCT – Instituto de Pesquisas com Células-Tronco

http://www.celulastroncobrasil.com.br/Contato

Wake Forest Institute for Regenerative Medicine (WFIRM) - Wake Forest School of Medicine

Wake Forest MedChannel: Peyronie's: The New Fix for "Bent out of Shape"

http://uroweb.org/wp-content/uploads/16-PenileCurvature_LR.pdf

Has Anyone Been To China Or Thailand For Stemcell? - Spinal Cord Injury Research And Surveys - Quadriplegic and Paraplegic Spinal Cord Injuries

About SCN - Stem Cell Network
http://www.stemcellnetwork.ca/wp-content/uploads/2014/07/2014-2015.pdf

Stem Cells and Adult stem cell injections for Peyronie's - Peyronies Society Forums

Zurology offers "Placental Matrix Derived Stem Cell Therapy" for Peyronies & Erectile Dysfunction

https://www.youtube.com/watch?v=53lCRy2aMaY 8:32

-------
The rocky road to regulation : article : Nature Reports Stem Cells
Stem Cells Fraud Scheme in U.S. Leads to Arrests
Stem cell tourism poses risks
The Cell Peddlers | Dealing Hope To Desperate Families - Reaching for answers
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #676 on: December 10, 2015, 09:24:30 PM »

There is no way to read this study http://medrebels.com/wp-content/uploads/Peyronies-Paper.pdf with all this data and think it was all invented. For me the biggest prove this is not just a scam is when you see the list of doctor involved in the study (Effects of Stem Cell Treatment in Human Patients With Peyronie Disease. - PubMed - NCBI)
Effects of Stem Cell Treatment in Human Patients With Peyronie Disease. - PubMed - NCBI (1 research)
Error encountered - PubMed - NCBI (134 researches)
Error encountered - PubMed - NCBI (334 researches)
Error encountered - PubMed - NCBI (552 researches)
Error encountered - PubMed - NCBI (six researches)

People say that Beike Biotech in China is a scam too, but the fact is that a lot of people went out from there seeing, and they were almost completely blind before...
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #677 on: December 11, 2015, 06:48:40 PM »

istme

What is the reason to fill the topic with those "Error encountered - PubMed - NCBI"?
They are all giving "History not found"

James
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Lucketts

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #678 on: December 12, 2015, 01:29:36 PM »



Haven't read the web sites, but here's the little I know about Dr. Z.

a.  I think he owns the stem cell place which creates whatever he injects. 

b.  Regenexx is one of the leading providers of stem cell remedies.  I think they are located in Boulder.  In most major cities, there are just a handful of physiatrists (orthos dealing in pain management) who use stem cell for knee arthritis, bursitis, rotator cuff problems etc. I don't think that any of the Regenexx approved physicians are using it for peyronies.............yet.  I have heard urologists say that it could be helpful post-surgery for those who go that route.

Regarding Dr. Z, does anyone know any of his patients or does anyone have references from any peyronies patients who have actually been through his work?  He may be on to something extremely good, but it would be really helpful if he could be more transparent.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #679 on: December 16, 2015, 10:27:52 AM »

Look at this video about Regenexx, it doesn`t seem to be a fake company: https://www.youtube.com/watch?v=reYnA3KukvM
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #680 on: December 16, 2015, 11:10:26 AM »

There is another guy here also saying about stem cells for peyronies: Stem Cell Therapy: The Future is Here! Find Out About the Clinical Tr…
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #681 on: December 16, 2015, 03:08:42 PM »

It seems that Zahalsky company actually buys stem cells from this one: Skye Biologics - White Papers
I mean, there are links to this company in the end of the page ArthroGenix – DX100™
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #682 on: December 29, 2015, 11:35:27 AM »

so, nobody is gonna try it? I mean zahalsky's injections. If I was rich I would try it.
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itsme

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #683 on: January 08, 2016, 09:27:06 PM »

I have sent an email to skye. They told me they are really selling stem cell to some doctors for peyronies treatment.
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #684 on: January 09, 2016, 04:11:34 AM »

From what I know about stem cells from a patient, who had such treatments is that if you use "foreign" stem cells must take steroid immunosuppressive drugs for life. In Poland developed technology "manufacturing" stem cells from the patient's own cells and then it does not require the use of drugs but somehow the matter was muted :(. I'm trying to iontophoresis ionic colloidal silver, which is said to have properties to reset DNA of material building scars, which take DNA from the surrounding the cells . This is important at the initial stage of the disease when is the healing of damaged tissue.
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #685 on: January 09, 2016, 04:36:37 AM »

Hi Pey-penis,

I have seen studies in rats and humans, both, of placental stem cells (foreign stem cells), and no steroids where necessary.

I think that you should make a difference between embryonic and amniotic from placenta or umbilical cord.
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #686 on: January 09, 2016, 07:36:43 AM »

Iontophoresis is completely useless, the drug does not pass, it's a scam.

Dr Zahalsky told me that you don't need immunosuppressant at all, but I doubt it. we'll see
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krazylord

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #687 on: January 11, 2016, 11:29:13 PM »

What do you guys thinkg about the fibrosis that the stem cells injections create? Apparently Dr. Z injects not only in the plaque, but also in both corpora chambers. If an injections goes to the corpora, there is no doubt that is going to create more fibrosis, since it is gonna disrupt and break penile tissue.

So I am wondering if it is worth it to try, since the risk of creating more fibrosis is high.

Any opinions?
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #688 on: January 12, 2016, 05:01:23 PM »

it goes into the corpora only if needed. And how can you say that an injection in the corpora would cause more fibrosis? It is not true at all. it depends on what you inject.
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krazylord

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #689 on: January 12, 2016, 08:21:57 PM »

Hi yyy,

I don't know if it is the injection or what you inject what causes fibrosis, but my doctor told me not to use penis injections for instance for Erectile Dysfunction because they can create more fibrosis.
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yyy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #690 on: January 13, 2016, 04:15:17 PM »

yes maybe they could, but it's not sure. if you inject pure stem cells you could have good chances to improve the corporal fibrosis
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Pey-penis

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #691 on: January 14, 2016, 07:15:12 AM »

I have seen studies in rats and humans, both, of placental stem cells (foreign stem cells), and no steroids where necessary.
My friend had a spinal nerve atrophy and received stem cell treatments in clinical trials. He does not know what cells he got but the problem was getting settled, but must take immunosuppressive drugs for the rest of his life.
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Pey-penis

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #692 on: January 14, 2016, 07:19:21 AM »

Iontophoresis is completely useless, the drug does not pass, it's a scam.
If You think so this thought  think so forth and go far :-(
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Jack1909

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #693 on: January 14, 2016, 10:33:07 AM »

Pey-penis I don't know what are you talking about. The entire and new field of regenerative medicine is based on your own cells and that means you do not have to take immunosuppressive. Tissue engineering the same.
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krazylord

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #694 on: January 14, 2016, 12:39:50 PM »

Jack, Dr. Zahalsky uses Placental stem cells, meaning they are not yours cells. He might be referring to that.
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krazylord

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #695 on: May 06, 2016, 09:48:44 PM »

Just to correct myself. Dr. Zahalsky doesn't use stem cells. He uses amniotic fluid from placenta, but he does not know if there are actual stem cells there or not. He only knows that there are growth factors and cytokines. That's all. So all the studies where he claims to use stem cells are just a fantasy and a marketing lie, unfortunately. I am very disappointed on that. Claiming to use stem cells when he does not even know if they exist is insulting.

That being said, it looks like many of his patients are seeing good results. In my case I didn't.
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Lucketts

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #696 on: May 06, 2016, 11:16:27 PM »



Krazylord,

Disappointing.  I know he says that he used to use stem cell, but switched to this amniotic fluid (really don't have much idea what either is).  On his site, he has some testimonials with the first names of patients.  Did you ever see any more substantive proof that his process worked -- research papers, trials etc?

                          Lucketts
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krazylord

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #697 on: May 07, 2016, 12:54:14 AM »

Hi Lucketts,

To be honest, I am not sure he never really used stem cells at all in the studies he published. Once you discovered a doctor is not honest in the way he advertise his treatment, then I don't believe anything else, even if it is true.

His research papers mention placental stem cells: Effects of Stem Cell Treatment in Human Patients With Peyronie Disease. Again, given that I found out he doesn't (I asked myself directly to him) use stem cells currenty, then I don't know about this study (unless he used something different from his current procedure). I will ask him this specifically, and get back to you.

I have seen the testimonials in the website, and they are great. Now, he has treated more than 100, as far as I know, so that is just 5%. Still, some cases good. I am not saying it doesn't work, just disappointed by the doctor not being 100% honest with his claims. When you go to his office, he has papers talking about his "stem cells" procedure, and again, he doesn't use them. That is outrageous.

The main difference between amniotic fluid and stem cells is the cells. In the amniotic fluid you have basically proteins and growth factors, that might trigger your own stem cells to repair your damage. Stem cells on the other hand would not need to call your own since they are already stem cells. Nobody really knows how stem cells work, but what I want to find out is if he EVER used stem cells and now doesn't, or f he used it in the study and now it doesn't.

THanks,
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Lucketts

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #698 on: May 07, 2016, 10:12:28 AM »



Krazylord,

Thanks for the explanation.  When I had spoken with him, his explanation was something about that he found that when he used stem cells, it spread and dissipated through the body, so I guess it didn't stay local, and that's why he was no longer using it.  But please let us know any further information that you find out.  I remain hopeful that there will be some new discovery that will be our long awaited cure.  Bit off topic, but you might want to look at the NIH web site.  I think it is is NIH.org or something like that.  It shows all the NIH clinical trials going on for peyronies, and one of them is w/ botox.  Maybe that could be the salvation -  perhaps get a straight dick (and no wrinkles to boot).

                                Lucketts
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Dumbguy

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #699 on: June 05, 2016, 09:41:20 PM »

Just adding a bit, im around 3.5 monts whit a hourglas injury, i will be taking maybe next week a shot whit around 10 cc adipose derived mesenchymal stem cells plus prp, and after that 4  prp 10 cc shots one each 2 weeks
hoping for the best  :)
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