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Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 241456 times)

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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #850 on: October 09, 2018, 11:43:59 PM »

I never mentioned anything about freezing cells. My fat was removed, my stem cells were collected and it was re-injected into me with PRP. That is what gave me my results. The banking process is simply them taking some of the cells they extracted from me and culture-expanding them in a lab over the course of a few months. The ice i mentioned is something on top of which they put the cells during shipping to keep them cool, if I so choose to have them shipped to me. Normally if one chose this they would have it shipped to a doctor, but I also reserve the right to have it shipped to my house and experiment with self-injection, which is dangerous and I do not suggest. That is where my figure of $1000 comes from. I could also fly back to Florida or find a local doctor to pay for injection, which is the suggested route.
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pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #851 on: October 10, 2018, 12:56:13 AM »

- Where do you store the stem cells? In your fridge? How long do they survive?

- How do you perform your own injections? How many at a time? In which points? At what angle?

- What gauge syringe needle do you use?

- How often do you do this?

- Did they perform any filtering on your stem cells to weed out the mutated ones?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #852 on: October 10, 2018, 02:28:27 AM »

If I were to go through with this process, I would call the clinic and have them ship them to my house on ice via next day delivery. You do not store them, you must use them immediately upon receiving them. So even if you have them sent to a local doctor, they must be used immediately. As far as performing my own injections, I got the idea from Ben Greenfield (google him) who goes to the clinic I go to and now self injects every few months into the penis. He's kind of crazy though (there's nothing wrong with his penis, he's just trying to make it bigger lol). That combined with the fact that there is self penile injection training available for Erectile Dysfunction leads me to believe I can save money and do it myself. It would be a lot safer to do it with a doctor though. I do not know what gauge needle to use. I haven't self injected yet. In terms of filtering, I don't know but they are autologous, meaning my own, fwiw. I'm essentially just trying to do everything myself without proper certification because I believe I am smart and capable enough to and want to save money and time/convenience. I have the benefit of a compliant clinic that is willing to FaceTime me through the process.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #853 on: October 17, 2018, 05:34:39 PM »

Here is an update guys, since it's been a while from me: Size seems to be stable since my gain of just under half an inch girth, I'll have to measure again to be sure. The one deep dent I had, which was literally as deep as the letter 'U'. Is now about half that. This was definitely my worst affected area; it had the roughest feel to it. Overall these gains were all in the top third/worst portion of my penis. Although I missed my target date of late September/early October for another round of injections, I am still planning to get them in November. I'm either going to get a local doctor to inject into the penis + do an IV myself, or I might just get 3 IV's (you can get 3 doses administered max, as a health precaution) in a row injected into myself. Both of these options would come literally the day or two before I start an extended water fast so I can mix the regeneration of stem cells with the waste removal of autophagy. If I go the triple IV route, I would use shockwaves to home the cells into my penis.
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Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #854 on: October 20, 2018, 04:17:49 AM »

Hey JS,

Excellent post, fantastically interesting and hope-bringing, thank you!!!

As you know, I'll follow with as much interest your posts on your water fasting. I just wanted to warn you about a precaution I think you should take, from what I went through with my 3 days monodiet (which induces some of the benefits of a real fasting): on day 2 (but this can vary from person to person), I was feeling really, really bad, at a weakest, with a huge burst of all my inflammatory symptoms (prostate problems, pelvic pain, asthma, and of course my Peyronies Disease, with an almost permanent pain and metabolic panic in my penis).

I was then hugely surprised to see that all these symptoms disappeared on day 3, where I had NO penile pain/inflammation feeling AT ALL, and was full of energy. Maybe all this was just chance, but I read in many places that during a fast, some old conditions can rise again with a vengeance on days 1 to 3, when the body pours old "toxins" in circulation systems and "eliminates" them (no studies on this, so I'm being very cautious). Anyways this seems to be what happened with me, and trust me, on day two I would NOT have had ANY injection done in my miserable penis, nor would I have liked to have my swelled "nuclear pumpkin" post-injections penis... So maybe better you get injected a little sooner my friend!

Good luck to you!

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #855 on: November 02, 2018, 05:16:08 PM »

"Autophagy is required for human umbilical cord mesenchymal stem cells to improve spatial working memory in APP/PS1 transgenic mouse model": https://stemcellres.biomedcentral.com/articles/10.1186/s13287-017-0756-2

This study was for Alzheimer's treatment. My clinic HIGHLY recommended a keto diet and they encouraged me to fast (neither of which I did). I really believe autophagy and stem cells have great synergy.

Gabriel, from my research that burst of inflammation seems to be the body reactivating the healing process in any chronic issues we might have. And thanks for the advice, I'm considering avoiding injections and going with the IV + shockwaves.
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TonySa

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #856 on: November 02, 2018, 09:33:57 PM »

A keto diet w IF is highly recommended for alz and dementias, one of the many potential benefits.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #857 on: November 29, 2018, 05:25:44 AM »

Just wanted to update that after 5 months, the tissue in the top 1/3 to 1/4 of my penis no longer has a sandpapery feel to it, and is almost completely smooth aside from a few minor spots. This is by touch, it is still scarred, but definitely an improvement. I have been using VED on and off since August, so that might have contributed, but if I had to guess I would say it was the treatment I received.

Edit: Another update (11/30/18): Contacted all of my local clinics, the pricing is ridiculous ($750-$1000 per injection) so I've decided to go ahead with self-injection. Also going to have my friend who is a nurse give me an IV.

My next treatment will be within the next six weeks, I'll keep everyone updated.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #858 on: December 01, 2018, 05:01:13 PM »

JS1991

I read some posts down but I din't find what you are injecting, how and how much it cost injecting yourself.
I will appreciate your answer

James
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #859 on: December 01, 2018, 05:57:24 PM »

Hey james, I am injecting stem cells pulled from my own fat, which are currently being cultured in a lab (I paid to have them banked). I initially had the procedure done in June, it cost $6000 for the treatment and $3000 to have my cells banked. I went to the US Stem Cell Clinic in Florida, and I can now have them ship me my banked/culture-expanded stem cells to a local doctor for $500 per dose (plus cost of injection, which I stated in previous posts). Or, I can have them shipped to my house and do it myself if I want to save the money I would have paid for injections, which is what I will be doing. Definitely experimental and partially dangerous; I won't recommend anyone self-inject themselves without training because of risk of injury.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #860 on: December 01, 2018, 06:09:51 PM »

I'll repeat what I told a few people who private messaged me. My take on stem cell is that they are effective, yet over-priced. There is a risk they will do nothing, there is also a chance you will have spectacular results, but most people fall in the middle (at least, according to the research I've done plus my own experience). I regained a little girth and got smoother tissue, but it was not a cure; you can get pretty much the same results with VED. I do have a theory that the mechanism of action in stem cells is different than the mechanism of VED in regaining girth, and so you could potentially stack the effects (which I will try), but unless I get cured I will continue to call it an effective, yet overpriced treatment. I do still have more injections to go and more time to heal, so my opinion will probably fluctuate (I am expecting to see more results in the future, so we'll see). Overall though, I am personally satisfied with my decision to go through with treatment, hence my next round of experiments with self-injection (which is way cheaper than going back and having them inject me).

If you have the extra cash, I would advise it. If you don't (one person that messaged me was a young college student with $0 prepared to take out a $10k loan) then I would go with all of the cheap/free treatments. As the price comes down I expect it to become a dominant field of medicine, especially as technology advances.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #861 on: December 03, 2018, 05:28:42 AM »

Thanks for the replay JS1991 :)

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #862 on: December 06, 2018, 02:55:37 PM »

And thanks for your updates, it's always a great pleasure to follow you :-)
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- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #863 on: December 20, 2018, 05:10:34 PM »

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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #864 on: December 21, 2018, 09:45:16 PM »

I have actually injected stem cells into patients. For joints. Not the penis.

With that said - I do believe penile stem cells to be effective.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #865 on: December 23, 2018, 07:28:05 PM »

so, @JS1991: are you injecting them yourself, or using the help of a local doctor?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #866 on: December 26, 2018, 10:04:52 PM »

pey ron, a few things. First, I have not had any luck finding a local doctor to inject me. Second, after hearing multiple accounts of injury from injections including someone who recently went to Landers’ clinic, I am hesitant to self inject. Third, I would like to combine IV stem cells with Christipher1’s at home shockwave therapy, but I’m currently convinced that fasting will heal me up for free.

So once I’m done with that experiment, I’m going to reassess, but until then I’ve cut all treatments including physical therapies and I’m also doing strict NoFap/No PMO.
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Tony52

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #867 on: December 27, 2018, 05:42:31 PM »

JS1991,

What kind of fasting?

Tony52
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #868 on: December 28, 2018, 04:39:00 PM »

Currently Water Fasting and eventually Dry Fasting on the Snake Diet. Check it out: Water fasting. - Peyronies Society Forums [Page 2]

There's also some info in the ketogenic diet threads in the same subforum (Alternative Treatments). I'll have an update on my current water fast and I'm also going to start dry fasting around the New Year.
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Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #869 on: December 28, 2018, 05:54:03 PM »

Good luck with the fast.

My record is 4 days. (And stay away from coffee!)
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

Whyisthishappening

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #870 on: March 07, 2019, 08:36:35 PM »

Intratunical Injection of Human Adipose Tissue–Derived Stem Cells Restores Collagen III/I Ratio in a Rat Model of Chronic Peyronie’s Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377372/
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pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #871 on: March 16, 2019, 04:20:28 AM »

why should we stay away from coffee? @christopher1
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #872 on: March 17, 2019, 06:03:13 AM »

Some people insist on drinking coffee while fasting, which Chris and I completely disagree with; a fast is a fast, you don't drink coffee while your stomach is shut off. That's what he was referring to.
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Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #873 on: April 05, 2019, 02:55:16 PM »

After my first three days snake juice fast, and despite a whole LOT of apparently solid information I had read about coffee being positive to autophagy etc., I agree with JS and Chris: I think that one should not consume coffee during his fast. Personnaly, each time after I had drunk coffee, I would feel strange gut activity and significant general gut discomfort for maybe an hour or more. Not to mention that my belly got swollen even more than normally during the fast, which I tend to attribute to coffee + stevia/erythritol consumption more than too much snake juice drinking.

Interestingly, tea and herbal decoctions did not seem to have the same negative impact; but I did'nt drink enough of them to be positive, so I'll try and let you know after my second fast in two weeks :-) !!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #874 on: April 18, 2019, 10:50:07 PM »

Dry fast is better than the water/coffee fast.

One only has to try it for 3 days to see the results.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #875 on: May 25, 2019, 11:43:41 PM »

I am doing a 3 day fast for Memorial day. But I have to take my pentox, montelukast and supplements. Plus I won't wake up without at least 6 shots of espresso in the morning. Is it still better to limit water intake to the bare minimum for the supplements and coffee? It's far from a dry fast. But I am drinking way less than on a normal day.
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #876 on: May 26, 2019, 04:40:38 PM »

Always drink plenty of fluids during a fast, otherwise you risk dehydration and all of its assocaited bad effects.  Caffeine should be fine but can lead to dehydration-so drink plenty of water also.
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pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #877 on: May 28, 2019, 12:57:14 AM »

Last two times I fasted I broke the fast after barely 1.5 days. Last two times I fast I was attempting a dry fast.

Every time I did a water fast, I didn't fail. I was able to carry it on for 4-5 days.

Dry fasts are hard :( Any tip on how to succeed?
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #878 on: May 30, 2019, 07:26:15 PM »

Just do what you can. I have seen gradual improvements with each fast when combined with NeoV's manual stretches.

I am currently back to water fasts, but it is Snake Juice. Also, I don't drink gallons of the stuff. Just enough for thirst.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #879 on: June 01, 2019, 07:21:01 AM »

Topic about stem cells where people discussing fasting. Ridiculous.
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #880 on: June 01, 2019, 03:35:36 PM »

I agree, we're getting off topic.
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Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #881 on: June 02, 2019, 09:37:11 PM »

True.

Anyway - a stem cell doc told me that the bone marrow stem cells work the best for the penis. It's all very new. I have heard it work well for Erectile Dysfunction. I don't know about Peyronies Disease whatsoever.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #882 on: June 05, 2019, 02:31:05 AM »

I keep on stumbling on scientific papers where they say that fasting is good for stem cells. Google them up! This is not off-topic after all.
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Curvature

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #883 on: June 05, 2019, 04:28:53 PM »

I would like to start a new topic following my treatment how do i go about this? Because i will be updating results. Ive only posted on introduce yourself


Just like to put this out there i will be updating my results, not sure how to use this forum, but my updates will be under introduce yourself as i cant update on every single thread if that makes sense

Hi i have had peyronies for 8 months now. Less than 30degree curvature
Last month i had a stem cell adipose msc injection into the curve.
Along side with
Biolight therapy 30min
Electric shockwave therapy 40min
Unltrasound therapy 20min
Traction, 30min
Iv therapy- meyers cocktail
Metatherapy, 30 mins
Life system, 2 hours
And prp injection
I had this therapy done for a course of 4 weeks, 2 days each week, same therapy each week
Stem cell injection only once.

Advised by the urologist to do traction every day 30mins in morning
30mins in evening,

Will update results


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Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #884 on: June 06, 2019, 01:22:23 PM »

Looking forward to reading about your results.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

AlexSamo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #885 on: June 08, 2019, 04:11:54 PM »

Anyway - a stem cell doc told me that the bone marrow stem cells work the best for the penis. It's all very new.


Did he provide you any article about successful treatment with stem cells for Peyronie's Disease or Erectile Dysfunction or other penile condition/disorder?
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pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #886 on: July 04, 2019, 02:58:17 PM »

can someone please summarize which clinics offer stem cell injections???
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Whyisthishappening

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #887 on: July 05, 2019, 09:12:39 AM »

https://www.ncbi.nlm.nih.gov/pubmed/30988428 

Intratunical injection of autologous adipose stromal vascular fraction reduces collagen III expression in a rat model of chronic penile fibrosis.
" Peyronies Disease animals developed subtunical areas of fibrosis and elastosis with upregulation of collagen III protein. These fibrotic changes were reversed after injection of SVF. We provide evidence that local injection of SVF reverses TA fibrosis in a rat model of chronic phase of Peyronies Disease"
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alc ,vitamin e, propolis,pde5,NAC,nsaids,olive oil massage,nsaids,aspirin,essential oils cockteils,keto,IF,green tea,coffee

james1947

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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

drew67

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #889 on: August 03, 2019, 11:49:05 AM »

Wonder if anyone here had stromal vascular fraction injections
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Godisreal

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #890 on: December 23, 2019, 03:18:05 PM »

Could someone with knowledge please update the forum on stem cells? Are there anything new? I read about great success with animals and so on, and that gives me a feeling that something potent is on its way. Am I wrong to believe this? It would be great if someone chimed in.
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Acute Peyronie’s and high erection angle, Peyronie’s onset in September 2019.
Mild/Moderate dorsal curve, caused by a thin & hard scar leaving my dick with a banana shape.
As of 2020: DMSO + Aloe, Magnesium Oil, cardio, sauna, Pentox & L-Citrulline.

popopo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #891 on: December 23, 2019, 04:46:06 PM »

Dr Atala was able to regrow penile tissue back in 2014, but none of it ever gets approved by the FDA and we never get any updates whatsoever. The science is there, it will just not be avalaible for at least another 10/20 years so bye bye youth.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #892 on: December 23, 2019, 06:24:32 PM »

There’s only one thing to do. Get rich and pay the scientific research singlehandedly, ultimately getting world recognition and leading the world into treating the disease with stem cells & tissue engineering. Imagine financing the money that’s needed to promote stem cell research and advancement and become the face of Peyronie’s treatment. You’ll get known as “The Man who cured the incurable disease”. This way, the scientific research is boosted and perhaps the final cure  will be available much sooner than expected. Or you could keep being depressed and doing nothing. It’s your life.
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Acute Peyronie’s and high erection angle, Peyronie’s onset in September 2019.
Mild/Moderate dorsal curve, caused by a thin & hard scar leaving my dick with a banana shape.
As of 2020: DMSO + Aloe, Magnesium Oil, cardio, sauna, Pentox & L-Citrulline.

popopo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #893 on: December 23, 2019, 06:42:27 PM »

Setting unrealistic and almost heroic like goals for yourself won't make you feel better. It will only make you realize even harder that there is no point. You don't really think any of what you just said will happen, right? If you do, please tell me the secret to getting rich and doing impossible stuff cause if that was a valid option I'm sure everybody would just do that by now. Also, I wouldn't want to be the face of peyronies. I try my hardest to keep this all a secret and wouldn't want to be known as the guy that cured his deformed penis I would actuall6 deep down just wanna be a normal male that never had all these beta male issues to begin with.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #894 on: December 23, 2019, 07:10:08 PM »

Well, you can’t “be a normal male who never had these problems to begin with”. When are you gonna accept the fact and move in the right direction? You’re clearly dwelling on the same sh*t over and over again. The way you put and select your every word are to me very toxic and I understand you feel so bad. Wow man. There’s no “secret to getting rich” lol, it’s called hard work & dedication. If you really want change, don’t sit on your ass and complain constantly - I know this is a great place for venting and so on and I appreciate that and i do it myself.
But at a certain point you have to move forward and not constantly seeing things from that promiscuous & pessimistic perspective. I can’t speak for you specifically, but there’s no such thing as “beta problem”. It’s how you handle the problems that ultimately makes you an alpha or a beta. This however, is not written in stone.
It’s to me insane how you after so many years still dwell so much on the past and how you regret doing things. You can’t change them man, no matter how pathetic or devastating the mistakes are - there’s no changing them. Okay, you have erectile disfunction and a crippled dick. What exactly are you wanting so much? Wild sex? A bigger dick? If you got your dick back you probably would’ve made up fake problems in your f*cked up head and you start dwelling again & again & again. Then you f*ck up again because you’re obsessed. Same goes with everyone. There’s no point in getting cured if you haven’t treated and fixed up your mental health & control.
I strongly believe that your useless attitude towards life is the thing that kills your chances for beautiful relationships with beautiful women, healthy dick or nah.
You can have ALL these things that I bet you want. But you have to commit.
I only want the best for you, I’m just truthful even tho I might be harsh right now.
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Acute Peyronie’s and high erection angle, Peyronie’s onset in September 2019.
Mild/Moderate dorsal curve, caused by a thin & hard scar leaving my dick with a banana shape.
As of 2020: DMSO + Aloe, Magnesium Oil, cardio, sauna, Pentox & L-Citrulline.

popopo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #895 on: December 23, 2019, 07:27:11 PM »

You're wrong bro. I am like this because I can't fix my dick and nothing ever will. Once you start to realize that yourself and when you have been here for longer than the couple of weeks you are here you too will understand that you either ACCEPT no sexlife or end your life. I told myself I could fix this too, but it's getting a bit old cause it's a lie to keep me going. So I ask you this: "can you accept being dickless for life?" If the answer is yes than good for you and then yes, your life is worth it and you'll find a way. But you still believe you can fix this so it's clear to me you CAN'T accept having no sexlife.If you CAN'T accept that however, be prepaired to be dissapointed for life. My point is that you can change attitudes.. I did too for a long time! Be positive yey! But it wont fix your dick trust me. And what about you then, huh? You've only been here for a couple of months and you only stay so happy cause you really believe your dick will be fixed, but it's not in your own hands. You will need a doctor to fix you, right? Or are you really gonna get rich and spend a couple.million dollar so atala will operate you without FDA approval? Be realistic man that aint gonna happen. You literally said you think keto, fasting and diet isn't necessary and you don't "like that". Well let me t3ll you this.. if you can't even be disciplined enough to stick to a F^@$!ng diet how are you going to "work hard" and get rich?? I'm not trying to flame you, just pointing out how hypocritical you are right now.

My dick can't be fixed and that's my problem. Don't try to make this more difficult than it is, cause that's all there is to it. And NO I don't want beutifull relationsships with beautiful girls I CAN PHYSICALLY NOT [email protected]<. I want thr same as you that is my dick back to full health and it's not happening. Don't be a fool and tell me if I was happy it WOULD be possible cause that's not true. If a postive mindset is all it took I would have a healrht dick by now.

In short: the problem is NOT that I THINK there is no cure. The actual problem is THERE IS NO CURE!

You can hate me now if you want and I don't blame you. Just realize that no matter what your mindset is, as long as there are no proper treatments you can't fix this just by being "positive".
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #896 on: December 23, 2019, 08:10:38 PM »

And yes, I am in a very bad mood right now and may sound unreasonable, but even on a good day where I try my best to make things happen this still haunts me and the fact I can do ANYTHING I WANT except get my dick back makes me not wanna do anything. Call me mentally f'~c<+d I don't care.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

samsung

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #897 on: December 23, 2019, 08:42:51 PM »

There has to be another way. You're both wrong, but I don't know what's right.

It has to be a matter of degree. I wear glasses. I guess that gives me "fake" eyes. Just like an implant would give me a "fake" dick. I know I am required by man law to kill myself. I think about it every day. All day. However, I have had these fake eyes for so many years I do not spend much time thinking about that. I know a dick has much more meaning attached to it, but the principle somehow has to be similar. This has destroyed me and it has destroyed many of us, but there has to be a way through. I just don't know what that is yet.
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44 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 2 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

popopo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #898 on: December 23, 2019, 09:11:10 PM »

Well, I do know what the solution is. It's getting cured. I also wouldn't really mind if the dick I got was "fake" because it's an implant. But what bothers me a lot about tje implant is that it still wouldn't adress the underlying inflammation issue and that I can never get a size that wouldn't be considered "small" even if I did get an implant. I wanna get my size back. I was never really happy about my size anyway, so having to pay a lot of money and still be left with a lot less size and a tube inside my dick just sounds too anticlimatic for me to go for that. I know I can be a jerk sometimes and I complain a lot, but what bothers me is the same old same old "VED, pentox, traction" discussion like it's the new best thing while in reality these are torture devices that many doctors don't even agree on if it's effective. What I hate is that everybody EXCEPT others who have this as well (and even some of those people) act like this isnt a big deal and there are plenty of treatments, while there aren't. If we keep thinking as a community that the treatment options are plenty and we don't really need new treatments we just need patience using the treatments from 50 years ago then nothing will change. I wish everybody was as angry as me so they would HARRAS doctors for new treatments and bitch about it till change would actually happen. I know I'm a whiney bitch in the eyes of some of you, but at least I don't smile and nod when speaking with urologists. I tell them the truth about them not being able to help so maybe they one day realize they have to come up with options for guys like us. I wish everybody here would get psycho like me so that society can no longer ignore us. I don't even know if my anger will lead to anything, but at least I won't lie to myself and others with this disease that it's not so bad and you just have to use more VED or traction the very same things thar actually injured me in the first place and made me worse a couple times after that even when being very gentle. Anyway, as you can tell I'm desperate right now and I really feel like some of you are not as desperate as you should be and I seriously hope more guys get this crap and realize how f'~c<+d they are and come knocking at the door of urologist and tell them "HELLOO we are people too and need proper treatment instead of you cutting half of my penis with a nesbit and tell me I'm healthy now".

Rant over.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Godisreal

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #899 on: December 24, 2019, 04:55:51 AM »

I doubt anyone here either hates you or think you’re a b*tch. We just feel sorry for you.
There are a number of treatments that is proven to work & have radical success.
You’re down so low mentally that you keep trying to bring people down with you in the grave. If you wanna stop fighting and calling me a hypocrite, that’s on you. But the actual accuracy in your statements are completely broken & desperate. It’s clear you have given up hope.
The reason I won’t start a diet is because it’s often considered optional if you’re already using powerful supplements and drugs.
And if the thing i have to do is to spit up millions of dollars to get my dick back to nursing health with new & extraordinary techniques that’s not approved by the FDA, then that’s exactly what I’m gonna do. Because I have a mindset that few others possess. The law is to me just a writing in a book. Good to a certain extent, but not too good & relevant in a lot of things. I know for sure that an insanely talented Peyronie’s specialist would take my black money without hesitation and treat me. Nobody have done just that, and if I have to be the first one, I’ll be happy to. This is very likely not even needed in my case, I’ll probably be good after months of oral treatment.
But since I still can have sex and achieve good orgasms, I’m all right. It’s just limited position-wise. Lastly, you’re saying that you’re trying your hardest to cover this up and to stay low profile, yet you’re saying that everybody else should do like you and freak out & become psycho and start knocking on the doors of people to tell them “PAY ATTENTION TO ME IM IN DEEP PAIN”. Acting like a helpless b*tch sure won’t cure anything, illegally or legally. In this way you would expose yourself to the public constantly - just like you said you didn’t want to. Hypocritical in its finest form. 
If I were you, I would consult to a therapist because you have deep issues to control your emotions as well as your problems.
Logged
Acute Peyronie’s and high erection angle, Peyronie’s onset in September 2019.
Mild/Moderate dorsal curve, caused by a thin & hard scar leaving my dick with a banana shape.
As of 2020: DMSO + Aloe, Magnesium Oil, cardio, sauna, Pentox & L-Citrulline.
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