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Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 236426 times)

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Gap

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Re: Adult stem cell injections for Peyronie's
« Reply #100 on: November 09, 2011, 02:46:36 PM »

Thanks RD - I'd love to have something to hold onto. It doesn't seem like I am a good candidate for surgery, even though I was told that was my only option, and I don't react well to Pentox.
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #101 on: November 09, 2011, 04:00:38 PM »

Yeah I know what you mean about something to hold on too. The only other thing to is this is so new atleast in the US I had a long conversation with Dr Landers who did my proceedure he said there is still so much to learn that have barely scratch the surface with stem cells. I hope to get more results and not have to do a follow up, if I had the money I probably would give it one more try to see if any further results come from it. I'll have to see in 9 months where I'm at and evaluate then.
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Gap

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Re: Adult stem cell injections for Peyronie's
« Reply #102 on: November 09, 2011, 04:24:52 PM »

Does insurance cover it?
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #103 on: November 09, 2011, 05:10:26 PM »

Nope because its not an approved treatment.
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Gap

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Re: Adult stem cell injections for Peyronie's
« Reply #104 on: November 09, 2011, 05:50:45 PM »

Well, let me know how it works for you in the end, because no solution is not a solution regardless of the price.
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #105 on: November 15, 2011, 12:25:41 AM »

RD

We have exchanged many pm's about this subject.Probably much less than some.I was thinking about you today.Your decision on taking on the treatment and why.Realizing we both want to cut to the chase.What we have learned and.whatis nested from discovery and pecking at the forum.First thing in mind do i react suddenly to everthing or bide my time.You reaction like mine is with time their could be a small window of time with a first cell treatment for.our problem.You decided to take this treatment while you where in the acute stage.As i read about the autoglass stem cell treatment.Finding that the treatment is better off during the early stages. This leads me to believe better results.

I think that peyronie's in a more mature stage meaning beyond the acute can cause more significant troubles such as cancer.Your postings and history of you treatment is of the most importance on our.platform as you are our first.

Personally i am hesitant to have the treatment as i am past the acute stage.Finding things are changing all the time.From my understanding could be dangerous with old scar i am feeling my lumps.

Anyway my friend i have been trying to take a break but find the compulsion to arrive here again.

Please keep us posted and stay strong.

Fubar
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #106 on: December 07, 2011, 03:35:45 PM »

Just a quick update, I think the remaining lump on the right of my shaft might have gotten a bit smaller but just a bit. I had also tried stretching the area out by bending my penis while flaccid away from the lump and feeling some stretching sensations. However I have discovered another small lump on the opposite side of my penis in the area where it was being bent towards while stretching the lump on the right side of my shaft. I'm not sure if the stretching caused it or not. I don't really feel anything from it unless I have an errection which I feel some tightness very slight discomfort out of it. I have stopped trying to stretch any of it out, thinking that might have caused new lump. I plan on leaving it alone again for a while and checking on it once a month. I am considering in 6 months maybe trying a follow up treatement with the stem cell center because of how the larger of the two original lumps on the right side of my shaft now seems to be gone. My only fear is that if something as simple as stretching caused a new one does this mean any new stress on my unit will result in more lumps? If that's the case something else is still wrong causing any stresses to turn to lumps.
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Skjaldborg

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Stem Cells and Peyronie's treatment
« Reply #107 on: January 23, 2012, 10:30:54 PM »

Huffington Post isn't the best source for science news but this story is relevant and encouraging:

http://www.huffingtonpost.com/2012/01/23/stem-cells_n_1224764.html

Stem cells sure are versatile. They're being eyed as the key to treating medical conditions ranging from heart disease to neurological problems and blindness.

Can stem cells make a better mousetrap? Maybe not, but a provocative new study shows they're capable of making something even more impressive:

A better rat penis.

And while rats might not care, urologists say the feat could be very good news for men suffering from Peyronie's disease and other deformities of the penis.

For the study, published online in Proceedings of the National Academy of Sciences, researchers led by Tulane University urologic surgeon Dr. Wayne Hellstrom tested tissue grafts on rats whose penises had been surgically scarred.

One group of rats got conventional tissue-only grafts, another grafts that had been mixed with stem cells taken from their own bodies, ScienceNOW reported. A third group underwent so-called "sham" surgery that didn't involve a graft, and a fourth group got no treatment at all.

What happened? When tested eight weeks later, the rats that got the stem cell tissue-grafts showed better healing and better sexual function than rats in the other groups.

What's the next step? Hellstrom said he and his colleagues would test the technique in primates and eventually in humans, according to ScienceNOW. "Peyronie's affects 3% to 9% of adult males and causes a lot of psychological distress," he said. "If we can improve what we have now, it seems like the logical thing to do."

No word yet on that mouse trap.
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #108 on: January 24, 2012, 03:31:06 PM »

RD
Can you update the forum if have some improvement from your last update?
Have some improvement in girth and length?
Thanks
James
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UK

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Re: Adult stem cell injections for Peyronie's
« Reply #109 on: January 25, 2012, 06:22:55 AM »

I think that peyronie's in a more mature stage meaning beyond the acute can cause more significant troubles such as cancer.
Fubar
this is a reckless comment, no evidence whatsoever, and no need to scaremonger. You are good poster but I'm sure you'll agree not helpful.
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #110 on: January 25, 2012, 08:24:37 AM »

RD
Can you update the forum if have some improvement from your last update?
Have some improvement in girth and length?
Thanks
James

Nothing really to report since my last post. I am considering a second treatement, I contacted Dr Landers and he said to wait atleast 6-9 months from the original treatement to do a follow up. I am considering a follow up because of the fact that one of the lumps treated is gone and the other seems to have slightly improved. If the one lump hadn't gone away I would write this treatment off but because it did is the only reason why I am considering a follow up. I wish I had more to report and if anything changes better or worse I will be sure to update.
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #111 on: January 25, 2012, 02:26:35 PM »

UK

Agreed not an awesome post.However it is true that treatment with stem cells with old scar tissue can and does become cancerous.I found this information on you tube, some seminar on stem cell treatment at a university.

They found stem cell treatment more effective with new wounds compared to old wounds.With the old they found that they could become cancerous with hair and bone,  and tumors growing .

I am sure that anyone of us could find this evidenced if one was inclined to do so.It would be reckless for one not to mention that this is a risk in stem
cell treatment.I do agree that post was vague and came across as an opinoin.

Fubar
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #112 on: January 25, 2012, 02:59:24 PM »

Fubar
Can you give us a link to the you tube?
Thanks
James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
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james1947

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ak123
Appreciate  your research, maybe this treatment is the future.
All the articles are the same, publishes in different magazines.
Until it will be tested on humans and then approved to treat humans it will take long long time. (my private opinion)
James
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Nemo

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I do believe that's the ultimate endgame of Peyronie's research and treatment.  I just hope this godsend will come while we're still young enough to use it! 

nemo
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mariobros

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Re: Adult stem cell injections for Peyronie's
« Reply #115 on: February 06, 2012, 06:08:27 AM »

UK

Agreed not an awesome post.However it is true that treatment with stem cells with old scar tissue can and does become cancerous.I found this information on you tube, some seminar on stem cell treatment at a university.

They found stem cell treatment more effective with new wounds compared to old wounds.With the old they found that they could become cancerous with hair and bone,  and tumors growing .

I am sure that anyone of us could find this evidenced if one was inclined to do so.It would be reckless for one not to mention that this is a risk in stem
cell treatment.I do agree that post was vague and came across as an opinoin.

Fubar


I believe this generally applies more to embryonic stem cells than adipose derived which is what this procedure is. As embryonic stem cells are true "original cells" from another person they have virtually unlimited growth potential and can form literally any type of bodily tissue, thus they can have somewhat more volatile effects when transplanted into the human body.

Adipose stem cells as i understand are only capable of forming a select number types of tissues (smooth muscle, cartilage, bone etc) not fully formed eyeballs and the like you may have read about in "stems cells gone bad" stories, and as they come from the persons own body they have no risk of rejection and seem to have more predictable outcomes.
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #116 on: February 10, 2012, 05:17:54 PM »

Just wanted to post the quick update, I just received my 6 month follow up call to see how I was doing, and to also let me know they have changed the proceedure for the stem cell treatment they are doing which the nurse said Dr Landers is exicted for and believes will help more than what they were doing when I had my treatment. I'm suppose to hear from Dr. Landers about the details of the improved proceedure and will post the info here. Other than that my status is the larger of the first two original lumps stills seems to be gone and the one I developed on the opposite side has been the same since it appeared. The nurse didn't have all the details about the new proceedure but mentioned it had something to do with emzymes that are used in conjunction with the stem cell proceedure to increase results. But again I will post more once I hear from Dr. Landers.
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #117 on: February 10, 2012, 05:55:05 PM »

Thanks Rd

I have been wondering why we do not hear from other guys that have been to califonia stem cell for treatment.When i had called them they told me that they had been treating guys with Peyronie's. I think im going to send them a letter.Maybe they will pass our forum on to the patients.

It would be interesting to hear from others about their experience with stem cell treatment.It seems that some athletes are having some type of stem cell treatment for injures these days.

As time goes by i think more and more about having this treatment.RD you have not mentioned any adverse side effects that definitely is a plus! Disappearance of a lump does not sound bad eighter.


This new treatment sounds interesting cant wait to here more.


Fubar
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #118 on: February 10, 2012, 06:01:19 PM »

I know when I went they asked me if I would be willing to talk to others about my treatment and I marked the box that said yes. So I don't know if others feel the same way about sharing their experience. Would be nice to hear from others. I am anxious to hear about the updated proceedure as I was already considering a follow up. I think I mentioned before but I had no pain or discomfort from the proceedure except for the prick on the needle with the numbing agent after that I actually felt like I did pre peyronies for the first two weeks or so. I did have some bruising and swelling or fluid which looked like swelling for the first week or two but felt no pain.
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Pat_Hos

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Re: Adult stem cell injections for Peyronie's
« Reply #119 on: February 11, 2012, 11:59:54 AM »


Great to hear the doctor's are encouraged enough to refine the treatment.  I am most interested in this stem cell procedure as the Pentox really hasn't done much.  My fantasy is that stem cells will reset the clock back to the way things were before each of us got Peyronie's.  That may be overly optimistic.  Even a partial recovery of some of the lost length and girth would be amazing.  I have thought of trying the VED system but after reading how many hours a day it takes over so many months, I just don't see how that kind of time is possible.  I tried the Fastsize devise for over a year, and ended up smaller and with less elasticity than when I started after spending so much time in that contraption.  I will look into the VED further if it can reverse some of the lost elasticity from all the stretching.  First I need to know where to purchase the most effective VED system, which will not cause damage like the streching did.
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #120 on: February 11, 2012, 04:03:14 PM »

Pat_Hos
VED is not hours daily as the Fastsize device. Is 15 to 30 minutes, one or two times per day.
I am proposing you to read the protocols for VED on "Vacuum Erection Devices (VEDs) for Peyronie's Diseases".
Same place you will find the different kind of VED's, prices and sources.
James
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james1947

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #121 on: February 14, 2012, 05:44:34 PM »

I just come across the article bellow published at February 14, 2012:
Stem cells could potentially fix ‘broken hearts’
They used stem cells to regrow damaged heart muscle and reduce the scar tissue.
Is very encouraging even they are stating that is phase 1 study. If applicable to heart scar tissues and regrowing heart muscles it should work for Peyronie's also.
As George stated:
Quote
this may well be the future of medicine when it comes to treating degenerative diseases.
James
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George999

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #122 on: February 14, 2012, 08:45:04 PM »

It should be noted that at this point the FDA is rather hostile toward stem cell practitioners as they view the approach to be extremely experimental and they believe that charlatans are using stem cell scams to steal money from unsuspecting patients.  This might make such treatment difficult to come by and, perhaps risky.  I would ONLY have this sort of thing done at a major research center, not by someone who might turn out to be, indeed, a snake oil peddler.  - George
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George999

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #123 on: February 18, 2012, 12:38:06 AM »

http://www.voanews.com/english/news/health/Scientists-Regrow-Tissue-Killed-During-Heart-Attack-139531913.html

If they can do it with hearts, they should be able to do it with TAs.  - George
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restore

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #124 on: February 18, 2012, 08:13:01 AM »

The future looks promising.  Too bad it's the future, and not the present.  If this takes ten years to reach us, then I'll get my penis back when I'm 60. 

Never thought sex at 60 would be better than at 50, but I'm no longer in a depression knowing things will get better through medical science.
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james1947

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #125 on: February 18, 2012, 07:31:53 PM »

Restore
I appreciate your optimism, but I am in depression. Now 64, in 10 years 74. Who knows where I will be by then!
And also waiting 10 years is a very long time to wait.
James
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rd

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #126 on: February 20, 2012, 08:52:27 AM »

I dunno if I would estimate it being 10 years off. I had stem cell injections as most people know already on this forum. The larger of the two lumps has gone away. I still have deformity from the remaining lump and also developed a another small lump on the opposite side that causes some discomfort but no deformity. I am also considering going back for another treatment but waiting the 9 months recommended by the Dr before having a follow up proceedure done.
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james1947

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Re: Stem Cell injection as possible peyronie's cure ???
« Reply #127 on: February 20, 2012, 09:57:18 AM »

rd
Thanks for reminding me. I have read all your posts and I was very encouraged by your progress and same time appreciate your braveness to try it even now one on the forum don't try it before you.
It just sometime I get pessimistic (for a short time usually). 
James
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #128 on: February 24, 2012, 04:58:48 PM »

Just got a update, the refined proceedure is for Erectile Dysfunction not for Peyronies - "the change in protocol is mostly for Erectile Dysfunction patients. It involves the use of PRP Platelet Rich Plasma with the stem cells."
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #129 on: February 24, 2012, 05:20:14 PM »

rd
Thanks again for your updates. They are allways encouraging and useful, I am shore not just for me.
James
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james1947

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Nemo
Read late you answer. Very funny!!!
Of course we will be still young enough (I am 64) if we will be still in this world.
James
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james1947

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Re: Stem Cells and Peyronie's treatment
« Reply #131 on: March 01, 2012, 10:31:32 PM »

For some reason things are going slowly in this subject.
On November 10, 2009 George topic "Treatments on the Horizon ..."
Quote
Scientists Grow New Penile Tissue in the Lab
was a very promissing research but we don't see any update until today of any progress.
On November 04, 2011 George added a new research
Quote
Tissue created in a laboratory has been used to completely replace the erectile tissue of the penis in animals.
not similar but very close.
Your link
Quote
http://www.huffingtonpost.com/2012/01/23/stem-cells_n_1224764.html
regarding the new research is also not similar but not far.
Have many other researches regarding stem cell therapies for other things than Peyronie's but as I understand can be used also for Peyronie's, I am attaching one.
It seems that have some researches by some researchers that maybe knows or maybe not about each other.
In parallel have some clinics that already offers stem cell therapies. rd, member of our forum tried out stem cell injections with positive results.
My private opinion, things are going slowly in the subject even is a very promising approach because the uro's don't see big money from it and maybe it will replace many of the surgeries and therapies done today that are making big money.
James
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #132 on: March 27, 2012, 07:16:01 PM »

Tomorrow i have an appointment with Dr. Landers from the California stem cell treatment center.
I know this is short notice but the appointment has been moved not by my choice.I would like to know if anyone has something they would like me to ask the doctor?

I have the opportunity  this year and the funds to have the procedure. So i would be able to travel in May or whenever my leave and their scheduling permits.Naturally i will investigate more before i make a final decision .To me there are still many what ifs and we all know things can go wrong.

This procedure is not fda approved .I have yet to hear or find testimonial that one has been cured.They advertise this as patient funded research and claim the procedure to be lawful on their site.


Fubar
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #133 on: March 27, 2012, 11:51:45 PM »

Fubar

It seems that rd had good results.
From what I read on the forum some people are concerned regarding cancer with this treatment.
Other opinions are that it is other kind of cell therapy that may have cancer problems.
I think you should ask him this question. It may clear the point for all of us.

James
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #134 on: March 28, 2012, 03:16:43 AM »

James

This is the number one question on my list. Cancer has been a major concern from the beginning for me after reading and watching lectures on stem cell  .I learned that cancer is a possible outcome resulting in hair, bone or tumor becoming abnormalities in the healthy tissue.


Knowing cancer spreads quickly and is hard to treat ,often renders one dead more times than not. The possibility that Cancer is a threat , warrants more investigation before treatment.


Fubar


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GS

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Re: Adult stem cell injections for Peyronie's
« Reply #135 on: March 28, 2012, 08:53:13 AM »

Obviously rd is a brave soul for going through with the stem cells.  But Fubar, you are also a brave man to consider it.

I wish both of you the best and I'm sure you will both keep us all updated.

GS
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fubar

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Re: Adult stem cell injections for Peyronie's
« Reply #136 on: March 28, 2012, 11:29:28 AM »

Gs

You know what they say there is a fine line between bravery and stupidity.

Fubar
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rd

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Re: Adult stem cell injections for Peyronie's
« Reply #137 on: March 28, 2012, 02:01:00 PM »

While doing my research on this, the way I understood it was that the adult stem cells they have never seen a case of cancer yet, but with the embronic stem cells  they at times seen it result in cancer.
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james1947

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Re: Adult stem cell injections for Peyronie's
« Reply #138 on: March 28, 2012, 09:23:27 PM »

I agree with fubar and also with gs.
What I am thinking that all of us with this disease are walking sometime on this thin line. Maybe we all are adventurers, or maybe pioneers?
In any case we are Guinean pigs in many of the doctors trials. I hear from a very high level doctor/professor that they are doing trial and error until finding a solution.

James
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #139 on: April 03, 2012, 03:03:21 PM »

Wow took me some time to get here.I see they are combining topics that are the same.Funny though i started the topic first and now part of someone elses.Hmmmm anyway i spoke to Dr.landers last wednesday.He was generouse with his time and had no problem with listenimg and let me exspress my thoughts on the stem cell treatment.

Seems that there are is much to learn about the stem cell therapy and treatment.Dr. landers has been a urologist for over twenty years and has been treating stem cell for a few.He seemed very excited about what he is doing and the progress they are making at the treatment center.They have treated over 150 patients looking for relif from what ever they are suffering.Califonia stem cell center has had progres with some treatments that others in the world have had no such luck.The center is staffed with other doctors and all treatment and harvisting of the stem cells is done on the premises.They lipo suck from the belly button fat then harvest the stem cells with a machine they use.Inspect the cells to see how many and the health of them.While they are harvesting you sit in a room for a few hours watching telivision or reading.He said after the injections you are free to leave .

Asked him if there were any cancer issuses he said no there are none with audult stem cell.How many treated for Peyronie's he said 2 or three.I believe in reality probably only one that would be rd our fearless hero.There was another guy he spoke of outside the U.S. that after speaking to a patient changed his mind although he had progress was not cured.The there was a guy who had a graft incision and his graft patch had turned hard as stone.

Dr. Landers told me he did not think it was a cure yet that maybe some one will come up with the wright combinations of stem cells one day.He said that he really does not know what treatment is going to work but that they are trying different things with procedures all the time.This is something that warmed my heart that finally a Doctor admitting he was on his own with this trying his owm way and get this that Peyronie's was a huge problem.Now when have you heared a Urologist say that?


He mentioned that the mostley treat bone,  musle, and has treated a guy with dupytrens.I am interested to see how dupytrens procedure results.He asked me if i had any fat on me.I said barely that i lost 21 lbs in the last month an 50 the year before.Still he assured me this was not a problem.He said that before and after the procedure not to take asprin that this cause the stem cells not to be able to communicate.You know when when injured we all have are own stem cells that COME to THE RESCUE!
So to new Peyronie's suffers DO NOT TAKE ASPRIN!This is my personal opion that when first injured having the stem cell procedure will have the best results.When i first found this center i was in the acute stage i should have jumped for ghe treatment then.Truth i have no resevations about having stem cell treatmwnt now.I told Dr. Landers i had brought the the topic(Adult stem cell injections for peyronies. That it seemed it was not a hot topic and few have intrest.I did however say that a couple seemed interested an basically started the same topic using different words.Bassically same old problem people do not look over topics or read to see if it has been mentioned.

I would like to the James1947 for his efforts consolidating  and being a great moderator! It is good to have you in this seat you seem to be working very hard in making the forum a better and easier to navigate.

Well if i can think of anything else i will be sure to post sorry for the wait.Oh yeah rd they have dropped the pricw on the treatmwnt to three or four thousand he was not sure.They have been trying to cut the cost.Dr. Landers stating that the reason why is that he feels the cost is steep without the patient knowing he will have positive results.Look guys we all have been saying wish someone will take interest in Peyronie's. Well we have someone and he is excited about what he is doing more so than any other time in his career.He thanked me for getting the word out because they need patients.I would think seriously about havimg this done if you are young and in the early stages of peyronies.Sorry if there is misspellings or i have been long winded.Thank you for listening.

Fubar

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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #140 on: April 03, 2012, 07:15:22 PM »

Fubar

Thank you  for the update. It is long but worth reading. Is indeed encouraging that a doctor want to help Peyronie's sufferers and if I was not so far I was giving a try. Also the price reduction is encouraging.

rd is our real hero hear and I wish this treatment will help and help all the others that will follow.

My apology to you not keeping your original topic name even you was the first with the stem cells post. When I am merging topics, I try to give names that reflects as much possible all the included topics.
One of the problems is that sometime people (also myself) are not trying the "search" on the top of each window of the forum and try to see if have some similar or close topic before opening new one.

James
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Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #141 on: April 03, 2012, 11:54:42 PM »

James1947

True we need more suffers to go and have this treatment. Even if it is trial and error that is the way things are worked out before finding a protocol that succeeds.The center has had progress so i do not think that it is failure.When you have injected the plaques of a patient and they disappear over many months.This is a success! Having the damaged removed by the stem cells and then replicating the healthy (TA) cells must be pretty tricky. When they do that then we will be cured and this will only be a bad memory for those that have this miracle happen for them.

Fubar
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Luciano

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #142 on: April 04, 2012, 01:03:15 AM »

@fubar & james
I agree that it would be great to have lots of people try this and be able to find a cure with stem cells.
The price is not what matters... even if its $20.000, its the price of a car. If I would get rid of Peyronies Disease i would ride a bike for the rest of my life.
I think though the problem is different.
There are too little serious institutes offering this kind of treatment. Too little experienced docs that would apply it, too little information on the risks (cancer &c o), etc.. etc..
So if I agree this is great outlook for younger patients, I am not so euphoric for myself because:
I am not a heroe
I dont want to be a guinea pig
and I am to old - as I only have a couple of years left to use my thing, I cant wait for 10 years for a stem cell therapy to be well adjusted for peyronies.
(thats why I am seriously considering surgery)

But I do find it great that some of us seriously look into it. It gives us hope, hope for the group, so that maybe the younger ones among us can see a light on the horizon.

Luc
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rd

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #143 on: April 04, 2012, 12:31:09 PM »

Wow took me some time to get here.I see they are combining topics that are the same.Funny though i started the topic first and now part of someone elses.Hmmmm anyway i spoke to Dr.landers last wednesday.He was generouse with his time and had no problem with listenimg and let me exspress my thoughts on the stem cell treatment.

Seems that there are is much to learn about the stem cell therapy and treatment.Dr. landers has been a urologist for over twenty years and has been treating stem cell for a few.He seemed very excited about what he is doing and the progress they are making at the treatment center.They have treated over 150 patients looking for relif from what ever they are suffering.Califonia stem cell center has had progres with some treatments that others in the world have had no such luck.The center is staffed with other doctors and all treatment and harvisting of the stem cells is done on the premises.They lipo suck from the belly button fat then harvest the stem cells with a machine they use.Inspect the cells to see how many and the health of them.While they are harvesting you sit in a room for a few hours watching telivision or reading.He said after the injections you are free to leave .

Asked him if there were any cancer issuses he said no there are none with audult stem cell.How many treated for Peyronie's he said 2 or three.I believe in reality probably only one that would be rd our fearless hero.There was another guy he spoke of outside the U.S. that after speaking to a patient changed his mind although he had progress was not cured.The there was a guy who had a graft incision and his graft patch had turned hard as stone.

Dr. Landers told me he did not think it was a cure yet that maybe some one will come up with the wright combinations of stem cells one day.He said that he really does not know what treatment is going to work but that they are trying different things with procedures all the time.This is something that warmed my heart that finally a Doctor admitting he was on his own with this trying his owm way and get this that Peyronie's was a huge problem.Now when have you heared a Urologist say that?


He mentioned that the mostley treat bone,  musle, and has treated a guy with dupytrens.I am interested to see how dupytrens procedure results.He asked me if i had any fat on me.I said barely that i lost 21 lbs in the last month an 50 the year before.Still he assured me this was not a problem.He said that before and after the procedure not to take asprin that this cause the stem cells not to be able to communicate.You know when when injured we all have are own stem cells that COME to THE RESCUE!
So to new Peyronie's suffers DO NOT TAKE ASPRIN!This is my personal opion that when first injured having the stem cell procedure will have the best results.When i first found this center i was in the acute stage i should have jumped for ghe treatment then.Truth i have no resevations about having stem cell treatmwnt now.I told Dr. Landers i had brought the the topic(Adult stem cell injections for peyronies. That it seemed it was not a hot topic and few have intrest.I did however say that a couple seemed interested an basically started the same topic using different words.Bassically same old problem people do not look over topics or read to see if it has been mentioned.

I would like to the James1947 for his efforts consolidating  and being a great moderator! It is good to have you in this seat you seem to be working very hard in making the forum a better and easier to navigate.

Well if i can think of anything else i will be sure to post sorry for the wait.Oh yeah rd they have dropped the pricw on the treatmwnt to three or four thousand he was not sure.They have been trying to cut the cost.Dr. Landers stating that the reason why is that he feels the cost is steep without the patient knowing he will have positive results.Look guys we all have been saying wish someone will take interest in Peyronie's. Well we have someone and he is excited about what he is doing more so than any other time in his career.He thanked me for getting the word out because they need patients.I would think seriously about havimg this done if you are young and in the early stages of peyronies.Sorry if there is misspellings or i have been long winded.Thank you for listening.

Fubar



This was pretty much my experience speaking with Dr. Landers and with my proceedure. He was open about not knowing all there is to know how the stems cells work and that they are still learning. He seemed to be refreshing and excited about finding a solution to this condition. The proceedure was like as described I went in had my concelltation and then the proceedure. They did how ever have to harvest the fat from my lower back as I am very lean unusually lean then most being in the single digits for body fat. After that I sat in another room and watched tv while they processed the fat/stem cells. Once that was done I went back in to the harvesting room and had them injected in around and under the plaque. The only pain I had was from the first shot to numb the area and it wasn't that bad. Right around noon Dr. Landers dropped me back off at the hotel. I was hungy so I actually ended up walking about half mile to a restuarant to get some food then back to my hotel. Also that night I woke up with a errection which didn't hurt either. The only discomfort I had was the lipo area it bothered me for a few month but I expected that from what I was told and new of others who had just lipo. Also I had the one lump disapear and the remaining of the original two lumps on the right side seems to have shrank and become squishy as of today. I still have a dent or more hour glassing at this time but I figured I would unless the lump completely resolves. I did develope another small lump on the opposite side that just appeared one day and hasn't changed any that I can tell. It doesn't cause any dents or hourglassing or aything that i can tell but just a little discomfort. It is refreshing when talking to Dr Landers and seeing his excitment about doing something about this condition. They have also contacted me when they have had a potential patient who wants to talk to someone about there experience and asked me if it would be ok if they could email or they could give my contact info to the interested person. So far I have talked to one person via email to share my experience thus far. I am also considering a follow up proceedure because of the results I have seen. I am waiting till may which will have been 9 months which Dr. Landers sugguested I wait before having a second proceedure done.

Some of this is repeat info but I figured I would share it again incase some had read it in my previous posts.
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fubar

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #144 on: April 05, 2012, 05:58:41 PM »

You know something crazy has just occurred to me.What if the mature scar tissue was reinjured and then stem cells injected into the scar tissue.Could this inturn create a better bed for the stem cells to replicate and mend the rough surface more to what it once was?Just a thought knowing there is a better chance of repair with a new wound.I have had Peyronie's  atleast 24 months or longer.

Fubar
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #145 on: April 05, 2012, 06:29:41 PM »

Fubar

In my private opinion it is CRAZY because you don't know what will be the result of the reinjury.
Also it may come out not exactly in the same place and then you will have two instead of one!!!

James
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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #146 on: April 05, 2012, 09:04:09 PM »

Yes it may be crazy and sound risky but there are ways to agrivate the scar.Maybe pin point lazer treatment or botox im sure there are other ways .Does not mean it wont work.You want stem cell to replicate the (ta) not a wound that is a mass of plauqe or calcification.A mature wound has less of a chance to recover and heal.

I did not say i was going to have this done.I will ask doctor Landers thoughts on it Though and i would make a decision based on the all information Pros or cons.Nobody has really broken the ice on Peyronie's. There will be many procedures attempted and protocols changed to find any cure with this.But i think it will defnately come from the cellular level.


Fubar
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Luciano

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #147 on: April 23, 2012, 02:26:19 PM »

talking about stem cells, I read in a french newspaper that Wayne Hellstrom (tulane university, new orleans) did some tests on rats...
incision on penis so the devellop curvature, then doing surgery using a special graft (sis i think), but putting stem cells harvested from the fatty tissues on the graft .
8 weeks after surgery, the rats had not only a stronger penis, but better irrigation and better erection and more girth.

The paper (Le Point) writes they are going to do more tests on monkeys.
Strange I never heard of a study going in that direction.
Luc

Edit:
Found the exact same article in english:
http://news.sciencemag.org/sciencenow/2012/01/stem-cells-build-a-better-rat-pe.html

and the abstract of the study by Hellstrom:
Adipose tissue-derived stem cell-seeded small intestinal submucosa for tunica albuginea grafting and reconstruction
Abstract:
http://www.pnas.org/content/109/6/2090

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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #148 on: April 23, 2012, 07:40:45 PM »

Luciano

Thanks for the information.

It is encouraging that more and more researches are done in this direction.
It may be the real future answer for Peyronie's an for many other diseases.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #149 on: June 08, 2012, 03:19:09 AM »

rd

How is your progress as for today compared to when you started your treatment?
You are continuing with the second procedure?

Maybe by the end your treatment is the future for Peyronies.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
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Got amazing support on the forum
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