New to forum with questions

[Old Man]

chiguy:

When you send a PM, make sure that you have the save copy block in the bottom left hand side checked. Otherwise you will not save a copy to your outbox.

Old Man

[jackp]

choguy

Your messages came through. I just sent you a PM. Let me know if you did not get it.

It takes a little time for a message to show up in your out box.

Jackp

[chiguy]

Hey Jackp,

For some reason my PMs aren't showing in my outbox so I am not sure if you will get them. Thanks again for all the help.

I have an appointment with the urologist for a followup in less than 2 months. Do you think it is beneficial to wait to see him prior to ordering a VED? He sees a lot of Peyronie's patients and doesn't rush anyone out of the office, so I trust him as a good doctor.

What is the difference between the one and three cylinder VED devices?

I have full insurance so maybe if I get it thru his office the insurer will pay.

Thanks

[jackp]

chiguy

The VED therapy I recommended is not for sex it is to keep your penis healthy, help reduce curve and prevent loss of penile size.

Like I said before the number one complaint of men with peyronies is loss of penile size. You do not want to wake up one morning and wonder where did 1 1/2 inches of my penis go.

The 3 cylinder protocol is recommended but I already had a Rx single cylinder. Old Man worked with me and worked up a therapy. I have it posted on the VED board under Single Cylinder VED Therapy.

You can see how the VED helped me by going to My History, a link is posted at the bottom of this post.

The therapy takes time to work. 3 months of more so just be patient.

Any questions do not hesitate to ask

Jackp

[chiguy]

Thank you Jackp.

Would it be safe to assume that my plaque has not yet calcified? Sometimes it feels hard, yet other days I can feel it, but it is not very hard to the touch.

I will look into the VED, though I am under the impression that it is best used for people that do not get active use of their genitals or already have experienced erectile dysfunction?

[jackp]

chiguy

I will try to answer some of your questions. First I believe in vitamin E it thins the blood there fore you get better blood flow to the penis.

It usually takes peyronies 18 months to stabilize. During that time you need to start VED therapy. Go to the VED board and do some research. The goal is to keep the penis healthy and keep from loosing penile size. The most common complaint with peyronies is loss of size, length and girth. The VED is the best therapy for that.

As for pain, I did not have pain with my peyronies, I took 800mg of ibuprofen twice a day for arthritis, so that may be a reason. Other pain killers will block feelings to the glans and make erections and ejaculation more difficult.

You will know when the plaque has calcified when it turns hard.

Like I said at this point the Vitiaman E and proper VED therapy is your best bet.

Jackp

[chiguy]

I have monitered the forum for a month or so and finally decided to join. I know there are some knowledgeable folks on here. To give you all a little bit of information:

I am 24 years old. One morning I woke up and had significant pain in my groin and was unable to get an erection. I also experieced browning on my shaft. This continued for 3 weeks. I went to a urologist who said to wait and see. This was March 2009.

Fast forward two months: The pain was present only in erections, which had begun to curve (I always had a slight curve). I also felt a tightness in my erection. The doctor again said to wait and see, but gave me motrin for inflammation.

In August 2009, I switched to a different urologist who diagnosed Peyronie's almost immediately after feeling the plaque. He prescribed 1600 mg of vitamin E, 20 days of Prednisone, and cortisone (for the browning). By this point, the erection was at a 35-40 degree angle upward with a significant leftward rotation on the head. The pain was cut in half due to the prednisone. My doctor it appears is very good. He does not want me to pursue surgery at this point.

I still experience some pain in my erection and it appears the curve has not significantly changed since August. The browning all over the bottom 2/3 of the shaft has not gone away, but the doctor had me discontinue the Cortizone. He also gave me alleve, but it doesn't do much for the pain on erection some of the time.

I have no problem getting or maintaining an erection.

Now for the questions:

1. Is there any reason why on some days I experience pain with erection (and the plaque is hard as a rock) while other days I do not experience as much pain (plaque is present but not as hard)?

2. The penis doesn't look that odd curved upward, but the leftward rotation is weird looking and makes it hard to function. Have any of you ever just had a rotation at the head fixed as opposed to the entire penis?

3. It feels like I have a lot of plaque on the dorsal side, but it doesn't curve upwards as bad as others who have this disease yet say they only have a little plaque. Any thoughts on this?

4. In my condition, what other medications could I press my doctor for to get rid of the pain and stabilize (if I am already not stabilized)?

5. How do you tell if the plaque begins to calcify? (my biggest concern)

Thanks