ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements

[Liam]

According to this article, there may be some benefit to "Aspercreme".  Check other sources of course.

http://www.sportsinjurybulletin.com/archive/0283.htm

[Rico]

I have read that aspercream doesn't go through the skin, if your pain is deep. The new delivery system "liposmoes", which Alcis uses suppose to go through the fatty layers and give one deep penatration. I haven't used it. There is ketaproten also, but I think you need a prescription for it, they make a topical compound also. Lidocaine is being used by some sport doctors. I did see a over the counter msm that had the liposomes delivery system also. None of these will reduce scar tissue, but if you want to stop pain at the source. Ketaprofen can be taken oral also. There is also suppose to be a new over the counter nasid being approved by the fda soon, topical with the liposomes delivery system this year. Once again, this is not for scar repair, but inflammation around the injury.
There are many nerves on the top of the penis shaft, I believe some of us(myself no pain), have pain because our plaque is pinching a nerve, the shrinking or the stopping of the inflammation which causes the plaque to stablize and not put pressue on the nerve endings, is what stops the pain.

God Bless everyone on this Bless Day.....

Rico  I'm trying to use spell check and it isn't working..so forgive my poor english:)

[Tim468]

Read the linked article, Rico, it might change your mind. It appears that in animal experiments (most people are not willing to allow doctors to take extensive tissue biopsies after an experiment!), that tissue levels were pretty high. The experiment with weightlifting was fascinating. Pretty cool thought - no data regarding Peyronies Disease though.

I would try it in a heart beat for pain related to Peyronies Disease.

Tim

[Rico]

Tim

Yes this is a good article. I was on a sports injury forum and they said they had better luck with deeper pain with the other products, once again this I haven't tried. I always have taken a large amount of nasid for pain and it works for me. I don't like to take anything for long periods, and choose to "Bam" it, with a large dose, maybe 6 advil at once, a couple of times a day for two or three days, it works for me. I only use it for serve cases of deep pain.
Can you google Ultra Prime, it is a hgh, amino blend. I had taken it several years ago, I did have some retracing from a old injury, they said this is because it comes back and repairs the old scar tissue. I had got it through a distributor(mlm), It has many of the amino we take, but I would like your professional opinion on this. My first thought was to take this product, but my ex is involved with the company and when I told her what I wanted it for, this is when she found out I had this peyronies and didn't want to talk to me anymore:(. This retracing is interesting to me though, and I keep comparing back to this product and would like your opionion on it. It is expensive, about $8o. a month, but I don't know if it would be redunant with what we are taking, and if it is the arginine in it that is helping. They have a label list on the product and Like I said I would be interested in your thoughts. It took about six weeks when I was on it, and a old shoulder injury came back bad, but I stayed on it and it went away and now is very strong. I haven't taken it now for almost a year.
Retracing is very interesting to me, along with hgh and collagen rebuilding. I believe we are like a onion with many layers, and if we peel them back one at a time we can get to the root of the problem....Dr. Goldman and Dr. Klatz where behind the research and had a best seller on anti aging....Goldman is more of sports medicine and was on the Olympic board and holds many athletic records himself. Klatz uses his pets to experiment on and keeps them alive way past their years...I like I said don't know enough about the aminos and how they interact, but I keep coming back to that shoulder injury and how it retrace my injury....please give me your thoughts on this....Thank you.

Rico

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[Tim468]

I do worry that you take risks, Rico. Taking a larger than recommended dose of Advil (max recommended dose is no mor than 4 at a time) can lead to irreversible kidney failure. We lost a All-Pro safety in Seattle to that - the Seahawks then kept a large salad bowl of advil available for atheltes to simply gulp as they felt they needed. Now, a successful lawsuit later, they no longer do that. Kenny Easley won his suit, but he never played again, and ultimately needed a kidney transplant.

More is not always better or safe.

Tim

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[Rico]

Tim

Yes, I would agree that four would be best. It was a doctor who suggested the large dose to me years ago. Like I said, I stay away from medicine and use only if the pain is really bad, like I can't sleep because of it pain, which is rare. Getting kicked in the head and body slammed probally wasn't the best thing for me also. But they all seem mild to me vs a broken heart:), now that is pain!
I'm going to soak my dick in a few minutes in dmso and avc and castor oil, I don't think anyone else should do it, except if they choose and know the risks. I'm don't' think much about dying, it is living I'm talking about. You choose the verapamil, and the other drug, does anyone really know what that can do to someone long term? If I had the machine here, I would hook it up in a second. I'm 52, lived a good life, I have nothing now, no money, no wife, and a bent dick, I'm all alone in a new city with no support other than my new friends here. This is the bottom, risk, it can't get any worse brother....I do thank you for your concern and I will watch my post, I don't want anyone to follow my lead just because I put a post on, my research is limited and I'm a trail and error guy and now I'm going to put together my thacker formula and pickle my pecker....Tim thank you for being here on the forum, you experience and knowledge is most welcome, and you are right, I can be a loose cannon sometimes....just take me with a pinch of salt...I have made Peace with the big guy upstairs, and when they are going to pull my ticket, well it is going to happen anyway....Like I said, it isn't dying I'm worried about, It is living...

God Bless.....

Rico

[DannyOcean]

Hi all.  First post to the forums here.  I've spent hours reading all of the posts and thank all of you who've contributed.  This resource is a goldmine for those of us who've developed this wonderful thing called Peyronies.

I was diagnosed a week and a half ago and put on a regimen of L-Arginine, Viagra (25mg) and Pentox.  I've done a bunch of research and have some additional questions:

1.  It seems to me that the main purpose of viagra is to get the rock-solid erections that get the blood back flowing into the damaged area.  The problem for me is that I'm paying out of pocked for viagra and it ain't cheap.  I'm thinking of making an appt with a GP in the hopes of getting a Trazodone scrip.  Do you guys agree that trazodone would be a good substitute for viagra?  Also, any tips in trying to get a trazodone scrip (I'll go back through the forums and look for medical references that back up the use of trazodone for producing erections).  

2.  In addition to the above meds I'm also taking Acetyl-L-Carnitine (650 mg 3x/day) and Vitamin E (400 IU 2x/day).  I've been reading more about the benefits fo Acetylcholine and my understanding is that in order to produce Acetyl Choline you would need ALC + Choline.  Is this correct?  If so, then I am likely going to add a Choline supplement to the mix.  

3.  Any recommendations for a good multi-vitamin?  I haven't taken a multi in a while because I assumed I was getting most of my vitamins and minerals through food (I tend to eat 10+ servings of fruits and veggies each day plus lots of whole grains, soy protein, etc.).  But I do think it's time to start a multi so I'd be curious to hear what y'all recommend.

4.  My dosage for L-Arginine is 1000 mg 1x/day.  That was what was recommended by the doc.  I'm wondering though what the benefits/drawbacks of upping that dosage might be.  I've seen people on here who are doing 4000-5000 mg/day and so I thought I'd ask.

5.  I'm actually pretty surprised that more people on these forums aren't talking about diet.  It would seem to me that this probably plays a pretty big role in Peyronies treatment.  I eat a pretty healthy diet (as outlined above) but am always looking to improve.  One thing I'm a bit concerned about is that my diet is mostly vegan (I eat almost no dairy and meat only a few times a week).  Most of what I've read supports this from a health perspective but I am concerned that I might not be getting enough amino acids on this diet which could stunt recovery.  Any thoughts on this?  Also, any foods that people think are particularly helpful in recovery.  

(By the way, it also seems to me that exercise probably plays a pretty big role in all this given that it gets blood flowing through the body including our members.  Again, it's something that I don't see talked about much here.  It would be nice to know if there was a strong correlation between a healthy diet and regular exercise and recovery.  It would seem likely that there would be...)

OK, I'll shut up for now as I've said a lot.  Thanks in advance for any help.  I'm looking forward to being a regular contributor here.

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[BLBC]

Danny, Welcome! I'm sure you'd rather be anywhere else, but you will find a bunch of wonderful, knowledgeable, helpful men here! I will forward you a study via PM dealing with Trazodone. My DH faxed it to his Dr. and a script was called into the pharmacy. It is used for night time erections. I have no working knowledge about viagra, diets or most of what you mentioned, but I am sure your questions will be answered by those who are in the know.  

[Blink]

Danny, by all means please do not shut up! You have a lot of great things to say. On the trazedone issue. In my opinion, Trazedone is better than viagra because it does not cause your blood pressure to rise and anything that causes you to see blue can't be good. In my opinion, trazedone is safer. When I asked my GP to give me trazedone, I told him that I needed it for mild depression, to help with sleep, and as an aid for peyronies treatment. I also asked that he prescribe me 50mg once daily. I cut the pills in half, giving me enough for two months supply. A script of trazedone only costs about four bucks, compaired to the price of one viagra tablet. (I'm not sure what they cost) The trazedone does make you a bit groggy in the morning until your body adjusts. Give yourself a little extra time to wake up in the morning. As for the vitamins, I'm taking the generic version of Centrum Silver. It's cheap at Walmart. I believe that any herb or supplement that promotes blood flow and cellular regeneration would be good to take. Also antioxidants are good to flush the system out. I really don't take massive amounts of anything. I just try to be consistant with my regimen. Keeping fit is always a good thing, both mentally and physically. And don't forget Rico's epsom salts baths! Soaking in a nice hot bath with epsom salts is very relaxing and helps to sleep well and reduce stress.   Keep the Faith...Blink

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[Blink]

BLBC, would you send me a copy of that study too! Thanks. Keep the Faith...Blink

[Liam]

DannyOcean,

Welcome!  Glad you found us here.  That was a great first post.  Keep posting, please!

Trazadone and Viagra, although both legitimate treatments, work by different mechanisms.  Viagra (sildenafil), Pentoxifylline, and l-arginine purportedly have a synergistic effect causing the total effect of taking all three to be greater than the sum of its parts.

Trazadone  

...But the mechanism for trazadone is theough alpha adrenergic blockade. Adrenal release of epinephrine and nor-epinephrine lead to a variety of effects. Alphas activity allows the sinusoids to drain and let the blood out of the penis; blockade of that leads to a longer period of erection during nocturnal erections.  Thanks Tim

How Viagra Works

Unfortunately, as we age, cellular concentrations of cGMP decrease. Viagra works to achieve and maintain erections by (1) enhancing the effects of nitric oxide, and (2) maintaining higher levels of cGMP, the two key players in penile erection. The way Viagra does this is to selectively inhibit the cGMP-destroying actions of PDE-5. By blocking the actions of this enzyme system, cGMP is no longer broken down. This leads to elevated cGMP levels in the corpus cavernosum. This in turn prevents relaxation of the smooth muscle in the corpus cavernosum.   http://www.doctorg.com/viagra2.htm

Call me the king of copy and paste.  Hey, these guys can say it better than me .

[Hawk]

Danny,

With that that large intake of fruits and vegetables per day, I think any good multi-vitamin would fill the bill.  I have taken up to 6000 mg of L-arginine with no noticeable ill effects and I would not likely take less than 3000mg.  This is nothing more than a gut feel for what I positively react to.  I would also consider upping my ALC to 3000 mg per day.  I have never read a single negative effect from ALC and many positive effects unassociated with Peyronies Disease.  Since you are in the early stages, this is the best time to try to reverse the damage or at least hold it where it is.

25 mg Trazodone with a snack for absorption right before bedtime is a no brainer for me.  The cost is 1/1000 of the cost of Viagra.  It has far few side effects, and tends to give nocturnal erections when your oxygen levels are at their highest.  It gives me firmer erections than a 100 mg dose of Viagra.  It does work much better with nocturnal erections than it does with stimulated erection for me, so you may want some Viagra on hand if you need that boost for performance (actually I prefer levitra because food is less likely to block absorption).  Also there are theories that Viagra both helps and worsens Peyronies Disease.  It may have benefits that exceed just blood flow but for me Trazodone is tops for blood flow.

Welcome aboard.  If you have to have Peyronies Disease, then we want you right here as an active posting member.  All for one and one for all.

[scott]

Hawk,

Thank you so very much for your posts, and those of several other members, on the benefits of trazodone.  I had positive results the first time I used it, but I wanted to use it for three or four days before posting.  IT WORKS!

I cannot think of any reason why, at the level of 25 mg., someone would not be willing to give it a try.  It DOES increase nocturnal erections.  I DO have a "fuller" feeling in my penis when flaccid.  I also believe that it is helping the part of my penis that doesn't get as much blood flow (due to plaque) with a stimulated erection.

I have a medical background, so I don't want to sound like a WOW! GEE! GOLLY! TRY IT NOW! kind of person; I tend to be rather skeptical, but this works, it sure does...

Scott

[Tim468]

I responded earlier, but for some reason it did not post.

Trazadone and viagra work through different mechanisms. But it is not the effect on erections (nocturnal or otherwise) that make the doctor recommend viagra. Rather it is is the specific effect as a "phosphodiesterase inhibitor" that leads to a specific antifibrotic effect.

Thus, the effect of viagra is to break up fibrosis, not to induce erection. The use of the l-arginine, viagra and pentox together is based on recent studies showing that a multi-mechanism approach to preventing/treating fibrosis works better than a single drug alone.

Again, the viagra is not prescribed to induce erections - it is to reduce fibrosis. Don't substitute trazadone for viagra in this instance. And be cautious about combining them (I have seen more than one sexual dysfunction center recommending against that).

Also, you need to see if your doctor can get it approved for off-label use, and thus paid for. It may require appeals, but it is worth fighting for!

Tim

[Rico]

Tim,

Do you think the colostrum in the ultra mix would help with wound healing or scar tissue?

Rico

[Tim468]

>> Do you think the colostrum in the ultra mix would help with wound healing or scar tissue? <<

I wouldn't even want to guess...

Colostrum as you know, is the milk that is released early by the breast feeding mother, before let-down and delivery of the more fat-laden "good stuff". It provides a natural form of passive immunization to the baby, who is without a completely functioning immune system.

I sort of think of colostrum as a baby food - as in, FOR babies. The idea of drinking it is too weird for me - how could I participate in the deprivation of a child of what was rightfully his or hers? What baby went without colostrum so that I might drink it.

When John D Rockefeller died at an ancient age in 1937 (in his late nineties), at the time of his death he was feeding exclusively on the milk of new mothers. Young impoverished (mostly Irish) women breast fed him - he suckled at their breasts - and he apparently proved that there is no behavior too degrading to participate in if you are wealthy enough to afford it. Nevermind that the children of those women probably died (for to not breast feed, or to go into a "foundlings home" carried a >90% mortality), he got his.

So, me? I don't drink colostrum!

Tim

[Rico]

Tim,

I don't drink "mother's breast milk either"  I know that some athletes take colostrum(from cows and sheep milk), and it helps with cell repair, and boost ones immune system. I know people on the forum have talk about the autoimmune system being out of whack ect.....plus I found colostrum in some supplements with aginine and acl ect....these suppose to enhance ones natural sceretagogue, mood enhance ment, also libido and cell repair....some CLAIM to retrace old scar tissue and repair it. I knew of most of the amino's but I thought the colostrum and once again....this is from cows is interesting....  so TIT  for tat.... Oh, you don't have to suck on a pregnant cows utter, they have it in powder  form:).....

Rico

[Liam]

Tim,

That may be one of the most bizarre stories I've heard.  What is your source?  I looked on Google (just imagine the key words I entered) with no luck.

[Rico]

Tim,

It is Bovine Colostrum from cows, comes from there mammary(sp) glands after 24 to 48 hours of birth. Like I said, just thought it was interesting....

Rico

[Tim468]

>>It is Bovine Colostrum from cows<<

Oh.

::looking like Emily Litella::...

Never mind...

Years ago, a student of my older brother's, wrote a paper/thesis, that was made in to an incredible comic book about John D. Rockefeller. As far as I know it was never widely released, but could only be found in leftie bookstores in Berkeley and San Francisco. I had a copy for years, and it was fascinating. It was illustrated in the manner somewhere between a Zap Comix style, and a SuperHero type comic book. It was meticulously researched and included references. I tried googling for the facts I remember (that is the one that sticks out the most), but have never found confirmation of that "fact".

But I love it so  much, and he was such a toadie anyway, I *want* to believe it. So I chose to.

Tim

[Rico]

Colostrum: A critical peptide and protein - Rich complex derived from the milk produced by Mammals in the first 24-48 hours of lactation that contains essential immune system and growth hormone progenitors!

They have 1.5 million cows in Australia, grass feed organic, and it is cold process, gel caps.... So anyone who thinks they can get away with going to the titty bar(two for one), this isn't the case:)...Oh happy hour brings on a new meaning......

I lived in the Philippines for two years in the Navy, 1973-1975....they had bolutes over there, it was a duck egg they buried in the sand, when you open it, the little chicken embryo was laying in the fetal position on top, you sucked down the juice and everything else. When a big strong child was born, they would scream Bolute, Bolute, meaning the mother ate many of these, they were full of nutrients, all the kick boxers ate them also...It took me awhile to get use to them....sometimes one has to be reborn ed again, peel back the layers and find the source....

TIT for TAT   or TIT for health....

Does anyone know if they have Bolutes at HOOTERS!

Rico

[Tim468]

Rico,

You give new meaning to the phrase "Real Men Eat Anything"...

BTW, any news betewen you and that woman who offered to come over and "kiss it better"? You may not be ready for her to enter your life, but that story is proof that women can help us overcome our fears about this disorder.

Tim

[Rico]

Tim,

Yes, women are great! I didn't take that one up on helping my Boo Boo, but I let the horse out of the barn one night, in the pool of all things, and everything worked find, I guess I had to find out if I could make her get her cookies and it was more for ego....self confidence thing....but swallow sex, in the swallow end of the pool, is swallow at best if your heart isn't involved, and mine wasn't. But I feel stronger everyday, tried to stay focus at work and help as many people as I can. I work in finance, a mortgage broker and it makes me feel good to get someone there first home(most of my clients have been turned down by banks), and treat them with respect...So with work, exercise, reading ,cooking and movies and of course my new and great peyronies Hobie:), I keep busy....I have plan, and I found in life, you have to work your plan, and mine is thacker formula two hours every night, supplements, diet and exercise and soon the VED 26 week protocol to pray for everyone and smile as much as possible....it will take a long time to get the lost of my wife and step sons out of my mind, she ran away, far away....Ican only hang on to the memories now....but when I ready, it will be in mind and body and spirit...and LOVE! Take care my Brother...Have a Bless Day!

Rico

[DannyOcean]

Hey all.  Thanks for the all of the help so far.  I honestly expected to log on this morning and have a reply or two and instead there were a lot more.  Very cool...  Anyway, a few follow-ups:

1.  Upping my L-arginine and ALC dosages seems like a good idea.  Are there any common side effects of doing so?

2.  Thanks to Tim468 for the Viagra info.  I really would like to stay on the viagra/pentox/l-arginine combo but it does kill the pocketbook.  I will see if the doc can do anything to help me there.  I'm going to be switching health insurance providers at month's end so does anyone know of a provider (in the U.S.) that will pick up the tab for Viagra?  I thought I had read about one that would a while back.

3.  I didn't hear anything back on choline stuff.  Is anyone supplementing with this.  I've come across at least two things that talked about the benefits of acetylcholine thus far.  

Thanks again.  The support community here rocks!

[Liam]

Danny,

One thing that will help is to get a Rx for 100 mg Viagra and buy a pill cutter.  That will save a little.

Liam

[DannyOcean]

Thanks.  The only issues with cutting the 100 mg Viagras in four are that it says on the package that the medicine isn't dispersed evenly throughout the pill and also, these are so darn small and tough to cut into four without losing a good chunk of the medication.

Anyone here getting insurance to pick up your little blue pill tab?

[Liam]

There are several made for Viagra advertised on the web .  I bought mine at CVS and, although not perfect cuts, they are pretty close.  Sometimes I get a little "powder".  I always think should I take it by mouth or snort it (insert large nose or Pinocchio joke here).  My Uro will only prescribe 8 (100 mg) each month.  I have to use a pill cutter.

BTW, Don't snort Viagra.  That was a .... ah say that was a joke ,son. :::: ala Foghorn Leghorn::::

[zigwyth]

Might want to move Tim's post 547 to the Light side. I was taking my Nasty ass Gota Kola my girlfriend bought me for this Peyronies Disease when I read his post. I spit about .87 cents worth out laughing.
Zig The Twig

[George999]

For those of you concerned about being able to obtain/afford enough Viagra/Levitra/Cialis to do the job, let me once again remind you about Horney Goat Weed.  The most commonly available Horney Goat Weed supplements contain 10% icariin.  I use the ones mixed with maca, NOT the ones containing Yohimbe.  I don't recommend Yohimbe.  Icariin does the same thing as the Viagra type PDE-5 inhibitors.  Icariin is a PDE-5/PDE-4 inhibitor.  PDE-5 inhibits nitric oxide, PDE-4 activates inflammation.  Horney Goat Weed is cheap and very available at health food stores.  It takes about 90 minutes to reach peak effectiveness.  I take some along with Arginine and then exercise since exercise also activates nitric oxide metabalism which is what we want to acheive in order to increase circulation.  Here are some relevant studies:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12646997&dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=15329286&dopt=Abstract

Do not take more than recommended (about 100mg icariin per day) since excessive icariin intake is suspected of possibly causing kidney damage (rat studies, etc.).

- George

[Tim468]

I am trying to find a way to make this MACA taste anything other han awful. Any ideas out there??

Tim

[zigwyth]

Tim are you taking it by a spoon or what.? I've been using an eyedropper with my Nasty ass Gota Kola. Then immediately chasing it with Crown Royal. I mean V8!
Zigwyth with a Twigith

[George999]

You folks might need to go to the tablets or capsules on the maca.  Sorry about the foul taste, its not what the web vendors promise. I wasn't aware of the problem because I have always just used the tablets.  Those Peruvians must have an aquired taste or some really innovative preperation tecniques.

- George

[Rico]

I would take a good multi vitamin and eat plenty of fruit, natural is better and you will also get the minerals and fiber and energy you need. I'm watching the US OPEN, just sliced up four kiwi's, great source of vit c and other healthy nutrients. Just a thought:).

Rico

[DannyOcean]

Hey guys.  Back with a few more questions.

1.  One thing that I've noticed health-wise that may or may not be related to my Peyronies is a fairly constant muscle twitching, primarly in my calves.  I've noticed that this seems to get worse if I get dehydrated (sometimes result in cramps).  I try to stay pretty well-hydrated (3-4+ L of water daily) but even when I am hydrated it still occurs.  I started getting this twitching about six months ago and my Peyronies developed about two months ago which made me curious if there was a connection in any way.  Also, I'm wondering if anyone can suggest what this might be or any ways to overcome it (perhaps more electrolytes...all I drink is water for the most part).

2.  I outlined my supplement routine a few posts back (ALC, Vitamin E, Pentox, L-Arginine, Viagra and will be adding a multi soon).  I'm wondering if there is anything else that should be high up on the list.  I've read through this whole thread and ALC, vitamin E, a multi and L-Arginine seem to be the consensus picks.  Anybody have any other strong votes for anything else?  I was also curious as to whether there might be other forums on the Net where ED supplementation is discussed?  I've read through the entire thread here and while there's some awesome info I'm a junkie and would be willing to scour some other forums on behalf of everyone here and report back any interesting findings.  I have to think that there is an ED/Peyronies Disease connection and that we might be able to learn something from people who are fighting ED since there are presumably more of them and it's "been around longer" (at least publicly).

3.  Another concern for me is getting all of the necessary amino acids.  As I mentioned previously, I'm a quasi-vegan in that I probably eat meat two or three times a week and almost never consume dairy products (avg. of 1x/week I'd say).  In general I think this is pretty healthy (I seem to recall reading studies connecting ED to high-fat diets with a lot of animal products).  However, I also concerned that perhaps I'm missing something and that that has contributed to my developing Peyronies Disease.  Any recommendations here?  Maybe a whey protein shake once a day?  I used to do Mypolex pretty regularly (weightlifting days) and maybe I'll get back on that bandwagon again.

OK, thanks in advance for any help.  This forum and community seriously rocks.  

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[scott]

DannyOcean,

The muscle twitches in your calves sound like fasiculations.  I had them for years with no apparent ill effects, but became concerned when I recently developed neuropathy in both legs.  According to the neurologist, they can be harmless, or they can be symptomatic of a number of neurological problems.  If you don't have any other symptoms, such as pain, burning sensation, aching, stabbing feeling in your legs, etc. they probably are harmless.  However, I'm not a doctor.  A neurologist can perform nerve conduction studies and/or electromyelogram (EMG) to determine if there is a problem.

As for a connection with Peyronie's, you raise a question that is currently perplexing me.  In my first post on this forum, I asked whether there might be a connection between pulmonary fibrosis/interstitial lung disease, polyneuropathy, and Peyronie's, as I had developed all three within a two-year period after enjoying 53 years of pretty good health.  So far, my guess is that the lung problem and the Peyronie's are related, but I need to see at least two more specialists before I will know.  The neuropathy is still hanging out there.

The short answer to your question is, no one seems to know....

[Rico]

Danny,

When your body isn't getting enough calcium and magnesium, which on your diet probally is the case, your body(nerves) are confused and twitch. Calcium makes them contract and magnesium makes them relax, once again the off balance can cause this. You need to get a good mutivitiamin and mineral complex along with good lean protein, Go organic  6 to 8 oz a day over a couple of meals. A good mutivitiamin and mineral is centrum advance liquid, it has magnesium and zinc and iodine in it also, which we need for wound healing.
Muesil is the best cereal you can get and I would mix in a berry yogurt, this also has silica in it, a mineral salt.
Take care,

Rico

[Blink]

Rico, what exactly is muesel? Is it a grain, or something like gritts? Keep the Faith...Blink

[Rico]

Blink my good friend,

Muesli was originally developed in the late 1800's by a Swiss Nutritionist, Muesli is a delightful cereal made from a blend of whole grains, dried fruits, nuts and seeds.

I eat mine cold, mix with yogurt and let it sit for a couple of minutes....I started this for peyronies because of its nutrient and silica, the personal doctor of the Queen of England use to prescribe silica for patients with peyronies....instead of taking silica, I found foods with it in it, plus muesli is full of other great ingredients for optimal health. Bob's Red Mill, is organic and I use this one....

Best regards,

Rico

[Blink]

Rico, I took one of your epsom salts baths earlier. I'm glad you brought them to the forum. If for no other reason, it is very relaxing. It also gives me time to reflect on all of the positive things in my life. If this cereal is as good as those baths, I'm in! Do they sell that stuff in the supermarket or in health food stores?  Keep the Faith...Blink

"Subject line on this post edited for easy reference"

[Rico]

Danny,

Have you ever heard the saying "You aren't worth your salt", or "He is the salt of the earth"?

Salt was more valuable than gold at one time. When I was a wrestler in high school, 1968-1972 we had a salt dispenser on the wall, we took the tablets to keep from cramping, we cut a lot of weight also, of course we know now we don't need to take this because of the fortified foods, especially fast foods, Table salt has iodide in it. Now with a extreme healthy diet, you might be missing this important mineral in your diet....drink v8 it has a good supply and don't be afraid to use a little soy sauce or some sort of salt....shake on brother!!

Rico

[Rico]

Blink,

You can get it at most stores, they all seem to have a small organic or natural section these days, I get mine at a Kroger's. I go to Wild Oats also, this is one of the best organic stores, and for ED, well the girls in there are all hippie types, no bras ect..I was looking at some veggies and the mister came on and I thought man, this place is great, every one was real perky if you know what I mean....

Rico

[DannyOcean]

Thanks guys.  Salt, calcium and magnesium it is.  Starting on a multi-vitamin should help here and I'll put a little extra soy sauce on my brown rice in the future.  

In addition to the muscle twitches the other abnormal thing about my life right around the time I contracted Peyronies was that I was going through a lot of anxiety (still am a bit but not nearly as bad as a few months ago).  I can't help but think there was a possible connection there.  In fact, I remember having a very decreased sex drive over the 3-5 months prior to contracting Peyronies.  Mind-body connection at work huh?  Anyway, I've seen some people mention a place here where people can post their personal history and I'd like to do so but I can't seem to find the forum.

Oh, and if anyone has suggestions on other supplements and/or the role of amino acids on Peyronies Disease I'd love to hear.

Thanks!

[Rico]

DannyOcean,

You go to the main forum and scroll down, you will the members profiles and Hawk give you a insight on how to post, I was going to put mine on there now that I have had this delight in my life for four months now...

I have been taking acety L Carnitine now for about 10 days, I have found that it has help with my mood and clarity....if you think why do body builders take amino supplements, because they help to promote tissue recovery and enhance over all health....arginine is great for wound healing....Instead of me rambling like I do:), I would go to amino acids, BCAA(branch chain amino acids), on the net, so much information and on this forum. I thank God for this forum, it has given me so much good information.

We are different, age, placement of plaque, health issues, ect.....the old adage one  pill does not cure all, is so true in peyronies, what works for one, might not work for another.....I thank God everyday that my condition isn't worse than it is, I use to curse it, and say why me....I know there are people out there that have a very bent condition and this makes me sad....sometimes I know I have given post saying that it isn't that bad, or this is what I would do, but over time, maybe some experience(four months), I have learn more about peyronies from reading and collection information from peyronies suffers...I'm trying to be more compassionate for others and always to remember we are not the same...I never had pain, only very slight curve, buckling when not fully erect....lost of length, but two thirds of unit above plaque looks fine....so if I could get back 50% of what I had, I would be happy, and I now believe this can be done with VED.....I believe in alc, arginine and what a good bcca mix can do to better ones health and give more oxygen to your tissues for healing, too much research, this should be part of your plan....
I read a book years ago on walking meditation, I have chosen this also as a why of dealing with stress and over all circulation, it is easy(all you need is good shoes), and I can do it everyday, I choose a park, sometimes I jog, but I go from three to five miles, I sleep better and feel healthy....going to the gym just three times a week wasn't working for my stress, I had to find something that I could do everyday, work out my problems and be with the birds and trees or just being outdside..I look at my epsom salt bath as self care, it is a treat for me, candle, music, relax...you deserve this...
I encourage everyone to read, knowledge will set you free....and find someone close to age and condition to email and you won't feel as alone with your situation, I have done this and it is funny how many people I have common interest, went through a divorce, same stress, same bend ect.....well I off for lunch, going to the park and walk it off...take care and God Bless...

Rico

[DannyOcean]

Thanks Rico.  Exercise helps me out a ton too.  I feel so good after exercise that I don't even think about what else might be bothering me.  Running and yoga are doing the trick for me these days.  

I'm also curious about what supplements make me "hang better" too.  I know that the period before I contracted Peyronies I was "hanging worse" than ever in my life.  Again, probably a contributing factor.

I've read from others here that Gingko is good for this.  Hawk stated that L-Arginine works well for this.  I've also read about a borage/evening primrose oil massage as being good.  

Anything else y'all can suggest for hanging more fully.  I have to think there's a strong connection between full hanging and blood flow and wound healing.  

[Blink]

Danny, I use L-Arginine, 25mg Trazedone, and the trusty VED. I believe that anything that promotes good blood flow would help. I know that by getting evening erections from using trazedone has helped. From what I understand, evening erections are a thing that happens a lot when we are younger. The enzimes produced by the body and other chemicals that go with the erections decrease as we get older or stop having sex as often. It makes sense to me that if you don't exercise, you lose the benefits of the body's natural chemicals. Keep the Faith...Blink

[Rico]

Danny,

Hawk is right, arginine will give you better blood flow. If you take a supplement with NOX3, what you are doing is getting several forms of arginine, I take this and some of my other favorites, it has three types of aginine and the nitric oxide release give me cell-signaling vasodilators(blood flow), I can tell a difference.

I highly suggest for anyone supplementing that they look at there medical history first, if you have liver, thyroid problems ect...be careful, read the labels.

Most of the companies I buy from have been around awhile and have some research to read, if you go on a body builder forum, you will get some good information there also on amino acids.

I have posted the aminos I like, and I know now Zig is on a good one also. It makes sense to me, these people are trying to get more blood flood to there body and also increase tissue healing, I think there science and trial and error or research is powerful for us, this is why I piggy back on there research.

I'm still researching amino blends now. I do take the alc outside of the blend I'm taking now. The one I take now really focuses on blood flow and tissue repair.

We are creatures of habit, so is are body, that is why I will probally cycle off this brand and go to a new one with a couple of different aminos in it for 60days, maybe add lysine and turine ect....and then cycle back....confusion in muscle and tissue memory can be a good thing, makes the body adjust or maybe turn on a switch that wasn't on....Once again, this is Rico logic...so take with a pinch of salt, or some soy:).

Rico

[DannyOcean]

Thanks Rico.  I'm definitely going keep on the L-arginine (probably bump my dosage up a bit too) and look at NOX3.  I'll also continue to research amino acids and report my findings back here.  

Another question for y'all (I'm full of them these days .  What do you think about enzyme therapy?  I've been reading more about it and wondering if there could be a connection here in terms of the healing process.  I recall bromelain being mentioned several times here on the forums and was curious as to what other connections there could be between enzymes and healing Peyronies Disease.  Any thoughts?

[Liam]

I am going to try Nitrix hoping it will be easier to swallow.  They recommend 3 caps 3 times a day.  I will take 2 caps 3 times a day.  Note this has l- citrulline as well.  I paid 31.95 for 180 caps.  I will let you know if it is any good (at least in my opinion).

Liam

Nitrix

Supplement Facts
Serving size: 3 tablets
Servings per container: 60  
Amount Per Serving
L-Arginine Alpha-Keto-Glutarate (AAKG) 3000 mg
CRTS2 (controlled release technology and support system)
Methocel (micro-polymer hydrophillic ether matrix)
Phosphaplexx (Calcium phosphate, Di-potassium phosphate & Sodium Phosphate)
2CM (Dicreatine Malate)
L-Citrulline
NAD (nicotinamide Adenine Dinucleotide)
Folic Acid (Folate) 1897 mg
Other Ingredients
Magnesium Stearate.

[Blink]

Liam, where do you buy this nitrix from? The arginie I'm taking is so large it would gag a horse. It would be nice to take something a little easier to swallow.   Thanks        Keep the Faith...Blink

[Tim468]

Just a quick note on choking down pills and capsules.

If you have a capsule, or a mouth-full as I often find, you put them in your mouth, take a largish sip of water, and tilt your head a bit FORWARD. That allows the capsules to float (they float, remember?) to the back of your mouth - and they will go right down.

For pills, which sink, I place them on my tongue, take a mouthful of water and wet them, and then tilt my head BACK, and wait for a full 1-2 second count, and then I swallow. You have to not only tilt to let them sink to the back, you have to give them time to sink.

And for a mouth full of caps and pills? I tilt my head back for a 1-2 count, then bring it back to a slightly forward tilt, and swallow. The pills drop back and stay there; the capsules join them when I tilt forward again - and they all go down easily.

Make sure that you get them all the way down, by drinking a fair amount of water too as a chaser.

Tim