Peyronies Society Forums

Special Boards => Awareness/Advocacy/Activism => Topic started by: skunkworks on January 31, 2017, 08:29:21 PM

Title: Peyronie's disease subreddit on Reddit
Post by: skunkworks on January 31, 2017, 08:29:21 PM
Looks like someone has started one up or restarted one - https://www.reddit.com/r/peyroniesdisease/

Pretty huge site traffic wise so if that sub got more popular it'd probably build a good bit of awareness for the condition.
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Mcrmale on July 14, 2021, 05:54:04 AM
r/peyroniesdisease has been banned from Reddit
This subreddit was banned due to being unmoderated.

(Not sure about pomphan's post - think he must have meant to post that on a totally different site)
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Benraycamp0 on July 14, 2021, 01:32:15 PM
Yea I tried to revive it but was unsuccessful :(
We do have another subreddit (https://www.reddit.com/r/peyronies/) which isn't as popular but I do get messages from people and direct them here as needed.
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Juan on July 14, 2021, 04:58:34 PM
Discord group could be very dinamic although a bit of a mess too.
Title: Re: Subreddit de la enfermedad de Peyronie en Reddit
Post by: Tobyg on July 14, 2021, 07:19:08 PM
Discord is good, although being honest, I can't find any way to fight disease, people don't want to organize something in common for further investigation, my life is waiting for some miracle of science unfortunately
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Mikel7 on July 15, 2021, 09:54:55 AM
For a forum to be successful there has to be a combination of 1: Organization.  2: Moderators . 3 Documented info. 4 Members. 5: A Lot of Luck.
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Lostandsad on August 15, 2021, 04:08:24 PM
I wish there were more members and activity in the subreddit. It's pretty dead every day.

Even this forum with almost 20k members doesn't have as much activity as I would like, probably just feels that way cause I'm new and depressed/frustrated. I suppose most people here have had it for a while and are just moving on with their lives
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Hawk on August 15, 2021, 10:27:16 PM
We have 50 posts a day.  How would it help you if we had more?
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Pfract on August 15, 2021, 10:35:40 PM
turns out this is the message you get when you try to open the subreddit:
Quote
r/peyroniesdisease has been banned from Reddit
This subreddit was banned due to being unmoderated. "

It was a surprise to me...
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Hawk on August 15, 2021, 10:47:04 PM
Needless to say, We have no connection or control over Reddit and we do not promote their site.  We promote our own because there is nothing comparable.
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Lostandsad on August 15, 2021, 10:59:05 PM
This site is great Hawk, thanks for all you the work you do. I'm just spoiled by instant gratification of this generation and thought I'd get more responses to some of my threads, that's all.
Title: Re: Peyronie's disease subreddit on Reddit
Post by: Benraycamp0 on August 16, 2021, 03:56:51 AM
I moderate a relatively low active peyronies subreddit here - https://www.reddit.com/r/peyronies/

Subreddits like these are a good landing page for people to be redirected to a site like this, which is why I try to keep that active and answer questions there.