Peyronies Society Forums

Other Peyronies Disease Discussion Boards => Congenital Curvature or Peyronies Disease => Topic started by: Henn on April 20, 2018, 12:33:35 AM

Title: Anyone who had more than one surgery and ended with a healthy penis?
Post by: Henn on April 20, 2018, 12:33:35 AM
1
Title: Re: Anyone who has ever had a failed STAGE
Post by: zoli1995 on April 20, 2018, 03:54:22 AM
Hi z72,

I'm sorry to hear that such a significant reccurence came back. At least look at the bright side. You don't have any health problems with your penis (erections, pain etc) and there are no permanent sutures. If I were you, I would think whether I would really need a second surgery or not. That's the situation I am in. It is true, my recurrent curve is not that big, but I'm ok with it since it doesn't disable me from having normal intercourse.

Can you please tell us about how many months after the surgery did the recurrence come? The sutures dissolve after 6 months, probably that is why you have that reccurence. Me myself have about 10 degrees of curve that came back, but I'm fine with that.

Title: Re: Anyone who has ever had a failed STAGE
Post by: TonySa on April 20, 2018, 06:54:08 AM
Although 30 is not insignificant, if it's useable I'd try considering it just a unique penis.  Given the right sexual position you can hit your partners special places (gspot or prostate) more directly.  Also, it often feels to your partner as if it has more girth because it's also hitting the sides during intercourse, and again given the approach—it's often easier for someone to deep throat so more pleasure able for you. 
Title: Re: Anyone who has ever had a failed STAGE
Post by: mst on April 21, 2018, 04:44:48 AM
Believe me man that you are not alone with your failed surgery with dr Kuehhas. There was a lot MORE people than you think. I know the topic of Kuehhas in this forum very, very well because I was going to have the surgery with Kuehhas in February this year but after doing extensive research here I have resigned because of many unsuccessful stories with this doctor. I know this stories by heart.

But you shouldn't be worried. There is a doctor who will help you and his technique of operation the penis is much much better than Stage. He did a lot of re-operation on the people like you and me where the first surgeon has failed so he has probably the best experience in the world with doing re-operation. Very recognized and busy doctor - his name is Joel Gelman. He will be able to help you without the side effects of second surgery. He never have had a patient who needed further surgery so he is very skilled surgeon. It is funny because he knows Kuehhas too. As you can read in this forum he doesn't have good opinion about this Austrian guy.

I will have the surgery with that man in August and I am very happy that I canceled the surgery with Kuehhas.

I am not advertising the name of Gelman - I don't think he needs that. Call him and talk with him and I am sure that he will help you. Head's up!

And please DO NOT contact with Kuehhas never again!
Title: Re: Anyone who has ever had a failed STAGE
Post by: JohnWright on April 21, 2018, 08:57:25 AM
This is the information for Dr. Joel Gelman:

https://www.centerforreconstructiveurology.org/physicians/gelman/#.Wts08UxFyno

If you search his name here on the Forum, there are video links, too.
Title: Re: Anyone who has ever had a failed STAGE
Post by: mst on April 21, 2018, 10:40:40 PM
I don't want to speak for the others, but check this forum carefully - some of guys ended with an implant after the surgeries with Kuehhas,

The truth is: if you ended up with reccurent curvature after first surgery with Kuehhas, then I don't see the possibility the second operation with the same doctor will be succesful. The problem is in a technique because he uses only Stage/or risky Egydio. He doesn't have experience in redo cases and beside that - he is very young.

How about the possibility that 2nd surgery will be failed with Kuehhas? 3rd operation? Then you have no chances for a improvement, because every surgery creates new scar tissue, damages a skin and the nerves.

You need a doctor who knows exactly how the healing will work after 2nd operation - somebody who has experience with operating on scar tissue in redo cases. He should exactly knows where incisions should have been made etc.

I am aware you - the Austrian is very good in speaking - he is charming and very nice. Think about it.

Title: Re: Anyone who has ever had a failed STAGE
Post by: alasch on April 22, 2018, 03:48:19 PM
hi z727629029
i am sorry to read that you are not entirely happy with the outcome. its difficult to give you an advice since i am still at the beginning of my journey... i guess you need to do some research and decide whats best for you. kuehhas seems a very good and skilled surgeon. i am glad i could meet him. i have decided to go ahead with surgery with him.

one thing that i need to mention though is that mst1622 seems a bit "frustrated"... i have been following his posts for a while. it seems as if he has a personal problem with kuehhas. check his posts about a deposit he made etc... i have seen kuehhas and i was never asked for any deposit. i even asked him about paying a deposit, and he replied that he does not ask for deposits as long as patients do not move surgery and consultation dates around too often... anyways, this has nothing to do with you. i wish you all the best for the future decision. many people on the forum have passed through kuehhas hands and they have had success stories. i am looking forward to my personal one, which i want to share soon.

@mst1622
i have been doing my research as well and i can see that gelman is a good surgeon but he focuses mainly on surgery of the urethra. i hope that is not new to you. check his website, his videos and his publications... i am surprised you seem to ignore that. i also did not find any surgical experience with him online...
i wish you good luck with your own journey and hope that make it. i can understand that you might not have connected with kuehhas, my experience with him was contrary. it actually resembles the positive experience of the others who posted on this forum. he was professional and explained everything clearly to me. i understand the risks of the surgery but i trust him.
i am in the same position as you and many others, and i do not think that bashing on somebody who is trying to help is helpful to anybody, especially not to us who are seeking a solution.
good luck with gelman.
Title: Re: Anyone who has ever had a failed STAGE
Post by: mst on April 22, 2018, 05:59:24 PM
Quote from: alasch on April 22, 2018, 03:48:19 PM
many people on the forum have passed through kuehhas hands and they have had success stories. i am looking forward to my personal one, which i want to share soon.

Yes, but too many have unsuccesful stories with Kuehhas. From my memory:
-yyy
-kusher
-Jack1909
-Frank55
-redbullmaster
-daved2 (two unsuccesful surgeries with Kuehhas)
-gollam (it wasn't the operation on a curved penis, but anyway....very sad story)
-and z727629029 of course

There are patients without 100% success and small reccurent curvature like Sargus. Of course Kuehhas did very good job with the others but I doubt it that he has 99,1% success rate with his Stage technique.

By the way - please explain me why the Stage is not used in the United States? Why the other surgeons don't use it if it is so succesful and the success rate of this technique is that high? Laurence A. Levine, Andrew Kramer, Joel Gelman, Tom Lue... they don't use the Stage. Why?



Quote from: alasch on April 22, 2018, 03:48:19 PM
he was professional and explained everything clearly to me. i understand the risks of the surgery but i trust him.

He couldn't answer me when I was asking him about a success rate in redo cases. Really, I have asked him about it three and four times and he always said "don't worry, we will be succesful...". I can show you an email if you want to.


Good luck with your journey. I wish you the best!
Title: Re: Anyone who has ever had a failed STAGE
Post by: zoli1995 on April 22, 2018, 06:33:33 PM
mst,

I'd like to step in a bit.

I believe there are more succesful stories about him than unsuccesful ones. Other than that, many of those had a different problem. Recurring curve, yes, but with permanent stiches. I think those situations are much more complicated.

The recurrent curve is not because the technique of the doctor... As long as the stiches still existed, the penis was perfectly straight. After they faded away, a degree of curve returned. To some of us it is very small, in his case, unfortunately, is significant.

STAGE technique is not used only by him. It is also used by the International Andrology London as well (https://london-andrology.co.uk/).

I appreciate your different point of view, I am not to judge. Yes, Kuhhas was, let's say, a bit too kind and respectful. But that can also help pacients. I never had a surgery before and it was a sensible decision. That helped with my case.

More importantly, I don't believe his case is a failed surgery. Healthwise z72's penis is fine. He has no permanent damage, like others had with permanent stiches. It is not right to put them in the same basket! The recurrency is unfortunate and it is up to him to decide if he wants to correct it. Although from 45 to 30 is a big step already.

Of course, everyone makes their own decisions and it's good to weigh all the options. I'm not going against anyone, nor do I particularly support Kuhhas as a person. All I can give is my feedback on him and overall I got what I wanted and I am a happier person now and I consider my problem solved. And many others feel this way.

Title: Re: Anyone who has ever had a failed STAGE
Post by: james1947 on April 29, 2018, 03:39:59 AM
Z

I agree with you that 30 degree down from 45 is not what one is expecting from such surgery, hopefully during time you will find a solution to go down to 10 - 15 degree as you wish.
But I want to say that most man don't have a perfect strait penis. Penises come in many sizes and shape. I didn't make a statistic in the subject, but from what I am reading and watching in the last 9 years, not to many perfect penises out there :)

James
Title: Re: Anyone who has ever had a failed STAGE
Post by: gigikious on May 20, 2018, 11:43:27 AM
I'm dealing the same situation(failed stage),so i'd really like to know about your actions and progress..
Title: Re: Anyone who has ever had a failed STAGE
Post by: Frank55 on June 21, 2018, 11:20:30 AM
mst,

You are correct that I had Egydio surgery with Dr. Kuehhas in June of 2016 and the final outcome was not successful. However, I am not necessarily comfortable stating that outcome is his fault.

After the procedure was performed, I had a straight erection - for roughly 3 months. The curvature returned (along with penile pain) in the following 21 months, leading up to the present time. I am still dealing with a small amount of residual pain.

In his defense, Dr. Kuehhas asked me repeatedly prior to the procedure 1) do you have penile pain, and 2) is your curvature changing? I told him no on both counts. There is no doubt that the pain (which was originally severe when I originally came down with this condition in September 2015) was gone, but I do feel that I could have done a more careful job monitoring the erection curvature. It didn't seem to be changing, but in retrospect I could have observed it more carefully.

These two (existence of pain and change in curvature) seem to be the two more common criteria the surgeons use when determining whether to proceed with surgery. I've since had a brief phone conversation with Dr. Gelman and he also asked about the pain as well. It is definitely one of their major decision making criteria.

So is it Dr. Kuehhas' fault the curvature returned? In my case, it returned because I developed (and continue to develop) additional scar tissue. In my opinion (and I am not a Doctor), my severe case of Peyronie's was still in the acute stage when the surgery was done. Which is the worst possible scenario. But the two most common criteria for proceeding with surgery were both positive.

In retrospect, the only item I wish Dr. Kuehhas (and all other surgeons) would insist upon without exception is that AT LEAST 12 months (preferably 18) have passed since the original onset of Peyronie's symptoms - regardless of the pain and curvature change. I think the criteria of proceeding with surgery based on pain and curvature change have limitations - and my result may be one of them. It is possible this curvature return would not have happened if I had simply waited 6 - 12 more months.

One other item. When I originally developed this condition in Fall 2016, the initial pain was very bad but went away suspiciously quickly with the use of Cialis/Pentox. That is a marked contrast to the very slow incremental pain decrease I've had in the past 12 months when the pain returned with the development of returned curvature (I started using Cialis/Pentox again in June of 2017 and am continuing to use it now.)

Why the difference? It could be that in certain people the disease is able to "mask" its existence despite that the acute phase is still in effect. Again, I may be an example of that. As has been noted repeatedly on this forum, this disease affects different people in different ways. It also may be that some (or many) of the failed surgery stories on this forum can be traced back to the surgical procedure being performed when the acute stage was still in effect (but did not seem to be based on pain/curvature change.)

JonB in Spain is a good example of a successful result from a surgery from Dr. Kuehhas - but note that he dealt with the disease for roughly four years (while he tried non-surgical solutions) prior to proceeding with surgery. By then, he was probably completely into the dormant phase of this condition. And I think that may be the key to surgical success for Peyronies.

For now, my objective is to get rid of the residual pain and then start looking into what can be done next. I may go to CA to see Dr. Gelman. But I also may go back to Dr. Kuehhas. I'll certainly post to the forum on how those next steps turn out.
Title: Re: Anyone who had more than one surgery and ended with a healthy penis?
Post by: james1947 on July 10, 2018, 04:07:08 AM
I will not call 5 degree a curvature :)

James
Title: Re: Anyone who had more than one surgery and ended with a healthy penis?
Post by: TonySa on July 10, 2018, 03:10:11 PM
I concur, +/- 5degrees is a great result.
Title: Re: Anyone who had more than one surgery and ended with a healthy penis?
Post by: james1947 on July 16, 2018, 12:13:12 AM
Misunderstanding  Tsanchez
I mean curvature of 5 degree is not curvature, not that improvement from 40 or 90 degree to 5 is not a great result.

James
Title: Re: Anyone who had more than one surgery and ended with a healthy penis?
Post by: djordj on September 25, 2018, 03:13:20 PM
how about rotation operation ?