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#2
Hi, everyone

I have just found this forum and this is My first topic.
First of all, I am 50y and diagnosed since 2020. Had a 60 degree curve to the left that was corrected with surgery without graft some months ago. For some reason, it is coming back- a slight curve, numbness in the penis and NTE pain. Just like it was in 2020.
I was using tadalafil and other oral stuff (vit E, coq10, etc.) among a vaccum pump 15 minutes a day (just 50% erection, 12 cycles of 1 minute)
As a was waking Up every night due to pain and couldnt sleep again because of Peyronie anxiety, I had to stop tadalafil and I am only using VED.
Now the pain at night is vary rare, but I am worried about not taking it during the accute phase.
Do you think it is really important? Can the VED alone stop progression?
#3
Xiaflex Injections / Re: Dr. Landon Trost new xiafl...
Last post by Pfract - Today at 12:18:59 PM
p11050: I only saw your post now, but I was very impressed. Sorry you went through this.

How is your condition now? Any improvement?
#4
I have never heard of such symptoms, related to this disease. Could you have another health condition that you are not aware of? Have you mentioned this to a doctor? Maybe you could do a physical exam to rule out what I could be.
#5
I am getting an Ultrasound in two days, i will keep you guys updated.

i would like to hear more people comment on this :)

#6
Introduce Yourself / Re: How I Got Here, What I’m D...
Last post by KrillinIt - Today at 10:54:46 AM
Not a single response? What the hell? I stayed up all night to write this and no one responds.
#7
Introduce Yourself / Re: Greetings from California
Last post by Mikel7 - Today at 05:58:40 AM
Welcome Spid63 to the forum and thank you for filling out your signature line. Also please download our survival guide -->Survival Guide.

Sorry to hear about your situation. So 9 years ago you developed peyronies and then in 2021 you underwent 2 Xiaflex treatments. So during your Xiaflex treatments did you actually use the traction device as this is standard procedure for helping the medication remodel your penis? How much of an improvement did you see? You may have gotten even better results if you continued with the traction. So how much of a deformity do you have now?

VED could help you somewhat, you just need to give it a try. You say your erections are fine and you are in no pain which is good. In looking for a VED device you need to get one that does have a pressure gauge on it. Also make sure that you do not get one with an automatic pump as this could be dangerous in over pumping. The VED protocol here has you using graduated sizes for pumping with very short holding times after reaching your erection. I have been using the LeLuv cylinders through Kodidistributing. Quality is what you should look for as a lot of them are cheaply made. You also need a pressure gauge on it to never overpum as you can damage yourself.

Search the forum and you will gain some insight into VED therapy from other members. Time and dedication are required though with any peyronies treatment. We adopt the mindset that this is a marathon and not a sprint.  :)

Mikel7
#8
Introduce Yourself / Greetings from California
Last post by spid63 - Today at 03:19:19 AM
Hello everyone,

I stumbled upon this forum by accident while researching about Peyronie's Disease.

I have been dealing with Peyronie's since 2015. Interestingly, during that same period, I also went through a divorce. No, Peyronie's wasn't the reason for it; there were other factors involved. In fact, my ex-wife isn't even aware of my condition, as our marital issues began long before 2015, which was just the final chapter of our relationship. Surprisingly, this separation helped me avoid sinking into depression over Peyronie's. Starting a new relationship or getting romantically involved with someone else was the last thing on my mind. To be frank, for years, thoughts of sex didn't even cross my mind, and strangely, it helped my mental well-being.

Between late June and early July 2021, I underwent treatment with two Xiaflex 0.9 mg injections, which helped eliminate the plaque and improve the curvature. Post-Xiaflex treatment, I experimented with traction devices like the Restorex to regain my original length. However, due to my procrastination and lack of time and privacy, I eventually abandoned using them.

Now, I find myself at a stage where I want to rekindle my sexuality, and I seek your advice regarding choosing a vacuum pump, which I'll discuss further in a dedicated thread.

Thank you for taking the time to read this. Best regards.
#9
Xiaflex Injections / Re: Dr. Landon Trost new xiafl...
Last post by lmas590 - Today at 03:03:58 AM
Hi P11050,

I am suffering from herniations in the tunica albuginea that resulted from a botched Nesbit surgery (not form Xiaflex treatment as was your case, but the result is the same). Have you tried any treatment/surgery for your hernia? What type of treatment did you do, with what doctor and was the procedure successful?

Which doctors do you recommend me to talk to about potencial solutions to my penile hernias?

All your help will be very welcome! Thank you very much.
#10
You are probably not going to like this opinion, but if 3 years have gone and you are still getting worse narrowing, more scarring and new dents you should consider an implant and probably do it as soon as you can to prevent more size loss. I am also doing VED, sadly the cold hard truth is that for severe/moderate narrowing/hourglassing/denting whatever you wanna call it, traction and VED will do very little. One can definitely regain some dimensions, but most of the tissue is gone and will never come back. That's why they do the grafting procedure in cases with guys like us because that tissue will never come back and they hope the graft will help fill in the dented area and make the penis seem fuller again after it has absorbed.