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 on: Today at 07:53:36 PM 
Started by Hawk - Last post by SW01
I just want to say that what is posted here is so important. I am on my 4th urologist surgeon and it has been an experience. My history does not go back to far. A little over 2 years ago I fell straight down on a 2 by 8 while working on my deck. Immediately saw my regular dr. Who forwarded me to s urologist. Looked at me but did not do any tests on me. Said I was bruised and should be fine. Yea right. A couple months later had no energy and would wake up and move to the couch. Back to urologist. Testosterone tests showed a level 20. I think low normal is 300. So started on androgel. Started feeling better but no erections. Back to urologist. Still no tests mind you. Said oh you have ed. Put me on sildenafil. Got soft erections. Said to take more pills. About year after fall I noticed a hard deposit on my shaft about one inch from my belly and my dick stared curving up. 1st urologist said looks like peyronies, never touched me mind you. Said to take vitamin e. So thought I would go Off to new urologist. Still no tests on my dick even after falling three feet straight down and being black and blue from my knees to my stomache for about 2 months. This one ticked me off after one appt.

 Off to 3rd urologist. This one actually has a PA inject me with trimix. After 3 injections I get an erection pointing straight up at the ceiling when I am standing. Tells me yep you have peyronies. Two options, excise and grafting along with trimix after to get an erection. Or get a titan implanted. Either way I probably will need the implant in a year or so anyway. When do I want to schedule surgery. I said I would let them know.

For personal reasons I have delineated elsewhere I would love a local surgeon. Went to coloplast website and found a center of excellence site. Not sure what that is  but it was a 2.5 hour drive there. Made appt to see 4th urologist surgeon. This one listened to me. Told me no way he was doing anything to me until he checks me for damage from fall. At the very least he is doing ultrasound and blood flow tests. He will not discuss an implant till then. At least he is doing due diligence. I will be honest if the tests show I need an implant I plan on traveling to one of the top implant surgeons to have it done. It may go to s### but the odds are on my side using one of them versus someone who does a few a month.

Just my opinion mind you but most of the local docs I saw left me with a bad feeling so I moved on. This is my body and I am feeling comfortable with my surgeon.

 on: Today at 06:22:14 PM 
Started by hope794 - Last post by hope794
I totally agree with Werther! In the past, i've done many posts about "doing something" but no one cares.

Guys, seriously, some days it seems that you don't have Peyronie's.

And please don't tell me that no one does nothing because of the "shame". I think that it's way more humiliating to have Peyronie's and, if the society needs some signature or donation to keep its activity, i would do it and i won't care to leave my real name on those papers, if it can help.

Why i don't do this on my own then? Simple: i'm only 24 years old, i come from Italy and i have a sh!^^y english; furthermore, i have no financial resources since i don't work and not enough knowledge about this disease since i discovered it only some months ago.

Good luck to everyone and please let me know if you're going to do something concrete - i'm always on, brothers.

 on: Today at 03:16:10 PM 
Started by Data1 - Last post by Tsanchez12369
Flesh light great idea to see how it might impact intercourse.

 on: Today at 03:14:54 PM 
Started by Deepal22 - Last post by Tsanchez12369
Deepall 22, def get started as hawk recommends w treatment.  Consider pentox, low dose daily PDE5 inhibitor, l-arginine or l-citrulline and VED or traction.

 on: Today at 01:59:29 PM 
Started by Asian Eagle - Last post by suicidecomingsoon
I doubt that

 on: Today at 01:58:28 PM 
Started by YoungFella - Last post by suicidecomingsoon

 on: Today at 01:31:16 PM 
Started by YoungFella - Last post by YoungFella
Why you think this is not true?
You can buy testosterone on the black market for bery cheap and dht gel
And Hgh at that dose is bery cheap.

 on: Today at 01:23:03 PM 
Started by Floppy - Last post by Alibaba
hey hawk... is it my impression, or you just posted in the wrong window?! :O

Floppy is getting an implant, thus Hawk's comment. Yippee Floppy and good luck.

 on: Today at 01:06:10 PM 
Started by Deepal22 - Last post by Hawk
I have posted some pics in child forum "could it this be peyronie's "?! Help out if you can
  I am not sure if you mean help the member that started this topic or if you are changing the subject.  What do you mean by help out?

 on: Today at 12:59:51 PM 
Started by hope794 - Last post by Werther
I can't tell for sure, but if timings for phase-1 is at least 5 years (as it seems, based on their staff's words), I bet they'll take much more than a decade in order to get this surgery approved by FDA. And we can't even know as of today if this surgery will only be approved to treat curvature or if it will get approval even for ED.

Personally I have only one single question: what's the reason why this forum community has done nothing (and is still doing nothing) in order to communicate officially with WFIRM with regards to this trial?

It's pretty obvious that this kind of surgery can be beneficial only for guys like us and nobody is going to urge WFIRM to speed this process apart from us, because we're the only ones who might be interested. Except for the letter that was sent more than a decade ago to Atala, I've never seen anything done anymore as the "Peyronie's Disease Society". We have no right to complain about their slowness since we've been practically contributing to it.

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