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Peyronies Disease TREATMENT Discussion Boards => Surgery for Peyronie's Disease => Topic started by: TDix on January 08, 2019, 12:48:07 PM

Title: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 08, 2019, 12:48:07 PM
To all who followed my thread in the Xiaflex forum, I am starting this new thread to continue to document my journey through this horrible condition.  You can read what happened to me with Xiaflex over there, and follow my next step forward into surgery here.  I went in for a ultrasound at UCI yesterday with Dr. Faysal Yafi.  I was diagnosed with a 50 degree curve, and calcified scar tissue all along the top and left side of my penis as well as in between the corpora.  Xiaflex was determined to no longer be effective, and plication, while it would fix the curve, would not remove the massive amount of scar tissue I have.  Dr Yafi and I agreed that excision of some of my scar tissue as well as a graft was the logical solution in my case.  I will be scheduled for surgery in March, 6 months after my last Xiaflex injection.  I hope to shed more light on this procedure for all of you by yet again documenting my journey here.  I hope this road is less "bumpy" (get it?) and leads to better results. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 08, 2019, 01:10:49 PM
Just got the call to schedule the surgery.  Pre-op visit on March 1st, with surgery scheduled for March 12th
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 08, 2019, 06:36:07 PM
So I've already hit a snag.  Looks like my insurance covers the doctor but does not have a contract with the hospital.  My wife has dealt with insurance before so we will see what can be done.  (Edit) we looked up our plan and both the doctor and hospital are in our network so not sure why I was denied.  Will look into it tomorrow and update
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 16, 2019, 03:25:56 PM
So I am covered 100% for Dr Yafi in my tiered 𝐈𝐧𝐬𝐮𝐫𝐚𝐧𝐜𝐞, and found I am 90% covered for UCI.  Planning out the road to surgery
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on January 16, 2019, 08:40:43 PM
So.... Are you not concerned about ed later? With excision and grafting? How are your erections right now? Strong?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 16, 2019, 08:42:43 PM
Erections are very strong, and that was confirmed by the ultrasound.  I am willing to go into this with a positive attitude as my scar tissue is growing and calcified
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on January 17, 2019, 05:50:53 AM
One Surgery I had--unrelated. I had to drive 30 miles to another Hospital because of Insurance. I used a doctor in that hospital. Turned out better than the local hospital would have even though it was smaller.  Just was a PIA getting rides to the preop, surgery, follow ups with doctor etc etc. Great you are getting this done TDix. I know you are excited to get back to normal. Ya stay Positive!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 18, 2019, 03:29:25 AM
Wouldn't say I'm "excited" about surgery.  At this time last year that was the absolute last thing I wanted.  I opted for Xiaflex thinking it would be my meal ticket away from surgery, but my body told me otherwise.  Not easy decisions to be sure, and I wouldn't wish that on anyone with a penis.  Just how the roll of the dice was with me.  I have to be open to whatever I can do to make this better for myself and my wife. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on January 18, 2019, 03:50:21 AM
Excited to get back to normal. You still can dread the surgery. I have had 3 surgeries on different parts of my body. One was in the pelvic area. Then there was a  Vasectomy.  Surgery and the recovery are no fun at all. But there was a relief feeling to get rid of my physical problems. Recovery can be painful . You may have to do things differently in the short term. Just follow doctors orders to the letter. Many mess up surgery not doing that.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 28, 2019, 02:30:56 PM
Quick update, my foot drop condition has pretty much resolved itself.  Turns out I crossed my legs too much, probably from all the pain in my groin!  Haha.  Still waiting to hear about insurance for surgery in March.  Should be covered, but if not I might put it off a little bit.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on January 28, 2019, 03:54:25 PM
Some good news is better than no news! Keep it up
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 15, 2019, 01:24:09 PM
Update, have to postpone surgery until insurance gets their act together.  They tell me that I'm covered but when the office tries to pre-auth they state the facility is not contracted.  So confusing to be 100% covered for a doctor, but not for the hospital he works at.  Will update when I can get this procedure done.  In the past this would have been a devastating blow, but the antidepressants I am on have softened the blow.  I'm more of "it is what it is" right now.  Got to stay positive.  I'm not going to have such a major procedure done by just anyone because they are covered.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 15, 2019, 02:57:09 PM
Just as I updated this the doctor office called.  They found out the hospital IS contracted.  Will update when I get confirmation
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 27, 2019, 01:19:23 AM
Surgery postponed. They don't know why I keep getting denied when they have a contract with the hospital.  Never an easy road in this frickin journey!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 27, 2019, 01:59:14 PM
Just got the verdict, I am not covered for surgery at UCI.  I have to go to a Dignity Health facility to be covered.  This sucks, finally found a doctor that knew his stuff and unless I pay out of pocket he cannot perform my surgery.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on February 27, 2019, 03:27:24 PM
You will not consider it if it is not covered?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 27, 2019, 03:44:01 PM
I am getting a price quote to see how much it will run.  I don't have the funds, so I will see what can be done
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: daved2 on February 28, 2019, 01:30:16 AM
After three surgeries, I finally found a surgeon who made my penis straight. If cost is the issue, then figure out a way to solve it.

The cure is the only way. Nothing else matters

I wish you the best
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 02, 2019, 04:29:43 PM
Doing my research I think Dr Karpman is associated with a Dignity Health location.  Crossing my fingers that it is true and will plan on him doing my surgery and local Dr Yafi handling the follow up care
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 04, 2019, 03:19:13 PM
No luck with Dr Karpman.  Looking into Dr Jennifer Liu here in Long Beach
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on March 04, 2019, 06:05:09 PM
Keep trying man!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 05, 2019, 01:05:49 AM
So Dr Liu operates in a Dignity Health location, but does not accept my insurance!  What the heck??  I find a doctor I like that is covered in Dr Yafi, but he does not operate in a Dignity Health hospital, so surgery is not covered.  I find a good Dr in Liu that DOES operate in a Dignity Health hospital, but does not accept my insurance!  So frustrating.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 05, 2019, 02:04:49 PM
got a call today from Dr Wachs.  Explained my situation and since he has privileges at Dignity Health, he is going to write a letter to get Dr Yafi involved at a Dignity Health location to get my surgery done.  He does the surgery, but says Dr Yafi is the specialist.  I appreciate the honesty and sincerity from Dr Wachs in regards to my situation.  Not many urologists would do this.  Hoping he can get me on the right path shortly.  Will keep you all updated.  See, there are good guys out there!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 08, 2019, 02:18:20 PM
Price quote from UCI for procedure without insurance is $16k.  Hoping Dr Wachs can help get Dr Yafi into a Dignity Health hospital
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on March 08, 2019, 02:59:59 PM
Never quit till you are successful! Go go go!  8)
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 13, 2019, 06:33:30 PM
UCI called today.  Dr Yafi talked to the board and was able to get the cost down to $3700.  Planning my next moves now
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 14, 2019, 05:49:42 PM
Surgery scheduled for March 26th
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 19, 2019, 02:14:46 PM
One week till surgery.  To say I'm nervous is an understatement, especially when looking at the procedure as "reconstruction".  Will keep you all updated on how it goes.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on March 19, 2019, 04:17:06 PM
Surgery can be scary that's for sure.  I went through excision and grafting and it went well.  I did have initial loss in sensitivity-but it continually improved until regained.  My four anchoring sutures 6 months later are almost dissolved.  Is your doc using permanent or dissolvable sutures on the graft?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 19, 2019, 04:28:55 PM
I am finding out all the details later this week.  I'll let you know
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 22, 2019, 07:57:24 PM
I am getting dissolvable sutures on the graft, and if Plication is needed those will be permanent. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on March 22, 2019, 09:55:23 PM
If their doing excision and grafting, plication should not be necessary,
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 22, 2019, 10:14:57 PM
Yeah that is what dr Yafi said however he said not to rule it out.  In my case with all the trauma they really don't know what to expect until they open me up
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 25, 2019, 02:01:03 AM
First shower leading up to surgery with the "special" soap.  Definitely making it more real....nervous, anxious, all of the above.  I just keep hearing what Dr Yafi told me, "we will fix you"
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on March 25, 2019, 06:53:07 AM
So this is really happening! Oh boy! ✌good luck man
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 26, 2019, 01:21:02 AM
Thanks pfract much appreciated.  8am check in tomorrow for what I hope straightens things out.  I know I know I had to say it
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 26, 2019, 01:58:50 PM
About to be wheeled into the OR....wish me luck guys
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 26, 2019, 08:05:21 PM
On my way home from hospital.  Dr said all went really well.  Removed most but not all the plaque, I am straight, and he did have to use one stitch of Plication but said it was so minor it won't affect any length.  Currently swollen and wrapped.  Used to the feeling from my Xiaflex injections.  Picking up pain meds now and then lots of rest
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 27, 2019, 02:31:29 AM
I also had my wife ask the big question of why such invasive surgery doesn't create Peyronies when micro trauma does?  Dr Yafi had a pretty good answer...clean incisions and proper suturing always heal much better than tears.  For example if you split your chin open and let it heal on its own as opposed to going to the hospital and getting stitches, the results are drastically different.  Hope that answers some questions out there.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on March 27, 2019, 02:12:05 PM
Great explanation
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 27, 2019, 06:42:44 PM
Removed first wrap today, a little bloody but not bad.  I had a nerve block done so pain is minimal.  A few small hematomas around the glans but nothing major.  Turning out to be a lot less traumatic than I thought it would be, especially after what happened to me with Xiaflex.  So glad I did what I did at this point.  Find that specialist who knows what they're doing and get yourself fixed.  Thank you to everyone who has been following my experience.  You have helped me more than you know
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on March 27, 2019, 09:57:04 PM
Nice to know man. I don't want to rain on your parade, but I would let everything heal up and then judge :#
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 27, 2019, 10:14:19 PM
I hear ya pfract, just relating my personal experience of 2 Er visits from an in office procedure to none so far after a major surgery.  No pain, many medical staff involved, just such a better experience all around.  I will definitely stick around and post my progress.  Success is all I want
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 28, 2019, 01:02:15 PM
still swollen pretty bad and have pain at night due to probably the start of nocturnal erections.  Wakes me up before they happen due to the pain, but the positive is I can still get erections, just can't stand the pain of them long enough to get hard.  Good news is they are happening!  Today is the day to unwrap the final wrap and finally take a shower.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on March 28, 2019, 02:07:17 PM
He did not prescribe anti erection medication?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 28, 2019, 02:47:24 PM
No he said they are not that effective and that blood flow to the area is good, even if it hurts at first.  Will be on low dose Cialis soon once the swelling goes down
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 28, 2019, 05:56:25 PM
So good to take a shower and take all the wraps off!  My wife calls me "frankenweenie"😂
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 29, 2019, 02:03:55 PM
Penis is swollen but no real pain thanks to the painkillers.  Pelvic area is black and blue as well.  Would I do this again?  Heck yes.  Much better than the Xiaflex injections.  Was it Dr Wachs?  Not sure, but I highly recommend going to a specialist like Dr Yafi.  Makes a huge difference
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on March 31, 2019, 02:45:37 PM
A lot of pain today at base of penis.  Penis itself is fine, but the base is very tender and painful.  Looks like I got roughed up in the OR😂
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: tonyode on March 31, 2019, 07:27:37 PM
Good to hear things are going ok TD. The pain in base, pubic are sounds similar to xiaflex. My doc said it is result of wrapping penis, forces blood to that area, thus the tenderness, pain. Hang in there and keep us up to date!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 01, 2019, 01:14:02 PM
Thanks Tony, yeah that's what I thought too.  I was wrapped pretty good for 48 hours after surgery.  Removed first wrap after 24 hours, and the final one after another day.  Doctor said it's normal, and is happy I'm having nocturnal erections.  As painful as they are it is a really positive sign
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 02, 2019, 03:22:18 PM
No more pain meds for me.  Dr Yafi doesn't like his patients on them for more than a week.  Going to try Advil and Tylenol going forward and see if they help
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 04, 2019, 02:10:41 PM
Think I finally turned the corner on at least my daily pain.  Pain at night with nocturnal erections is still there, but today I feel I finally came out of the day long pain.  Still swollen but nowhere near as bad as this time last week
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on April 04, 2019, 06:19:08 PM
Nice! How does it look like after you wake up with the night time erections?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 04, 2019, 06:34:07 PM
Dr asked me the same thing "it's straight though"...I told him the pain is too intense to even really focus on that right now.  Still swollen, and without pain meds it's a rough go at night.  I guess 9 days post op I shouldn't expect to be pain free and unswollen.  Going to keep relating how things are day to day until pain goes down more as well as swelling.  I will say I am a lot less swollen than I was a week ago but still have a long way to go
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 05, 2019, 02:12:05 PM
Each day seems to get a little better.  I think I've gotten used to the pain, as it's pretty sore every morning due to nocturnal erections.  I was able to see how I am last night, and I am straight, but still swollen, so I look shorter than normal.  Stretching and possible traction after my follow up visit should help.  Glans is numb as is expected.  Returning to work in a few days even though I feel I need more time, but I have been using comp days I have accrued over the years for my time off.  Just waiting for the day the pain subsides and I can work on molding myself back to semi normal
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 06, 2019, 12:54:23 PM
Well just as I say I'm used to the pain, today I am not enjoying it!  Is it normal to still feel this way 11 days after?  I know I'm still in the early phase of this, but man, every day having pain is not fun. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 06, 2019, 11:06:40 PM
I feel the participation here is lacking.  I feel like a circus animal.  "Hey mom, look at the freak".  I appreciate the few that comment on my posts, however if no one else wants to contribute what am I doing??  Yeah providing my experience, but if only 3-5 people respond what does that do for me? 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on April 07, 2019, 09:55:02 AM
My pain decreased pretty much after 2 weeks.
Sorry you're not getting much response, but Even future readers will benefit from reading your experience here.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: swiss on April 07, 2019, 08:10:44 PM
This is really important. Thank you for posting this. I am considering exision and grafting in the future. How much would it have run you without insurance?

swiss
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 08, 2019, 12:49:27 AM
So far all I paid was my deductible of $300..hopefully my insurance came to their senses, because I was told $3700 by the dr office, down from $16k after Dr Yafi intervened.  That was just the facility fee however as I was covered for everything but the facility
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: swiss on April 08, 2019, 09:40:50 AM
I am going to definitely consider this in the next few months to correct my deformity/ hinge. Mine is near the base so stretching the scar has proven difficult though there has been some progress the last year.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 08, 2019, 01:14:48 PM
Swiss, pm me your location.  If you are in my area I highly recommend Dr Yafi
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 08, 2019, 03:14:54 PM
Dr Wachs just called to see how I'm doing.  Wants to see me on Thursday.  I don't think I can equate how nice it is to get a random call from a urologist that genuinely wants to make sure I'm doing OK.  Like I've said, dr Yafi is the specialist, and is a very busy doctor, but Dr Wachs is way more personable and caring.  I feel lucky to have both involved in my care.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on April 09, 2019, 02:21:19 PM
TDix, you're an inspiration! I'm scheduled for my surgery May 10th with Dr David Peters of Stonybrook Hospital, he seems very confident that I will 1. Straight 2. No length loss.  I am anxious and scared SH&tless at the same time..  please keep posting your results I would love to know what I can really expect!!! 
Thank you
Juice
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 09, 2019, 02:26:38 PM
2 week mark.  Still painful erections at night, mainly at the base.  Notice that when I am getting them however I am not expanding.  I get hard, but do not "grow".  Concerned I called the office, who calmed me by saying this is normal.  I am still very early in the healing process.  Have two dr visits in the next few days so I will post how those go.  This is not a race but a marathon it seems!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 09, 2019, 02:33:22 PM
Glad I can help Juice.  Many days I feel like walking away from the forum because I feel I'm talking about some very personal stuff to a few people on a worldwide stage, but when I get posts like yours it makes me want to stay and help guys like you out there.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on April 09, 2019, 02:45:49 PM
I agree Tdix-it's a marathon.  I expect you'll have lost no size due to grafting/excision rather than just plication.  Stay positive and keep us posted! 🌝
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 10, 2019, 01:32:25 AM
I am getting the operation notes mailed to me.  Be interesting to see what they did
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on April 11, 2019, 09:50:10 AM
TDix - how did you originally hear of Dr. Yafi? Was that an insurance referral or some other way?

Thanks for your excellent account of this experience, by the way. I'm one of the users who does more reading than posting.  ;)
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 11, 2019, 12:25:39 PM
I was referred to him by my urologist dr Wachs after my complications from Xiaflex
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 11, 2019, 03:26:48 PM
Saw Dr Wachs today.  Said everything looks really good and professionally done.  Said my swelling is normal, and all my concerns are normal.  Said I already look straight even through the swelling.  My suture line is healing really well, and said they did a really good job compared to some other's he's seen.  Prescribed me some more pain meds to handle the nocturnal erection pain, and said to hang in there for the next month or so till the swelling goes down enough to have a true erection.  Right now there is so much swelling the blood cannot fully engorge everything and the back pressure is what causes my pain.  Found out they used a tutoplast graft on me as well
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 15, 2019, 12:57:48 PM
Visited with Dr Yafi today.  All things look good.  The pain at the base is the result of a hematoma, but other than that I am healing very nicely.  Dr said I was 50 degrees prior to surgery and am now under 5 degrees.  Won't be able to truly see until my hematoma and swelling go away
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 18, 2019, 03:33:52 PM
Every day that goes by things get better.  Hematoma is getting smaller and less painful, and swelling is slowly going down.  Waiting game now to see what I truly look like post surgery.  Dr Yafi will see me again on May 9th after he returns from Europe
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on April 19, 2019, 04:36:32 PM
So... How are your erections coming along? Did he prescribed you cialis or Viagra to help at this point?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 19, 2019, 04:50:13 PM
Erections are strong but still swollen, so not really expanding much.  Dr Yafi is holding off on Cialis right now since I get quite a few at night.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 21, 2019, 02:41:25 PM
Finally able to start modeling...straight as an arrow!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 23, 2019, 02:10:21 AM
Doing daily modeling now.  Hematoma pretty much gone and pain has decreased substantially.  Working towards getting me back to semi normal!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on April 23, 2019, 08:35:35 AM
Excellent news TDix. Please continue to keep us posted.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on April 23, 2019, 04:40:40 PM
What instructions did Dr Yafi give for modeling post surgery?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 23, 2019, 04:49:32 PM
I see him on May 9th.  I am just doing light stretching at the moment twice a day
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 26, 2019, 02:35:50 PM
Got my explanation of benefits yesterday from Anthem.  Procedure ran $48k😳, and was denied due to being at UCI.  Dr Yafi had quoted $3900 so I am crossing my fingers. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 27, 2019, 02:37:38 PM
Swelling continues to go away.  Almost getting back to looking normal.  Soreness at graft site and still numb at glans but improving slowly everyday
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 27, 2019, 04:10:29 PM
Guess I can say I have a $50k penis now😂.  Maybe I should insure it!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 30, 2019, 03:04:14 PM
My stretched length is now back to where it was pre surgery.  Continuing manual light stretching daily.  Overall i'm Still .5 inch shorter than I was pre peyronie's but I'm happy to be back to my length before surgery, and I'm straight now too
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on April 30, 2019, 03:47:41 PM
Great news!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on April 30, 2019, 04:47:59 PM
Thanks Tony.  I was worried since I had a swollen nub a full inch shorter for 4 weeks, but things have calmed down and pretty much returned to normal.  Nice not to feel a bunch of plaque like before
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 01, 2019, 03:38:11 AM
Again, and I know I say it a lot, I want to thank this community and forum, especially those that comment.  Internet searches are few and far between for not only peyronie's but the procedure I went through and you guys are the gold standard for information.  I hope I contribute a little something to anyone considering what I've done.  Like I've said before I am open to answering any questions and am more than willing to help anyone who wants some answers
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 01, 2019, 04:09:42 AM
That being said, if you are a "guest" on this site I strongly suggest you join in.  Lurking does not help us as a whole.  Like I've said this forum's discussions go more into detail than any internet urology site.  If you need help and want answers join in.  It's anonymous and you join a dedicated group of guys looking to fix their condition
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 04, 2019, 02:43:36 PM
Showed my wife my progress last night.  She said "it's crazy how much that things been through in a year!"  It's true!  Shots, bruising, swelling, pain, hematomas, vein rupture/fracture, surgery....been a rough year for my lil guy
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 08, 2019, 03:30:22 AM
One day until I see Dr Yafi again.  Things are progressing good, just concerned about the solidness of the base of my penis.  I understand that it's only been 6 weeks, but I'm still interested to hear what's going on with my body.  Might still be remnants of a hematoma.  Lots of questions!  Hope I can get some answers
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on May 09, 2019, 08:02:01 AM
Let us know what you find out TDix. Always interesting to find out the Doctor's appraisal of your progress and issues.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 09, 2019, 02:09:29 PM
Dr Yafi said everything is normal and looking good.  Had a Brazilian dr with him this time, and cleared me for sex as well as prescribed me Cialis.  Said the swelling at the base is a lot better than it was a few weeks ago and should slowly go away.  Numbness may take up to 6 months to go away.  Length is slowly returning and I should get more back the more things continue to calm down
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 09, 2019, 02:54:07 PM
Operation notes if anyone's interested
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on May 09, 2019, 04:36:07 PM
Very interesting to read, thanks for sharing the notes!  The self adhering graft is very interesting.  My sutures took over 6. months to go away so I was wondering why not use the self adhesive more often.  But, I also had an implant had to cycle early during the healing process, so it may not have held.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on May 09, 2019, 09:33:50 PM
Glad to hear everything is going well Tdix
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 18, 2019, 04:12:13 PM
Had a few sessions with the wife.  Not able to complete, and actually lose my erection due to the numbness.  Waiting for my cialis prescription to see if it helps me.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on May 19, 2019, 06:19:42 AM
Your erection problem could be mental more than physical. May take awhile to regain focus and confidence. Probably worried more about damaging the surgery. Cialis may help you get by until then. This is probably why many leave the forum when they get better. You just want to forget Peyrones
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: MarkDS on May 19, 2019, 11:27:19 AM
I've got a swollen ring around the base of my penis, following incision and grafting 10 days ago.  Other swelling has gone down significantly, but this area still remains painful
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 19, 2019, 01:03:09 PM
I had the same and still have a little remnant of it.  Dr said it was a hematoma from the surgery
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 20, 2019, 03:31:38 AM
I wish I could say it was mental.  I was actually excited to be numb for a bit thinking it would help my PE issues.  If I didn't lose my erections I would be happy to last and satisfy.  Ain't it a b*tch how life likes to say "nope"
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on May 20, 2019, 04:12:58 AM
Can take a good long time to recover from any kind of Surgery. I have had 5 different types of Surgery. Recovery time varied. 4 months to a year
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 20, 2019, 04:22:05 AM
I hear ya bubba.  You get excited thinking surgery fixed everything and then realize....oops you're not there yet
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on May 20, 2019, 04:28:22 AM
Ya you recover in stages. Complete recovery takes awhile. Surprised me how long it took after my first Surgery. Still doesn't look normal---I kept saying to myself back then. Your numbness will most likely just slowly fade away. I am not patient either man. especially when it comes to having sex lol
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 20, 2019, 04:29:46 AM
Me neither!  I was ready to get it on, but my body said hold on there bud
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 22, 2019, 02:04:19 AM
No real news at the moment.  Letting things continue to heal.  Getting my Cialis scrip tomorrow, so will let you know how that helps
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 22, 2019, 03:27:54 PM
Just got my Cialis....chocolate flavored lozenges.  Interesting
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 22, 2019, 04:01:17 PM
They taste horrible btw
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on May 22, 2019, 06:50:39 PM
If there to be dissolved under the tongue they may be more fast acting.  But if that's not an issue, seems like one could just swallow it...
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 22, 2019, 08:33:12 PM
That's what I thought but it says not to
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on May 22, 2019, 11:16:13 PM
Oh, maybe check w a pharmacist then.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on May 23, 2019, 04:39:57 AM
Yea let us know how it goes. Weird chocolate flavored lozenges that taste bad
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 28, 2019, 02:46:28 PM
9 weeks post op.  Still sore at site of graft, and still numb.  Progress is slow at this point.  Just continuing to heal and taking it easy
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 03, 2019, 06:54:31 PM
Cialis has seemed to help bring a little more length back.  Haven't been able to take it for a run yet with the wife.  Graft site soreness and hardness at base is still normal at this stage according to Dr Yafi.  Takes awhile for everything to return  to "normal"
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on June 03, 2019, 09:30:46 PM
Hey Tdix! Somewhat curious here.  Did your doctor recommend traction or hand stretches to you post op?  I remember it was somewhat popular with Dr kuehas,  back when he was very recommended  here on the board
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 03, 2019, 09:36:52 PM
He said it was up to me but not necessary.  I have held off a bit due to the soreness at the graft site and hardness in base
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 04, 2019, 04:18:21 AM
Is this journal of mine helping anyone?  I hope so.  I'm running out of things to say but will continue to post.  I won't disappear, as I know the information online is few and far between.  I ask Dr Yafi a lot of things because nothing is online and I hope what I post will help you guys. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 04, 2019, 01:55:27 PM
Just found out my insurance covered everything.  I don't know what dr Yafi did, but all I had to pay was my $300 deductible! Whew
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on June 05, 2019, 02:58:32 PM
Great news and will be reassuring to many who read your posts now and in the future!  Thanks for updating us.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on June 07, 2019, 07:16:11 AM
These journals always help TDix. Thanks for taking the time to post. You may not have as many "daily incidents" as you continue to heal but all of this content is valuable.

Please keep us "posted" (ha).
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 07, 2019, 03:52:22 PM
Thanks guys.  It's amazing how little info is out there for our condition.  Sometimes I've thought I should have documented with pictures, but that is just a little too personal to throw out to the world.  My little guy has gone from normal to disfigured, swollen, puffed up like an eggplant, to "different".  I'm slowly getting back to normal, but it's a long process after surgery
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 08, 2019, 02:21:12 AM
So my wife is an occupational therapist, and has been dealing with a rotator cuff issue.  She went for physical therapy, and in talking with the therapist my situation came up. Immediately she said"oh he has peyronie's, I have a lot of clients with that".  She strongly suggested I go see her to have pelvic floor therapy.  Will keep you updated
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 11, 2019, 02:24:30 AM
Was able to be with the wife this morning.  3 times since clearance.  First two weren't that great as I wasn't on Cialis and would lose my erection due to my numbness.  Today was the first time while on Cialis.  It did help, and I was able to "finish", but the numbness still causes issues.  I never really know if I'm in or out as I can't really feel.  I thought it would be a bonus as I have had PE issues, but not knowing if you are even inside is kind of a bummer.  I know, baby steps.  Also, afterwards I was very sore.  We were not rough by any means....I mean, we know rough (ha), and we were very gentle.  Also had a stinging sensation in my urethra, which I have read is a side effect of antidepressants, which I am on.  I'm not complaining, as I was able to be with my wife, just sharing what I am going through 12 weeks post op.  It's gonna be a long road guys.  Also, can only really get a good penetration from behind.  Any other position I have no idea if I'm in or out
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 11, 2019, 03:51:43 AM
(//)😳
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on June 11, 2019, 04:20:32 AM
You may want to read up on Peripheral Nephropathy. I have it sometimes in my nose and upper lip due to a blow from a crow bar. I was trying to pry something and it slipped and popped me at the base of my nose. So many nerves in that area.  I can't find any good treatment for PN. Has many different causes. Not saying that is it. Just a possibility
Glad you can get back in the sex game. That is good news
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 11, 2019, 04:29:44 AM
Thanks bubba, I will wait out the 6-12 month period Dr Yafi said it could take for my feeling to come back.  If it is still an issue then I will pursue a solution.  I am not going to let this condition Win
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 12, 2019, 02:37:30 AM
The pain from yesterday has gone away.  Learning as much as you guys are how healing from reconstructive surgery goes
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on June 12, 2019, 09:44:49 AM
TDix - Question for you. When you were selecting a surgeon, did you consider Dr. Gelman? Think he may work at the same center as Dr. Yafi.

Just curious. I think Gelman does both grafting and plication.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 12, 2019, 02:10:52 PM
I did but he does not take my insurance
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on June 13, 2019, 08:07:18 AM
OK thanks. Just like Dr. Yafi, Gelman also seems to be very good. Have seen multiple positive results here on the forum.

That facility (UC Irvine Urology) appears to have quite a urology talent pool. Worth a look for anyone considering grafting or plication.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 13, 2019, 02:31:00 PM
I agree, UCI has a specialist for every urological condition
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 13, 2019, 03:17:54 PM
I did bring Gelman up to my urologist, and he said, just his opinion, that he didn't like his bedside manner anddidn't like that he doesn't take most insurance.  He did say that if you have anything wrong with your urethra Gelman is the man to see.  He was who recommended Dr Yafi.  Told me Dr Yafi is young and takes a very modern approach to Andrology.  Funny side note, he also told me Gelman is a black belt in karate
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on June 14, 2019, 07:05:30 AM
Thanks TDix. Interesting info about Gelman. I've had one appointment with him and agree that his patient manners are not the best. He sometimes comes across as condescending. This has been noted by other members.

In contrast, Franklin Kuehhas has excellent patient manners. He performed a grafting surgery on me in June 2016. That surgery flopped.

Point being - those excellent manners don't mean anything after a surgical failure. It is a terrible (and expensive) disappointment and all the good manners in the world don't lessen that disappointment.

This is not a new idea - it has been covered in other threads in the forum. I'd take a surgeon with less favorable manners and a higher degree of surgical skill and experience any day.

Gelman apparently has an impressive record of positive surgical results. Maybe he is a case of what Dizzy Dean said - "it ain't bragging if you can back it up."
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 14, 2019, 12:53:27 PM
Yeah I understand.  Like I said I did look into Gelman but he does not take my insurance.  I was not going to pay for my surgery out of pocket, especially seeing how much it cost with Dr Yafi
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 14, 2019, 11:57:36 PM
Dr Yafi sent a script for pelvic floor therapy at the suggestion of my wife.  Will update how that goes
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 14, 2019, 11:59:56 PM
Also was able to be with her again last night.  Did not finish but had a very nice experience.  No soreness today so that is viewed in my book as positive
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 15, 2019, 05:38:10 PM
Closeness with my wife is getting stronger.  Early on with this condition we tended to stay away from sex as we didn't want to do more damage, and she was scared of hurting me and I was scared of causing more damage.  Now, 3 months post op, we have grown closer as my length returns and the pain slowly gets less and less.  We've been closer the last few weeks than we have been in over a year.  She understands that it's not going to be perfect, and I may not finish, but we are in this journey together
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 19, 2019, 02:57:28 AM
Feeling more and more "normal".  As things relax I am back to an acceptable length and am able to enjoy being with my wife again.  As much as I dreaded surgery, I can say that it was a good decision for me.  Not only that, I am happy that I got connected with Dr Yafi.  I truly feel I am in a specialists hands as opposed to simply a urologist.  Like I've said there is less and less things to post but I will continue to contribute here.  I have become obsessed with this place and feel I need to help as many as I can, so don't hesitate to reach out.  I probably visit this site more than any other on a daily basis!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on June 19, 2019, 06:19:21 AM
Glad to see its working out for you TDix! Gives a lot of hope to others. Just to not give up. One thing might not work for you but other treatments can work
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 21, 2019, 07:42:53 PM
3 month update.....still get sore after sex, but it goes away.  While I am straight,  I am not like an arrow.  I have a slight bulge where the graft is, and bend a little where the plication happened.  Nothing serious, but I look a little like a slightly curved road😂.  Dr Yafi says this is normal and will take a few more months to stabilize.  Will be starting pelvic floor therapy soon on the advice of my wife.  Not really looking forward to it as I've seen it involves a lot of going up the bum in men.  Will keep you updated
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: MarkDS on June 22, 2019, 02:46:13 AM
Glad things are getting better, and thanks for sharing your journey.

I hope To be in the same position 3 months down the line, but at the moment feel as though I am in a very different place.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: diehardpatriot on June 22, 2019, 10:48:16 AM
I wanna say, although I haven't been replying I have been following this whole thread. I am against surgery as much as possible but agree it can be a good solution for peyronies and am open to it in the future. many many times I have read that it truly takes 6 months to recover from these surgeries. I believe this because I have had penis injuries that have led me to not have a single erection for weeks. I am only 19 years old. A surgery is very traumatic to the body, not to mention the stress of recovery and dealing with pain doesn't help. There was this guy on the forum (can't remember his name, I think it was Kusher but don't remember), who had surgery from dr Kuehhas and coming out of surgery claims to not get a single erection for around 3 months. He was really sad about it. Around 4 months later he came back saying he woke up with an erection and ever since he was okay! These surgeries make our bodies really weird
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: kusher on June 22, 2019, 12:07:18 PM
 Everybody is different. After kuehhas surgery, i did not have good erection for 365 days. But now things are fine. I regained my natural erection through Neov's hand stretching routine, cialis and sport.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on June 22, 2019, 12:38:50 PM
I think there are 2 types of Peryrones. One is injury related and one is age related. Treated differently and recover  differently. A lot of members, in their 50s, can't recall being injured. I was never injured while having an erection. I think stopping having erections would make me worse off
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 22, 2019, 02:06:59 PM
Yeah seeing as my brother also has peyronie's I would say mine is genetic.  I have read somewhere it tends to happen in a lot of Northern Europe men, and seeing as we are of Norwegian descent it may well be the case.  Thank everyone for commenting.  Yeah I will say recovery is happening but slowly.  Every week is a little better, but nothing dramatic
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 29, 2019, 07:18:21 PM
Seeing Dr Yafi Monday to evaluate my progress and answer any questions.  Also start pelvic floor therapy on Friday.  Will let you guys know how that goes
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 30, 2019, 01:52:30 PM
Ah the ups and downs of recovery from this surgery.  Tried being with the wife last night and just could not penetrate.  I get erections but sometimes they just aren't rigid enough for sex, even with me being on Cialis.  Really bummed me out, as I cherish the times I am able to have sex.  I am still numb, so when we are able to have sex I still need to be in a position where I can see if I'm in or not.  Will bring all this up to Dr Yafi tomorrow
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 01, 2019, 05:49:34 PM
All OK according to Yafi.  Recovery can take up to a year, and at this stage I am on track.  My erections will slowly get stronger as the nerves continue to recover.  Found out the graft was placed on top and not the side.  Told me I had a lot of hardened scar tissue, which is why recovery for me will be a little longer.  I was worried it was new scar tissue, and come to find out it's my graft
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: 2Oldfords on July 01, 2019, 06:15:23 PM
   Tdix, please don't stop updating. I follow the progress from everyone to compare my outcome.
I have very mild numbness but there is a spot around the stich line from de-gloving that is still a little sore. I'm not sure if I can get hard enough for sex now as I quit trying. I think I'm going to try again and see. Can't hurt, I would like to think 7.5 months into it time has helped.
   Hang in there.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 01, 2019, 07:36:30 PM
I will definitely keep updating.  2oldfords, do you think you are possibly dealing with the same issue or is your dr positive it's new plaque? 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on July 01, 2019, 10:16:03 PM
It sucks you are still not there. Hang tight tdix!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 02, 2019, 12:27:40 AM
He also mentioned I could start traction if I wanted, but it was up to me.  Gave me a pamphlet for Restorex.  I thought he was going to prescribe me one!  Haha.  Maybe I'll ask if he can
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on July 02, 2019, 01:31:04 AM
 It would be very cool to have you on board as well!  Join in :D
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 02, 2019, 01:54:55 AM
Not sure if I would need a restorex now as I'm no longer curved, although the one hour a day thing is appealing...maybe I can get that half inch back
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on July 02, 2019, 04:02:43 AM
It's not just for the curve! Length is also one of the things this device addresses!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 02, 2019, 04:05:59 AM
Very tempting pfract, just need to find $500
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 02, 2019, 04:20:16 AM
Although $500 to gain 1/2 an inch to 1 inch would be a drop in the bucket for a guy right?  I just want to be as close as back to normal as possible.  I might just do it bro as I has a flex spending account set aside for medical.  I'd be reimbursed
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on July 02, 2019, 05:37:21 AM
Omg, I would be upset if I went through Surgery and the doctor mentioned still having to do Traction or any other type treatment for that matter. Gotta keep a positive attitude but dayum that sucks
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Bubba dawg on July 02, 2019, 06:48:59 AM
Well come to think of it it is similar to my xiaflex treatment. Go through all those injections and still not perfectly straight.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on July 02, 2019, 03:12:13 PM
If money is an issue: The ESL 40 is only about $39 and w the strap can be worn hours at a time.  VED 20" a day should also help w restoring length.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: 2Oldfords on July 03, 2019, 08:37:49 AM
   TDix, When I saw my Dr. 6/4/19 he said the reason I wasn't recovering from excision/grafting like I thought I should be was that peyronies was working on the shaft. No bend but hour-glassing this time just past the grafting. I'm not so sure. I think its possible that since my grafting was so extensive it is just taking more time to heal. I say that because I don't think the hour-glass shape is as severe as it was. That might be wishful thinking on my part.
    To tell the truth I'm about over it, I have worried about this crap for a long time, now my Insurance has denied me having the IPP. I freaked when The Dr. told me that an IPP was my last option. I fought with the whole idea and finally came to grips with the fact the prior surgery failed and now I would have an implant. I could rationalize that it would be ok, that would be the end of it and I could get on with my life as normal as possible. Now my life is on hold again. Wait and see.
    One of the things this forum helps with is that we are not alone dealing with this disease. Most people take longer to heal than we are lead to believe. This physical healing can take more than a year. Its not fully healed just when you are given the go to have sex. I think the reason Dr.'s tell you to go ahead and have sex is part of the healing is mental. The mental part of this disease may be worse than the physical part.
    No matter what happens in this fight it helps so much just to have others respond with encouragement and other thought perspectives. Hang in there TDix and have patience healing takes time.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 03, 2019, 01:53:38 PM
I don't think it's wishful thinking man, you are healing, albeit slowly.  I am as well.  I look forward to the day I can post that I am fully healed
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on July 03, 2019, 04:45:31 PM
I am glad you corrected yourself just as I was about to step in Bubba dawg. You have yourself a good day.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 05, 2019, 04:22:29 PM
Had my first therapy session for my pelvic floor.  Found out that my muscles on the right side of the pelvic floor are extremely tight and tense, or spasmodic.  Worked on releasing the tension, and will need a few more sessions, but she feels this will help with my numbness and pain.  Nothing like having a female moving her finger around your butt, but at this point it doesn't bother me.  I just want to do all I can to heal
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 08, 2019, 03:41:48 AM
So quick question...are cock rings ok post surgery?  I'd ask Dr Yafi but it takes a few days to get a response
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 08, 2019, 03:45:34 AM
I tried it last night and was happy that it got me harder, but still being numb I was worried that it may have been too tight.  Wife liked it though!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on July 08, 2019, 09:09:40 AM
No idea here. Never used one.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 08, 2019, 05:48:10 PM
Took the plunge and posted pics of my current state 3 1/2 months post surgery
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 19, 2019, 05:35:40 PM
My pelvic floor therapy is helping a lot with my soreness.  After three sessions it is pretty much gone.  It pops up from time to time but it's no longer constant
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on July 31, 2019, 04:28:25 AM
Nothing really new to report.  Erections still aren't great, but am able to have sex.  Asked Dr Yafi about this and will see what he says.  Graft soreness after sex, but it goes away after a day or so.  Still a bulge on the side of my shaft when erect as well, so waiting to hear about that as well.  Other than that, 4 months after surgery, I'm just waiting to get back to no soreness, a straight and firm erection, and somewhat back to normal
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on August 01, 2019, 06:29:19 AM
Thanks for the update TDix. Please let us know Dr. Yafi's comments.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on August 15, 2019, 07:50:08 PM
Haven't heard back from Yafi yet, I think he's out of the country for a conference, but my latest update is that I am no longer sore like I was constantly up until I started therapy.  Erections still aren't as strong as they were, and the remaining scar tissue is bothersome but tolerable.  You can check my thread of pics out if you want to see my current state 5 months post op.  Like others have said, this type of surgery does take a LONG time to heal from, so I am hopeful my erections will return to being firm.  Still some numbness as well but I don't mind that too much as I used to suffer from PE, and the numbness helps a lot
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on August 17, 2019, 01:51:33 AM
Also have been doing pelvic floor therapy.  I have a thread about it.  Removed all my pain and soreness.  She is now focusing on my remaining scar tissue.  A very underutilized form of therapy for peyronie's according to my therapist.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on August 19, 2019, 07:09:01 PM
It's a little weird to not have any pain or soreness now.  I almost got used to it.  I mean that's a great thing right?  Just have to ride it out until fully healed and I'd say my surgery was a complete success.  I'd be interested to hear others who have had successful grafting surgery, but it appears those that have probably leave the forum.  I'm here for the long haul guys.  Anything I can do to help others is my MO.  Don't hesitate to ask me anything, I'm an open book
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Alibaba on August 19, 2019, 10:42:27 PM
Healing down there takes weeks, then months, then wow and you ask yourself when did everything become suddenly well? Great new. Cheers
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on August 22, 2019, 10:00:23 AM
TDix - what amount of time passed between your Xiaflex treatments and your surgery?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on August 22, 2019, 10:44:54 AM
I had to wait 6 months before surgery
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on August 27, 2019, 09:28:47 PM
So decided to measure myself, and stretched flaccid I'm back to 6.5 inches....I can't believe I'm back to that length 5 months post surgery.  Honestly I was probably longer when I was younger, but never measured, but that was a surprise to be back to where I was pre surgery and pre peyronie's
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 02, 2019, 02:13:20 AM
I guess success doesn't equate to conversation.  Now if I had another disaster I'm sure the conversation would be ongoing?  Not sure, but thanks to anyone who has followed.  Peace out
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: MarkDS on September 08, 2019, 05:29:49 AM
So glad that everything has worked out so well for you.  That you the positive updates.

I'll let you know if I have any success with pelvic floor therapy.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 08, 2019, 08:56:47 AM
Hello everyone, I've been reading everyone's experiences and figured I would drop in and share, on May 10th 2019 I went to a Dr David Peters NY for an Excision and Grafting procedure for Peyronies 16-18 months after being diagnosed, I would say it was closer to the years because of my delay (embarrassment) and some Drs mis diagnosing the issue (was told it's fatty tissues that's normal). Anyway fast foward to May-  I am diagnosed with two severe mid shaft indentations of Peyronies plaque which were calcified a 80 degree ventral curve (mid shaft) also a curve to the right 40 degree (top shaft just under the glands) they called it a serpent bend. The procedure was about 4-5hrs, the top curve was treated with the Plication method  the indentation and calcified plaque with excision and grafting. Ok. The surgery the Dr was very happy with. Honestly I also had hope the nightmare was behind me. So here we are today I can say I'm still encouraged but have hit a snag. I no longer have serpent bend so from that point very happy. However the ventral curve did  reappear to a 60 degree curve and slight waisting. The top curve is gone.   I have been desperately using restorex traction and VED to lessen the curve but so far, no luck. At the Plication site I can feel the knots and the waisting area is the area of the graft I can feel the graft (almost feels like the plaque)  the Dr is suggesting a 16 dot Plication straighten out the curve and I should be close to perfect.  My worries because I feel the knots of the one Plication (top) will I feel the same on the top!  Everyone on this site will understand the damage this causes physiologically. I and about an 1 1/2 shorten than I was when I started this nightmare, now lumps bumps and more shortening to come!  I was dead against implants because no matter the severity I always got great erections and thought if they could just straighten me out.  Does anyone know about this 16 for Plication method? How noticeable will all these bumps feel?  If I end up with an implant can all this other stuff be undone since the implant will help with straightening?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 01:25:14 PM
Juice what type of graft was used?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 08, 2019, 02:05:06 PM
Tutoplast.   He told me eventually it will become the tunica,  I didn't ask if it would ever regain its elasticity...
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 02:15:40 PM
So I think a tutoplast is the same as a tachosil graft.  It shouldn't shrink or tighten up.  Give it some time and it should relax.  I lost length up to 4 months after surgery and then it just relaxed.  I'm back to pre surgery and pre peyronie's length now
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 08, 2019, 03:09:05 PM
That's encouraging thank you!!   Did you get a curve during those months?  I hooked over terribly , where the Dr is saying we may need the Plication surgery 16 dot..   you can understand the fear in me right now.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 03:50:29 PM
No but I still have what I would describe as a bulge on the left side of my shaft.  I'm straight but with that bulge it looks a little funky.  Doctor said that would resolve over time
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 08, 2019, 04:05:34 PM
90% of the residual issues after a Grafting surgery (hooks, shortening) are because the surgeon didn't induce erection maximize size before making his marks (I've read and believe) and even though my dr swears he did and shown me pictures of the erection after surgery but the residual curve now is about 60 degrees.   I would get the Plication but I am worried about the knots from the Plication itself. Any thoughts?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 04:30:00 PM
Juice, seeing as you are in NY, have you considered a consult with Dr Eid? 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 04:37:00 PM
I would wait for things to calm down from your grafting surgery before jumping into another surgery.  You are only 4 months post op.  I am almost 6 and am still healing.  I couldn't imagine another surgery right now
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 08, 2019, 06:13:42 PM
You're right, I'm absolutely desperate to find some normalcy it's been such a brutal two years I realize we're in the same boat and value the opinions from this site and the good men on it.   That you again..  I have another follow up appointment in October and I'm using the restorex and VED religiously so maybe some luck will come my way...
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 08, 2019, 08:04:59 PM
It's not a sprint but a marathon.  I know you want it fixed yesterday, but having gone through a pretty major surgery, I'd let things settle down first before making another move.  Just my opinion
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on September 09, 2019, 09:19:22 AM
Exactly TDix. Everyone wants their issue fixed yesterday and unfortunately that sometimes leads to bad (rushed) decisions. I'm in that camp.

Juice I know you are going through a bad time but with this affliction sometimes the best thing to do is wait. The waiting sucks - believe me I know that - but it is still the best decision in many cases.

Glad to hear of your positive result TDix. Good news.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 09, 2019, 05:37:40 PM
I would also look into pelvic floor therapy.  Did a lot of good for me
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 09, 2019, 05:40:13 PM
Fellas Thank you, the advice is golden and appreciated, I know you're 100% right and I won't jump into anything, and I honestly can't stand the thought of another surgery. As I'm sure you all know desperation has brought me to the edge of my sanity and almost beaten me into submission, so believe me when I say I appreciate all the positive thoughts and good advice. I will keep you updated with the next follow up.
Thank you
John
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 09, 2019, 05:41:38 PM
What exactly is a pelvic floor therapy???
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 09, 2019, 06:16:38 PM
I have a thread on it, but it involves massaging the muscles of the pelvic floor to release tension and pain.  A lot of the pelvic muscles connect to the penis.  It involves a lot of internal work (up the bum), but trust me it will resolve a lot of pain and sorenesss
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 18, 2019, 12:04:36 AM
Still here guys.  Seem to have regained my sensitivity, no more numbness.  Still some soreness where the remaining plaque is, and my erections still aren't as strong as they were but making slow progress
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 24, 2019, 06:34:46 PM
Dr Yafi replied to my concerns.  Deformities from surgery can take up to a year to normalize, and I should have been on daily Cialis the whole time.  I only got a 3 month prescription so I've been off of it for 3 months.  Will get back on it daily and see how it helps
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 24, 2019, 06:38:42 PM
Double post
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on September 25, 2019, 08:42:04 AM
Glad to hear of your progress Tdix. Again the observation holds - a marathon, not a sprint. Hopefully your condition will continue to improve over time.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 25, 2019, 09:22:10 AM
Question: I had the excision and grafting surgery on May 10th since then I have developed a ventral curve about 45 degrees the Dr said that it's from the graft. Naturally being someone obsessed with finding reasons and answers I looked into this. I've read that somewhere between 80 and 88% of residual curves after surgery is due to the surgeon not fully inducing a full erection and there by placing a smaller graft in.. my Dr said not the case. However there is a serious enough curve and some waisting right at the graft area.   So the question I have that if the graft starts to soften around a year would it be reasonable to believe that the curve with gradually return to normal as well?   The Dr said we may have to do a Plication somewhere down the road, would that help with the waisting?
Any thoughts??
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 25, 2019, 02:53:53 PM
Dr Yafi induced an erection after the graft placement and noticed I still had a slight curve so he did 2 stitches of plication right then and there.  My surgery notes I believe are on page 2 of this thread.  I was deemed straight after surgery, and I am still straight now.  I would ask your doctor why he didn't plicate during the surgery if you were not straight after the graft placement
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on September 25, 2019, 06:44:33 PM
He showed me a picture and it was straight, however I think if it wasn't  erect at its full capacity when it does go the curve will appear.  I may be reaching or even looking for blame but it's still something I think of.   The second question will the graft soften enough to help straighten out..
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on September 25, 2019, 07:24:26 PM
Well you are still only 4 months post op.  That was when I started seeing my length return.  I would give it a couple more months as hard as that sounds to see if it relaxes.  I also did pelvic floor therapy, which I truly believe helped as it relaxed all the muscles of my pelvic floor, which are all muscles connected to the base of your penis
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 06, 2019, 03:08:43 PM
About to get back on Cialis.  No more chocolate though😂.  Erections have gotten stronger to where I can do more positions with the wife which is nice.  Still dealing with a slight bulge on the side but it doesn't hinder sex at all.  Still use a ring, so hopefully the Cialis will get rid of that. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 11, 2019, 02:40:46 PM
Orange/mint lozenges MUCH better than chocolate
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 11, 2019, 03:06:01 PM
5 month post surgery.. using restorex religiously and finally seeing results. Length is back almost to pre Peyronies Disease (was told never getting 100%back but...) still battling a ventral curve tho. I believe it's getting better slowly but better none the less.  I still have waisting where the graft is and it still is hard.  I've been searching for anyone who had this but further down the road.  Will this get softer? I believe that the hardness is what's creating the curve and the waisting im afraid will create a hinge affect.    Anybody any thoughts?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 11, 2019, 03:09:22 PM
Can take up to a year.  I am now at 7 months and still not 100%, but it's slowly getting better every month.  Hang in there.  Did you have partial excision?  I still have some scar tissue so maybe that is what you are feeling and not the graft?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 11, 2019, 03:40:21 PM
Yes the Dr removed a bunch of plaque but he said he left a little because he was worried about the size of the patch being too big.  I think it's the graft because while using the restorex I can massage and it feels as if I can smooth it out. The problem I think I'm having is, a lot of the plaque was under the urethra and that right where the curve is can really massage it out.  I'm using the restorex for 90 minutes a day hoping it will stretch it out.   I'm just praying it soften up.   The Dr said that if worse comes to worse he can do a Plication to straighten him out but the thought of another surgery 😬
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 11, 2019, 03:56:13 PM
I had the option to use restorex per dr  Yafi but my length returned naturally so I chose not to go that route.  I believe your graft will soften over time, but not sure since you are doing traction which will constantly stretch it.  I chose to leave mine alone to heal on its own so I'm interested to see how yours ends up.  Good luck man
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 11, 2019, 04:14:44 PM
I will keep you updated.  I have my fingers crossed.  I'm hoping the graft softening will help with the waistline too. I use a VED as well in hope that will speed up the process as well.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 24, 2019, 04:22:28 PM
Current update, nothing really new to report.  8 months on I am still straight.  I have gotten all my length back.  I still have a slight bulge on the side, which I hope resolves, and await my visit with Dr Yafi in December to discuss that.  It still reminds me, as does the remaining scar tissue, that I'm still "disfigured" from this condition.  It has become my new normal.  Regardless of what you do (Xiaflex, traction, VED, surgery, implant) the end result is still that this condition has disfigured you.  It is how you react and what you do that determines the outcome, as well as the realization that you will never be what you were.  I'm happy with what I've done, despite the Xiaflex setback, because had I not gone through that I would've never known if it worked or not.  I am happy with where I am and especially happy I connected with Dr Yafi.  If the slight bulge never goes away, that's yet another hurdle I need to overcome.  I won't stop trying to improve my situation.  I hope none of you do as well
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 25, 2019, 07:27:02 AM
That is fabulous news, I am so happy for you. I hope and pray for the same results..  I continue to do the stretching because of the ventral curve that appeared after surgery. I believe it's the graft itself creating this because the slight hourglassing I have is exactly where the graft is and is the weak spot, I've read in some post the "wobble spot". I also regained a lot of length back and the girth above and below the graft is fantastic, it's the graft area I believe is the issue.  I also read in these pages that during surgery if the correct size graft isn't used, well the description of the results are scarily close to what's going on here.  I am optimistic that once the graft softens the strength and hourglassing will stabilize.  I can live with a curve. The Dr suggest that we "may do a Plication to straighten but I read with any hourglassing that would be bad".  Anybody any thoughts?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 27, 2019, 02:29:07 PM
I had excision and grafting surgery May 10th of this year for multiple plaques and a serpent curvature with 2 bad indentations a ventral curve at the midpoint of the shaft and a lateral curve under the gland.  Since the surgery everything is (I'd say) 75% corrected. However I have developed slight hourglassing and another ventral curve right at the grafting site.  I e been using restorex religiously followed by VED it seems to working I've gotten all my length back and good girth above and below the grafting site. After using VED it seems to help however I have a question. Has anyone had this situation?  I was told that over time the graft itself will soften (I can feel the graft is still hard but can be softened with massage. Will the graft soften enough to help the hourglassing and at that site seems a little unstable will that regain some strength. Somewhat solid again? 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 27, 2019, 02:44:15 PM
I have a slight bulge and my dr told me it can take over a year to get somewhat back to normal for some men.  The fact I am still straight and back to pre peyronie's length, as well as able to have sex, I am happy with my decision.  In your case juice I would also hold out hope that things should get better with time.  It is a graft and not scar tissue, so I suspect it will relax over time.  I am not doing traction, or VED however, so I'm not informed enough to know how that will affect your healing
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on October 27, 2019, 02:57:02 PM
I always heard (and the dr suggested) that traction was the way to go and VED will also help with the cause.. have you heard differently? I find it hard to find someone that used it after surgery.  And definitely have not found someone that experienced something similar..
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on October 27, 2019, 04:00:08 PM
My dr was not opposed to it but said it wasn't necessary.  I chose not to risk any further damage by maybe incorrectly doing traction, and I regained all my length regardless.  Not saying you shouldn't do it, as it is a personal choice
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on November 11, 2019, 08:12:52 PM
I was told that the graft will soften over time, (up to a year) question: will the soften help with curvature? Will it maybe help with the waisting (hourglassing)?  I believe or hope that it's the grafting that is causing both.  I backed off the traction simply because restorex states you use it for 12 weeks I've been doing it since May. 
John
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on November 11, 2019, 08:57:43 PM
Hate to ask for pics, but I am seeing Dr Yafi in a few weeks and I can ask.  I don't believe a graft should cause hourglassing and not stretch, but I don't know
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on November 22, 2019, 01:44:12 PM
Not much to report.  Still have a bulge on left side, still straight.  Seeing Dr Yafi in 2 weeks.  Eager to hear what he says almost 9 months post surgery.  Will show him my pics to get advice on any next steps.  With that being said, I think after that visit I will report any advice from Dr Yafi and probably end this thread as I don't think it elicits anymore responses.  I hope this long thread will help at least one person going forward.  If so, I've accomplished what I wanted.  To help others going through the same thing
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on December 05, 2019, 02:51:28 PM
So I've been cleared via Dr Yafi.  Don't really have to see him anymore unless something happens, which he said shouldn't.  The bulge on the side is a result of my grafting, as it wasn't put on really tight to allow for expansion.  Had it been put on tight it could have been restricting and may have affected length.  He did say that the added girth of my bulge should be a benefit, especially to my wife.  Am I back to normal?  Nope, but I'm straight, have added girth, all my length back, and no more pain or numbness.  I would say that is a success.  Dr Yafi should definitely be added to the list of doctors on this forum
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on December 05, 2019, 03:13:19 PM
TDix, that is awesome news Congratulations!!!
It's such a relief to know that someone has fought back and beaten this horrible affliction.  Thank you!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on December 05, 2019, 05:21:49 PM
Thanks Juice, I wish you nothing but success as well.  If you need anything from me (advice, experiences, recommendations) let me know
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on December 05, 2019, 05:43:25 PM
Thank you and absolutely I will!.   I went to the Dr yesterday and he told me I was way ahead of where I should've been considering the operation I had, so that helped a lot.  The grafting area needs to heal on its own now so he instructed me to stop with the traction and ved..  which I already did.   Hopefully the graft will soften and everything else will strengthen naturally.  I have high hopes to join you in the win column!!
Thank you again
John
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on December 05, 2019, 05:58:15 PM
I am sure you will.  We have to be proactive, as you have been.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 30, 2020, 12:24:20 AM
So here I am almost a year after surgery.  I fear I may end up with an implant.  The bulge where my graft was placed seems to have gotten larger during erection, and it causes somewhat of a hinge effect during intercourse, not that I'm having much of it at this point.  Waiting to hear back from Dr Yafi as to my options.  I am still glad I had this surgery.  It regained my length, gave me extra girth, and straightened me out.  This latest development is yet another obstacle to tackle
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on January 30, 2020, 07:36:53 AM
T, I'm sorry to hear this, you and I seem to be starring in the same horror movie. I am a few months apart with the same surgery and unfortunately the same results. I didn't develop a bulge, I developed a hourglass deformity center shaft that created a 45 degree ventral curve again. I don't see my dr again until May, and (like you I'm sure) I have been reading everything in sight and can't see any Rosie future.  Let me ask, do you still have strong erections? Are you taking a 5mg daily dose to help?. The reason I ask is because I do and I have strong natural erections still however being that I feel like quazimoto  what good is it. I am petrified of the idea of having the implant and even more so another surgery.   
You are not alone so stay in touch maybe if one of us hear something it just may help the other stay sane.
John
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on January 30, 2020, 02:13:06 PM
I get erections.  I wouldn't say they are as strong as before surgery, even with Cialis
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 03, 2020, 02:29:54 PM
Scheduling another visit with Dr Yafi to discuss my issues.  Was with my wife over the weekend and even she mentioned how the graft site has gotten larger.  Never in a million years did I think I would possibly need an implant, but I think that will be my next and final journey
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: 2Oldfords on February 03, 2020, 06:37:52 PM
   Juice, I had the same surgery 13 months ago. I now have an hourglass defect. I get natural erections just fine but can't use them to do the deed. My Dr. put in a large graft and I thought given enough time this would heal and go away. I think it is some better but not enough. I will have a implant before it is over.
    Not trying to dash your hopes just being real.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Juice on February 03, 2020, 06:46:53 PM
If the erections are still good (mine are) is it an option for a surgery for the hour glassing (Hinge) and curve?  I am so afraid to think implant yet..  recently singled and mentally destroyed
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 03, 2020, 07:01:39 PM
I'm trying to prepare mentally for the whole implant discussion.  I feel that is all I have left as far as options.  I did all I could, but I feel that will be my next and only option
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: 2Oldfords on February 04, 2020, 07:31:18 PM
   I am resigned that an implant is what will fix this once and for all. With the slight reduction in sensation after the degloving procedure I don't want to take the chance of another surgery making that worse. An implant will not need to mess with those tissues again. I know an implant can be installed badly but with the doctors recommended on this forum I have confidence that that surgery will be fine.
   Best of luck
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 06, 2020, 12:16:56 AM
Dr Yafi contacted me to send a picture for evaluation.  Will see where this goes
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 07, 2020, 06:16:20 PM
Seeing Dr Yafi on Monday.  The quickness at which he wants to see me makes me almost positive I will need an implant.  Now for a weekend of building up the strength to hear that news
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Frank55 on February 08, 2020, 07:48:33 AM
Thanks for these updates TDix. Disappointing to hear after your initial reports of what appeared to be a successful surgery. Please let us know the details of Dr. Yafi's comments.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 09, 2020, 04:15:09 PM
Tomorrow is the day I hear my fate.  I kind of already know what I'm going to hear, and it scares me.  I know a lot of guys here tout implants, and if that is the ultimate recommendation I am building myself up to hear that.  So many emotions in that, as I would be saying goodbye to natural erections.  Yes, mine aren't strong enough, and the hope of getting back to a rock hard erection has faded as the months have gone on, but the finality of making a decision to say goodbye to a natural body reaction is weighing on me.  Never, ever did I think this would fall on my lap at 46.  If that is indeed the outcome tomorrow I will need all of your support in this major life decision of mine.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on February 10, 2020, 12:50:34 AM
I understand the emotions... the fear. We are here for you man.. A few implantees as well. Fear not and good luck!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 10, 2020, 03:05:56 PM
Just got out of Dr Yafi's office.  Had two other doctors with him.  He knew I was anxious, so he spent some time calming me down.  We went over my pictures and all my issues.  He wanted first and foremost to assure me that my surgery was not a failure.  I am straight, I have better girth, and my length returned.  He said all of those things are positive.  The bulge at the graft site is not a blowout of the graft.  I have a defect under the graft that seems to engorge more than the rest of my penis.  Looking at the pictures he said I have a nice erection, but the concern is the rigidity of it.  He wants to try some different options.  He laid all of them out.  I could have a revision surgery, but advised against this as it would more than likely cause nerve damage over an already healed area.  He also said we could try VED, but said a lot of guys do t really like them and some use them incorrectly.  Did not say we wouldn't try that.  What we are going to try, is full dose Viagra first to see if I can get a fully rigid erection with that.  He is also prescribing me a gel that you can put into the tip of the penis to induce an erection as well.  The final option is an implant.  He said it is on the table, but wants to see if any of these other things work.  Said not to rush into an implant decision.  We more than likely will hit that option, but wants to exhaust all others first
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on February 10, 2020, 10:33:02 PM
Now that seemed like a very good appointment to me! Took the time to listen to you, and showed you your options on top of that. Nice! Don't ignore daily cialis for a while as well...  Way better than taking Viagra as needed!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 11, 2020, 04:57:53 AM
Thanks pfract.  Dr Yafi also gave me his personal email (I've been going through the hospital one).  Said I shouldn't need to drive all the way out to his office to get these questions answered.  I'm curious to see how the Viagra works.  I thought me being on Cialis wasn't working, but it appears I am simply on a low dose (7.5mg daily).  Want to see what 100 mg of Viagra does.  Not too excited about putting gel up my urethra, but am willing to try it out.  My wife has already set a day to take it for a test run, so that is also a positive as we haven't been that close. 
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 15, 2020, 03:22:52 PM
Attempted to try out the Viagra last night.  Took 100mg at 8pm on an empty stomach (which was a b*tch at that time of night), but didn't get to do anything until around midnight.  Didn't work.  Think it was too far from when I took it.  Gonna have to plan things out better.  Planning intimacy seems to be harder than I thought
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on February 23, 2020, 05:24:35 PM
Things seem to have calmed down.  Was able to have sex this morning with no Viagra, no Alprostadil, and even no daily Cialis.  I guess I just need to calm down and relax.  I've been throwing the kitchen sink at my issues trying to make things return to "normal", and maybe I just need to relax and let things progress over time.  Didn't even need a ring!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 04, 2020, 06:20:29 PM
Video conference with Dr Yafi this Wednesday.  May be looking at an implant.  My erections haven't gotten better even with Viagra, and I tend to buckle at the graft site.  May be time for a chapter 3 thread in the implant section
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 06, 2020, 03:03:56 PM
Dr wants to try one last option before going with an implant....injections.  Willing to give it a try.  Will report how it goes
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on May 06, 2020, 08:08:58 PM
Hey TDix! Do you still have the energy to go through with the injections? What are your impressions after reading the implant diaries here?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 06, 2020, 10:07:08 PM
I'm pretty set on an implant but open to trying anything prior.  Dr Yafi is concerned that I'm kind of jumping straight to it so I will exhaust all options before jumping in.  I've already done Xiaflex, alprostadil, Cialis, Viagra, and surgery....what's one more?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 17, 2020, 02:41:13 PM
Finally got my dosage right, and can now have sex without a cock ring.  Is this my new normal?  Not sure, but it's nice to have a hard erection again, albeit after an injection
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 30, 2020, 03:39:48 AM
Just as I would say that, turns out that was a one time deal.  I've got increased my dosage and it hasn't done squat since other than make me sore.  Can I just have a f'n implant at this point!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: Pfract on May 30, 2020, 10:51:56 PM
Hang in there TDix! once this covid thing goes away, then go for it!
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on May 30, 2020, 10:57:42 PM
If injections fail, implant is your next option.  Some docs will move right to an implant after pde5i fail.
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on May 31, 2020, 03:15:47 PM
Yeah Tony, that's why I didn't mind trying out the injections.  I wouldn't be able to have the surgery right now anyways
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 17, 2020, 02:20:25 PM
Well it's official guys, I will be getting an implant.  I'll start a new thread logging my journey over in the implant section
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TonySa on June 19, 2020, 08:36:57 PM
Have you decided on a surgeon?
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: TDix on June 19, 2020, 10:38:27 PM
Yup, Dr Yafi
Title: Re: Chapter 2, Excision/Grafting Journey
Post by: mst on July 20, 2020, 08:14:51 PM
Why not dr Gelman from the same UCI Medical Center in Orange County?