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#21
I am in the 9th year of the disease and the last one has gotten much worse, my penis is getting shorter, I no longer have elasticity, it is very tense and retracted with dysfunction. The times I gently stretched my penis with my hand I felt like I was breaking the fibrosis and my symptoms improved but it is always temporary and then it hardens and worsens (only once did I improve an area permanently).
I never used device, I wonder if it works or not, since some sell this for some reason. I'm losing hope.
#22
It would be great.
#23

I have looked around and no there is none that I can find.
#24
But is there a study for peyronies or just in general fibrosis?

I really do not care what it costs, if it stops this nightmare...
#25
Introduce Yourself / Re: Is This Early Peyronies Di...
Last post by LWillisjr - April 20, 2024, 11:37:16 AM
I don't know of anyone having any success with topical creams. Many urologists would recommend vitamin E in a transdermal form, but I have never heard of Xiaflex in a compound cream. And a dent would mean you have something going on in the Tunica tissue (Google it if you don't know) which is too deep for a topical compound to reach.

And unfortunately, there is no way to predict if this will get worse, or just stay the same.
#26
Introduce Yourself / Is This Early Peyronies Diseas...
Last post by Kindafamous - April 20, 2024, 11:02:53 AM
Greetings fellow members..

TH here. Hopefully someone had experienced what I am experiencing and can give me some insight as to why at to expect. A couple months ago (late February) I felt a tiny lump on the right side of my penis up high a little below the head. I have frequent erections during the night I am happy to report for my 67 years of age. At the end of March I happened to take a good look at my erect penis and I could See and FEEL a dent!! .. The dent does NOT travel all the way around the shaft thankfully (yet?), and I have no pain at all, flaccid or erect. My urologist examined me and said for sure there is a small scar tissue spot there. He prescribed a compound cream Verapimil (160mg/GM) to apply twice a day. He does not think it is very serious at this point and said it "might not even progress"....but that sounded like an educated guess to me.

My question: Is this the beginning of a possibly worsening case of Peyronies Disease? Chances are you have seen this exact beginning before? What might I expect from here?
Thanks for your tan time and sorry about the long "question"..
#27
Quote from: pauli on April 19, 2024, 05:33:39 PMhow long do we have to wait until there will be a test with a peyronie patient? what do you think? maybe it is possible to get in touch we the research team?

There is limited info. We do not know if it will be an oral medication or injectable. Regardless it would likely be very expensive. I've searched around and can practically find nothing. They've been studying since at least 2012.
#28
how long do we have to wait until there will be a test with a peyronie patient? what do you think? maybe it is possible to get in touch we the research team?
#29
Hi everyone just a quick update, no real improvement. I take 10mg tadalafil daily just to keep the blood flowing down there but still no improvement. I doubt this could improve now.

Has anyone had success taking tadalafil alongside other things or would that be dangerous?